# Navigating the Waiting Game: Coping with Cancer Test Results By Laura Carfang Waiting for medical test results can feel like living in suspended animation. Time stretches endlessly. Thoughts spiral out of control. You check your phone more often than you realize. You refresh the patient portal, even though you know nothing has changed. Your body remains tense, as if something significant is about to happen. For many impacted by cancer, the waiting can be just as distressing as the diagnosis itself. And sometimes, something unexpected occurs. You prepare yourself for the worst. Let’s talk about why. Preparing for the Worst as a Coping Strategy There’s a psychological concept called defensive pessimism . It describes what happens when someone anticipates a high-stakes outcome—like cancer test results—and mentally assumes the worst on purpose . This isn’t because people want bad news. It’s because certainty, even painful certainty, can feel safer than hope. By imagining the worst-case scenario, the mind tries to: Reduce the shock if bad news arrives. Regain a sense of control. Emotionally “pre-grieve” what might come. For those diagnosed with cancer, waiting on test results and frantically refreshing the screen of your medical portal, this strategy is incredibly common. The challenge? When the results are good, your mind has already rehearsed catastrophe—and relief doesn’t land. When Your Body Thinks Waiting = Danger If you’ve been diagnosed with cancer, your brain has learned something powerful: Waiting for results once changed everything. That memory doesn’t just live in our thoughts; it resides in our nervous system. Psychologists call this anticipatory anxiety or medical PTSD . It means your stress response activates before danger is confirmed. When this happens: Your body stays in fight-or-flight mode. You scan for threats, even after reassurance. Good news feels unreal, fragile, or temporary. You might think: “They must have missed something.” “This can’t be right.” “I’ll believe it when more time passes.” This isn’t disbelief; it’s your brain prioritizing safety over celebration. The Whiplash of Good News There’s also something called cognitive dissonance at play. If you’ve spent days or weeks organizing your life around the assumption that something is seriously wrong, your mind has already adapted. Then suddenly, you’re told: “Everything looks okay.” Your brain needs time to undo what it prepared for. Disbelief is often not denial—it’s lag time between threat and safety. Hypervigilance Is Not Pessimism — It’s Protection Many people feel guilty for not feeling relieved right away. They wonder: “Why can’t I just be happy?” “What’s wrong with me?” “Other people would be grateful—why am I still scared?” Here’s the truth: Hypervigilance is a form of self-protection. Believing good news can feel like lowering your guard—and after a cancer diagnosis, that can feel dangerous. Your mind may be saying: “If I don’t fully trust this, I won’t be crushed if it changes.” How Relief Actually Arrives (Hint: It’s Not All at Once) For many cancer survivors, relief doesn’t come as a wave of joy. It arrives quietly: Sleeping a little better. Taking a deeper breath without realizing it. Thinking about the future for a few seconds longer. Relief often comes in increments, not declarations. You don’t have to force yourself to believe good news fully. You can let it be true for today. Here is a mantra to stay grounded in the present moment: “The results are good right now, and that’s enough.” If you’re struggling to trust good medical news: You are not broken. You are not pessimistic. You are not doing survivorship “wrong.” Your body remembers how real the danger once was. And it is slowly—at its own pace—learning that this moment is different. You don’t have to rush relief. You don’t have to perform gratitude. You don’t have to explain yourself. If this resonates with you, please know: you are not alone in this experience. At SurvivingBreastCancer.org , we believe survivorship includes the emotional aftermath of waiting, fear, and uncertainty. Healing isn’t just about test results; it’s about giving yourself permission to feel exactly where you are. The Importance of Community Support Navigating the emotional landscape of waiting for test results can be overwhelming. It's essential to connect with others who understand your journey. Sharing experiences can lighten the load. Whether through support groups, online forums, or one-on-one conversations, community support can provide comfort and reassurance. Finding Your Tribe Consider reaching out to local organizations or online platforms dedicated to breast cancer support. These communities often host events, workshops, and discussions that can help you feel less isolated. Engaging with others can foster a sense of belonging and understanding. Sharing Your Story If you feel comfortable, share your story. Writing about your experiences can be therapeutic. It allows you to process your feelings and connect with others who may be going through similar challenges. You can submit your story, poetry, or art at SurvivingBreastCancer.org . Self-Care Strategies During the Wait While waiting for results, it's crucial to prioritize self-care. Here are some strategies to help you cope: Practice Mindfulness: Engage in mindfulness exercises. Focus on your breath and the present moment. This can help reduce anxiety and promote relaxation. Stay Active: Physical activity can boost your mood. Even a short walk can help clear your mind and reduce stress. Limit Information Overload: While it’s tempting to research every detail, too much information can increase anxiety. Set boundaries on how much you consume. Connect with Loved Ones: Reach out to friends or family members. Talking about your feelings can provide relief and support. Conclusion: Embracing the Journey The journey through cancer and its uncertainties is deeply personal. Each person's experience is unique. Embrace your feelings, whatever they may be. Allow yourself to feel the weight of waiting, the fear of the unknown, and the hope for good news. Remember, you are not alone. Many have walked this path and emerged stronger. At SurvivingBreastCancer.org , we’re here to support you every step of the way. Read More: Permission to Feel: 10 Tips for Navigating Cancer and Treatments with Honesty and Humor No Pink Here: What October Really Feels Like for Breast Cancer Survivors The Transformative Power of Art Therapy in Cancer Survivorship On the Podcast: Breast Cancer Conversations Understanding and Coping with Medical PTSD in Cancer Care with Emily Parks Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Podcast Weekly Meetup Free Events

A breast cancer diagnosis at 28, 33, or 40 doesn’t just shock you — it reshapes everything. You expect career momentum or family milestones, not medical appointments. The fear is real, and it’s understandable. But fear without facts helps no one. Let’s examine what researchers are discovering about breast cancer in young adults, explain why it matters, and explore where the latest science is leading us. Spoiler: The outlook is more hopeful than the headlines suggest. Why Breast Cancer in Young Adults Looks Different Breast cancer affects people of all ages, but in younger adults, it often behaves differently. About 10% of all new breast cancer cases in the US occur in women under 45, according to the Centers for Disease Control and Prevention . Incidence in this group rose 1.1% per year between 2012 and 2022, according to Harvard Medical School data . Younger-onset breast cancer also tends to include more aggressive subtypes. Triple-negative breast cancer (TNBC) occurs more often in younger people. Because it lacks estrogen, progesterone, and HER2 receptors , treatment options were once limited, though newer therapies are expanding care. HER2-positive breast cancer also shows up more frequently in younger patients. While aggressive, targeted HER2 treatments have transformed outcomes over the past two decades. Dense breast tissue adds another challenge. Most people under 40 have dense breasts, which can make tumors harder to detect on standard mammograms. Researchers continue to develop improved screening tools to close that gap. The Good News: Progress Is Accelerating Here’s the part that deserves more attention: outcomes for younger people with breast cancer keep improving. Even as diagnoses rise, mortality continues to fall. Research presented at the American Association for Cancer Research shows that incidence-based mortality for women ages 20 to 49 declined between 2010 and 2020 across every major subtype. That’s meaningful progress across the board. Survival gains tell an even stronger story. A 2025 analysis in CA: A Cancer Journal for Clinicians reports that the five-year relative survival rate has climbed from 50% in the mid-1970s to 70% today. According to the American Cancer Society , when doctors detect breast cancer at a localized stage, survival now exceeds 99%. More than 4 million breast cancer survivors are living in the United States — and that number continues to grow. What’s fueling this momentum? Smarter science, earlier detection, and a treatment pipeline that keeps expanding. HER2-Positive Breast Cancer Antibody-drug conjugates have transformed care for HER2-positive breast cancer. The National Cancer Institute (NCI) reports that trastuzumab deruxtecan (Enhertu) outperforms standard chemotherapy. Regulators have approved it for some metastatic cases, even in patients with low HER2 expression. At the American Society of Clinical Oncology 2025 Annual Meeting (ASCO 2025), the DESTINY-Breast09 trial showed that combining trastuzumab deruxtecan with pertuzumab extended progression-free survival by 13.8 months over standard first-line therapy. Based on these results, the FDA approved in December 2025 the combination of trastuzumab deruxtecan (Enhertu) and pertuzumab as a first treatment for people with metastatic HER2-positive breast cancer. Many experts now consider this combination a leading first-line option and expect it to replace the older CLEOPATRA regimen (taxane chemotherapy plus trastuzumab and pertuzumab) for many patients. Triple-Negative Breast Cancer Triple-negative breast cancer once depended largely on chemotherapy, but new targeted therapies are expanding options. The NCI reports that adding pembrolizumab (Keytruda) to neoadjuvant chemotherapy improves event-free survival in early-stage TNBC. At ASCO 2025, the ASCENT-04/KEYNOTE-D19 trial showed that sacituzumab govitecan plus pembrolizumab reduced the risk of progression or death by 35% in advanced PD-L1-positive TNBC. Hormone Receptor-Positive Disease CDK4/6 inhibitors palbociclib (Ibrance), ribociclib (Kisqali), and abemaciclib (Verzenio) are now a cornerstone of treatment for hormone receptor-positive metastatic breast cancer. In late 2024, the FDA approved a three-drug combination for some people whose cancer has a PIK3CA mutation and has stopped responding to hormone therapy. In the INAVO120 trial, the combination of inavolisib (Itovebi) plus palbociclib and fulvestrant (Faslodex) helped people live longer before their cancer grew again compared with palbociclib and fulvestrant alone, roughly doubling the time before the cancer worsened. In 2025, the FDA also approved datopotamab deruxtecan for the treatment of ER-positive metastatic disease following strong trial results. For younger, premenopausal women with early-stage hormone receptor-positive breast cancer, we now have long-term evidence that “shutting down” the ovaries and using a strong hormone-blocking pill can make a real difference. Data from the SOFT and TEXT studies show that adding ovarian suppression and an aromatase inhibitor (such as exemestane) lowers the chance of the cancer coming back and can improve long-term survival, especially for women who are younger than 35 or have higher-risk tumors. The Unique Challenges Young Patients Face — and the Support That Exists A breast cancer diagnosis at 30 carries different pressures than one at 65. Fertility decisions, career disruption, parenting, relationship strain, and financial stress often collide with treatment. Many young adults must weigh fertility preservation before chemotherapy, juggle work during infusions, and explain their diagnosis to children while trying to keep life steady. Savings may be limited, student loans may be ongoing, and disability coverage may be uncertain. Early adulthood brings unique challenges — but it also brings advancing research, coordinated care, and stronger support networks. No one should face it alone, and with SurvivingBreastCancer.org , no one has to. Count on Us for Information, Resources, and Support Aggressive breast cancer in young adults is a serious and growing challenge. Science makes that clear. It also shows real progress: survival rates have climbed, treatment options have expanded rapidly, and researchers continue to close screening and equity gaps. Fear alone doesn’t move outcomes forward. Informed action does. Stay informed. Advocate for yourself. Connect with others who understand. Thousands of researchers, oncologists, and advocates work every day to improve outcomes for young adults facing this diagnosis. Whether you’re newly diagnosed with breast cancer , navigating survivorship, or supporting someone you love, SurvivingBreastCancer.org offers virtual support groups and programs , as well as trusted educational resources on symptoms , testing, treatment options , surgery, and more, plus podcasts featuring professionals, advocates, and caregivers. Your support helps SurvivingBreastCancer.org continue providing knowledge, connection, and community to those impacted by breast cancer, every day, all year long. Read More: Addressing the Unique Challenges of Breast Cancer in People Under 40 Breast Cancer in Young Women: Common Questions Answered The Role of Hormones in Breast Cancer How to Improve Cancer Screening for People with Dense Breasts On the Podcast: Breast Cancer Conversations Breast Cancer in Younger Women: Navigating Survivorship, Surgery Choices, and Lymphedema with Dr. Kohli Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Podcast Weekly Meetup Free Events

Chemotherapy remains a cornerstone of breast cancer treatment, but its side effects often carry a heavy physical and emotional toll. For many, the prospect of losing hair feels like losing a sense of self or a badge of illness they never wanted to wear. Cold capping , or scalp cooling, can help counteract this common side effect. Cold capping technology helps patients preserve their hair and maintain privacy during their treatment and recovery process. Understanding how it works, what to expect, and the potential results can help you decide if it fits into your care plan. How Cold Capping Works Chemotherapy targets rapidly dividing cells. While this effectively destroys cancer cells, it also inadvertently attacks hair follicles, which divide quickly. Scalp cooling works through two primary mechanisms: Vasoconstriction : The cold temperature narrows the blood vessels in the scalp. Narrowed vessels limit the amount of chemotherapy medication that reaches the hair follicles. Reduced Metabolic Activity : Cooling slows follicle cell activity. Because the cells divide more slowly, they become less susceptible to the chemotherapy drugs. There are two main types of scalp cooling devices: Manual cold caps : These are gel-filled caps that are stored in a freezer or on dry ice. The patient wears the cap throughout their chemotherapy infusion, swapping it out for a fresh cold cap approximately every 20 to 30 minutes. Brands include Penguin Cold Caps . These are not FDA-regulated. Automated scalp cooling systems : These cap units connect to a refrigeration machine that continuously circulates coolant at a precise temperature throughout the patient’s entire chemotherapy session. The FDA has cleared three systems for sale in the United States: the DigniCap Scalp Cooling System , the Paxman System , and the Amma Portable Scalp Cooling System  by Cooler Heads. Key Benefits of Scalp Cooling The most obvious benefit involves hair retention, but the advantages often go deeper than aesthetics. Emotional Well-Being : Preserving hair can help people feel more like themselves rather than cancer patients. Studies show that maintaining hair density improves body image and quality of life during treatment . Privacy and Control : Hair loss often forces patients to share their diagnosis before they feel ready. Keeping your hair allows you to control who knows about your treatment. Faster Regrowth : Even if you experience thinning hair, research suggests that scalp cooling promotes faster, healthier hair regrowth  after chemotherapy ends by protecting the follicle’s long-term health. Understanding the Risks and Side Effects While medical experts generally consider cold capping safe, the process carries some physical and logistical considerations. Cold capping can be an effective way to reduce hair loss during chemotherapy, but its success varies from person to person. The type of chemotherapy plays a major role, as some drugs are more likely to cause significant hair loss and may be less responsive to scalp cooling. Natural hair texture, thickness, and overall hair health also influence how well you retain your hair. Additionally, proper cap fit, consistent use, and personal tolerance to the cooling process all contribute to outcomes. Because of these variables, results can range from minimal hair thinning to more noticeable loss, even with consistent cold cap use. Discomfort and Headaches : Many patients report a heavy, cold sensation that can cause tension headaches or scalp pain. Logistics and Cost : Manual caps require a dedicated capping partner to replace them every 20-30 minutes. Furthermore, insurance coverage varies. As of Jan. 1, 2026,   Medicare covers mechanical scalp cooling , but private insurance policies differ. Scalp Metastasis Concerns : In the past, some doctors worried that cooling might allow cancer cells to hide in the scalp. However, multiple long-term studies have found no significant difference in scalp metastasis between those who use cold caps and those who do not . Making the Decision Cold capping requires a significant commitment of time and energy. You must arrive early for pre-cooling and stay for several hours after your infusion ends to ensure the drugs have cleared your scalp’s blood vessels. Discuss your specific drug regimen with your oncologist to determine your likely success rate. If you choose to move forward, practice fitting the cap before your first session to ensure the best possible results. Count on Us for Information, Resources, and Support  Cold capping can offer a meaningful sense of control and normalcy during treatment, even though results vary and require commitment. By understanding your options and consulting your care team, you can choose what best fits your needs and find support every step of the way. Whether you’re newly diagnosed with breast cancer , navigating survivorship, or supporting someone you love, SurvivingBreastCancer.org offers virtual support groups  and programs , as well as trusted educational resources on symptoms , testing, treatment options , surgery, and more, plus podcasts  featuring professionals, advocates, and caregivers. Your support  helps SurvivingBreastCancer.org continue providing knowledge, connection, and community to those impacted by breast cancer, every day, all year long. Read More: 5 Tips for Getting Through Chemo Hair Loss The Impact of Breast Cancer on Self-Image Questions to Ask Your Doctor After a Breast Cancer Diagnosis Nurse Navigators: Your Guide Through Treatment 13 Tips for Patients During Breast Cancer Treatment On the Podcast: Breast Cancer Conversations How Breast Cancer Changes the Way You See Yourself Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

Seeds of Hope Celebrating renewal, resilience, and the belief that even in difficult seasons, we can hold onto hope and finding the strength to keep going, one day at a time. This spring, SurvivingBreastCancer.org invites you to take part in Seeds of Hope, our annual campaign rooted in renewal, resilience, and the belief that even in difficult times we can hold onto the strength it takes to live each day as it comes. We are strong. We are fragile. It is not either or, we can be both in the face of cancer. Donate Today & Receive your Seeds of Hope Box Register for the May 6th Virtual Gathering Why This Matters Financial, Emotional, & Wellness Programming Trusted Information & Educational Resources Survivorship Programming & Tools A breast cancer diagnosis brings more than medical challenges. The financial, emotional, and physical impacts of cancer can be overwhelming, often extending far beyond treatment itself. Your participation helps create access to trusted resources, meaningful connection, and spaces where individuals can learn, share, and grow. Through Seeds of Hope, your support helps sustain SurvivingBreastCancer.org’s work — providing education, community, and integrative wellness programming that meets people where they are and supports them throughout survivorship. DONATION TIERS Donate $65 Donate $100 What's Inside the Box? Make A Donation: $65 Seeds of Hope When you make a donation of $65, you’ll receive a beautifully curated Seeds of Hope box with three packets of seeds representing hope, strength, and renewal. Your gift helps support SBC’s education, community, and integrative wellness programming, creating space for connection, healing, and growth. Make A Donation: $100 Plant it Forward When you donate $100 or more, you’ll receive your Seeds of Hope box along with a special gift from SBC. Your donation helps expand access to SBC’s programs and access to support and wraparound services. A Look Inside Inside your Seeds of Hope box, you’ll find a curated collection of flower seeds including wildflowers, sunflowers, and a seasonal bloom. Each flower is chosen to represent hope, strength, and renewal. Alongside your seeds, you’ll receive a planting guide and a message from SBC, a small, and meaningful way to honor our breast cancer community. Make a Donation Today Seeds of Hope: A Virtual Gathering in Support of SBC Date: Wednesday May 6, 2026 Time: 7:30 - 9:00 p.m. ET Join us for a special evening of connection, inspiration, and community. This spring, we invite you to come together for an evening of shared stories, inspiration, and meaningful connection. Together, we’ll explore beginner-friendly gardening while also highlighting the impact SurvivingBreastCancer.org is making in the lives of those living with and beyond breast cancer. Reserve your spot for $25 and join us on May 6. Your participation helps support SBC’s 350+ annual programs, weekly educational content, and integrative wellness experiences — expanding access to the resources, community, and support that individuals need throughout survivorship. What to expect: • A special guest (gardener/nature expert) sharing the meaning of planting and growth • Personal stories and reflections from the breast cancer community • A gentle, guided grounding and healing moment • Connection with others Reserve Your Sport Presented by:

Clinical trials for breast cancer research allow patients to receive innovative treatment methods while opening up healing possibilities for future patients. Transforming Your Breast Cancer Care Clinical Trials are an excellent option. Watch Now on Breast Cancer Conversations, the podcast Meet the People Behind the Amelia Study! Clinical Trials 101 Breast cancer clinical trials offer hope to many women and men diagnosed with the disease. They provide access to cutting-edge treatments that are not yet available to the general public. Explore 1. Our Specialties You get a tailored curated list of clinical trials from experts who are doing cutting edge research and have partnered with SBC to bring these trials to you! 2. Featured Projects Relationships are key for any cancer care. We have taken the time to meet with the scientists, the researchers and the principle investigators engaging in the research and trials we bring to you, our SBC community members! 3. Resources We are not just highlighting trials, we are providing you with an in-depth look at the trial through interviews with the researchers, expert blogs and fireside chats with the scientists, and access to reliable opportunities. 4. The Latest Clinical trials provide you with access to the lastest resources and access to some of the best people in the world who are dedicating their lives to ending cancer. You don't just get the standard of care, you get above and beyond the standard! ARETHA-1 Study for Metastatic Triple Negative Breast Cancer A Phase II Study of Evexomostat plus Eribulin for People with Triple-Negative Breast Cancer Phase 2 Randomized Control Trial of Evexomostat (SDX-7320) in Combination with Eribulin for Patients with Metastatic Triple-Negative Breast Cancer and Metabolic Dysfunction: The ARETHA Study This study is being conducted at Memorial Sloan Kettering Cancer Center. Learn More Amelia 1 for HR+ (estrogen or progesterone), Her2-, metastatic breast cancer with a PIK3CA gene mutation and previously treated with a CDK 4/6 inhibitor (e.g., Ibrance®) in1st line setting The Amelia 1 clinical study is testing a new, experimental cancer treatment called Evexomostat to see if it prolongs patient treatment when combined with Piqray® and Faslodex® and if it helps control blood glucose spikes. Learn More PROTECT-BC (PROton Therapy to Eliminate Cardiac Toxicity for Breast Cancer) A study to assess the safety and effectiveness of a condensed course of radiation delivered daily over approximately 1-2 weeks instead of 5-6 weeks. Learn More Get In Touch Our Clinical Trial Partners Food for Thought Study of Food and Brain Health in women being treated for Triple Negative breast cancer A research team at The Ohio State University in Columbus, OH, is recruiting participants for a remote study of diet and cognition among breast cancer patients. You might be eligible for this study if you:  Are female  Were recently diagnosed with stage II-III triple-negative breast cancer  Have just started, or soon will start systemic therapy (e.g. chemotherapy, targeted or endocrine therapies)  Are 40-65 years old Enrolled participants will be randomized to receive a personalized 12-week nutrition intervention for cognitive health with a registered dietitian-nutritionist or a 12-week general healthy lifestyle program, and will complete all study visits remotely. Participants will be contacted 6 months after the intervention for data collection. If you are interested in this study and would like to find out if you are eligible to participate, please complete a brief screening survey and someone from the research team will contact you directly. Complete the Screening Survey Sexual Health And REhabilitation Online (SHAREonline): A Research Study for Young Female Cancer Survivors Facing Changes in Sexual Health & Sexual Function Researchers at the Dana-Farber Cancer Institute are conducting a research study: “Sexual Health and Rehabilitation Online” (SHAREonline), for women age 19-49 who are experiencing changes in sexual functioning after cancer treatment. For more information visit sharesurvivorship.com or email share@dfci.harvard.edu . Learn More Get In Touch Cognitive Behavioral Therapy for Cancer Survivors with Insomnia Up to 30–50% of cancer survivors experience chronic, often untreated insomnia. This study is evaluating a virtual cognitive behavioral therapy for insomnia (CBT-I) program designed specifically for cancer survivors. Delivered online by a trained clinician, the Survivorship Sleep Program aims to address cancer-related barriers to sleep using an evidence-based approach. By expanding access to CBT-I across survivorship stages, this research seeks to better understand how targeted, virtual care can improve sleep and overall quality of life after cancer. Learn more SURGE Study: Virtual Exercise Program for Cancer Survivors The Survivors Uniting for Remote Guided Exercise (SURGE) Study is exploring how online exercise programs can support individuals living with and beyond cancer. This fully virtual study compares live, group-based exercise classes with recorded exercise sessions to understand how they impact physical activity levels, physical fitness, quality of life, and loneliness. All study activities are completed 100% online, including virtual exercise sessions, brief surveys, fitness assessments, and the use of a physical activity monitor during the study. Learn more Who We Work With Are you designing a clinical trial and looking for a patient advocacy organization to partner with? Let’s connect! When patient advocates are given a seat at the table, everyone benefits. Get In Touch

Explore other great resources for those facing a cancer diagnosis. These organizations provide various services for the cancer community. BREAST CANCER SUPPORT SERVICES Cancer Support In General Cancer Support in Specific Financial Assistance Insurance Assistance Healthcare Assistance Prescription Drug Assistance Transportation Assistant Lodging Assistant Child Care and Elder Care Assistance Low-cost and Free Mammograms ABCD: After Breast Cancer Diagnosis ABCD: After Breast Cancer Diagnosis provides free, customized one-to-one emotional support for anyone impacted by breast cancer. Founded in 1999 by Melodie Wilson Oldenburg, ABCD matches individuals with trained volunteer Mentors who have a similar lived experience, offering compassionate support based on diagnosis, treatment, age, and lifestyle. With a fully virtual platform, ABCD supports people around the world and ensures that no one faces breast cancer alone. Voice: 1-800-977-4121 Byrd Cancer Foundation The Byrd Cancer foundation is an education and advocacy organization effectively assisting individuals battling cancer by connecting them to vital support and resources. Their mission is to ensure that all relevant information reaches those in need, guiding them towards the resources necessary to fight their battle against cancer. Email: info@byrdcancerfoundation.org Cancer + Careers Nonprofit that empowers and educates people with cancer to thrive in their workplace, by providing expert advice, interactive tools and educational events. Its free services include a comprehensive website and library of publications in English and Spanish; legal and insurance information; career coaching; resume review, and much more. Email: CancerAndCareers@cew.org Cancer Care Provides free counseling for cancer patients and their families, financial assistance, information and referrals, community and professional education, teleconference programs, and ongoing telephone and in-person support groups. Voice: 1-800-813-4673 Cancer Hope Network Provides one-on-one support to cancer patients and their families undergoing cancer treatment from trained volunteers who have survived cancer themselves. Voice: 1-877-467-3638 Cancer Support Community Provides support, education, and hope through a global network to people affected by cancer. E-mail: Help@CancerSupportCommunity.org Caring Bridge Offers personal, protected websites that can be used during a health journey to share updates with family and friends. Foundation 96 Provide a safe and supportive care community consisting of multidisciplinary service providers, for people and their care-givers who are transitioning from active cancer treatment to everyday life. Look Good… Feel Better Helps cancer patients improve their appearance during treatment, including free workshops across the country. Voice: 1-800-227-2345 MD Anderson Cancer Center’s My Cancer Connection Matches cancer patients with others who have had the exact same diagnosis for support. Voice: 1-800-345-6324 R.A. Bloch Cancer Foundation BLOCH Cancer Hotline Connects persons with cancer to home volunteers with same type of cancer. Provides free books about cancer. Voice: 1-800-433-0464 Cancer Support & Community Top of Page Cancer Support & Community Identity & Population-Specific Support Travel & Lodging Assistance Family, Child & Elder Support Financial, Legal & Insurance Help Prescription & Treatment Cost Assistance Retreats & Experiences Screening & Prevention (Mammograms) Asian Women for Health Asian Women for Health is a peer-led, community-based network dedicated to advancing Asian women’s health and wellness through education, advocacy, and support as well as through their 8-week Achieving Whole Health online wellness program. The goal is for Asian women to be well informed, have access to care that is of great quality and culturally appropriate so they are inspired to live happy, healthy lives. FORCE - Facing Our Risk of Cancer Empowered FORCE helps people with hereditary cancer risk find vital information regarding genetic mutations, testing, and support to improve the lives of those with a predisposition for cancer development. His Breast Cancer HIS Breast Cancer Awareness nonprofit organization was founded in honor of all men who are at risk of, diagnosed and surviving with the Disease of Breast Cancer and to those who have died because of it. Our mission is to increase awareness and hence the early detection for all men and to help those who are at high risk due to genetics and other risk factors to gain access to regular screenings. Email: HisBreastCancer@gmail.com Indian Health Service If you are a member of a federally recognized tribe, you may be eligible for health services within the Indian Health Service. Lobular Breast Cancer Alliance The Lobular Breast Cancer Alliance's (LBCA’) mission is to make all who are touched by ILC aware of its unique characteristics and the critical need for more ILC research; to be the go-to source for information on ILC studies, clinical trials and educational tools, and much more. Male Breast Cancer Global Alliance Our mission is to advocate for all men diagnosed with breast cancer to ensure they receive equal access to support and treatment; to serve as a source of support and resources for the men, their caregivers, and their families; to ensure that men are appropriately represented in research and clinical trials, and to recruit volunteer “ambassadors” to increase awareness of breast cancer in men on a global scale. Men Against Breast Cancer Offers educational materials, online videos, workshops, and one-on-one networking with other men whose loved one has breast cancer. Conducts National Male Caregivers Conference and regional training workshops. Voice: 1-866-547-6222 My Density Matters My density matters raises awareness for the cancer imaging obstacles facing dense breasts and empowers women to test their breast density for more reliable breast cancer screening results. National Native American Cancer Survivors’ Support Network An educational community-based research study created to help improve the quality of cancer care and the quality of life for all American Indian, Alaska Native, and First Nations cancer patients and their loved ones. Voice: 1-800-537-8295 Navigating Cancer Care Decisions for Older Adults The Lobular Breast Cancer Alliance's (LBCA’) mission is to make all who are touched by ILC aware of its unique characteristics and the critical need for more ILC research; to be the go-to source for information on ILC studies, clinical trials and educational tools, and much more. Project Life A membership based virtual wellness house for those living with Metastatic Breast Cancer and their loved ones. Sharsheret (Hebrew for “chain”) Supporting young women and their families, of all Jewish backgrounds, facing breast cancer. TigerLily Foundation Tigerlily Foundation’s mission is to educate, advocate for, empower, and support young women, before, during and after breast cancer. We envision a future where a breast cancer diagnosis doesn’t inspire fear, but ignites hope for a future. Through our programs, we seek to educate and empower women of all backgrounds, including those at heightened risk, those facing health disparities, and those with less access to care. Twisted Pink Twisted Pink is a non-profit organization headquartered in Louisville, KY with a mission to provide hope and connection to people living with metastatic breast cancer by funding bold breakthroughs in research and awareness of the disease. We offer support, research and hope to people of all stages of breast cancer through our monthly Lunch & Learn programs, our Box of Hope program and our annual advocacy scholarships. Young Survival Coalition Provides information and support for young women with breast cancer. Identity & Population-Specific Support Top of Page Cancer Support & Community Identity & Population-Specific Support Travel & Lodging Assistance Family, Child & Elder Support Financial, Legal & Insurance Help Prescription & Treatment Cost Assistance Retreats & Experiences Screening & Prevention (Mammograms) Air Charity Network - Long-distance transportation Offers air travel to treatment centers for cancer patients and their caregivers. 877-621-7177 Corporate Angel Network Uses empty seats on corporate planes to help cancer patients reach treatment centers (Travel for caregivers is not covered). 866-328-1313 Hope Lodge - American Cancer Society Offers lodging for families during cancer treatment. 800-ACS-2345 (800-227-2345) Joe's House Find an online directory of free and discounted lodging for cancer patients and their families. Lifeline Pilots Offers air travel to treatment centers for cancer patients and their caregivers. 800-822-7972 Mercy Medical Airlift Offers air travel to treatment centers for cancer patients and their caregivers. 800-296-1217 National Patient Travel Center Offers free or discounted air travel to treatment centers for cancer patients and their caregivers. 800-296-1217 Road to Recovery - American Cancer Society Offers local transportation to and from cancer treatments. 800-ACS-2345 (800-227-2345) Travel & Lodging Assistance Top of Page Cancer Support & Community Identity & Population-Specific Support Travel & Lodging Assistance Family, Child & Elder Support Financial, Legal & Insurance Help Prescription & Treatment Cost Assistance Retreats & Experiences Screening & Prevention (Mammograms) AVONCares Child Care Program - CancerCare Offers financial assistance for child care during treatment. 800-813-HOPE (800-813-4673) BrightSpot The Bright Spot Network provides young cancer survivors who are parents of small children with a safe space for individual and familial healing, recovery, and reconnection. Kesem 5 million children are coping with a parent's cancer diagnosis. That’s 5 million children at risk of experiencing increased anxiety, emotional isolation, loss of social interest, and/or feelings of hopelessness. And that’s why, at Kesem, we are committed to creating a world where every child who has a parent with a cancer diagnosis or has lost a parent to cancer is never alone. We support these children through and beyond their parent’s cancer with free, fun-filled creative programs and a lasting community. Pickles Group Pickles help support children affected by their parents or guardians cancer. Pickles Group creates thriving communities of kids supporting kids through and beyond their parent’s cancer journeys. Pickles kids strengthen resilience, have fun with friends who get them, and heal along the way. Take Them a Meal Provides meal planning service for caregivers, friends, and family. Family, Child & Elder Support Top of Page Cancer Support & Community Identity & Population-Specific Support Travel & Lodging Assistance Family, Child & Elder Support Financial, Legal & Insurance Help Prescription & Treatment Cost Assistance Retreats & Experiences Screening & Prevention (Mammograms) Affordable Care Act (U.S. Department of Health and Human Services) Find information on choosing a health insurance plan and the Affordable Care Act. A.M. Best Company Find insurance company ratings. American Association of Retired Persons (AARP) Find detailed information on Medicare and other health insurance programs for people over 50. 888-OUR-AARP (888-687-2277) American Cancer Society – Understanding Financial and Legal Matters Find information on financial topics. 800-ACS-2345 (800-227-2345) HealthWell Foundation The HealthWell Foundation is a national non-profit organization that provides financial assistance to insured Americans who struggle to meet their out-of-pocket costs for medical treatments. National Association of Insurance Commissioners Find your state's insurance commissioner. National Cancer Legal Services Network Find a directory of organizations that offer free legal help for people diagnosed with cancer and their families. National Coalition for Cancer Survivorship Find the booklets “Understanding Your Health Insurance” and "Your Employment Rights." 877-NCCS-YES (877-622-7937) National Underinsured Resource Directory - Patient Advocate Foundation Find local, state and national resources for people who have insurance but struggle to pay out-of-pocket costs of care. 800-532-5274 Patient Advocate Foundation Offers financial assistance information and legal and advocacy help if an insurance claim is denied. 800-532-5274 The Catherine H. Tuck Foundation Offers financial assistance for personal expenses including rent, utilities and food, and transportation to and from cancer treatments. Triage Cancer Offers legal and practical materials in English and Spanish to help understand and compare your insurance options, what to do when you lose your insurance and work, and appeal denials of coverage. Financial, Legal & Insurance Help Top of Page Cancer Support & Community Identity & Population-Specific Support Travel & Lodging Assistance Family, Child & Elder Support Financial, Legal & Insurance Help Prescription & Treatment Cost Assistance Retreats & Experiences Screening & Prevention (Mammograms) Co-payment Assistance Foundation - CancerCare Offers health insurance co-payment assistance for chemotherapy and targeted therapy drugs. 866-55-COPAY (866-552-6729) Patient Advocate Foundation – Co-Pay Relief Program Offers financial assistance for prescription drug co-payments. Myriad Financial Assistance Program Offers financial assistance for genetic testing. Partnership for Prescription Assistance Offers low-cost and free prescription drug programs for people with limited income. 888-4PPA-NOW (888-477-2669) Quest Diagnostic's Patient Assistance Program Offers financial assistance for genetic testing. 888-4PPA-NOW (888-477-2669) Rx Hope Find an online directory of prescription drug assistance programs. Strings for a Cure Offers financial assistance for prescription drugs co-payments. The Pink Fund Offers financial assistance for health insurance premiums. Prescription & Treatment Cost Assistance Top of Page Cancer Support & Community Identity & Population-Specific Support Travel & Lodging Assistance Family, Child & Elder Support Financial, Legal & Insurance Help Prescription & Treatment Cost Assistance Retreats & Experiences Screening & Prevention (Mammograms) Casting for Recovery Casting for Recovery offers free outdoor retreats for people in breast cancer treatment or recovery. Epic Experience Epic Experience provides free week long adventure camps for adult cancer survivors and thrivers. Epic Experience accepts all applicants 18+ no matter where they are in their cancer journey - whether it be in treatment or out of treatment for many years. Faces of Courage The “Women’s Cancer Retreat” is uniquely designed for women who are newly diagnosed, undergoing treatment, and/or survivors. First Descents Outdoor adventure programs for young adults impacted by cancer. Image Reborn Foundation No cost renewal retreats to those diagnosed with breast cancer and to support them in living rich and fulfilling lives. Little Pink Houses of Hope Little Pink Houses of Hope empowers breast cancer patients and families to live each day to the fullest, with direction, purpose, and hope for the cancer journey. We accomplish this through free, week-long vacation retreats. Living Beauty Cancer Foundation Wellness Retreats: single day or 4-day journeys that transport our participants out of the everyday challenges of coping with cancer into a peaceful retreat environment. Mary's Place by the Sea Mary’s Place by the Sea offers two unique wellness retreat options free of charge to women with cancer. MBC Travelers MBC Travelers empowers MBC patients through bucket list travel. Project Koru Camp Koru is a free outdoor, adventure, wellness, and community program that helps young adult cancer survivors (ages 19-39) find healing and renewal beyond cancer. Send It Foundation Send It provides outdoor adventures for young adult (ages 21-40) cancer patients and survivors, removing them from their cancer experience and creating the space to play, connect, and have fun in the outdoors. Shay's Warriors The I Am Hope Survivors Reset Retreat is a four day, three night experience for cancer survivors hosted in the beautiful Coachella Valley. The Breasties Camp Breastie: A four-day summit where hundreds of people impacted by breast and gynecologic cancer come together for community, patient advocacy, and education. Retreats & Experiences Top of Page Cancer Support & Community Identity & Population-Specific Support Travel & Lodging Assistance Family, Child & Elder Support Financial, Legal & Insurance Help Prescription & Treatment Cost Assistance Retreats & Experiences Screening & Prevention (Mammograms) Affordable Care Act Since September 2010, the Affordable Care Act has required all new health insurance plans to cover yearly mammograms with no co-payment (co-insurance) for women ages 40 and older. In many parts of the U.S., low-cost or free mammograms are also offered through national programs and community organizations. FDA Each October, during Breast Cancer Awareness Month, many imaging centers offer mammograms at reduced rates. To find a certified mammography center in your area, visit the FDA website. Komen Affiliates Fund Komen Affiliates fund breast cancer education and screening projects in their communities for those who need it most. Find an Affiliate in your area to learn what resources are available. Komen also offers transportation services to and from cancer treatments, financial assistance for child care and elder care during treatment, and financial assistance for some medications, medical equipment, and lymphedema supplies. To help find low-cost options in your area, call the Komen Breast Care Helpline at 1-877 GO KOMEN (1-877-465-6636) Monday through Friday from 9:00 a.m. to 10:00 p.m. ET and from 6:00 a.m. to 7:00 p.m. PT National Breast and Cervical Cancer Control Program Provides access to breast cancer screening to low-income, uninsured and underinsured women. Planned Parenthood Offers clinical breast exams and referrals for mammography (and any follow-up testing, such as breast ultrasound). Screening & Prevention (Mammograms) Top of Page Cancer Support & Community Identity & Population-Specific Support Travel & Lodging Assistance Family, Child & Elder Support Financial, Legal & Insurance Help Prescription & Treatment Cost Assistance Retreats & Experiences Screening & Prevention (Mammograms)