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- A Patient-Centered Approach to Plastic Surgery Reconstruction
By Laura Carfang Breast cancer surgery is a deeply personal and often challenging experience for many women. As people navigate the complexities of a breast cancer diagnosis, a patient-centered approach to reconstruction and plastic surgery becomes critical. This approach prioritizes the individual needs, preferences, and values of the person, ensuring that they are active participants in the decision-making process. Dr. Thomas Francel In a recent podcast that we recorded at SurvivingBreastCancer.org , Dr. Thomas Francel, a seasoned plastic surgeon, shared insights into his patient-centered philosophy regarding breast reconstruction . His commitment to seeing patients within 24 hours of diagnosis exemplifies the importance of timely communication in healthcare. By providing patients with immediate access to information and support, Dr. Francel alleviates some of the anxiety and uncertainty that often accompany a cancer diagnosis. He emphasizes the significance of being well-informed, stating, “I give them a lot of information... we have the diagnosis, we have the cell type, we have a lot of the stuff that I can sit and talk to them about.” This proactive approach allows patients to better understand their options and make informed decisions regarding their plastic surgery reconstruction. Dr. Francel’s dedication to personalized care extends beyond these initial consultations. He recognizes that each patient’s journey is unique and that reconstruction should be tailored to individual circumstances. He notes the evolution of reconstruction techniques, explaining how he has settled on a method that he believes is best for the patient, considering both oncological and recovery aspects. This adaptability is crucial in a field where advancements in surgical techniques continuously reshape best practices. A key component of Dr. Francel’s approach is his acknowledgment of the emotional and psychological impact of breast cancer. Many women face the difficult decision of whether to undergo a unilateral or bilateral mastectomy. Dr. Francel highlights that some patients opt for bilateral mastectomies as a way to alleviate the mental burden of regular mammograms and the anxiety associated with potential recurrence. His understanding of the mental health aspects of treatment underscores the importance of addressing not only patients’ physical needs, but also their emotional needs. Discussing the aesthetic outcomes of plastic surgery reconstruction, Dr. Francel emphasizes the importance of symmetry and natural appearance. He acknowledges the inherent asymmetry in women’s bodies and strives to achieve the best possible results, often requiring additional procedures on the opposite breast to ensure balance. This attention to detail reflects his commitment to enhancing the quality of life for his patients, as aesthetic outcomes can significantly influence self-esteem and body image post-treatment. By prioritizing personalized care, timely communication, and a multidisciplinary approach, healthcare teams can ensure that patients feel supported, informed, and empowered throughout their surgery. Listen Now: Breast Reconstruction and Plastic Surgery Explained: Expert Insights from Dr. Thomas Francel Because this podcast episode focuses specifically on plastic surgery options, we do not talk about aesthetic flat closure , which is an option for those who do not want or who are not candidates for reconstruction. More information on aesthetic flat closure can be found on our blog and in our podcast episode #48: Radical Mastectomy & Going Flat | Interview with Alicia Duncan (Part II) Note: This article offers general information and does not replace professional medical advice. Make sure to discuss your options with your healthcare provider. SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events
- Cancer Journal
By Marylou DiPietro July 13, 2018 – Friday the 13th One day after hearing that I have a “very suspicious mass” on my breast. Suddenly everything is different: the vastness of the sky, the depth of the water, the songs of birds ricocheting across the valley. Now there’s a temporariness to everything, a shallowness, a thinness that’s impossible to describe. My blue pencil case reminds me of the first article of clothing that was not a hand-me-down: a royal blue shirt with a white scalloped neckline. I only had the shirt a week when it must have fallen out of my bag when I was walking home from a sleep-over at my brand-new best friend’s house. I remember praying to Saint Anthony as I retraced my footsteps along the maze-like streets between our houses. I remember thinking how mad my mother would be when she heard I lost the shirt I begged her to buy me. I can still feel the deep sadness that the thing I loved so much was gone so fast. A thing – like my mother’s unexpected kindness – I hoped would last forever. The idea of temporariness settles into my bones like an anchor. Do we really think we’re going to live forever? Could we be that stupid and naive? Do we trick ourselves into believing we’re immortal? There’s an urgency now…a deep dive to recover the truth: who I am, what powers do I have? What limits I have denied? I’ll draw now… for drawing has given me great solace. I ignored that part of myself for so long. July 14, 2018 Turn toward the water. Find peace and clarity. Call Sally. Do not wait for answers. Do not let anger impinge on your ability to move ahead. Let the bad memories drift out to sea. Have faith that your children know how much you love them. Remember that the true love of the man you married is what saved your life. July 15, 2018 Suddenly everything is black and white. The door is open, the door is closed. There’s no doubt who to trust and who to love. No doubt what I want, what I cannot bear. Everything is in its proper place. There’s no illusion of control or rewards or punishments. Someone else – a doctor – will speak the truth about my life. The words that come out of her mouth will be all that matters. July 16, 2018 My body is holding me captive. I cannot escape the wrath my body has bestowed upon me. I cannot banish the cancer growing inside me. The cancer is just as much a part of me as my hands, my feet, all my internal organs. July 17, 2018 It’s better if others don’t know, I think. I need to share the news with those who love me and who I love. July 18, 2018 Suddenly the clarity is astounding. The unnecessary accouterments fall away like an outer skin I did not know I had. I thought I knew where I stood with my own body, but I was wrong. So, the battle begins – between the person I thought I was and the person I have been tricked, unwittingly, into becoming. There is never a warning – even when we think there is, there is not. Much like the shock of giving birth. We think we know what is going to happen … we read about it in books, see it in movies, are told bits and pieces by other women who have been through it before us. Still, nothing, not one ounce of information can prepare us for what is about to happen. July 19, 2018 We tell ourselves we must go forward … we must keep breathing, even though it feels like someone else, someone you never met, is taking each breath. My sister says she’ll put me on the prayer list. I wonder what that means. I want to say yes, please put me on the prayer list, but all I say is thanks. July 20, 2018 I write down the word “invasion” instead of “invasive” I have been invaded. I am in a fog. I wonder how strong I really am. I paint the sea and sky and hills like perfectly formed breasts, and for now, at least, I am satisfied. Connect with Marylou: www.maryloudipietro.com Read More: In Love with Cancer Find One Good Thing in Every Little Moment An Open Space On the Podcast: Breast Cancer Conversations The Power of Storytelling in Breast Cancer Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events
- Forgiveness
By William Laferriere unraveling the knots of my heart (dedicated to the many known unknowns) Pain, a throbbing pulsation within the chest, why do you linger? why do you persist? memories are like thorns, they pierce the present, but what if... what if we could transcend? forgiveness, it’s but a whisper in the night, can I be the balm? can I transform? the weight of grudges, so heavy to bear, & yet letting go feels like falling through white mountain air who am I without this pain? my identity seems wrapped in wounds, and usually in vain, but forgiveness beckons, a kind and gentle hand, offering up a well lit path for to forgive is to free oneself, but how? when anger feels like home, like clay molded around my heart, familiar, known, yet suffocating, leaving me alone breathe… breathe in forgiveness, breathe out spite, a mantra in the dark, a flickering, shimmering light, each exhale releases a fragment of pain and hurt, each inhale, a chance to assert for I am more than my pain, more than the sum of loss and gain. forgiveness, not for them, but for me, a key to unlock, to set myself free but wait—is it that simple? that clean? to wash away tears and a multitude of years, to wipe that bloody slate clean? perhaps it’s a journey, not a destination, a daily choice, an enjoyable & quiet liberation forgiveness doesn’t mean forgetting, it’s understanding, it’s resetting a narrative we tell ourselves choosing peace over the need to be right and in this course, this conscious shift, I find that pain begins to fade not all at once, but in waves, in stages, turning hurt into wisdom, life’s but a process rewritten with compassion’s pen, for others, yes, but for myself, again and again and again for in forgiving others, we forgive ourselves nurturing the light that always follows so let it go, let it blossom, let it flow, like a river to the sea, let it go let it go it transforms through the alchemy of forgiveness into strength, into empathy, into you and into me evolving, growing, forever becoming, no longer trapped in its numbing forgiveness: a philosophy of the heart, where healing and wisdom commence as one and in this stream of conscious thought, I find that peace was not purchased but cultivated, nurtured from within, where forgiveness and love have always been. Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events
- Nutrition After a Cancer Diagnosis
By Cindy Fortuna, Registered Holistic Nutritionist If you’re reading this, you recognize the importance of diet and nutrition after a cancer diagnosis . As a Registered Holistic Nutritionist and someone who was treated for primary central nervous system lymphoma (PCNSL), an uncommon, aggressive and deadly type of non-Hodgkin lymphoma, I understand the critical role nutrition plays in managing health during and after cancer treatments. My cancer treatment involved five rounds of chemotherapy, another high-dose chemotherapy protocol prior to a full stem cell transplant, and radiation to my eyes five times per week for four weeks. I lived for a period of time believing that I had no control over my illness. Now I know that I can have a positive impact through nutrition and lifestyle choices, as well as mindset. My suggestions below aim to improve gut health, the immune system, energy levels, and rate of recovery. Nutrition can play a role in helping you recover from treatments, continue to thrive, and ultimately take control of your health. Managing symptoms during treatment is a challenge. Here are some suggestions to help you get through this: For nausea, opt for bland, easy-to-digest foods such as bananas, apple sauce, crackers, and rice. For loss of appetite, focus on small, frequent meals that are nutrient dense such as smoothies, nut butters, and protein shakes. For mouth sores, choose soft, cool foods such as yogurt, smoothies, and mashed potatoes. Prioritize nutrient-dense foods. Choose whole grains for sustained energy and fiber. Lean proteins can support muscle and tissue repair. Healthy fats provide anti-inflammatory benefits. Drink plenty of water, herbal teas, and clear broths to avoid dehydration, which can worsen fatigue and other symptoms. Limit processed foods, refined carbohydrates, sugar, and alcohol. While it’s best to get nutrients from whole foods, some may benefit from supplements due to dietary restrictions or increased nutritional needs. Always consult with a healthcare provider before starting any supplements to avoid interactions with treatments and medications. In addition to these suggestions, a chart is included below to summarize the nutritional categories of food that are the most beneficial during and particularly ongoing after treatments. I encourage you to use this to implement impactful changes in what you put into your body. Nutritional Categories and Their Benefits Cruciferous Vegetables contain indoles, which increase production of antioxidant enzymes increase liver’s ability to produce enzymes that neutralize toxins support liver’s detoxification processes Antioxidants support and rebalance the immune system counteract free radicals, stress, and inflammation Essential Fatty Acids ensure normal biochemical functioning of cells increase the removal of toxins diminish inflammation Probiotics restore balance of intestinal flora, and maintain integrity of intestinal lining reduce harmful bacteria and pathogens in the GI tract stimulate the immune system, reducing infection, allergies, and inflammation enhance mineral absorption reduce anxiety and stress response and improve mood Lentils & Legumes contain protease inhibitors, which inhibit enzymes that promote cancer growth contain saponins, which prevent cancer cells from multiplying Raw Foods include whole foods that are high in nutrients rich sources of digestive enzymes High Fiber Foods support immune system help maintain healthy weight, which is vital to reducing cancer risk protect intestinal lining and make bowel movements more frequent Alkalized Foods if body fluids become acidic due to mineral deficiencies, this may lead to disease a healthy alkaline level is pH 7.35-7.45 Note: This article offers general information and does not replace professional medical advice. Make sure to discuss your options with your healthcare provider. Cindy Fortuna Registered Holistic Nutritionist CFor Wellness Read More: Treatment Tips & Questions to Ask Your Medical Oncology Team Understanding and Managing GI Issues Caused by Breast Cancer Treatment The Impact of Diet and Nutrition on Breast Cancer Prevention and Recovery Packing a Care Bag for Cancer Treatment After Your Breast Cancer Diagnosis: Planning Your Next Steps On the Podcast: Breast Cancer Conversations Understanding Nurse Navigation: Support and Resources for Cancer Patients Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events
- Addressing the Unique Challenges of Breast Cancer in People Under 40
Statistics show that breast cancer is most common in women over 50, but that doesn’t mean it can’t affect individuals outside that age range. Individuals under 40 can also receive this life-changing diagnosis. According to the Centers for Disease Control and Prevention (CDC), approximately 10% of new breast cancer cases in the US occur in women under 45 . Read on to learn about the specific hurdles younger women face and how to navigate these obstacles with confidence and support. The Unique Challenges People Under 40 Face While breast cancer in younger people is less common, it is not rare. Breast cancer in individuals under 40 presents unique challenges due to the distinct biological, social, and psychological factors involved. Some of the key challenges include: Delayed Diagnosis : Younger women tend to undergo regular mammograms less frequently, which often results in breast cancer being diagnosed at a later stage. Dense breast tissue also makes detection more complicated with standard imaging techniques. Aggressive Tumor Types : Breast cancers in younger individuals tend to be more aggressive, like triple-negative or HER2-positive types , which are more challenging to treat and more likely to recur. Fertility Concerns : Treatment for breast cancer, especially chemotherapy, can affect fertility. Many young women face the emotional and practical challenges of fertility preservation options like egg freezing before treatment. Pregnancy-Associated Breast Cancer : For some women, breast cancer is diagnosed during pregnancy or shortly after. A breast cancer diagnosis creates complex treatment decisions to balance the health of both mother and baby. Genetic Risk Factors : Younger people diagnosed with breast cancer are more likely to have inherited genetic mutations, such as BRCA1 and BRCA2 , which can increase the likelihood of other cancers and require preventive measures for their families. Impact on Career and Finances : Younger people are often in the early stages of their careers and may face financial stress from medical bills , loss of income, and long-term treatment needs, including reconstruction or follow-up care. Psychosocial Stress : The emotional and psychological impact of breast cancer is profound for younger individuals who may be raising children, managing long-term relationships , and/or building their future. Concerns about body image, dating, and family planning can add to the stress. Survivorship and Long-Term Health Issues : Long-term survivors of breast cancer face unique health challenges, such as the risk of premature menopause, heart problems from treatment, and secondary cancers, which can impact quality of life for decades. These challenges make early detection, specialized support, and individualized treatment critical for younger people diagnosed with breast cancer. Symptoms to Watch For Younger individuals should be vigilant about breast self-exams and aware of the potential symptoms of breast cancer, such as: A lump in the breast or chest area Changes in breast shape or size Unexplained pain in the breast or armpit Nipple discharge or changes in the skin texture Treatment Options for Younger Individuals Breast cancer treatments for people diagnosed under 40 are essentially the same as for older patients. Still, younger individuals are more likely to be diagnosed with aggressive forms of the disease, such as triple-negative breast cancer . Treatment plans often include a combination of: Mastectomy or lumpectomy : Surgical options depend on the type and stage of the cancer. Chemotherapy : Used to target and destroy cancer cells throughout the body. Radiation therapy : Used after surgery to target any remaining cancer cells. Hormonal therapy : For cancers that are hormone receptor-positive, this treatment helps prevent recurrence. The Importance of Support Systems Facing breast cancer at a young age can feel isolating, but building a robust support network, including friends, family, and support groups, can provide a buffer against social isolation. Support groups offer a safe space to share your experiences and gain insights from others who have faced similar challenges. SurvivingBreastCancer.org has online support groups to ensure you’re never alone. Instead, you find yourself surrounded by others who share similar experiences with all stages and types of breast cancer, including metastatic breast cancer (MBC), inflammatory breast cancer (IBC), and a Spanish-language meetup. Count On Us for Information, Resources, and Support Breast cancer under 40 presents unique challenges, from diagnosis to emotional well-being and fertility concerns. Early detection, specialized treatment, and strong support networks are vital to improving outcomes for younger women facing this diagnosis. By staying informed and seeking out appropriate resources, individuals under 40 can better navigate the complexities of breast cancer and focus on their health and future. Whether you’re newly diagnosed with breast cancer , are navigating survivorship, or are the loved one of someone experiencing breast cancer, you can count on SurvivingBreastCancer.org to keep you informed. We provide educational information to help you better understand symptoms , testing, treatment options , surgery, etc., and podcasts that feature professionals, advocates, and caregivers who share valuable information. Your donations enable SurvivingBreastCancer.org , a community dedicated to empowering those affected by breast cancer with knowledge, understanding, and a network of care, to offer resources and support every day, every month, and every year. Note: This article offers general information and does not replace professional medical advice. Make sure to discuss your options with your healthcare provider. Read More: SurvivingBreastCancer.org Support Groups Breast Cancer in Young Women: Common Questions Answered Understanding Genetic Testing for BRCA1 and BRCA2 Mutations Newly Diagnosed Breast Cancer and Fertility The Psychological Impact of Breast Cancer The Cost of Breast Cancer Navigating Relationships After a Breast Cancer Diagnosis Breast Cancer and Pregnancy: Managing Health for Mother and Baby From Diagnosis to Determination: My Triple-Negative Breast Cancer Journey On the Podcast: Breast Cancer Conversations Young and Diagnosed: Motherhood & Parenting with Triple Positive Breast Cancer Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events
- BRCA Faulty Gene & Me
By Jill Rackham BRCA faulty gene, I feel fed up with you now. I can't believe I have you and you are within my family somehow. You have been sitting silently inside me all of my life. I only discovered you when breast cancer came along causing much strife. With no immediate family history of breast cancer how could this be. It was such a shock to find out that you had made cancer grow inside me. Further surgery became part of my cancer management plan. It felt never ending but I am determined to do all I that I can. Surgery is now complete but the shock of you will take some time to recover from. Thoughts often wondering if this faulty gene is something I have now passed on… I've now done everything I can to reduce my high risk of breast cancer returning. And indeed of ovarian cancer stirring. I'm hopeful that as research continues science will lead to your fault being corrected. This could mean future generations will not be in any way affected. Only 5% of breast cancer is caused by an inherited faulty gene. I would love for this statistic to be non-existent and not even be seen. BRCA faulty gene you feel like a heavy burden to carry around. I so wish I didn’t have you, but I do and thankfully you were found. Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events
- Who?
By Triona Lonergan Somebody said that everything happens for a reason. Somebody said you’re only challenged with what you can handle. Somebody said the best way out is through. Somebody said nothing is impossible, Somebody said things do not change, we do Somebody said that difficult roads lead to beautiful destinations. They told me to trust the process They told me to embrace the uncertainty They told me it always gets worse before it gets better They told me life won’t wait. They told me that if you’re going through hell, keep going. They told me that sometimes you win and sometimes you learn. When somebody assumes, they can’t see what is When somebody smiles, they conceal their story. When somebody stumbles, they make it part of the dance. When somebody says the truth will set you free, they must be willing to hear it. When somebody believes in tomorrow, they will live for today. Unless somebody faces adversity, they’ll never understand that … The only way somebody survives is by believing they can!! Somebody , the wisest person they ever quoted. Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events
- The “C” word no woman wants to hear: When my boobs got the wrong attention
By Joelle Cleo Valente Episode 1 - THE SQUATTER - 1 - My routine self check - How it all started In October 2023, coming back from a run, I noticed a little bump on the top right side of my breast when taking a shower. It was barely visible to the naked eye, no pain or discomfort were noted. Puzzled, I tried to make sense of this intruder by recalling an incident on my right shoulder a week prior as a possible explanation. Keeping a positive mindset and pushing away the thought of “could it be the ‘C’ word?” I phoned my primary care physician, a no-nonsense, old fashioned woman that I trust and respect. She immediately ordered a mammogram/ultrasound , reassuring me that whatever it was, we will get to the bottom of it together and not to worry. I rang a friend for the drive to the breast center located forty minutes away from my house to brighten the undertaking . The facility dealt exclusively with breast care, an impressive building with several wings that looks like a hospital and a waiting room full of anxious women waiting. Overwhelmed and confused about my visit to such a place, I felt like an impostor intruding in other people’s business, thinking that’s a bit much for just a mammogram check up? Besides, I have never been sick in my life, and there is no “C” word in my family history . Of course I’ve had mammograms before, but the surroundings were more casual. I needed to snap out of this twilight zone presto and be present mentally. I took a deep breath, grabbed a glass of water from the cooler and sat back waiting for my turn. A strong nudge from my friend Pam woke me out of my stupor. “Hey! they called your name twice already,” she whispered. “I’ll be outside waiting for you when you’re ready, chin up girl.” 2 - The exam - May the show begin After a ritual checking in, a nurse came to pick me up, instructing me to remove my clothes from the waist up in a cool and collected manner that demanded no more inquiry from me. “Put on a gown and wait in the designated area, someone will come and get you.” My name was mentioned again as a new woman in her early 30s stepped in, introducing herself as the technician in charge of mammograms, displaying a warm smile as he could sense my angst. She was very pleasant, apologizing in advance for the breast squeezing, flattening, pretzel twisting positions, cold surface and cold hands. “Almost done,” she claimed, “one down, one more to go.” I knew she was trying to make me feel at ease, but it wasn’t working – by no fault of her own. Apprehensive to ask, I mumbled something like, “Did you find anything?” “Your left breast is clear, but it seems that your right breast needs further exams ,” she replied calmly, offering me a lollipop to seal the deal as we walked to the ultrasound room, where I was barely greeted by another lady in her 50s with a stern demeanor who clearly didn’t want to be there. She briefly described her next move and went on with the painless “transaction.” I tried to relax and clear my thoughts, but my heart was pounding and my cloudy brain kept on shouting, “Get out of there.” What's with this place that made me feel so uncomfortable? I didn’t recognize myself. Once again I blabbered something like, “Did you see anything significant for me to worry about?” She dismissed my request immediately with a cold, “Front desk will proceed with your checkout and will inform you about a follow up if necessary.” In a hurry to get me out the door, she blurted a “Yeah right” when I wished her a good day, which she clearly needed. Happy to change into my civilian clothes, I was back again in the main waiting room packed with newcomers scrambling to find seating, puzzled by this insane scene of women, young, old, alone or flanked with friends or family members, for “the” special visit, I couldn’t help thinking how insane this was. Who are all these women? Why so many? Is there an epidemic of some sort I’m unaware of? I was asked to wait again for my paperwork by one of the front desk girls – they were girls really, in their early twenties, cackling as they couldn’t pronounce anyone’s name correctly and didn’t care to, doing it as their distraction for another boring day at the office. Another forty-five minutes went by before my name was voiced for the last time (I hoped). I was told that a biopsy was scheduled for the following week , asking me to contact my doctor for more details, giving me my walking paper with no more details besides how to prepare for the procedure. I guess that was all for today, folks! I lastly stepped out of the facility looking for Pam, I breathed deeply, and felt such a relief. I realized that the energy inside these walls was full of pain, suffering and mental anguish that triggered my uneasiness and panic mode. I made a mental note to protect and prepare myself for my next appointment to the collective heartache that place was. The drive home was a cinch. I kept on taking deep breaths, feeling more at peace with the next exhale. Pam was chatting away, explaining that she had to leave the waiting room because “the air was suffocating.” Those were her words, I wasn’t crazy! Pam felt it, too. The next day I phoned my doctor to chat about the next step, the biopsy, as she outlined the procedure as being a positive move to the next step in making the right decision and action toward recovery. She continued her positive reinforcement by saying: “We’re no longer in medieval times my dear, all will be resolved in due time, trust me.” She’s such a peach! I sensed that a new chapter of my life was about to unfold , calming myself with the understanding that my combative nature and sense of humor would overcome these fears, noticing that the unknown was my enemy at this time. “One day at a time” was my new motto, reminding myself that I have walked through many storms already and emerged enlightened by the lessons I have learned. “Everything that shows up in our lives has something to teach us” - Wayne Dyer To be continued … Joelle Cleo Valente AKA: Cleo Valente is an award-winning filmmaker with two decades of experience in the entertainment industry, working for major networks as a writer, producer, for major shows and independent productions. Contact: realgrlproductions@gmail.com https://bio.site/CleoValente Read More: Breast Cancer Symptoms Breast Cancer Risk Factors Supporting Loved Ones with Breast Cancer: How to Offer Meaningful Help Breast Cancer Story: The Waiting Room On the Podcast: Breast Cancer Conversations The Power of Storytelling in Breast Cancer Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events
- Back Home
By Sara Kandler I manage to unwrap my three-year-old’s surprisingly strong arms from my neck and do two drive-thru errands while the baby’s still awake in her car seat behind me and we’re humming so sweet while I spin the steering wheel slowly to the left and then to the right noticing the family-run grocery store is now a second-rate gym I should check it out and the boutique where I used to buy my boot-cut jeans now touts music classes for kids a good idea and my little one’s fussing and can I make it home in time for her to get a real nap and for me to get on the computer and suddenly I’m doing the hand-over-hand maneuver I practiced in driver’s ed with my three besties and the odd but well-meaning instructor until I’ve pulled up in front of the stucco home of an old friend who convinced me we should be more and I believed him until he explained a few months later this is just too much — I’m struggling to breathe baby now crying son must be asking for me bland house still standing music from mixed tapes spilling out into the fresh fall air This scar This car I need to get home Follow Sara Kandler: https://medium.com/@sarakandler Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events
- Last one is the deepest
By VH Lester (last radiotherapy) 20.12.24 Hit me baby one more time Give my fraction of radiation One more step along this bumpy road I go Yes this is it here I go last push Insurance policy for my future Promises of never never Cold hands draw red and black markings like road paint Seeing my distorted reflection and suddenly feel faint l feel like a microwaved chicken pie warmed up with rays deep inside I’m never scared just quite amazed this big white ship keeps my place whilst radiologists rush around symphony no. 5 in the background So many needles I’ve totally lost count, from operations to chemo I’m all energied out They said it takes a year to feel sane I certainly agree now 6 months of treatment ago it came What started with a lump turned into a mountain climb But I’ve reached the summit I’m proud to say because today my dears is final boobie radiation day Yes I’m going to run before I can walk and feel the ice cold wind in my mouth as I talk I’m going to places I’ve never been, behave like an outrageous drama queen I’m going to hold my mum and dad so tight they will have to struggle or put up a fight I’m going to look in my children’s faces and squeeze them when we are in the same places I’m going to hold my darling’s hand and stroke his face as he understands, he’s been there night and day non stop I can’t get enough Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events
- 10 Years of Survivorship: Cancer Is My Unexpected Teacher
By Samantha Kuhr Ten years ago, my “normal busy” life came to a crashing halt when I heard those infamous words: “I’m afraid it’s cancer.” I was a 43-year-old mom of two very active boys, wife of 17 years, active, non-smoker, with no family history of cancer. We work hard and play hard. Perfect, right? It turns out none of that mattered when I was unexpectedly diagnosed with stage 2, grade 1, invasive breast cancer. I had no indication that my body was being invaded and felt no lumps. In fact, I ran six miles the morning my medical team discovered two tumors and a third suspicious calcification area during my routine mammogram. As a mother, I needed to not only process this diagnosis and manage how my body felt, but I had my young children to worry about , too. Once I had complete testing to know exactly WHAT I was dealing with AND what the path forward would be, I sat with my boys and told them mummy has cancer. I’d immediately be undergoing a sentinel lymph node biopsy, a double mastectomy, and lymph node removal. BUT here’s what that means, and I reassured them I would be okay (like I had a crystal ball or something!). Julian’s first words were, “Are you going to die, mummy?” Seeing his little face tremble was the hardest part. It was incredibly jarring. I vacillated between shock, fear, sadness, and frustration watching my family suffer alongside me, as I tried to make sense of this out of control freight train headed towards me. The anxiety of waiting on pins and needles for test results is now part of my new normal. I’ve experienced a marathon of tests, scans, and surgeries from a sentinel lymph node biopsy, double mastectomy, tissue expanders, PET scans, bone scans, multiple implant exchanges, and everything in between. My late-night negotiations with the universe still weigh heavily on my scarred heart. I’ve spent countless hours lying in various scanning machines (and still do), begging and praying for good news. The fact that life could be taken in an instant was never more clear to me. Then came deciphering the doctor-speak, and I had to make choices that would ultimately determine the course of my life, as if I was picking out what knickers to wear. I was forced to become an expert in tumor markers, genomic profiling, Ki-67 levels , medical insurance, Tamoxifen side effects – it was all very overwhelming and exhausting. Yet losing focus and flinching for one moment could be the difference between living and dying. I thought a team of doctors would tell me what to do, but I discovered that this is science and they are all “practicing” medicine. Ultimately, I had to make my own decisions about surgery and treatments. We pondered such delights as potential recurrence and survival rates versus percentage of potential side effects for chemotherapy and radiation. And as Hot Hubby pointed out, I decreased my survival rates by driving to these appointments with the crazy LA drivers out there each day! At some point during this nightmare, my oncologist dangled the carrot: “ If we reach 10 years cancer-free, your risk of recurrence drops significantly .” Well, challenge accepted! Ta-da, here I am 10 years later, still standing, and at the risk of being cautiously celebratory, I am taking a moment to do a little victory lap. The truth is, I’ve lost count of my seemingly endless surgeries and procedures, and I’ve fought many private battles over the past 10 years. What still shocks me is how this disease came from nowhere. I had no family history, felt no lumps, ran six miles the day of my diagnosis, and had never felt more healthy. Who’d have guessed my own rogue cells were plotting a coup? The harsh reality of cancer is that not everyone survives the fight. What’s humbling and quite evident is that my outcome wasn’t decided by medical treatments and lifestyle changes. I didn’t “fight harder” than other cancer patients. I did everything medically possible to rid my body of this disease, but ultimately I had to accept my unpredictable course of fate. And if you know me, that was the hardest part. Cancer turned out to be my unexpected teacher, forcing me to squeeze joy out of the ordinary and to cherish my loved ones. Now, little things; the sound of rain, the smell of my morning coffee, my ability to hike up a hill, or simply laughing with my boys… all these simple pleasures now feel deeply significant. So I’m here to remind you that cancer is sneaky, and can show up when you least expect it. PLEASE PLEASE PLEASE take a minute today to give yourself a quick self-check, schedule regular annual checkups, and embrace the friendly mammogram machine. Early detection is my superhero. Remember, if something feels or looks off, get it checked. My survival is a testament to the importance of regular health screenings, a practice I value now more than ever. Join me in this party of life and survival on Instagram and Twitter ! Read More: Understanding Your Pathology Report HOW? They Were My Blessing: Facing Breast Cancer With Young Kids Parenting and Breast Cancer 7 Things To Never Say To Someone With Breast Cancer On the Podcast: Breast Cancer Conversations Preparing for Breast Cancer Surgery: What You Need to Know Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events
- After Your Breast Cancer Diagnosis: Planning Your Next Steps
Understanding how deeply a breast cancer diagnosis can affect both your body and spirit is key to helping you on your path to healing. Dr. Heather Richardson , a dedicated breast cancer surgeon, has spent her career supporting women through this challenging experience. Here, she offers insights to help you confidently navigate your treatment options and the reassurance that you’re not alone on this journey. Receiving a Breast Cancer Diagnosis: Understanding Your Emotions The moment you hear the words “breast cancer,” your world may feel as though it’s been turned upside down. It’s natural to experience a whirlwind of emotions—shock, fear, anger, confusion. These feelings are entirely normal, and giving yourself the space and time to process them is important. During this initial stage , leaning on your support system can be helpful. Whether it’s a close friend, family member, or therapist, talking about your emotions can provide some relief. It’s okay not to have all the answers right away. Educating Yourself: Understanding Your Diagnosis Knowledge is power. Understanding your specific diagnosis can help you feel more in control and better prepared to make informed decisions about your treatment. Your healthcare team will provide you with information about your type of breast cancer , including its stage, grade, hormone receptor status, and HER2 status. These terms can be confusing at first, but they are crucial for determining the most effective treatment plan. Don’t hesitate to ask your doctors to explain anything you don’t understand. It’s essential to get the clarity you need to make informed decisions. Preparing for Your Oncology Appointment: Questions to Ask Your first oncology appointment is an important step in your treatment journey. Being prepared with questions can help you make the most of this time with your doctor. Here are some questions to consider: What type and stage of breast cancer do I have? Understanding your specific diagnosis is the foundation of your treatment plan. What are my treatment options? Each case is unique, and your doctor will outline the best treatment paths available to you. What are the potential side effects of each treatment? Being aware of side effects can help you prepare for and manage them effectively. Are there any clinical trials available to me? Clinical trials can provide access to cutting-edge treatments that might not be widely available. Taking notes during your appointment or bringing someone with you to help absorb the information can be very helpful. This way, you can review everything discussed later when you’re in a calmer state of mind. Taking the Next Steps: Developing a Treatment Plan Once you understand your diagnosis, the next step is developing a treatment plan in consultation with your healthcare team. This plan will be personalized to your specific type of cancer and your overall health. Treatment options may include surgery, chemotherapy, radiation therapy, hormone therapy, or a combination of these. It’s perfectly okay to seek a second opinion . Sometimes, hearing another perspective can give you the confidence to move forward. It’s also important to consider how treatment will fit into your life—balancing your care with your personal responsibilities is an important part of the decision-making process. Understanding Surgical and Reconstruction Options Surgery is typically part of breast cancer treatment, with the approach tailored to your specific needs and preferences. The main surgical options include: Lumpectomy: This breast-conserving surgery removes the tumor and a small margin of surrounding tissue, typically followed by radiation therapy . Mastectomy: Involves removing one or both breasts, with variations such as total, skin-sparing, or nipple-sparing mastectomies aimed at preserving the breast’s appearance. In the past, breast reconstruction was often a multi-stage process performed after mastectomy. However, advanced techniques make immediate reconstruction viable for many patients, offering significant physical and emotional benefits. Options include implant-based reconstruction and autologous reconstruction, which uses the body’s own tissues. Work with your healthcare team to make decisions about surgery and reconstruction based on what best suits your recovery and lifestyle. Managing Your Emotions Throughout the Journey Treatment isn’t just about addressing the physical aspects of the disease—your emotional well-being is also a crucial part of the process. It’s normal to experience a range of emotions, and there are effective ways to manage the stress and anxiety that can arise. Talk openly with your healthcare team about how you feel emotionally. They can connect you with resources and support to help you navigate the emotional ups and downs of your diagnosis and treatment. Activities such as meditation , gentle movement , and spending time outdoors can help you manage anxiety and stress. You might also enjoy connecting with others in a peer-to-peer support group, such as SurvivingBreastCancer.org ’s Thursday Night Thrivers meetups. Looking Forward: Life After Breast Cancer While the focus is naturally on treatment and recovery, remember to also look toward the future. Your journey doesn’t end when treatment does, and focusing on your overall well-being and ongoing monitoring will continue to be necessary. Many patients find that life after breast cancer brings new opportunities for growth, self-discovery, and a renewed appreciation for the simple joys of life. Focusing on recovery and embracing what comes next can help you find strength and hope. Embracing Life While Living With Metastatic Breast Cancer For individuals with metastatic breast cancer (MBC), the path forward looks different. Unlike early-stage breast cancer, MBC requires ongoing treatment and management, as it is not considered curable. This reality means there isn’t a definitive “after cancer” chapter. Living with MBC can bring unique emotional, physical, and practical challenges. Many patients with MBC find strength in connecting with others facing similar circumstances and working closely with their healthcare teams to tailor treatment to their needs and goals. Be sure to check out SurvivingBreastCancer.org ’s Thursday Night Thrivers meetups, which include a specific group for those with MBC. Focusing on quality of life, maintaining hope, and finding moments of joy amid the challenges can help create meaning for those living with MBC. Note: This article is designed to provide general information and is not meant to replace professional medical advice. Always discuss your options with your healthcare provider. Read More: SurvivingBreastCancer.org free programs and events Newly Diagnosed. Now What? Why a Second Opinion Matters for Breast Cancer Nurse Navigators: Your Guide Through Treatment Treatment Tips & Questions to Ask Your Medical Oncology Team Packing a Care Bag for Cancer Treatment Exploring Breast Reconstruction Surgery: Pros and Cons On the Podcast: Breast Cancer Conversations Enhancing Patient-Provider Communication in Breast Cancer Care Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events
- Breast Cancer and Nutrition: The Effects of Alcohol, Soy, and Sugar
You may be familiar with the phrase; you are what you eat. What may surprise you is that its origins date back to the 1800s, when a French lawyer, politician, and famous gastronome, was said to have first uttered a similar French version of the popular saying. Since then, the concept has been the basis for best-selling books and entire nutrition plans. We’ve known for a long time that diet contributes to our health . It’s a simple concept: good nutrition helps children grow and develop and contributes to health over a lifespan. An unhealthy diet is associated with harmful effects, including obesity, heart disease, and stroke, Type 2 diabetes, and cancer. Studies have also found a correlation between a diet high in refined sugars and impaired brain function —and evidence that it can worsen symptoms of mood disorders, such as depression. The Connection Between Breast Cancer and Nutrition It’s probably likely that you’ve heard conflicting reports about the effect of certain foods on breast cancer. One year you read that soy contributes to breast cancer, and a year later, you read that soy reduces breast cancer. Understandably, a person could easily become confused and frustrated. What is going on? Why can’t they get it right? Science is constantly evolving. Advances in technology enable researchers to gain new information and learn new things. A great example of this is the progress of genetic testing for breast cancer that became available only twenty-five years ago. That new knowledge may lead scientists to draw new conclusions that contradict earlier information. It doesn’t mean that the science is flawed, only that new evidence has been discovered. Watch Now Alcohol and Breast Cancer Multiple studies have shown a link between alcohol consumption and breast cancer. Two landmark papers published in The New England Journal of Medicine in 1987 determined that, even at moderate levels, alcohol consumption was associated with risk of breast cancer. Since then, numerous global studies have been conducted with the same findings. Several studies examined alcohol consumption with other known breast cancer risk factors, such as diet, genetic conditions, body mass index, physical activity levels, and smoking. Soy and Breast Cancer There’s been a lot of debate over the past 25 years on whether soy increases breast cancer risk. On the contrary, recent research findings indicate that soy and soy-based foods, including tempeh, tofu, and miso, lower breast cancer risk . A study commissioned by the National Cancer Institute and the World Cancer Research Fund determined that the culprit is cow’s milk. Drinking cow’s milk increases a woman’s risk of breast cancer by as much as 80 percent compared with drinking soy milk. The Mayo Clinic chalks-up the confusion to isoflavones (plant estrogens) found in soy. High levels of estrogen have been linked to an increased risk of breast cancer; however, the levels of isoflavones in food sources of soy aren’t high enough to increase breast cancer risk. Soy or isoflavone supplements, however, generally contain higher isoflavone levels. Some studies have suggested a link between soy or isoflavone supplements and an increased risk of breast cancer in women who have a family or personal history of breast cancer or thyroid problems. It’s helpful to understand the differences between natural, unprocessed soy and soy supplements and additives . Sugar and Breast Cancer Sugar has been implicated as a cause of breast cancer, depicted as providing a feeding frenzy enabling cancer cells to grow out of control quickly. Like all cells, cancer cells require energy to grow and multiply and use glucose as their primary fuel source. Glucose is the simplest form of sugar and comes from any food that contains carbohydrates. That list includes healthy foods, such as vegetables, fruits, dairy, whole grains, refined carbohydrates, and food with added sugars, such as white bread, pasta, sweetened beverages, and sweets. The idea that sugar expedites cancer cells’ growth has led some people to completely cut out all carbohydrates from their diet based on the belief that cancer cells need glucose; eliminating it will stop cancer growth. Sugar has not been found to make cancer cells grow faster , nor has cutting sugar out of your diet been connected with slowing down cancer cells’ growth. It’s not that simple. Glucose is a critical component needed for healthy cells to function, and there is no way for our bodies to let healthy cells have the glucose they need but stop it from feeding the cancer cells. Removing carbohydrate intake from the foods we eat doesn’t work because our bodies will make glucose from other sources, such as protein and fat. There is an indirect link between sugar and cancer. We know that eating a lot of sugary foods such as cakes, cookies, and sweetened beverages can contribute to weight gain and excess body fat. Research has shown that being overweight or obese increases the risk of 11 types of cancers, including postmenopausal breast cancer. Another study in the American Journal of Clinical Nutrition found that in a cohort of more than 100,000 people whose dietary intake was assessed every six months, sugar was associated with cancer, especially with breast cancer. Sugars from fruit, however, were not associated with cancer risk. Some scientists are investigating the possibility of measuring sugar to detect breast cancer . We continue to learn the impact of nutrition on our health and how understanding our dietary choices can benefit our ability to prevent breast cancer. Following a healthy diet can also help you feel your best. Explore our guidelines for a healthy diet , and become part of our empowering community, including our Breast Cancer Survivor & Friends Meet and Greets . We’re always here for you! Watch Now
- metamorphosis
By William Laferriere in a bleak silent antiseptic room machinery lightly hums thoughts drift like asymmetrical leaves on a stream uncertainty and courage unfold a mosaic of moments fragmentary yet whole the body a landscape of change each and every scar a story a testament to resilience to the will to endure to transform and transcend the face in the mirror seems unfamiliar the eyes hold a fierce light a determination that defies words a silent promise to oneself the world outside moves in its rhythm yet here time warps bends and stretches moments of clarity amidst the haze finding strength in unexpected places hands reach out connections form threads of empathy weave a tapestry shared journeys and whispered fears laughter echoes in the void in this space of becoming and unraveling there is beauty in the struggle a graceful intent a metamorphosis unfolding quietly powerfully the emergence of something new from within and as the dawn breaks anew each day there is hope in the light filtering through a reminder that transformation is not an end but a beginning a continuous journey towards wholeness Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events
- Mental Chatter & Me
By Jill Rackham “Mental Chatter” we have become very good friends. Always chatting to me there is no end. Hearing the word “cancer” has definitely made you more prominent. However, I really don’t want you to be this dominant. You are really quite animated during the night. Sometimes your chatter does give me a fright. Repeating conversations with the oncologist, you were listening so well. I wonder “Mental Chatter” how long you will be around, only time will tell. You remind me of each surgery and the surgeon’s every word. I don't need your reminder, I won’t forget anything I heard. I am so ready for a peaceful night’s sleep, that is all I ask. Maybe you could give me some much needed peace at last. Connect with Jill on Instagram Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events
- Me and My Carcinoma
By Sue Goodchild It all started on a sunny day in July 2024 when I received an invite to go for a mammogram . I opened the letter, read it, and put it to one side. At the age of 67, the thought of having to take everything off from the waist up fills me with embarrassment, what bra shall I wear, does it fit nicely, will they think that I’m fat, all of you ladies will know what I mean. A few days later I picked up the phone and made my appointment. With the date and time arranged, I carried on with life as normal. I had always been for my mammograms when invited, as one day they could save my life . Little did I know then how important this particular mammogram would be and how the next few weeks would change my life. At my mammogram appointments, there are no men. The whole thing is done by a very professional group of ladies, who talk me through what is about to happen, how to stand, where to put my arms, and the like. The machines are huge and are programmed to take scans of my breasts and underarms at all angles. I remember thinking, “I hope the machine doesn’t take on a mind of its own,” as it could be painful and leave me with an extremely flat chest in all the wrong places. But seriously, mammograms may be a little uncomfortable, but that’s it. Before I know it, it’s over and I’m getting dressed. No one cares what shape I am, what size my boobs are or anything like that — they have a very important job to do. Now normally in the past I would receive an all-clear letter, but this time, I was invited back for more investigations. On reading the letter, a little bit of fear ran though my body. In total denial, my mind started talking to itself... “It has to be wrong,” “I don’t have anything wrong with me,” all sorts of reasoning was going through my mind. I then thought, “Why shouldn’t it happen to me? I’m no different to anyone else.” I showed the letter to my husband. He said that it is what it is, and whatever it is, we will deal with it. The day came for my visit to the breast clinic. I gave my name to the receptionist and took a seat in the waiting room with my husband. There were a few ladies there waiting with me, and I was watching as they came and went for their appointments. A nurse then called my name, and in I went to see the radiologist. He was a very nice gentleman sitting in front of his computer, which had two screens. He welcomed me in and said that he knew a lot about me. I thought, “Oh no!” When I looked at his desk, he had all of my previous mammograms in front of him. On the screens he had the scans of my boobs. I remember thinking, “My god they’re big,” but then he would have to have them large on the screen so I could see what he wanted to show me. He explained that he had noticed something suspicious on my left breast that had been there since 2012, but had changed. He said that he was going to do some biopsies and asked me to lay on the couch while he gelled me up and used a scanner to find what he thought was suspicious. An injection was given in my boob to numb what he was about to do, but I have to say this whole procedure was very painful indeed. He took four biopsies and put a titanium tag in my breast at the suspicious location so if it turns out to be cancer, it can be found easily. He said that the titanium tag won’t go off in Gatwick airport security. I wait to get confirmation of this in a few weeks when I go on holiday; I hope he is right, as it could be a little awkward. I then got dressed and left to go home. I was advised that they would be in contact with the results in about two weeks. The follow-up letter came inviting me back for the results of the biopsies. I met with a lovely team of nurses who were very caring. I felt sure that the results wouldn’t be anything serious, but I was about to have the biggest wake-up call ever. They advised me that it was cancer, but assured me that it was small and had been caught early. I was told that it was a 14mm grade 1 invasive ductal carcinoma (breast cancer). The consultant advised me, I was given a lot of information to read , and an appointment was made for me to meet the consultant and arrange a date for surgery. Not long after, I met with the consultant, who told me that a lumpectomy would be done to remove the cancer and that my lymph nodes would be biopsied. It was Thursday, and as I sat there, she advised me that the following week there was an opening on Wednesday. I was so tempted to say, “Leave it for a few weeks,” but my friend who was with me said to get it over and done with, so the following Wednesday was booked. I don’t know if I am naive, but I thought I would be going in, having the tumour removed and sent home for recovery. I can tell you that there can be a lot more to it. On Monday, I went to the hospital for a check-up, blood tests, and ECG to make sure I was safe for a general anaesthetic. On Tuesday, I went to the nuclear department at another hospital to have a sentinel node scan and a radiopharmaceutical injection in my boob the day before my operation. Then on the day of the operation, I had to be at the breast clinic by 10:30 a.m. to have a wire inserted into my left breast that would help the consultant find the tumour more quickly. To me, this seemed like something out of a horror film: this long wire sticking out of my boob. I thought, “How am I going to get my clothes back on with this?!” The nurses rolled it up and taped it down before sending me for more mammograms to make sure it was in the right place. Myself and another lady were taken across to the main hospital to get ready for our operations. The other lady went down first, with me going down at just after four in the afternoon. I woke up in the recovery room at just after six in the evening and was then taken to the ward. I wasn’t in there for long, but they wouldn’t let me go until I had a wee, and I was surprised that it was blue! This was due to the dye injected during surgery. It wasn’t long before I was up, dressed, and ready to go home. Since my original first meeting at the breast clinic, life went really quickly. I am pleased to say that I am now clear of breast cancer and healing slowly but surely. I cannot thank the radiologist, the consultant, the nurses , and everyone else involved enough for their never-ending support and care. I don’t have to have radiotherapy, but I do have to take letrozole hormone therapy and Adcal-D3 (a calcium and vitamin D3 supplement) for five years and have mammograms annually. But other than that, I now look forward to a full recovery and being able to wear a bra without it being uncomfortable. My advice is to always go for your mammograms no matter how embarrassing you think they are. They will save your life. Secondly, make sure you have a very comfortable bra that fits nicely over your boobs and doesn’t rise too high under the arms, just in case your lymph nodes are tested. If you have ample boobs like me, you will be grateful that they are under control post-surgery. I must say a big thank you to the wonderful team at the West Sussex Breast Clinic, the consultant and team at Worthing Hospital. Read More: Understanding Contrast-Enhanced Mammography Breast Cancer Symptoms Understanding Your Pathology Report: A Comprehensive Step-By-Step Guide Nurse Navigators: Your Guide Through Treatment On the Podcast: Breast Cancer Conversations The Power of Storytelling in Breast Cancer Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events
- My Ethereal Compass
By William Laferriere Darkness descends, yet Something flickers, A flame illuminating my path Whispers in the universal void, My spirit, a connective thread Weaves through this labyrinthine existence Unseen, yet present, The rhythm of the universe, A sweet, soft song guides my steps I look to the mountains, I look to the wind, I strive to overcome the impossible Amidst all the chaos and confusion, I stand secure, unwavering, at the helm, And I navigate towards calmer shores In moments of doubt, A sudden surge, a wave of conviction, Washes away uncertainty Through the many valleys of remorse and sorrow, It transforms into a gentle, clear stream, Carving new channels of hope When joy overflows, It dances, a wild and free spirit, Vibrantly painting the sky In the quietest of moments, It whispers ancient wisdom, and Echoes of lessons to be learned Formless yet formed, Invisible, yet seen, My spirit guides, nudges, embraces It is the compass in the storm, With roots in shifting sands, Providing wings needed to soar Through life’s many challenges, It remains, a constant companion, Ever-evolving, ever-guiding, ever-me. Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events
- HOW?
By Nicholle Chadwick Some mornings I wake up thinking or maybe it’s me pretending to be just a normal person, but then I put my fingers through my hair and it all flashes back like a bad nightmare. I remember that the reason I have little hair is because I recently had to fight for my life and the fight is something that I’ll always have to do. It was 2022, a day before my thirty-seventh birthday. Everyone in my house was fast asleep. I got up and went to the bathroom, and before climbing in bed I reached over to grab some chapstick and rubbed against my right breast by pure accident. Little did I know that my life changed in that moment. I felt a lump . The lump was hard, almost like a small BB from a BB gun, but I told myself that it was nothing and went to sleep. I waited a few days and decided I should probably tell my boyfriend, who happens to be a radiologist. He then discovered several lumps. I decided not to freak out because I was young and had no family history of breast cancer, but I made an appointment at my OB’s office. They got me in relatively quickly and did an exam. The NP’s words were, “You have pretty lumpy breasts so it’s probably nothing, but we will order a mammogram and ultrasound just to be safe.” As I awaited these tests I had several talks with my boyfriend without any worry; that if anything it was just a cyst. I went in for my exams without much anxiety and without answers. The exams came back inconclusive, so an MRI had to be ordered. I started worrying a little just because I wasn’t sure why I needed further tests if I just had lumpy breasts , but then again, I reasoned it as that. So I went for the MRI. The breast MRI was one of the most uncomfortable things I had done at this point in my life. I was not ready to be face down for an extended period of time, but I got it done. Those results stated I needed a biopsy, so of course I went ahead and got that scheduled. Up until the night I received a call from the breast surgeon, I remember saying, “There’s no way I have cancer, I have no family history and I’m too young.” The last time I said that was the night before my surgeon called. That call is one that I’ll never forget. I had really bad phone service at that time, so the first time I answered I couldn’t hear the surgeon on the other end. I didn’t know the number and I was working, so I just hung up. The second time, I answered rudely and had her on speaker phone. There was a day off of school and I was working from home, so my son was standing right outside my bedroom door; at this time he was 14. All I remember the surgeon saying is “It’s cancer, but treatable.” Everything in the entire world changed for me at that very moment . I was upset about how I found out, how my son found out at the same time, how I doubted I could ever have cancer, how I didn’t educate myself more of the possibilities. I just kept thinking, “How? And now what?” Life got very real after that. I was in the process of changing jobs. Luckily my new boss was understanding, as I am a mental health therapist and was going to need some of my own time to process my new diagnosis. My father (well… at the time, the man I thought was my father) died one week after my diagnosis, and as the only child I had to settle all of his affairs. I then found out that I tested positive for the BRCA 1 gene mutation , but again, HOW? I had no family history. So, I decided to do an ancestry test in the middle of chemo and all the pain associated with this new diagnosis. I found out that my biological father was a man I never knew , and that he carried the BRCA 1 gene mutation. I also found out that ovarian and breast cancer run heavily in my biological father’s side of the family. Again, I was left with the question: HOW? I felt like everything I knew about myself was wrong, and I wasn’t sure what to do. The only thing I could do was FIGHT. I fought my diagnosis by showing up for chemo every week despite the reactions, the low blood counts, and the negative feelings. I fought for my kids and my family. I decided that I could fight back by spreading awareness because anyone can get breast cancer, it doesn’t matter how old you are or if you think you have family history or not. I spent so much time doubting I had cancer that I never thought about the possibility that I had it and what it meant. What it meant was that I had chemo for the next eight months (12 rounds of carboplatin, Keytruda, Taxol and then Adriamycin-Cytoxan and Keytruda), then a double mastectomy, and then thirty rounds of radiation. My genetic mutation also means that my children have a fifty percent chance of developing the BRCA gene mutation . I also am at an increased risk for melanoma of the skin and eyes, pancreatic cancer, and ovarian cancer. I have more surgeries scheduled, including an exchange surgery for my breasts as well as an eventual hysterectomy and monitoring every three months. Even though the “hard” part of chemo is done, I have constant reminders – whether it’s my short hair or the yellowing of my nails – that my life is far from normal. My new normal has been hard to find, but I’m taking it one day at a time. I am thankful that despite the hard days, I got up and fought every day for my kids. I never lost track of my reasons. Cancer is tough, but I believe that I am tougher because of my support system . I am thankful to have a care/medical team that constantly makes sure I am doing what I need to be doing so that I can continue to outlive cancer. I’ve decided that 2024 is my year of travel and my time to give back whatever I can to those in the community that need extra support emotionally. So here’s to living and enjoying instead of just surviving. Connect with Nicholle on Instagram Read More: Breast Cancer in Young Women: Common Questions Answered Understanding Genetic Testing for BRCA1 and BRCA2 Mutations They Were My Blessing: Facing Breast Cancer With Young Kid s On the Podcast: Breast Cancer Conversations Understanding the Complexities of Genetic Testing Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events
- Echo of a Teardrop
By Nancy Hodgkins A profound inescapable sadness Unrelenting. Unerringly the ache seeps into every pore of my heart and soul. Hijacking my natural joy. Like a flower struggling bravely not to wilt in a torrential rain. Longing for safety in a shelter away from the heaviness of the emotional storm The wind hears the flower’s sigh of defeat. … Unimaginable Regret … An impossible wish to turn back the hands of time. A lightning bolt strikes. Cuts through the sky like broken glass eroding warm memories and leaving them tattered on the edge of despair. Thunder rages, trees bend until the storm finally passes on. A ray of sunshine peeks through the dark clouds and the flower’s petals shift towards the light reaching for a glimmer of hope. Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events
- Advances in Immunotherapy: A New Frontier in Breast Cancer Treatment
Breast cancer touches the lives of countless individuals, bringing with it fear, uncertainty, and an overwhelming emotional toll. Fortunately, there’s new hope on the horizon thanks to advances in immunotherapy. These developments offer a fresh and deeply personal approach to treatment, transforming how we confront this devastating disease. Immunotherapy is more than just a medical breakthrough — it’s a chance for people living with breast cancer to regain strength, hope, and a future. Read on to discover how immunotherapy is rewriting the story for those facing breast cancer. What Is Immunotherapy? Immunotherapy is a cancer treatment that activates the body’s immune system to target and destroy cancer cells. While traditional treatments like chemotherapy and radiation attack cancer directly, immunotherapy helps the immune system recognize and eliminate malignant cells. It offers a more personalized approach and can often be less harsh on the body than conventional therapies. Types of Immunotherapies Used in Breast Cancer Researchers are currently studying and using several types of immunotherapies to treat breast cancer, including: Checkpoint Inhibitors : These drugs block proteins that stop the immune system from attacking cancer cells. Checkpoint inhibitors, like pembrolizumab and atezolizumab, are showing promising results in certain types of breast cancer, particularly triple-negative breast cancer (TNBC). Cancer Vaccines : Researchers are developing vaccines that train the immune system to attack specific breast cancer cells . While still in the early stages, these vaccines may help prevent recurrence in patients who have already undergone treatment. Adoptive Cell Therapy (ACT) : This approach involves removing immune cells from the patient, enhancing them in a lab, and reintroducing them to target cancer more effectively. ACT is beneficial for patients with advanced breast cancer. Cytokine Therapy : This therapy harnesses the power of cytokines, natural substances the body produces. When injected, these cytokines can boost the immune system’s response to breast cancer cells, helping to shrink tumors. Why Is Immunotherapy a Game Changer? Traditional breast cancer treatments such as surgery, chemotherapy, and radiation often come with severe side effects, such as nausea, fatigue, hair loss, and a weakened immune system. Immunotherapy offers a more targeted approach, usually sparing patients from the debilitating side effects of conventional treatments. Immunotherapy is also highly adaptable. Doctors can often tailor treatments to a patient’s cancer profile because it works with the immune system. In addition, immunotherapy may offer more durable responses, as it trains the immune system to remember cancer cells, which could reduce the risk of recurrence. Benefits of Immunotherapy in Breast Cancer Precision Targeting : Immunotherapy targets cancer cells precisely without damaging surrounding healthy cells, minimizing side effects. Long-term Protection : The immune system can learn to recognize and attack cancer cells if they return, potentially offering long-term protection. Treatment for Aggressive Cancers : Immunotherapy has shown potential for treating aggressive forms of breast cancer, like TNBC, which may not respond to traditional therapies. How to Access Immunotherapy for Breast Cancer If you or a loved one is interested in immunotherapy, it’s essential to consult with an oncologist. They can help determine if you’re a good candidate based on the specific characteristics of your breast cancer and available treatments. Clinical trials are another avenue to explore if you’re looking for cutting-edge options. Count On Us for Information, Resources, and Support Immunotherapy represents a groundbreaking approach to treating breast cancer, offering new hope for patients with aggressive and resistant forms of the disease. As research progresses, more people diagnosed with breast cancer could benefit from this personalized, less invasive treatment. While challenges remain, the future of breast cancer treatment looks brighter than ever. Whether you’re newly diagnosed with breast cancer , are navigating survivorship, or are the loved one of someone experiencing breast cancer, you can count on SurvivingBreastCancer.org to keep you informed. We provide educational information to help you better understand symptoms , testing, treatment options , surgery, and more. We also offer podcasts that feature professionals, advocates, and caregivers who share valuable information. Your donations enable SurvivingBreastCancer.org , a community dedicated to empowering those affected by breast cancer with knowledge, understanding, and a network of care, to offer resources and support every day, every month, and every year. Note: This article is designed to provide general information and is not meant to replace professional medical advice. Always discuss your options with your healthcare provider. Read More: Immunotherapy Response Monitoring in Patients with Breast Cancer Passing Through The Promise of the Triple Negative Breast Cancer Vaccine Clinical Trials On the Podcast: Breast Cancer Conversations Antibody Drug Conjugates (ADCs) Dato Potato Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events
- From Diagnosis to Determination: My Triple-Negative Breast Cancer Journey
By Victoria Ramirez I always thought of myself as a planner. I had a master’s degree, a career in clinical research, a supportive partner, and a future I thought I could predict. But in June 2023, at 31 years old, I found myself facing a reality I never saw coming: stage 2 triple-negative breast cancer . Before my diagnosis, my life revolved around deadlines, meetings, and goals. Like many women, I often put others’ needs ahead of my own , pushing through exhaustion and stress, believing that if I could just finish one more project or take on one more task, everything would eventually fall into place. I thought I was invincible, assuming breast cancer was a concern for an older version of myself. But everything shifted one day when I felt a small, unassuming lump on my breast. My initial reaction was denial. I was too busy, too young , too healthy for cancer—right? But something deep inside told me not to ignore it. I scheduled a doctor’s appointment, and within days, I was thrust into a whirlwind of tests, biopsies, and anxious waiting rooms. The day I heard, “It’s cancer,” everything else fell away. Triple-negative breast cancer (TNBC) is known for being aggressive and more likely to affect younger women, particularly women of color. Suddenly, I was part of a statistic I didn’t even know existed. The next few weeks were a blur of fertility preservation , chemotherapy plans, and preparing for the unknown. I chose to be proactive and freeze my eggs before starting treatment, knowing that chemo could impact my ability to have children. While my friends were planning weddings or family vacations, I was bracing myself for the fight of my life. I lost most of my hair after the second chemo session. It seemed like such a small thing compared to everything else, but watching clumps fall out in the shower was devastating. It was a moment where the reality of what was happening truly sank in. I didn’t recognize the woman staring back at me in the mirror. But as much as the physical changes were challenging, it was the emotional toll that really took me by surprise. I felt like I was losing parts of myself—my energy, my confidence, and even my identity. However, as I moved through treatment, I found strength I didn’t know I had. Each chemo session became a small victory. Each day I woke up feeling even slightly okay was a reminder that I was still here, still fighting. I leaned heavily on my family, my partner, and the few friends who truly understood what I was going through . After five months of chemotherapy, I had a double mastectomy. It was the hardest decision I’ve ever made, but I knew it was necessary. There were moments when I doubted myself, times when the fear of the unknown felt suffocating. But in the midst of it all, I began to see my journey as more than just survival —I saw it as an opportunity to redefine what strength and resilience looked like. Now, in survivorship, life feels different. I’ve had to confront the reality that “normal” may never return. There are scars, both physical and emotional, that will never completely fade. But I also see how this experience has shaped me in ways I never imagined. I have a new perspective on time, relationships, and self-advocacy . I learned to say no, to prioritize my health, and to speak up when something doesn’t feel right. This journey has taught me that I am capable of withstanding more than I ever thought possible. Today, I’m passionate about using my story to raise awareness, particularly for young women and women of color . There are so many of us who fall through the cracks, who are told we’re “too young” for this diagnosis, who struggle to find resources and support that reflect our experiences. I want to change that. I hope to use my voice to empower others to pay attention to their bodies and prioritize their health. Cancer is a chapter I never expected to be written into my story, but I’m determined to use it to make a difference. While my scars may serve as reminders of a difficult journey, they are also symbols of strength, survival, and the promise of a future I’m still planning —one that I hope will be even more impactful than I ever imagined. Connect with Victoria on Instagram Read More: Breast Cancer in Young Women: Common Questions Answered Different Types of Breast Cancer The Promise of the Triple Negative Breast Cancer Vaccine Breast Cancer and Fertility On the Podcast: Breast Cancer Conversations Jacquie Carter Angell: Balancing Business, Motherhood, and mTNBC Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events
- Medical Cannabis and CBD: Improving Diet and Sleep During Cancer Treatment
By Taylor McKnight Chemotherapy presents a variety of challenges for those going through cancer, including changes to diet and sleep. Some adjustments to your daily lifestyle during this time can help you get the nutrients and rest you need. Continue reading to learn some tips on lifestyle changes for better diet and sleep , and how medical cannabis and CBD may help with some specific challenges during cancer treatment. Food for Health Between chemotherapy infusions, aim to eat as well as you can . For many cancer patients, nausea caused by chemotherapy makes taking in healthy food quite difficult. You may consider medical cannabis to both quell nausea and increase your hunger. For some, a single CBD gel capsule can make the difference between being nauseous and craving food . Chemotherapy-induced changes to your sense of smell or taste may impact your ability to eat . Foods that you once loved may smell horrible; foods that really didn’t appeal may now be the ones that you crave. There’s nothing wrong with enjoying sweet or salty treats because you need calories. However, if you can keep lean proteins and whole grain products on hand, it can help you eat a bit healthier. Some people receiving chemotherapy treatment develop mouth sores. Keep a bottle of plain water around so you can rinse and avoid inflammation. Try to avoid crunchy and spicy foods; cooked veggies may be better than fresh ones when mouth sores are at their worst. While you may be accustomed to a certain level of independence you had before starting cancer treatment, you will likely need some amount of help with groceries and meals. Asking for and/or accepting help is hard, but remember that it’s okay to accept support from others when offered . This is especially true in the case of food, as you may not have energy to cook or grocery shop after long days at the cancer treatment center. Nausea and taste changes may impact your usual dietary preferences . Let your loved ones know what you are craving and what you would rather avoid. Improving Sleep Habits Before you start your chemotherapy treatment, consider your current sleeping habits and environment and how they might be improved. You may want to buy blackout drapes (or request them from a friend offering help), and add a window air conditioner to your sleeping space if needed. Your core body temperature needs to drop for you to fall into the most healing stage of deep sleep. Do your best to sleep in a cool, dark and quiet room. Many people undergoing chemotherapy also take steroids to help reduce inflammation, but these may come along with additional side effects that impact your sleep. Medical cannabis or CBD products before bed may be helpful in allowing you to drift off to sleep. Chemotherapy is a powerful tool to treat your cancer, but it’s anything but easy to go through. Take care to protect your body and spirit during this challenging time. Note: Speak to your medical team before starting any new supplements or medications. This article is designed to provide general information and is not meant to replace professional medical advice. Always discuss your options with your healthcare provider. Read More: Packing a Care Bag for Cancer Treatment Tips for Pain Management with Cancer Understanding and Managing GI Issues Caused by Breast Cancer Treatment Making Food Choices During Breast Cancer Treatment Navigating Cancer Treatment: Top Tips from an Oncology Pharmacist On the Podcast: Breast Cancer Conversations Integrating Naturopathic Medicine with Conventional Breast Cancer Care Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events
- I am not who I was before this
By Emerald van Wyk One fateful morning in July 2019, my world shattered as I discovered a lump in my breast . A wave of sheer terror crashed over me, leaving me breathless with fear. Desperate and trembling, I immediately reached out to my general practitioner, Dr. Lakha. His promptness in setting up an appointment for further investigation felt like a lifeline, yet the dread only deepened when he confirmed my worst nightmare. Dr. Lakha confirmed that there was a lump present and that further investigation would need to follow. Without hesitation, Dr. Lakha referred me to the hospital radiology department and within a week, I held the results in my trembling hands. The word “biopsy” echoed in my mind, shattering my spirit. But this was just the beginning of an uphill battle. My medical savings were depleted, leaving me helpless in the face of the biopsy’s daunting cost . The irony of my situation was not lost on me – I felt both relieved and trapped. On one hand, I was grateful for the brief reprieve, a moment to brace myself for the possibility that the lump might be malignant. But the crushing reality remained: time was of the essence, and every day I waited brought me closer to an uncertain fate. In my darkest hour, I confided in my dear friend, Vanessa, explaining that I would have to wait until January 2020, when my medical savings would renew, to undergo the biopsy. Her concern was palpable, but all she could offer was her prayers. Little did I know, God had sent me an angel in the form of Vanessa. A week later, she called me with urgency, urging me to see Professor Carol-Anne Benn ( a renowned surgeon and breast-disease specialist) at Helen Joseph Hospital in Johannesburg, South Africa. Vanessa assured me that Professor Benn wouldn’t turn me away, as she was a champion of equal healthcare for all. That phone call felt like a ray of hope breaking through the suffocating darkness. When I finally met with Professor Benn, she didn’t hesitate. A biopsy was scheduled immediately. At that moment, I couldn’t help but feel that Vanessa had opened a door I hadn’t even known existed – God’s grace working through her. The days leading up to my biopsy were agonising. On the morning I was to receive the results, my anxiety reached a fever pitch when I learned that Professor Benn had been called away to an international conference. Another week of waiting. Another week of torment. I clung to my Bible, finding solace in its pages as I prayed for strength to endure. Finally, the day arrived. I sat down with Professor Benn, her words forever etched in my memory: the lesion in my right breast was malignant, but it was a slow-growing cancer. Invasive ductal carcinoma , stage 1. My world crumbled in an instant. The weight of that diagnosis was unbearable, like a heavy load of bricks on my back. The news was a devastating blow, one that left me debilitated for days as I struggled to comprehend the enormity of what lay ahead . Yet, somehow, I found myself at Professor Benn’s practice at Milpark Hospital, greeted by a compassionate young woman named Zamo Mguli, the navigating nurse . Zamo’s kindness pulled me from the abyss, guiding me through the overwhelming process that lay ahead. For the first time in days, I felt a glimmer of hope, a determination to confront the demon growing inside me. But the news kept getting worse. The MRI at Rosebank Clinic in Johannesburg, South Africa revealed more lesions, smaller but no less terrifying. I remember leaving the clinic, tears streaming down my face, overwhelmed by the horror of it all. Yet, even in my despair, I found a spark of positivity when I learned that a disciplinary committee of experienced doctors would decide my treatment plan. I knew then that God was guiding them, and I placed my faith in their hands. The call came soon after, and the navigating nurse informed me that I would undergo a lumpectomy with reconstruction surgery, followed by radiation. The news brought a mix of relief and fear, but I knew I had to fight with every ounce of strength I had. On November 14, 2019, my 90-minute operation was performed. I woke up the next day, surrounded by machines, my body fragile and my mind racing with fear. Being diabetic complicated everything, but with the careful management by Dr. Barend, the surgery was a success. Still, the aftermath was gruelling. I returned home with two drains attached to my body, a constant reminder of the battle I was waging. The pain was relentless , and the challenges seemed endless, but I pressed on, determined to heal. Radiation began on January 21, 2020, and continued for 31 excruciating days. This was the most harrowing part of my journey. The anxiety was suffocating as I lay motionless, positioned in precise angles, terrified of making a wrong move. But I wasn’t alone. The other women undergoing treatment shared my fears, and their tears became my comfort. We were in this together, and somehow, that made it bearable. I am eternally grateful to the multidisciplinary team who cared for me with such compassion and professionalism. To the radiation team at Netcare Clinton, your patience and dedication were a beacon of light during my darkest days. You treated me with kindness and understanding, even when I was at my lowest. And to my oncologist, Dr. Ramdas, who saw my anxiety and immediately referred me to my psychologist, Monica Austen – your holistic approach saved me. But the road was far from over. During my annual gynaecology visit, my doctor discovered a large lump inside my uterus. Concerning factors were the sheer size of the lump and its placement (under usual circumstances, a lump like this is located on the uterus wall, making removal easier – but in my case it was in my uterus, making removal more risky). Being a breast cancer survivor and a diabetic patient added to my risk factors, so my gynaecologist and oncologist agreed that the best course of action would be hysterectomy. On May 25, 2020, I underwent my hysterectomy. The prayers from various churches enveloped me, and I give God all the praise and glory for guiding me through yet another trial. God’s presence was undeniable throughout my journey, sending angels to support me along the way. On September 29, 2020, during a consultation with Dr. Ramdas, I received the words I had longed to hear: I was cancer-free . The Lord’s mercy and grace had carried me through, and my heart swelled with gratitude. Yet, the battle wasn’t entirely over. On October 6, 2023, I met with my new oncologist, Dr. Karen Motilall, who, along with Professor Benn, recommended another operation: a wide local excision of a breast sarcoma to ensure that any tiny lumps were benign. The procedure, though successful, was a severe test of my physical, mental, and emotional strength. This new chapter is fraught with uncertainty, but my resolve has never been stronger . I will continue to fight, to heal, and to trust that God will see me through, just as He has done before. Reflections and Inspirations I have always believed that like many cancer survivors, I am a living testimony. Every time I come through a major life challenge, I learn more about who I am and become a stronger woman because of it. With my renewed health, I strive to be a better person than I was yesterday. This path requires me to trust that the Lord’s purpose for my life has not yet been fulfilled. I have been put here on Earth to encourage and inspire, and I remain hopeful. God knows how this chapter of my life will end. I remind myself every day to allow the process to unfold and not be afraid to fear the unknown. Read More: Newly Diagnosed: Now What? The Cost of Breast Cancer Nurse Navigators: Your Guide Through Treatment Tips for Pain Management with Cancer On the Podcast: Breast Cancer Conversations Preparing for Breast Cancer Surgery: What You Need to Know with Dr. Tammaro Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events
- Breast Cancer’s Hospital Bags
By Beth Cazalet So many articles and books provide great information about what you might want to have with you when you are undergoing chemotherapy treatment to make it more bearable. Creating or receiving these chemo bags or products for chemo bags can be a very therapeutic way of taking some control during your cancer treatment. However, almost nothing I've seen tells you how to prepare a hospital bag for a longer stay or inpatient treatment , when more factors are out of your control. I started a chemo regime of carboplatin, paclitaxel and pembrolizumab (immunotherapy) in October 2023 for triple-negative breast cancer and I was in hospital with hepatitis by December 2023. I HAD packed a hospital bag, but I assumed I would only be in overnight for a check over, not that I would be there for two weeks, so the bag I had packed was pretty inadequate. After weeks of antibiotics and steroids, I was released from hospital. I was taken off paclitaxel and pembrolizumab, which are known for attacking the liver, and had more weeks of steroids to get my liver back to normal. I was extremely lucky that even with the limited amount of chemo I had, the drugs had shrunk the tumour enough to remove it. I now have no evidence of cancer but am back on oral chemo to be safe and to limit the potential of recurrence. My hospital bag is ready, just in case. Below are some ideas for what to pack in a hospital bag . If you have private medical care or are lucky, your hospital may provide some of these items, so take this list as a starting point. Day clothes/nightwear: Several sets of each. Preferably, outfits should not go over the head. Opt for button-down shirts with loose fitting sleeves so that if you have a cannula in your arm, you can take your top on and off when needed for blood tests and infusions without disturbing the cannula. Trousers with elasticated waistbands are easier than zips and buckles, especially if you have a cannula. A zip-up sweater or cardigan is also helpful. Take several pairs of underwear and socks (not just one). A dressing gown (robe) and non-slip slippers give you much greater dignity if you stay in PJs. Wash bag and toiletries: The hospital may give you toiletries, but it is best to have your own toothbrush and toothpaste. If they end up washing you, they usually provide all of it. They may also give you towels and a washcloth, so you do not need to pack those (my hospital didn’t provide washcloths). Body lotion and lip gloss are also helpful as you can feel dried out from temperature differences compared to your home. Eye mask and ear plugs: The hospital can be very noisy and light, making it difficult to sleep and recover. I found eye masks, earplugs and noise cancelling headphones essential (preferably headphones that you can keep on even if you roll over in your sleep). Contact list of phone numbers and chargers: You need to have a list of people’s telephone numbers either printed out or be able to access them on your mobile phone/tablet. A good charger and cables are also important. Details of your cancer medications, other regular prescription medications and over-the-counter supplements (like vitamins): This helps ensure that there are no adverse drug reactions and that you can get what you need. I created a spreadsheet to keep track of my cancer medicines and when I took them, which proved very useful when they were trying to figure out what I was reacting to. Notebook and paper: These items are helpful if you have questions and want to make notes or create lists of things for people to bring to you or instructions for home. Entertainment: A puzzle book, novel, magazine, craft activity or a tablet with some movies, TV, or music downloaded can help pass the hours, especially if you wake up in the night and need help going back to sleep. Read More: Packing a Care Bag for Cancer Treatment Why a Second Opinion Matters for Breast Cancer Nurse Navigators: Your Guide Through Treatment On the Podcast: Breast Cancer Conversations Good News for Triple Negative Breast Cancer: A Vaccine and Hope for the Future Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events
- Tell Cancer To Go #TakeAHike: a total success!
Boston, MA – October 2024 – SurvivingBreastCancer.org is thrilled to announce the success of its second annual Tell Cancer To Go #TakeAHike event. This year, 100 teams and nearly 200 participants came together to raise more than $20,000 in support of breast cancer awareness and resources for patients and survivors. "We’re incredibly grateful for everyone who participated and donated," said Laura Carfang, CEO of SurvivingBreastCancer.Org . "This event shows the strength of our community and the commitment to making a positive impact in the lives of those affected by breast cancer." Though the event has wrapped, donations are still being accepted at https://givebutter.com/0fCiEU to continue supporting SurvivingBreastCancer.org ’s programs. About SurvivingBreastCancer.org : SurvivingBreastCancer.org (SBC) is a 501(c)(3) nonprofit organization supporting those who have been touched by breast cancer. SBC provides free online resources and emotional support services to guide individuals when they are first diagnosed, through treatment, and beyond. Media Contact: Ana Quintero Marketing and PR Specialist SurvivingBreastCancer.org ana@survivingbreastcancer.org