Crisis Text Line : Text HOME to 741741 for free 24/7 support. A breast cancer diagnosis is more than a physical challenge—it’s an emotional one, too. Fear, anxiety, and uncertainty can be overwhelming, often leading to distress or depression. It’s okay to feel scared or frustrated, but remember that you don’t have to face it alone. Support from loved ones, counseling, and peer-to-peer groups  can make all the difference. Understanding the Link Between Breast Cancer and Mental Health Emotional Toll of a Diagnosis A breast cancer diagnosis can be overwhelming. Feelings of fear, uncertainty, and sadness are common, especially in the early stages of diagnosis and treatment planning. If this sounds familiar, you’re not alone. Studies show that nearly 25% of breast cancer patients experience clinical depression , while up to 50% report heightened anxiety  at some point. Effects of Treatment on Mental Health Cancer treatments such as chemotherapy, radiation, and hormonal therapy can contribute to mood changes . Side effects like fatigue , hormonal fluctuations, and chronic pain  may increase your feelings of helplessness and distress. Talk to your doctor to learn whether any of your prescribed medications may also impact your mental health. Survivor’s Guilt and Fear of Recurrence As breast cancer survivors, many of us experience guilt about surviving  while others do not. Additionally, the fear of recurrence can lead to persistent anxiety, making it challenging for you to enjoy post-treatment life. Maybe you’ve experienced “scanxiety,” or high stress levels before your oncology follow-ups and scans. Recognizing Signs of Depression and Anxiety As someone experiencing breast cancer treatment, survivorship, and/or living with metastatic breast cancer, you can team up with your caregivers and oncology team to recognize signs of clinical depression and anxiety disorders. Some common signs include: Persistent sadness, hopelessness, or numbness Loss of interest in activities you once enjoyed Sleep disturbances (insomnia or excessive sleeping) Changes in your appetite or weight Fatigue that doesn’t improve with rest Increased irritability, anger, or frustration Difficulty concentrating or making decisions Feelings of worthlessness or excessive guilt Panic attacks or constant worrying about your health and the future If you experience these symptoms for over two weeks, seeking professional support is essential. 5 Strategies for Addressing Mental Health Challenges 1. Seek Professional Help Psychologists, psychiatrists, and oncology social workers specialize in cancer-related mental health challenges. Therapy options like cognitive behavioral therapy   (CBT) have been proven effective in managing depression and anxiety in people experiencing breast cancer. If you have severe symptoms, your healthcare team may recommend antidepressants or anti-anxiety medications  alongside therapy. It’s important to discuss medication options with your entire oncology team as well as mental health professionals to avoid interactions with your cancer treatments. 2. Build a Support Network Social support plays a significant role in mental well-being. Connecting with support groups   can provide emotional relief and shared experiences, which can help individuals feel less isolated. Join SurvivingBreastCancer.org  every Thursday for breast cancer support groups, including special meetups for metastatic breast cancer, early stage breast cancer, and inflammatory breast cancer: https://www.survivingbreastcancer.org/thursday-night-thrivers-meetup 3. Incorporate Mind-Body Practices Research supports the benefits of yoga , meditation , and mindfulness practices in reducing stress and improving mood among people with breast cancer. These activities can offer relief from emotional distress. Join SurvivingBreastCancer.org  for our numerous yoga, Pilates, meditation, writing, and art programs: https://www.survivingbreastcancer.org/events 4. Maintain Physical Activity Engaging in regular physical activity, even in small amounts, has been shown to reduce symptoms of depression and anxiety in cancer patients .   The American Cancer Society recommends at least 150 minutes of moderate weekly exercise to improve overall well-being. 5. Practice Self-Compassion Being kind to yourself is essential . Adjusting to life with or after breast cancer takes time, and it’s okay to have difficult days. Journaling, engaging in creative outlets, and resting can help cultivate a positive mental outlook. Breaking the Stigma Around Mental Health and Cancer Many people with cancer hesitate to talk about their mental health struggles due to stigma. However, mental health is just as important as physical health . Advocacy and awareness can help change this narrative. If you or a loved one are experiencing depression or anxiety due to breast cancer, reaching out for help is a sign of strength, not weakness . Count On Us for Information, Resources, and Support  Breast cancer and mental health are deeply interconnected. Recognizing and addressing depression and anxiety  is a crucial part of holistic cancer care. By seeking support, incorporating wellness strategies, and advocating for mental health awareness, you can improve your emotional well-being and overall quality of life. Remember, you’re not alone. Rely on your healthcare team, loved ones, and support networks like SurvivingBreastCancer.org  to help you through this time. Whether you’re newly diagnosed with breast cancer , are navigating survivorship, living with metastatic breast cancer, or are the loved one of someone experiencing breast cancer, you can count on SurvivingBreastCancer.org to keep you informed. We provide educational information to help you better understand symptoms , testing, treatment options , surgery, etc., and podcasts  that feature professionals, advocates, and caregivers who share valuable information. Your donations  enable SurvivingBreastCancer.org , a community dedicated to empowering those affected by breast cancer, with knowledge, understanding, and a network of care, to offer resources and support every day, every month, and every year.  Crisis Text Line : Text HOME to 741741 for free 24/7 support. Note: This article offers general information and does not replace professional medical advice. Make sure to discuss your options with your healthcare provider. Read More: The Psychological Impact of Breast Cancer: Strategies for Coping Managing Fatigue During Breast Cancer Treatment Survivor’s Guilt and Metastatic Breast Cancer The Impact of Breast Cancer on Self-Image On the Podcast: Breast Cancer Conversations Why Every Breast Cancer Survivor Should Try Pilates with Guest Nina Prol Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By Elizabeth Brodbine Ghoniem I was diagnosed with breast cancer a couple of years ago; I was sixty-six. Was I surprised? Not really; I’d already had two other breast cancer scares. “Third time’s a charm” didn’t apply. Or perhaps it did. One oncologist called me “lucky.”  They discovered the cancer early. It had not spread . Only surgery followed by radiation would be necessary—no chemotherapy. There would be medication to take for five years, but I could worry about that later.  It started with my annual mammogram. The radiologist found suspicious activity in my left breast. Unlike the calcifications she was already watching, these new masses had jagged edges (pleomorphic). The next step would be a stereotactic biopsy. Since I had had two biopsies before, I thought it was no big deal. But the radiologist kept looking at me suspiciously, repeatedly asking if I had any questions. That should have been my first clue. Later, I decided to look it up online. Only a man could have designed this process. Yes, it is exacting, but imagine you are lying face down on a specialized table with your breast hanging through a hole, your head to one side, your arms fixed over your head. You’re told to hold still for 20 to 30 minutes, while your breast is squeezed like a lemon until the last drop of juice. Then the doctor inserts a needle to suction a sample, and inserts clips to mark the location of the area in question.  It was the worst mammogram I’ve ever had.  Apparently, patients used to sit in a chair for this, but many passed out, so now they opt for a table. Improvement? Really?  I searched online and found one vendor’s website showcasing the device. The patient and doctor were smiling; they appeared  happy (before the procedure?). The process was described as “comfortable patient access.” That should have been my second clue.  After all, the company sells to doctors, not to patients like me.  Don’t get me wrong. I am grateful for advancements in technology that allow doctors to discover cancers much earlier and save lives—mine included. But perhaps the same efforts that our tech billionaires put into launching rockets to Mars could be redirected to fund development of better, more patient-friendly diagnostic machines, instead of this medieval torture device. Maybe then, fewer women would avoid mammograms, and we’d have fewer late-stage diagnoses. The call came while I was on Zoom with my writing group. I muted the meeting and left the room. A nurse had the unfortunate task of delivering the results: cancer. My hands shook. Even though I had prepared myself for the diagnosis, it was still shocking. Fortunately, my husband was home. He stood beside me as the nurse rattled off: DCIS, grade 3, ER+.  The ductal carcinoma in situ  (DCIS) diagnosis meant that it had not spread outside the ducts in the breast. It was grade 3—meaning how different it was from other cells within the grading system of 1-3, with three being the worst, and was estrogen-receptor positive (ER+), indicating that estrogen was feeding the cancer. We didn’t know enough to probe  beyond “what’s next?”  We met with the surgeon the next day, who explained more. The plan: breast-conserving surgery—aka lumpectomy—followed by radiation, and then hormone reduction therapy. One in eight women will be diagnosed with breast cancer . Because of that awful statistic, I was able to reach out to friends and family who had breast cancer, including my younger sister. Everyone assured me that it would be okay. After all, everyone was still alive 7 and 10 years after the diagnoses and treatments. Even my doctor friends, including a retired breast surgeon, were quick to reassure. They had caught the cancer early. I was “lucky.” Surgery was routine. The only annoyance. No exercise for three weeks. My excellent surgeon insisted upon that multiple times. Please don’t get the impression that I’m an exercise nut because I’m not. But this was summer, and I vowed to get back into shape. Kayaking? Not allowed. Swimming? Off the table. Even walking longer than a couple of miles was discouraged. My husband, normally a drill sergeant, insisted on joining me for any walks. Instead of “walk faster, you’re too slow” I got “too far, turn around.”  I may have sneaked in a few extra steps. Just don’t tell him. Thanks to a ruling from President Obama’s administration, the medical profession must release test results as they become available. Helpful? Yes. Scary? Absolutely.  My phone pinged with my surgical pathology report . Of course, I had to look: 2mm margins, DCIS with solid and cribriform types (intermediate grade) with necrosis. Two pages of results that I did not understand. I searched online and found an article by the American Breast Cancer Foundation and tried to decode my fate while I waited for the doctor’s call. Thanks to my care team, the doctor’s office called shortly after. Another surgery was not needed; they had gotten all the cancer. The margins were clear, at least 2mm. I guess I missed the pre-surgery discussion of potentially more than one surgery. At least it was irrelevant. But what about the other results: necrosis, tubular, a decrease from grade 3 to grade 2? Did this mean I could skip radiation?  Two days later my husband and I met with the radiation oncologist. During the exam, the doctor remarked on how my anatomy was ideally suited for radiation; she liked the separation of my breasts. Should I be flattered?  Radiation, like chemotherapy, is meant to kill any remaining cancer cells to reduce the risk of migration and recurrence. But nothing comes without risks. All I could think of was Marie Curie, the first woman to win the Nobel Prize for her breakthrough research on the chemistry of radioactive substances. She had died from too much radiation exposure.  I wasn’t Marie Curie, and this wasn’t the early 1900s. But when you are told that radiation will be beamed into your body to kill cells, wouldn’t you also worry?  The doctor understood my hesitancy. A new test, DCISionRT, could be done to determine my individualized risk for recurrence and benefit from radiation. “Tests are good,” my husband uttered. Unlike our first call, he had come prepared with questions. He did not earn his PhD and become a professor at MIT without his fair share of research. “Just one more question,” he said and asked a slew more, which the doctor patiently answered.   The results from this new test would take two weeks. In the meantime, I was stuck in limbo, unable to plan my future. The doctor understood and agreed to schedule our next appointment as if we were moving forward with radiation while we awaited the results. This was prophetic because, sure enough, I was at high risk for recurrence, and radiation would reduce that risk by more than half.  To prepare for radiation, you first undergo mapping. This process is conducted using a CT/simulator, which scans and maps the breast area to be targeted and the areas to be blocked (your heart and lungs). Tattoos are applied in strategic locations; these are small freckle-sized markings that the radiation technicians will use to align your body during radiation therapy. I have four of these: one on my left side, one on my right side, one in the middle of my front, and the last in the middle of my back, all aligned with my breasts. This involves a pin prick into the skin. It was uncomfortable but certainly tolerable. However, I will forgo getting any decorative tattoos, as I can only imagine how this multiplied by 10,000 pin pricks would feel. I leave that to others. After the mapping session, the team—the radiation oncologist, physicist, dosimetrist, radiation technicians, and nurses—meets to discuss the optimal dose and transmission of the radiating beams, as well as your position during treatment, whether you will be prone or supine.  I don’t know why I struggle with the terms “prone” and “supine.” I know that one means lying with your face down and the other with your face up, but I get tripped up sometimes. It’s like when someone says to lift your left arm and you lift your right one instead. I was interested in the etymology of the terms. It beats searching for something about cancer.  “Prone” originates from Latin pronus , meaning to bend forward, lean forward, bend over—your face not up. “Supine” originates from the Latin supinus , meaning lying on the back, bending backward, obviously face up. Yet I’m not alone in my confusion. James Joyce in Ulysses writes:  “ He lies prone , his face to the sky, his hat rolling to the wall.” And, I wonder if Flannery O’Connor was equally confused or just wanted to be ambiguous when she wrote in one of her letters: “I too have been prone  on my couch this week, a victim of the common cold.” Wouldn’t you visualize someone lying on their back, face up?  A week after the mapping, on a Friday, I had my pre-treatment session, which included the team’s decision on my treatment. I would have eighteen radiation sessions, Monday through Friday, with weekends off. For sixteen sessions I would be prone, my left breast hanging down through an opening in the table. It sounds awful but really it’s not that bad. Unlike the stereotactic biopsy, your breast hangs free—no compression. For the last two sessions, I would be supine for a “cone down,” the radiation field narrowed for an extra boost, not necessarily a higher dose.  The radiation technicians—always two, sometimes three—introduced me to the linear accelerator. You can undoubtedly research this machine, which I did, but simplistically it is the device that beams the radiation on you. The technicians had me lie prone on the x-ray table, aligning my body to the exact position recommended for treatment, and took additional pictures. All of this was recorded, and the machine was programmed to know exactly where to radiate its beams. Radiation treatments would begin the following Monday. The doctors and staff thoroughly explained the process, discussing in detail the short- and long-term side effects; none were serious, except for those rare instances that occur only once in a million. I wouldn’t go there. The sessions would take no more than fifteen minutes from start to finish. I asked if it hurt. They said it wouldn’t, but I’ve been given that same answer before and I was skeptical. I thought I had a high level of tolerance for pain until experiencing excruciating pain during a dental visit. The dentist, now my former  dentist, said Novocaine was unnecessary as she yanked off a temporary cap to replace it with a permanent one. “It will only take twenty minutes,” she said as she continued to yank away, and I gripped tighter and tighter to the side of the chair. Twenty minutes turned into two hours. Finally, she asked if the cap fit okay. I lied. No way was I going to let her continue and no way was I going back. So yes, I was skeptical when the radiation oncologist assured me it would not hurt. Day 1 came the following Monday. I was petrified, and I didn’t sleep the night before. It also didn’t help that my appointment was during rush hour, it was raining intermittently, and it was the first full week of school. Traffic couldn’t have been worse. Waze kept redirecting me and I eventually gave up and ignored their instructions. My husband was in a separate car on the phone, trying to calm me, assuring me that they would wait for me if I were late. Assuring, another word that was becoming all too familiar. Its meaning: to make sure or certain. At least that was true; I made it to the lab with two minutes to spare.  I was greeted warmly by the receptionist, nurse, and the two radiation technicians whom I had met the previous Friday. I changed into a lovely blue waist-length gown and looked back at my husband, who seemed more anxious than me as the technicians led me away. Tossing off my sandals and the gown, I climbed onto the table, lay face down (prone) and started breathing deeply. The technicians guided my body in place, smoothing down my shoulder blades, asking me to “relax my shoulders.” Okay, really! I am lying half-naked face down on a table in a freezing room, where there is a big machine hovering above me, and I am supposed to relax. Yes, they kindly gave me warm blankets for my lower body and arms, but I was still cold, and my claustrophobia was getting the better of me—more deep breathing. After the technicians assure me I am in the exact position, the machine is lowered and positioned inches away from my body. The technicians leave the room.  Moments later, I hear noises, some clicks and then a louder, longer, screeching sound. I try yogic breathing. In for ten and out for ten, but it feels more like the beginning of hyperventilation. The machine rotates across my body. More clicking and again longer, screeching sounds. Then it’s over. The doctor was right: no pain. I learned the screeching sounds were the radiation beams doing their job, one side and then the other. Fifteen minutes later, I am dressed and on my way home. And just in case you were wondering, I am not radioactive. Note to self: next time wear socks. Day 2. After battling with my husband over when to leave—he’s known for barely making flights—I win, and we leave about fifteen minutes earlier, which makes a huge difference. Same routine. I jump on the table, this time wearing socks. Warm blankets, of course, and the machine moves around me. There’s no pain, but later that day, I felt some twitching in my breasts. I visualized red, androgynous figures, swords and shields raised, battling the beams as they came in, struggling to survive and proliferate.  Day 3. My husband and I arrive early. Treatment is delayed. The server is down. Did the warriors win? We meet with the radiation oncologist. My husband raises the concern about the twitching in my breasts. She assures us that the twitching is likely a remnant of surgery and could last days, months, or even years. But what if she is wrong, and there are truly cancerous warriors inside me, battling to survive as I fought to rid myself of them?  Later that day, I received a call: the server was up. Could I return for my treatment? The warriors better be prepared because the radiation beam was coming for them again. Treatments went smoothly after that, but my mind still came up with all sorts of conspiracy theories as I lay there being beamed down upon. Besides the little red warriors—I still believe they do exist—I lay there wondering what would happen if one of the technicians moved the beam to my eyes, blinding me or my brain and wiping out all my memories. Of course, none of this happened, but my strongest recommendation is not to binge-watch four seasons of Stranger Things  while undergoing treatments. Radiation is over. I can return to my routine—whatever that even means now. Cancer changes you. Even though my prognosis is excellent – 97-99% survival rate, I realize that life will end at some point. I still hesitate before making plans too far in advance, and I find myself analyzing every ache and wondering. However, I also buy that ridiculously expensive dress I’ve been coveting in the store or that perfectly matching necklace. I don’t wait for “the special occasion.” Life itself is the occasion. Read More: Understanding the Different Stages of Breast Cancer: What You Need to Know Ductal Carcinoma in Situ (“Stage Zero” Breast Cancer): What You Need To Know Empowering Yourself: Questions to Ask Your Doctor After a Breast Cancer Diagnosis Understanding Your Pathology Report: A Comprehensive Step-By-Step Guide On the Podcast: Breast Cancer Conversations Understanding Nurse Navigation: Support and Resources for Cancer Patients Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

In the world of fitness and cancer rehabilitation, Pilates has emerged as a powerful tool for healing — especially for those navigating life during and after a breast cancer diagnosis. Known for improving core strength and flexibility, Pilates also supports emotional resilience and provides a gentle, effective path back to physical activity. This blog explores how Pilates supports breast cancer recovery, promotes mobility, and offers a holistic mind-body approach to wellness. Listen on the podcast: Breast Cancer Conversations. What Every Breast Cancer Survivor Needs to Know About Pilates What Is Pilates? Originally developed by Joseph Pilates in the early 20th century, Pilates is a low-impact exercise method that focuses on core engagement, controlled movement, and mindful breathing. It draws inspiration from yoga, physical therapy, and bodyweight training, making it safe and adaptable for all fitness levels—including those recovering from illness or surgery. What sets Pilates apart is its focus on the "powerhouse"—the deep core muscles, including the abdominals, lower back, hips, and glutes. A strong core supports balance, posture, and overall stability, all of which can be compromised during cancer treatment. How Pilates Builds Strength After Cancer Unlike traditional strength training that often isolates large muscle groups, Pilates builds functional strength by engaging multiple muscle groups simultaneously —including the often-overlooked stabilizing muscles. Exercises like The Hundred , Leg Circles , and The Teaser  not only target the abs but also activate the arms, legs, and back for a full-body, integrated workout. For breast cancer survivors and thrivers, who may experience muscle atrophy, fatigue, or limited range of motion following surgery or radiation, Pilates provides a gentle, effective way to rebuild strength without overexertion. It emphasizes quality over quantity, making it accessible even for those managing chronic pain or just beginning to reintroduce movement into their routine. Increasing Flexibility Through Pilates Flexibility loss is a common side effect of both cancer treatments and prolonged inactivity. Pilates helps restore range of motion with gentle stretches, spinal mobility exercises, and postural alignment. Movements like Spine Stretch Forward , The Saw , and Mermaid Stretch  lengthen muscles and open up tight areas, promoting better movement and comfort. For breast cancer patients, especially those who have undergone lymph node removal or mastectomies, this type of mindful stretching can help alleviate tightness, scar tissue discomfort, and joint stiffness, offering a safe way to regain confidence in their bodies. The Mind-Body Connection: A Holistic Approach to Healing Beyond the physical benefits, Pilates encourages mindfulness, emotional grounding, and stress relief—all essential during cancer recovery. Focusing on breath and alignment helps practitioners reconnect with their bodies after trauma or treatment. In a recent episode of Breast Cancer Conversations , podcast host and survivor Laura Carfang explored how movement became a lifeline during her own recovery. She emphasized that Pilates is more than just exercise—it’s an act of self-compassion and a tool to reclaim agency during a time when the body can feel unfamiliar or out of control. Building Community Through Movement Many cancer survivors find Pilates classes—whether in-person or virtual—to be a source of community and support. Moving together, sharing progress, and being seen in a safe space can boost motivation and emotional resilience. This shared experience helps reduce feelings of isolation and encourages regular practice. Whether it’s a local class or a free virtual session offered by nonprofits like SurvivingBreastCancer.org , movement becomes a gateway to connection, healing, and hope. Final Thoughts: Pilates as a Path to Empowerment Pilates is more than a workout—it’s a pathway to healing, strength, and flexibility for those living with and beyond cancer. With its gentle approach, focus on breath and control, and deep physical and emotional benefits, Pilates offers survivors a way to rebuild their bodies and reclaim their lives. Whether you're newly diagnosed, in treatment, or years into survivorship, Pilates can meet you where you are—empowering you to move with grace, strength, and purpose.

By Joseph J. Pinzone, MD, MBA, FACP Imagine a world where we can give tumors in the breast and elsewhere a literal “fever” and make our conventional therapies like chemotherapy and radiation work even better . Sounds like science fiction? Well, it’s not! It’s a reality with an advanced, ultrasound-based technique called hyperthermia therapy . As a physician, I’m thrilled to shed light on this remarkable therapy that’s been FDA-approved since 1987 but has been flying under the radar so that even many oncologists and radiation oncologists are not familiar with it. What is Hyperthermia Therapy? Hyperthermia therapy is a cutting-edge technique that treats breast cancer and other solid tumors by heating them to temperatures between 106°F and 109°F (41°C to 43°C). Rather than burning the tissue, the goal is to use heat to make cancer cells more receptive to other treatments. Think of hyperthermia as a way to supercharge your cancer treatments. By raising the temperature within the tumors, we make them more vulnerable to the powerful effects of chemotherapy, radiation, and even some advanced targeted therapies. How Can Hyperthermia Enhance Your Breast Cancer Treatment? Here’s the scoop in simple terms: Cancer cells can be under stress from rapid growth and poor blood supply. Heating these cells can amplify the impact of your other therapies in a few key ways: Boosting Therapy Delivery: Many tumors have poorly developed blood vessels, which can make it hard for drugs like chemotherapy and targeted therapies to reach the center. Hyperthermia increases blood flow to the tumor, ensuring these treatments can penetrate more deeply. For radiation, increased blood flow delivers more oxygen to the tumor; this helps radiation work even better since radiation uses oxygen to damage DNA, thereby marking the cancer cells for programmed cell death. Strengthening DNA Damage: Both radiation and many types of chemotherapy damage the DNA in cancer cells. Hyperthermia helps keep this damage intact, making it more likely that the cancer cells will undergo programmed cell death, also known as apoptosis. Activating Your Immune System: Heating the tumor releases heat shock proteins (HSPs), which help reveal mutated cancer proteins to your immune system. This process boosts your body’s ability to target and destroy cancer cells more effectively. Minimal Side Effects: The Beauty of Hyperthermia One of the most exciting aspects of hyperthermia therapy is its gentle nature. Unlike many cancer treatments, it doesn’t involve harsh chemicals or damaging radiation. Most patients experience only mild effects, such as a warm sensation, slight reddening of the skin, or minor discomfort. These effects are usually short-lived and easy to manage, making hyperthermia a friendly addition to your treatment plan. Who Can Benefit from Hyperthermia? Hyperthermia isn’t a standalone treatment but works best when combined with other therapies. It can benefit many patients with breast cancer, including those with metastatic spread to deep or hard-to-reach locations. What’s the Catch? While hyperthermia holds tremendous promise, it’s not yet available everywhere. It requires specialized equipment and expertise, so you’ll need to find medical centers that offer this treatment. Fortunately, a growing number of clinics and research centers are now embracing this innovative approach.  Looking Ahead: The Future of Hyperthermia Therapy The future of hyperthermia therapy is incredibly bright. Ongoing research and technological advancements are making this treatment more precise and effective. Combining hyperthermia with other cutting-edge therapies could lead to even better outcomes for breast cancer patients. Final Thoughts As we push the boundaries of cancer treatment, therapies like hyperthermia are making a real difference. By enhancing the effectiveness of existing treatments while aiming to keep side effects to a minimum, hyperthermia therapy is truly a game-changer in the fight against breast cancer. So, when you hear about the latest advancements in cancer care, remember that hyperthermia is not just a hot topic—it’s a fantastic way to make your treatments work even better. With minimal side effects and growing evidence of its effectiveness, hyperthermia therapy is poised to be a valuable ally in your cancer journey. Stay informed, stay optimistic, and let’s embrace these groundbreaking therapies that are paving the way for a brighter future. Warm regards (pun intended!), Joseph J. Pinzone, MD, MBA, FACP Chief Medical Officer Hyperthermia Cancer Institute www.hcioncology.com Note: This article offers general information and does not replace professional medical advice. Make sure to discuss your options with your healthcare provider. About the Author Dr. Joseph Pinzone is Chief Medical Officer of Hyperthermia Cancer Institute (HCI). He received his M.D. from NYU, completed residency in Internal Medicine at Columbia-Presbyterian Medical Center in N.Y. and fellowship in Endocrinology, Diabetes & Metabolism at Massachusetts General Hospital and Harvard Medical School where he secured an NIH grant to study pituitary tumors. He was on faculty at George Washington University School of Medicine and The Ohio State College of Medicine with a 5-year NIH grant to study breast cancer. Then at Amgen he was Director of Medical Affairs for the launch of XGEVA® a medication for patients with cancer and bone metastases. Dr. Pinzone has taught numerous students, physicians, & scientists and published scientific papers. He wrote & hosted a PBS TV show Innovation in Biologic and Biosimilar Medications  and appeared multiple times on the CBS TV series The Doctors . He was previously Assistant Professor of Clinical Medicine at David Geffen School of Medicine at UCLA. Hyperthermia Cancer Institute delivers FDA-approved therapy to heat tumors up to 109o F which kills cancer cells, induces an immune response and increases the effectiveness of chemotherapy and radiation therapy. Read More: Empowering Yourself: Questions to Ask Your Doctor After a Breast Cancer Diagnosis Why a Second Opinion Matters for Breast Cancer What is Breast Cancer Rehab? Nutrition, Mindset, and Empowerment: Thriving Beyond Cancer Managing Fatigue During Breast Cancer Treatment: Tips for Conserving Energy On the Podcast: Breast Cancer Conversations The Role of Advanced Imaging in Breast Cancer Diagnosis and Treatment Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

Breast cancer treatment is a physical, emotional, and mental challenge. Facing cancer and its side effects demands extraordinary physical, emotional, and spiritual stamina. One of the most common side effects is the overwhelming fatigue that can accompany not only cancer but also many treatments, like chemotherapy. This fatigue is more than just feeling tired after a long day; it’s a deep exhaustion that rest alone doesn’t always fix. If you’re feeling this way, you’re not alone. Managing fatigue is crucial, not only for your body but also for your overall well-being and recovery. Continue reading to learn why this fatigue occurs, everyday tips to help you conserve energy, and how to work closely with your healthcare team to feel more like yourself again. Why Does Fatigue Occur During Breast Cancer Treatment? Fatigue during breast cancer treatment can stem from various causes, including: Cancer-related biological changes: Some types of breast cancer affect hormones like estrogen and progesterone  that influence energy levels and can put an energy-intensive strain on your immune and other systems.  Nutritional deficiencies:  A loss of appetite or dietary restrictions can lead to low energy levels. (Check out SBC’s resources on managing nutrition  through treatment.) Chemotherapy and radiation therapy:  These treatments can cause anemia and inflammation, leading to exhaustion. Medications:  Drugs used during treatment, such as pain relievers and anti-nausea medications, may cause drowsiness. Emotional stress:  Anxiety and depression associated with cancer can also contribute to fatigue. Sleep disturbances:  Pain, stress, or treatment effects can interfere with sleep . What Does Cancer-Related Fatigue Feel Like? Cancer-related fatigue differs from everyday tiredness. It is a persistent, overwhelming sense of physical, emotional, and mental exhaustion not relieved by rest or sleep. Unlike typical tiredness, this type of fatigue can significantly impact a person’s ability to carry out daily activities. Cancer-related fatigue often affects quality of life, making it difficult for individuals to concentrate, engage in social activities, or maintain a sense of well-being.  7 Practical Tips to Conserve Energy During Treatment 1. Prioritize Your Energy Focus on the activities that matter most to you. Make a list of daily tasks and rank them by importance. Delegate less critical tasks to family and friends. Tip:  Try using a planner to schedule activities when you feel most energetic. 2. Practice the “4 Ps” of Energy Conservation The National Comprehensive Cancer Network  recommends these techniques for managing cancer-related fatigue. The four Ps — plan, prioritize, pace, and position — can help you manage daily activities without overexerting yourself. Plan:  Combine errands and rest between activities. Prioritize:  Focus on must-do tasks. Pace:  Don’t rush. Break tasks into manageable steps. Position:  Sit while doing chores like cooking or brushing your teeth. 3. Stay Physically Active (But Gently) While it might seem counterintuitive, light exercise can help combat fatigue . Activities like short walks, gentle yoga, or stretching can boost energy levels. Talk to your doctor before starting any exercise routine. Check out SBC’s upcoming yoga and Pilates classes on our event calendar , or check out our On-Demand library  for recordings! 4. Optimize Your Sleep Routine A good night’s sleep can make a significant difference. Try these sleep-friendly habits: Keep a consistent bedtime and wake-up schedule. Create a calming bedtime routine — read a book, take a warm bath, or practice meditation . Avoid caffeine and heavy meals before bed. 5. Eat Nutritious Foods Eating balanced meals  fuels your body. Focus on: High-protein foods like eggs, nuts, and beans Fresh fruits and vegetables Whole grains A registered dietitian can help you develop a meal plan that supports your energy levels during treatment.  6. Manage Stress and Emotions Emotional exhaustion can worsen fatigue. Try: Mindfulness or meditation to calm your mind Counseling or support groups — talking to others who understand can help. Join SBC for Thursday Night Thrivers , our weekly virtual support group with special meetups for metastatic breast cancer, early-stage breast cancer, inflammatory breast cancer, and a Spanish-language group! 7. Communicate With Your Healthcare Team Persistent fatigue should never be ignored. Discuss these questions with your care team: Could my fatigue be related to anemia or thyroid issues? Could my medications be adjusted to relieve my fatigue? Would physical or occupational therapy  help me with my fatigue? Your care team can tailor treatments to manage your fatigue better. Sudden or severe fatigue can sometimes indicate a medical emergency. Contact your healthcare provider immediately if you experience: Shortness of breath Dizziness or confusion Rapid heartbeat Difficulty staying awake These could signal complications like infection or heart issues requiring additional care, so be sure to reach out if you notice sudden changes. Count On Us for Information, Resources, and Support  Managing fatigue during breast cancer treatment is about balance — knowing when to rest, how to conserve energy, and when to ask for help. Every person’s experience is unique, so be kind to yourself and adjust your routines as needed. Remember, you’re not alone. Rely on your healthcare team, loved ones, and support networks to help you through this time. Whether you’re newly diagnosed with breast cancer , are navigating survivorship, or are the loved one of someone experiencing breast cancer, you can count on SurvivingBreastCancer.org to keep you informed. We provide educational information to help you better understand symptoms , testing, treatment options , surgery, etc., and podcasts  that feature professionals, advocates, and caregivers who share valuable information. Your donations  enable SurvivingBreastCancer.org — a community dedicated to empowering those affected by breast cancer with knowledge, understanding, and a network of care — to offer resources and support every day, every month, and every year.  Note: This article offers general information and does not replace professional medical advice. Make sure to discuss your options with your healthcare provider. Read More: Improving Diet and Sleep During Cancer Treatment Exercise and Breast Cancer Nutrition After a Cancer Diagnosis What is Breast Cancer Rehab? On the Podcast: Breast Cancer Conversations Understanding Nurse Navigation: Support and Resources for Cancer Patients Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By Teresa Nolan Feeling stressed Got a massage I lay on my stomach A stone, it seemed In my breast And I knew I knew I went home Didn’t think about it For a bit Until I did And then, I felt it In the shower I knew I knew That was May June, see the gyno July, get a mammo August, whad’ya know? All the while Flashing various docs My broken boobs I knew My mother had it When I was small She survived She was scared She was scarred Physically Emotionally And while she waited For the shoe to drop It never did She used to take me with her To the shop for her special bras So I knew About the differences About the frustrations About the indignities From a young age I knew Self-exams Dense Breasts Ultrasounds Breast Clips Biopsies Genetics I knew I knew and I was still surprised But not really Because I always knew And then suddenly I knew nothing A whole new language Her 2 Negative ANC PALB2 Red Devil?! And every day more to learn More to know In the midst of the unknowable Now the things I know are new I thought I knew But what did I know It’s a lot This extra job of not dying It wears you out All the hoping All the keeping strong This I certainly know But I also know this: I survived I am strong Often frustrated Sometimes scared Definitely scarred But hopeful And fighting And here. Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By Brookshire McDonald Another bad side effect Has come along. I’m really happy I’m not writing a song. A ruptured breast implant Is the diagnosis now So I’m looking for ways To face it somehow. The thoughts screaming at me Are it’s time to go flat; So that’s the journey I’m looking at. I’ve called my Urogyno doctor Out of the blue; Would he tack up my bladder At the same time, too? Well, before finishing this I was told, My leaky bladder is caused ‘Cause I am old; So tacking it up Would not do— Another case of Depends Is right for you. I’m back to gathering info For the implant that’s gone wrong; However I still can’t see Writing a song. I’ll keep you posted As to what the future does hold. For now I need to breathe And really be bold. Things in my past Have been much worse Those were written In a much prior verse. I’m back to the mirror looking To see the strong me. Clinging to my SBC sisters As you can see. So thank you my sisters For all your love; I can feel the hugs from you And from above! Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

Cancer treatment is often fraught with physical, emotional, and psychological challenges. Amidst the whirlwind of appointments and treatments, one of the most critical yet frequently overlooked aspects of recovery is nutrition . What we consume is pivotal in supporting healing and empowering survivors and thrivers to reclaim their health, redefine their lives, and reject the limiting mindset of a "new normal." Nutrition Matters for Cancer Recovery First and foremost, attention to macronutrients —protein, carbohydrates, and healthy fats—is essential during and after cancer treatment. Protein  in particular, has emerged as a cornerstone of recovery, helping rebuild tissues, support immune function, and combat the severe fatigue often associated with treatment. Adequate intake of protein isn’t just about dietary preference—it’s about giving the body the essential tools it needs to heal and thrive. Unfortunately, nutrition is sometimes downplayed during treatment, with patients being told they can "eat whatever they want." Yet, a substantial body of research links diet quality  to better health outcomes for those diagnosed with cancer. What and how we eat truly matters. Equally important are micronutrients  like antioxidants  and fiber . Berries, for instance, are rich in antioxidants that combat oxidative stress, while fiber is known to play a role in lowering the risk of cancer recurrence. Prioritizing whole, nutrient-dense foods over processed options can significantly enhance the body’s ability to recover and reduce the risk of future disease. Nutrition is not one-size-fits-all. People diagnosed with cancer are encouraged to develop personalized nutrition plans  that take into account their unique needs, preferences, and health goals. Self-reflection on dietary habits—transitioning away from convenience foods and toward intentional, mindful eating—is an important and empowering step on the path to recovery. Breast Cancer Conversations, the podcast, Eps. 256 Beyond the New Normal: Building Strength After Cancer Through Nutrition and Empowerment with Dr. Amy Morris. Listen Now Rejecting the "New Normal" Mindset Beyond the physical aspects of healing, cancer survivors and thrivers often face a profound internal struggle: adjusting to a "new normal." While this phrase is meant to acknowledge the changes that come with cancer survivorship, it can also subtly reinforce a mindset of resignation—accepting fatigue, joint pain, or limitations as inevitable. However, you do not have to settle for a diminished quality of life. The post-cancer phase can instead be seen as an opportunity for transformation . By rejecting the "new normal" mindset, individuals can choose to pursue vitality, strength, and fulfillment . Progress may come in small, incremental steps, but each one is a powerful testament to resilience. A key part of this shift involves embracing small victories : choosing nourishing foods, committing to regular physical activity, seeking emotional support, or simply celebrating the return of energy and strength. Every positive choice builds momentum toward a life that is not defined by cancer, but empowered beyond it. Resources and community support also play a critical role. Educational materials, health coaches, support groups, and nutrition experts offer practical strategies and emotional encouragement. No one has to navigate this new chapter alone—building a personalized health team can make a profound difference. Community and Empowerment Navigating a cancer diagnosis can feel isolating, but you can often find strength and motivation through connection with others . Community support fosters accountability, provides inspiration, and reminds individuals that they are not alone in their pursuit of health and healing. Moreover, genetic counseling   can offer valuable insights for people diagnosed with cancer concerned about hereditary risks and future family planning. Discussions with healthcare providers about nutrition, lifestyle, and genetic factors empower survivors and thrivers with knowledge to make informed choices for themselves and their loved ones. Ultimately, thriving after cancer requires both internal and external resources : self-empowerment, community connection, informed choices, and holistic health strategies. Conclusion: Thriving, Not Just Surviving Recovery from cancer is not just about surviving—it's about thriving . Nutrition is a powerful tool for healing, and mindset is an equally vital force for transformation. By prioritizing intentional eating, rejecting the resignation of a "new normal," and embracing small victories, you can chart a new course toward strength, vitality, and joy. The path forward is not defined by limitations, but by the endless possibilities of a life reclaimed. Through education, community, nutrition, and empowerment, individuals can redefine what it means to live after cancer—building futures filled with hope, resilience, and vibrant health

In the realm of cancer treatment, discussions about fertility preservation are often overshadowed by the immediate focus on life-saving interventions. Yet, informing patients about their reproductive options is a vital part of comprehensive cancer care. The integration of fertility preservation discussions into the care continuum is essential not only for patients' emotional well-being but also for their long-term quality of life. When patients are well-informed, they are better equipped to make decisions that align with their personal desires and circumstances, ultimately improving fertility outcomes. Listen Now on Breast Cancer Conversations Podcast: 257. What is Oncofertility? How To Navigate Genetics, Fertility and Cancer Care (click below) The Importance of Early and Open Fertility Discussions Involving patients in decisions about their fertility risks and preservation options is a critical component of patient-centered care. Healthcare providers must take the initiative to ask the right questions and engage patients early in their treatment planning. Guidelines from the American Society of Clinical Oncology (ASCO) and the American Society of Reproductive Medicine (ASRM) have long advocated for informing patients at risk of infertility about their options. However, despite these recommendations being in place since 2012, a significant study conducted in 2020 revealed that only 44% of oncologists were providing this crucial information to their patients. This gap highlights a systemic issue in cancer care, where time constraints, treatment urgency, and competing priorities can lead to fertility discussions being overlooked. Yet, these conversations are essential — they offer patients a sense of control during an otherwise overwhelming time and open the door for future family-building opportunities. A Multidisciplinary Approach to Oncofertility Care Addressing the issue of fertility preservation requires a multidisciplinary team approach. Oncologists, while primarily focused on treating the cancer itself, may not have the time or specialized knowledge to cover fertility risks in depth. Involving other healthcare professionals — such as social workers, nurse practitioners, fertility specialists, patient navigators, and genetic counselors — can ensure patients receive thorough and timely information. Research shows that multidisciplinary involvement improves patient understanding. However, gaps remain: one study found that while 60% of breast cancer patients were informed about fertility preservation, only 25% of those who met with a genetic counselor received relevant fertility information. This underscores a missed opportunity. Genetic counselors are uniquely positioned to discuss hereditary risks, reproductive planning, and fertility preservation options with patients facing complex medical decisions. Addressing Disparities in Fertility Preservation Communication Fertility preservation information is not always offered equally. Studies reveal that single women without children are more likely to receive fertility preservation counseling compared to married women or women over the age of 36. This bias can have serious implications for patients' reproductive futures. It is essential for healthcare providers to recognize that every patient — regardless of marital status, age, or perceived likelihood of childbearing — deserves access to information about fertility preservation. A standardized, equitable approach ensures that no patient is denied the opportunity to make informed decisions about their reproductive future. The Role of Tailored Resources and Genetic Counseling Patients consistently express appreciation for clear, accessible, and tailored educational resources about fertility preservation. Online materials, decision aids, and personalized counseling sessions can significantly enhance patients’ understanding and confidence. Genetic counselors, trained in delivering personalized support, can play a pivotal role. Beyond addressing inherited cancer risks, they can provide crucial guidance about fertility preservation strategies, such as egg or embryo freezing, ovarian tissue preservation, and considerations related to genetic testing of embryos. By equipping patients with individualized resources and support, healthcare teams empower them to make informed choices that align with their values and life goals. Empowering Patients Through Fertility Preservation Awareness As cancer care continues to advance, fertility preservation must remain a central focus of comprehensive, patient-centered treatment. Empowering patients with knowledge and options not only improves fertility outcomes but also supports emotional resilience, reduces future regret, and enhances overall quality of life. Fertility preservation is not merely a peripheral issue; it is a fundamental aspect of compassionate and holistic healthcare. Ensuring that patients have the information they need to shape their own futures is not just a matter of medical ethics — it is a commitment to honoring the dignity, dreams, and autonomy of every individual facing a cancer diagnosis. If you or someone you love is navigating a cancer diagnosis, ask your care team about fertility preservation options. Early conversations can make all the difference.

There is no question that breast cancer is serious, scary stuff. Raising awareness and much needed funding doesn’t have to be. Creating and participating in fundraising activities to provide programs, education and community to support those diagnosed and their loved ones can be empowering and can eliminate the feeling of helplessness. At Survivingbreastcancer.org we’re sharing a few ideas for unique, and sometimes silly, ways to raise money for breast cancer. Some are virtual to ensure we stay safe during the pandemic and others are suggestions for in-person projects once we can safely be together again. VIRTUAL PINK HAIR DYE CHALLENGE Although many people are slowly venturing out again, we’re still spending a lot of time at home looking for fun ways to amuse one another and ourselves. Issue a challenge to a group of friends or associates to dye their hair (temporarily) pink. It can be their whole head or streaks of pink throughout their hair. Participants can order products online or even use Kool Aid to take the challenge. Show off your new look on Zoom in a virtual get together and have everyone take a photo to post on their social media accounts. Charge a fee to participate and ask them to ask their social media contacts to like their pink hair photo and make a donation. VIRTUAL CAKE-DECORATING CONTEST Combine the artistic abilities and food skills of your friends with a virtual cake-decorating contest. Charge a small entrance fee for participants, and sell cake decorating kits for maximum convenience. This way, supporters will have everything they need to create their cake masterpiece with minimal effort on their part. Then, encourage participants to decorate their cakes in any way they’d like. Each participant will then upload a picture of their cake to an online portal, and other supporters and community members vote on the top cakes digitally! VIRTUAL COOKING CLASS With so many pictures of food posted online, it’s not a big leap to offer a cooking class to your network of friends and family. (How about Facebook Live or Zoom?) Put on an apron and channel your inner Julia Child, or consider asking a local chef to host a class. Charge a fee to watch and then schedule a second meet up or post photos of how the dish turned out for each participant. VIRTUAL SOIRÉE Who doesn’t like a party?! Host a Zoom party! Ship each guest a “party in a box” for a festive atmosphere on screen; party boxes could include favors (hats, leis), tiny decorations (paper lanterns, mini-umbrellas for drinks), or even food and drink (pie-in-a-jar, drink mix). Ask guests to make a donation to participate, but also donate the money they would have spent on travel, a new outfit, a bottle of wine to the cause. VIRTUAL GAME NIGHT While we might not be able to gather ’round the game table for an evening of friendly competition (and probably plenty of snacks), self-isolation doesn’t have to mean the end of all group games . Host a virtual game night with a group of friends. Among the various virtual card games on PlayingCards.io is Remote Insensitivity , which is basically a free online version of Cards Against Humanity , Jackbox is another option with a variety of hilarious games available for individual purchase or in party packs and Skribbi , which is essentially digital Pictionary . PINK PUMPKIN DECORATING CONTEST Pumpkin carving and decorating contests are seasonal favorites in the fall. What better way to create breast cancer awareness and raise funds during Breast Cancer Awareness month than by making it a Pink Pumpkin Decorating contest?! Charge a fee to participate and ask a local business to display the pumpkins with collection jars next to each one. The pumpkin with the most jar donations wins! PINK GARDEN CONTEST Turn those green thumbs pink! This one may take a bit of planning. Invite friends or work with your local garden club or organization to plan, plant and display a pink garden. Participants pay a fee to compete and when the gardens bloom, you can raise additional funds and awareness by hosting a garden tour. GUYS-IN-PINK CAR WASH This is a twist on the typical car wash, which is a fundraising classic. Instead of a regular old car wash, ask the men in your life to dress up in breast cancer pink and start washing cars. Participants donate to be part of the event and any money raised from the car wash is also donated. PINK LEMONADE STAND Who can say no to a kid selling lemonade—especially if it’s for a good cause? Get the kids involved with a pink lemonade stand. Make extra money by combining it with a yard sale. PINK FLAMINGO FLOCKING Purchase a number of pink plastic flamingos lawn decorations (you can purchase pink flamingos inexpensively from amazon or a 14 pack! ) Pick 10 yards in your community to be the lucky recipients. Attach note cards to the flamingos’ necks with a phone number and your 3-Day donation information. State that for a $10 donation, the flamingos will be removed but for $15 they will be moved to the lawn of their choice. Make sure you also place a sign that has your contact name and phone number among the flamingos for those who drive by and would like to have the flamingos placed in a friend’s yard. Those are just a few ideas to get you started. Please follow our fundraising guidelines and let us know how it went! And, of course, we welcome your donations at any time!

Breast cancer casts a shadow over the lives of countless people across the globe, affecting those with the disease and their loved ones. The National Breast Cancer Foundation paints a heartrending picture, forecasting that nearly 289,000 women and 2,800 men will confront the devastating diagnosis of invasive breast cancer in 2023. Diagnosing breast cancer early, before it spreads, greatly amplifies a person’s chances of successful treatments. Early warning signs are crucial in offering a pivotal advantage in early detection and treatment. Continue reading to explore some of the most common warning signs of breast cancer you shouldn’t overlook. 1. Lumps in the Breast or Underarm According to the American Cancer Society , one of the most common signs of breast cancer is a new lump in the breast or underarms, including any lump, knot, or hardening of the breast tissue. Lumps are often painless, and not all are cancerous, but they should be reported to a doctor immediately. Regular self-exams can aid in early detection. 2. Change in Breast Size, Shape, or Appearance The National Breast Cancer Foundation notes that a change in the size or shape of the breast could indicate breast cancer, including swelling, thickening, shrinkage, or asymmetry, particularly if it affects only one breast. 3. Nipple Changes Check for any nipple changes, including turning inward, leaking fluid, or scaling or flaking on the nipple or areola , which could be signs of breast cancer. In addition, nipple inversion or retraction can be a sign of breast cancer. Still, it’s essential to understand that not all cases of nipple inversion or retraction indicate cancer. Some people may naturally have inverted nipples, which can become inverted due to other benign conditions. However, certain types of breast cancer can cause the nipple to retract or invert. 4. Unexplained Breast or Nipple Pain While pain in the breast is commonly associated with menstrual cycles, persistent pain that doesn’t align with the menstrual cycle can be cause for concern. 5. Nipple Discharge Other Than Breast Milk Bloody, yellow, or green fluid, especially when it’s coming from one nipple, could signal breast cancer. The exception is discharge that occurs while squeezing the nipple, which is likely benign . 6. Swelling Under the Arm Lymph nodes can swell for various reasons, but if you notice swelling in your underarm lymph nodes, report it promptly. Swollen lymph nodes are one of the top signs of breast cancer . 7. Changes to Breast Skin Breast skin changes like redness, thickening, or pitting are listed by the American Cancer Society as a potential breast cancer sign, warranting medical attention. In addition, redness or flaky skin in the nipple or breast area can be associated with breast cancer. A rash resembling eczema on the breast could indicate Paget’s disease of the breast , a rare type of breast cancer. See your doctor about any persisting rash. Although not a common sign, increased visibility of veins on the breast’s surface can suggest a blockage in a blood vessel caused by a lump or increased blood supply to the breast. It’s a sign that can accompany tumor growth and indicate an underlying issue like breast cancer. 8. Itchy or Irritated Breasts While itchiness can result from various conditions, including allergies or dermatitis, continuous itchiness should not be ignored, especially when accompanied by other symptoms. 9. Rapid, Unexplained Weight Loss While not breast-specific, unintentional rapid weight loss can signal metastatic breast cancer , advises the National Cancer Institute. Note any inexplicable weight loss and consult your doctor. Count On Us for Information, Resources, and Support Understanding and recognizing the early warning signs of breast cancer can significantly affect the prognosis and treatment. Early detection can lead to less invasive treatments and higher survival rates. Always consult your doctor if you notice any changes or symptoms, and prioritize regular screenings. Whether you’re newly diagnosed with breast cancer , are navigating survivorship, or are the loved one of someone experiencing breast cancer, you can count on SurvivingBreastCancer.org to keep you informed. We provide educational information to help you better understand symptoms , testing, treatment options , surgery, etc., and podcasts that feature professionals, advocates, and caregivers who share valuable information. Your donations enable SurvivingBreastCancer.org to offer resources and support every day, every month, and every year. Note: This article is designed to provide general information and is not meant to replace professional medical advice. Always discuss your options with your healthcare provider. Learn more: Different Types of Breast Cancer Breast Cancer Risk Factors SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By Betty Leigh Hello, my name is Betty Leigh and I am thrilled to tell you that I am a 3-time breast cancer survivor. I am here to tell you about my non-diagnosis and what happened after that. In 1995, I was living in upstate New York as a single mom with my children, Michael and Katie. I worked at a local radio station as a disc jockey and also as an actress doing TV commercials. I remember one morning, lifting my left arm to brush my hair in the bathroom mirror and seeing a grayish lump at my underarm . I didn’t think much of it at that time. But after a few weeks I called the local gynecologist. The local gynecologist examined it and told me that it was nothing to worry about and that I should think about taking estrogen, as “I wasn’t getting any younger.” I left happy to hear the “good” news and didn’t think of it again, until… About a month or so later, it started to hurt and looked more pronounced . I went back to the doctor, who spoke to me like a silly child. “Now, what did I tell you last time?” he crooned.  “OK OK OK,” I thought, and left. I went back a third time and he scolded me for being overly dramatic. I left his office and went to the emergency room of the local hospital  and asked for an X-ray. They refused because I didn’t have a doctor’s note/request. I said strongly that I think I have breast cancer and asked, “Do you want to have turned me away?”  They said, “Um, well, no…” and they proceeded to set me up immediately for a mammogram. After the mammogram, I waited and waited in a small room and finally the man who had refused me came in and said words I will never forget: “It is more than suspicious.” Yes, I DID have breast cancer. I made some calls, including one to—of all people—my ex-husband. I asked him for help and mostly recommendations. It was a Friday, so I quickly called and made an appointment with Dr. Daniel Roses, a breast cancer surgeon in New York City. On Monday, I met with Dr. Roses, along with my ex-husband. I was examined, had a biopsy, and Dr. Roses told me that I needed to have a lumpectomy ASAP. Can it be? Well, yes it can, and the lumpectomy was scheduled for Friday of that week. For my surgery I stayed a week in the hospital, the children stayed at their school principal’s home with his wonderful wife, Laurie, and I stayed with my ex-husband. After the lumpectomy in 1995, all was well until 2013, when I had a mammogram and ductal carcinoma was diagnosed… OH NO. In those days, the procedure was a lot simpler. I had a lumpectomy at 7:00 a.m., went to a room to relax, and went home at 12:00 p.m.  All was well again… until 2014, when I had another mammogram and was again diagnosed with breast cancer. It was the same kind as the year before, ductal carcinoma. Once again, I had a 7:00 a.m. lumpectomy. My daughter, of course, was there with me. I was relaxing after the surgery and I got a call on my phone from my agent that I had an audition with Sophia Coppola for a Gap commercial one block from the hospital. “What?!” said my daughter. “Are you serious, Mom?”  Up comes Dr. Roses. “Hello, how are you doing, Betty?” he asked.  “Well, I am fine, I think all went well,” I said, “but Katie, my daughter, is mad at me.”  “Why is she mad at you?” asked Dr. Roses. “Because I have an audition around the corner in an hour ,” I answered. “What?” said Dr. Roses. “Betty, that IS crazy, you should go home and relax.”  “Well, I just got a call from my agent and I have an audition with Sofia Coppola for a Gap commercial.” Dr. Roses looks at me for a moment and then turns to my daughter. “Katie, your mom has to go to the audition .”  I DID go to the audition… AND I GOT THE JOB!  Check out the commercial here: https://www.youtube.com/watch?v=uu7qI4NKjrY After each of my three diagnoses, my mind was free to face the future however I wanted to . Those thoughts and feelings were completely up to me. If I could choose, my choice was and continues to be positivity. With ourselves, family, and friends we can do the same. There is a beautiful Buddhist thought I want to share with you: “Are we planting anger and worry, or are we planting being grateful and kind?” Read More: 9 Early Warning Signs of Breast Cancer You Shouldn’t Ignore Why a Second Opinion Matters for Breast Cancer 10 Years of Survivorship: Cancer Is My Unexpected Teacher How Cancer Trauma Can Impact Your Life – and Ways to Move Forward The Psychological Impact of Breast Cancer: Strategies for Coping On the Podcast: Breast Cancer Conversations My Mom and I Were Diagnosed With Breast Cancer In The Same Year Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

(The darkest hour descends before the dawn) By William Laferriere   “The Light Within,” a moving poem by William Laferriere that speaks to the quiet strength and resilience we carry deep within—especially during life’s most uncertain moments. Oh, the light within— it flickers, does it not? like a candle caught in hushed silence or a frightened hare trapped in the cupped hands of night. I feel it sometimes, pulsing, a quiet hum within my soul, a sunlit secret buried deep in the marrow of my being. What is this light? This glow, this ember— is it memory? The echo of a laugh? the warmth of a hand held too closely and all too briefly? or the shadow of a dream I can’t quite remember upon waking? Is it something older, something primal, a spark left over from the birth of our cosmos, stitched into the very fabric of our atoms? It wanes of course. There are days it feels like that dying rose, sputtering in the cold, barren fog of winter, a match struck in a storm, its flame swallowed before it can bloom. But even then, even in the dim, it persists. A faint glimmer, a stubborn refusal to be extinguished. And yes darkness lasts but a millisecond… If you turn on the light… And when it burns bright— (Do let it burn bright—) it’s a wildfire, a supernova, a lighthouse cutting through the thickest fog. It spills out of each and every one of us, golden and uncontainable, painting the world unrecognizable. Is this what it means to be alive? To carry this light, this fragile, ferocious & glorious light, let it guide you, even when the path is shrouded in the mist of doubt Do share it, And let it touch others, And weave it into our collective existence I’m not certain… But I think, maybe, this light within is not just mine. Perhaps it’s ours. A collective glow, a shared radiance, a consciousness each of us a fragment of something bigger, something infinite, something eternal. And so I tend it, this light, this gift, this mystery. I feed it with hope, with love, with the quiet courage of simply being.  And I trust,   even on the darkest nights, that it will lead me onward. Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By Kiara Ford  For most people, their breast cancer experience begins with a diagnosis from a screening or onset of symptoms. It can come as an icy shock that feels impossible to anticipate. But others may spend years anticipating a diagnosis, aware that they are at an increased risk long before they even have symptoms. For these individuals, genetic testing has shown mutations that are associated with increased cancer risk, such as mutations of the BRCA1 and BRCA2 genes . These people are often called “ previvors ,” a term coined by Sue Friedman, the founder of Facing Our Risk of Cancer Empowered ( FORCE ), a group which aims to support individuals and families facing hereditary cancer. In medical terms, it is more common for practitioners to refer to a specific risk factor a patient carries but has yet to present symptoms of, such as “ unaffected BRCA mutation carrier .” But for many previvors, the idea that they have been “unaffected” by their genetic risk rings false. For those who know they have an elevated lifetime risk of developing breast cancer , this awareness can be life-altering. Not only can it change their personal perception of their health, but many previvors choose to take steps to mitigate their risk  of developing cancer. This may include genetic testing for additional family members, increased screening, and preventative surgery.  Continue reading to learn more about genetic testing for cancer risk, and what measures someone can take to reduce their chances of developing cancer associated with a genetic mutation. Who Should Have Genetic Testing? Genetic testing aims to identify if an individual is a carrier for certain genetic mutations  which can increase the lifetime risk of developing breast cancer, as well as other cancers. Prior to testing, many individuals will first meet with a genetic counselor  to decide if testing is beneficial for them or their family.  According to the Centers for Disease Control and Prevention ,  some of the factors for which genetic testing is recommended include: family history of breast or ovarian cancer Ashkenazi or Eastern European Jewish ancestry personal history of breast, ovarian, fallopian tube, or primary peritoneal cancer known mutation in the breast cancer (BRCA) genes in someone in your family This being said, each person’s history and risk will vary based on a multitude of factors. A genetic counselor can help assess and personalize testing recommendations.  If the test results are positive, indicating that there is a mutation in the BRCA genes, further steps can then be taken to increase the likelihood of early detection or reducing the risk of breast cancer. Reducing Risk with Chemoprevention There are a few medications which can be taken to possibly reduce risk of cancer. Known as chemoprevention , these drugs are the subject of ongoing research, but do show some promising results . Medications such as tamoxifen, raloxifene, and aromatase inhibitors work by blocking or inhibiting the body’s ability to produce estrogen, a hormone which can potentially help grow many different kinds of breast cancers. Each of these medications functions differently, and like any medical intervention, carry with them risks of side effects. However, many previvors, after discussing with their healthcare providers , have decided that chemoprevention is a worthwhile treatment for them.  Early Detection is Key One of the most key determinants in treating breast cancer is early detection. When caught early, while the cancer is still localized, the five-year survival rate for breast cancer is 99% . This is why for many previvors who are aware of their genetic risk, increased cancer screening is crucial. This may include  mammograms, breast MRIs, breast CTs, ultrasounds, molecular breast imaging, thermography, biopsy, or manual breast exams, in which a patient or provider manually feels for differences or abnormalities in the breast (also called a breast self-exam or clinical breast exam).  Healthcare providers will often recommend more than one of these tests to confirm a breast cancer diagnosis . The provider’s choice of test(s) will depend on factors such as age, family history, breast density, and available technology. Ultimately, a biopsy will typically be used to fully confirm the pathology of anything suspected to be malignant (cancerous). While none of these screenings will prevent the development of breast cancer, they can be instrumental in catching and treating it early.  Reducing Risk with Prophylactic Mastectomy For previvors looking for options to reduce the risk of breast cancer before it develops, prophylactic (preventative) surgery  may be an option worth considering. The most common surgery used to address high susceptibility to breast cancer is mastectomy, a procedure in which all breast tissue is removed from the breast. There are different types of mastectomy , some of which may opt not to remove the nipple and areola (called “nipple-sparing”). This option is associated with slightly lower risk reduction , but allows for a more natural look post-recovery. On the other hand, a skin-sparing mastectomy removes the nipple and areola in addition to breast tissue. Bilateral mastectomy, or removal of both breasts, has been shown to be very effective in reducing one’s risk of breast cancer. For carriers of a BRCA gene mutation, bilateral mastectomy has been shown to reduce risk by over 95% . For people with a strong family history of breast cancer, it can reduce risk by up to 90%. Mastectomies are not a guarantee that cancer will never develop, but for many previvors, the risk reduction can be greatly beneficial to them.  Previvorship is Personal Not everyone with increased risk of breast cancer identifies as a previvor, and everyone will choose a different treatment path , if any, to address their genetic predisposition. The relationship between a person and their increased risk of cancer is deeply individual, and they should be allowed space to navigate in their own time , in a way that feels right for them. However, for those who do decide they want to take steps to address their heightened risk, there are many screening and treatment options, as well as a community of other previvors there to support them.  Note: This article offers general information and does not replace professional medical advice. Make sure to discuss your options with your healthcare provider. Read more: Understanding Genetic Testing for BRCA1 and BRCA2 Mutations The Power of Knowledge (My BRCA Story) My Previvor Story From Fear to Freedom: Embracing a Risk Reduction Mastectomy On the Podcast: Breast Cancer Conversations Michelle Sandlin, Living Her Best Life with BRCA 1 About the Author: Kiara Ford is a graduate of Emerson College, where she majored in communication studies and minored in health and society. She is a certified community health worker and has worked extensively in disability advocacy. She is passionate about health equity, and hopes to raise awareness and increase understanding of patients’ rights through her work. From the Same Author: Metastatic Breast Cancer: Understanding the Significance of Stage IV Breast Cancer and Healthcare Access Within the Hispanic Community Inflammatory Breast Cancer: Breaking Down the Basics Datopotamab Deruxtecan Shows Promise in Clinical Trials Getting through the Holidays with Breast Cancer Overlaps Between Breast Cancer and Domestic Violence The Cost of Breast Cancer Homelessness and Breast Cancer The Impact of Breast Cancer on Self-Image SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By Elisa Herrera Facing Cancer Far from Home A cancer diagnosis is an immense challenge, and for those who have migrated to another country, the struggle can be even more complex. Being far from family, navigating a foreign language, and facing limited access to healthcare are just some of the obstacles Latino migrants diagnosed with cancer encounter. At Después de un Diagnóstico  (a service of SurvivingBreastCancer.org ), we understand these difficulties and are committed to providing support at every step of the way. Barriers to Healthcare Access Latino migrants often face significant challenges when trying to access quality medical care. Some of the most common barriers include: Language barriers: Not all hospitals and clinics have Spanish-speaking staff, making it difficult to understand diagnoses and treatments.  Note: In the United States, federally-funded healthcare facilities are required to provide language access support, including professional translation and interpreting services, by request, under Title VI of the Civil Rights Act of 1964, and Section 1557 of the Affordable Care Act. Learn more from the U.S. Department of Health and Human Services . Lack of health insurance: Many individuals with uncertain immigration or documentation status lack adequate health insurance coverage, limiting their treatment options. Navigating an unfamiliar healthcare system: Understanding and accessing care in a different country can be overwhelming and confusing. Emotional impact of isolation: Being far from family and a familiar support system intensifies the emotional distress of an individual’s cancer diagnosis and treatment. Resources and Support for the Latino Community In response to these challenges, resources are available to help migrants facing cancer. At Después de un Diagnóstico , we provide Spanish-language information, virtual support groups , and guidance to ensure that no one faces this disease alone. Some of the most valuable resources include: Spanish-language support groups : Safe spaces where individuals diagnosed with cancer can share their experiences and receive encouragement from others who understand their experience. Emotional well-being and self-care : Strategies to manage anxiety, depression, and stress related to both cancer and migration. Educational webinars with experts : Reliable information for patients, caregivers, and families to help them navigate treatment and care. The Power of Community Support Building a strong support network is essential while facing cancer. While being physically distant from loved ones can be difficult, connecting with online support groups and cancer communities can make a significant difference. At Después de un Diagnóstico , we foster connections among Latino patients and caregivers to create a meaningful and supportive network. Find Help at Después de un Diagnóstico If you or someone you know is facing cancer far from home, you’re not alone. Después de un Diagnóstico  offers information, resources, and a Spanish-speaking community of support. Visit www.despuesdeundiagnostico.org  to discover how we can help you in your experience with cancer. Together, we are stronger. 💕 More Resources: Spanish-language blog Twice-monthly Spanish-language support groups Después de un Diagnóstico YouTube Spanish-language podcast, Después de un Diagnóstico

By Kimberly Stephenson What is a BI RADS score? After a mammogram, the answers to questions like: “Did anything look abnormal?” and “How serious is the abnormality that was found?”, help radiologists and physicians to determine your BI RADS score. Your BI RADS score is an acronym for ‘Breast Imaging Reporting and Database System’. The score ranks the findings from mammogram screenings into a small number of well-defined categories. The score is used to convey to doctors how concerned radiologists are about the findings. The information obtained by the radiologist is efficiently summed up in that one number. While this test cannot medically diagnose breast cancer, it can help to identify anything atypical. However, it is important to note that not all abnormal findings are considered cancerous. What Does the BI RADS scoring system tell us? Doctors use the BI-RADS scheme to place abnormal findings into categories. The categories range from 0 to 6, and are as followed: Category 0 : A score of 0 indicates an incomplete test . The mammogram images may have been difficult to read or interpret. This could happen, for example, if you moved at the precise moment the picture was taken. In some cases, doctors may want to compare these new images with older ones to determine if there have been any changes. A BI-RADS score of 0 requires additional tests and images to provide a final assessment. Category 1: A score of 1 indicates a negative result . This score is good news. It means that your mammogram has no evident signs of cancer, your breast has equal density and no well-formed mass. However, you should continue to have routine screenings. Category 2: A score of 2 indicates a negative result but with benign findings . Your mammogram is normal, with no apparent cancer, but other findings (such as benign cysts or masses) are described in the report. Routine visits are suggested with this score. Category 3: A score of 3 indicates that findings are probably benign. This score is not so black and white as the findings imply that your mammogram results are probably normal, but there is a 2% chance of cancer . You will be asked to follow-up with a repeat mammogram within six months. And if you have family or personal history of breast cancer, the radiologist may opt to do more tests now rather than later. Regular visits help avoid multiple and unnecessary biopsies. They also help confirm an early diagnosis if cancer is found. Category 4: A score of 4 indicates suspicious findings or abnormalities . This level is where concern for breast cancer risk begins to increase . In this instance, there is a 20% to 35% chance of cancer. To verify, your doctor will need to perform a biopsy to test a small tissue sample. This score is split within three additional categories based on the doctor’s level of suspicion: 4A: Low suspicion for cancer or malignant findings (more than 2% but no more than 10%). 4B: Moderat e suspicion for cancer or malignant findings (more than 10% but no more than 50%). 4C: High suspicion for cancerous or malignant findings (more than 50% but less than 95%). Category 5: A score of 5 indicates highly suspicious findings . In this instance, there is at least a 95% chance of breast cancer. A biopsy is highly recommended to confirm results and determine the next steps for treatment. After biopsy, the average rate of carcinoma in category 5 is about 75-97%. Category 6: A score of 6 indicates known biopsy with proven malignancy . You can only score a 6 after you’ve had a biopsy and received a diagnosis for breast cancer. Mammograms may be used in this way to see how well the cancer is responding to treatments such as chemotherapy, surgery and/or radiation. How do BI RADS and Breast Density relate? Two main types of tissue make up the breast: fibroglandular tissue and fatty tissue. On mammograms, Fibroglandular tissue appears dense, whereas fatty issues do not. Most women have both dense and non-dense (fatty) tissues. The volume of dense tissue compared to the amount of non-dense tissue in your breast is commonly described as your Breast Density. Dense breasts have less fatty tissue. Because of this they are more likely to develop cancer in comparison with less dense breasts with more fatty tissue. The volume of dense tissue in your breast can measured by radiologists by using BI RADS. It is important to note that although breast density can be seen on a mammogram, it is not relative to the actual size, or even the feel of your breasts. Breast density varies from person to person and can even change over time as we get older. BI RADS also classify breast density into 4 categories. They are: · Mostly Fatty : Breasts are composed almost entirely of non-dense (fatty) tissue · Scattered Density : Breasts are composed of mainly non-dense (fatty) tissue, with some scattered areas of dense tissue. · Consistent Density : Breasts are composed of a mixture of non-dense (fatty) tissue and dense tissue. · Extremely Dense : Breasts are composed of almost entirely dense tissue Breast density is important because the denser the breast the harder it is to detect abnormalities. Normal dense breast tissue looks white on mammograms. Breast masses or tumors also look white, so dense tissue can hide some tumors. However, this does not mean that you should be alarmed if you have dense breast tissue. It simply means that you should prioritize speaking with your health care provider about your overall breast cancer risk. So regardless of density of your breast, it is important to keep up with your mammograms! Does a BI RADS score of 5 always equate to Cancer? Although this is a seemingly straightforward question, the answer is not. The use of BI-RADS can aid in standardized reporting, steering decision making, and it also operates as a useful tool in collecting medical data. Each BI RADS ranking reflects an increased suspicion of breast cancer diagnosis. When a patient is given any BI RADS score, a cancer diagnosis cannot be wholly confirmed. The score simply assists doctors in communicating your mammogram results, while determining the right course of treatment. The main goal of any biopsy with BI-RADS category 5 is to validate the diagnosis and scope of an obviously malignant lesions. Additional diagnostic procedures, particularly imaging and possibly biopsy of the axillary lymph nodes, will almost always be necessary. Although a BI RADS score of 5 highly suggests malignancy, it does not necessarily provide a complete cancer diagnosis. The only solidified fact is that appropriate action should be taken for the health and wellbeing of the patient. Whether your BI RADS score is 0, or 5, knowing and understanding your score will help make certain that you get the appropriate follow-up after your mammogram. It is part of what you need to know to actively take part in and make informed decisions regarding your medical care. Check out our Podcast with Dr. Paula Gordon , a Radiologist from Vancouver on mammography and screening! To read a personal story from one of our thrivers regarding mammographs and breast density, check out Leslie’s Story !

Why Am I Still Here When Others Are Gone? You’re still here—living, breathing, laughing, grieving. But in the quiet spaces between treatments or in the wake of hearing about someone’s passing, there’s a question that creeps in: “Why them and not me?” If you’ve ever felt this way, you’re not alone. Many people living with metastatic breast cancer (MBC) or in remission/no evidence of disease/no evidence of active disease after treatment experience a complex emotional weight known as survivor’s guilt . Let's explore survivor’s guilt is, why it shows up, how it affects our emotional health, and what we can do to cope with it—together. What Is Survivor’s Guilt? Survivor’s guilt is a form of emotional distress that occurs when someone survives a traumatic event—or outlives others who did not—especially when death or suffering feels arbitrary or unfair. In the context of metastatic breast cancer, survivor’s guilt may arise when: You outlive the prognosis given to you or others Friends from support groups or online communities pass away You respond well to treatment while others do not You’re no longer in active treatment while others are struggling You feel joy, relief, or “normalcy” after witnessing someone else’s decline Survivor’s guilt doesn’t mean you’re ungrateful or that you don’t value your life. It means you’re human—and you have the capacity to hold both grief and gratitude at the same time. Why Do We Feel Survivor’s Guilt? There’s no single cause. Survivor’s guilt is often tied to: 1. Empathy and Connection You form strong bonds with others in the MBC community. When someone dies, it’s deeply personal. Their loss isn’t abstract—it’s someone you laughed with, shared treatments with, or saw parts of yourself in. 2. A Sense of Injustice MBC is unpredictable. Two people with similar diagnoses can have very different outcomes. Survivor’s guilt can stem from the unfairness of that randomness. 3. Fear of Being Next Sometimes guilt is tangled up with fear. Watching others die from metastatic disease is a constant reminder of your own mortality. Survivor’s guilt becomes a way to brace for what might happen to you. 4. Cultural Messages We’re often told to “fight” cancer and “stay strong,” which can falsely imply that those who die somehow didn’t fight hard enough. This toxic narrative feeds guilt and shame, even though outcomes are determined by biology—not effort. What Are the Symptoms? Survivor’s guilt can show up emotionally, physically, and psychologically. It may overlap with anxiety, depression, or post-traumatic stress. You might notice: Persistent sadness  or feelings of heaviness Irrational thoughts  like “I didn’t deserve to live” or “I’m just lucky” Avoidance  of joy, happiness, or planning for the future Withdrawal  from your support community or social circles Increased anxiety , especially around scans or treatment updates Insomnia  or trouble concentrating Emotional numbness  or feeling disconnected from your own survival It’s important to name these feelings—not to pathologize them, but to validate them. You are not “wrong” for feeling this way. You are processing something deeply human. What Does It Mean to Be SurvivING? The word "survivor"  can feel complicated, especially in the MBC community where the disease is considered incurable. Some people with metastatic breast cancer resist the term altogether, while others embrace it with pride. Whether or not you identify with the word, being alive— still here —means you're navigating the emotional complexity of survivorship. That includes living with the loss of others who walked beside you. Remember: There is no right or wrong way to be a survivor. Whether you live for five years, ten, or longer, your life matters. You don’t have to “deserve” your survival. You just are. And that is enough. How Do We Cope With Survivor’s Guilt? Coping starts with acknowledging your feelings and allowing yourself to experience them without judgment. Here are some ways to navigate survivor’s guilt with care: 1. Talk About It Speak with a therapist, a support group, or trusted friends. Many people in the MBC community understand this feeling and are relieved to know they’re not the only ones carrying it. SurvivingBreastCancer.org offers weekly metastatic breast cancer support groups, expressive writing sessions, and community meetups that can be safe spaces to open up. 2. Name It Without Shame Say it aloud or write it down: “I feel guilty that I’m still alive when others aren’t.” Naming it can reduce its power and give you space to explore what’s underneath. 3. Honor Those You’ve Lost Creating rituals to remember friends—lighting a candle, saying their names, dedicating a walk or a creative piece—can help channel grief into connection. You can live for  them, with  them in your heart, without carrying the guilt of their absence. 4. Give Yourself Permission to Enjoy Life Joy and grief can coexist. Allowing yourself to feel joy, make plans, or celebrate milestones does not mean you’re forgetting others. In fact, it honors life—theirs and yours. 5. Practice Self-Compassion Speak to yourself the way you would to a friend: “It’s okay to feel this way. I miss them. I don’t have to justify my survival. My life matters.” 6. Seek Meaning Some people find meaning by getting involved in advocacy, supporting others, fundraising, or sharing their story. Others find solace in quieter forms of reflection, like journaling or creating art. You don’t have to “do” anything to earn your place—but finding a sense of purpose, however small, can be healing. You Are Not Alone Survivor’s guilt can feel isolating, but it’s a shared experience across the MBC community. It’s a sign of your depth of care, your empathy, your humanity. There is room for you to mourn and rejoice, to grieve and celebrate, to remember and move forward—all at the same time. You are still here. And that matters. Survivor’s guilt is not a sign of weakness or ingratitude—it is a mirror of the deep emotional bonds and losses that come with living alongside metastatic breast cancer. Your feelings are real and valid. As you navigate this complex path, remember: your life has meaning, your story matters, and you don’t have to carry your grief alone. The MBC community is walking this road with you—with open arms and open hearts. If you need support, please reach out: SurvivingBreastCancer.org Support Groups Cancer Support Community Metastatic Breast Cancer Alliance Crisis Text Line : Text HOME to 741741 for free 24/7 support

You may have heard the term “genetic testing” from your doctor or a friend, but what is it? Genetic testing has revolutionized the medical landscape by providing crucial insights into the potential risk of developing certain diseases. The Mayo Clinic suggests that genetic testing for BRCA1 and BRCA2 mutations can offer valuable information about an individual’s cancer risk . However, the process can be confusing. Continue reading to learn about genetic testing for BRCA1 and BRCA2 mutations, the testing process, risks, benefits, and implications . What Are BRCA1 and BRCA2? BRCA1 and BRCA2 are human genes that produce proteins responsible for repairing damaged DNA and play a significant role in maintaining the stability of our cells’ genetic material. Everyone has the BRCA1 and BRCA2 genes – it’s the mutations to these genes that are a concern . When these genes are altered or mutated, they may not function properly, leading to the development of certain types of cancers , most notably breast and ovarian. What Is BRCA1 and BRCA2 Genetic Testing? According to the Cleveland Clinic, BRCA1 and BRCA2 genetic testing involve analyzing these genes for potential mutations . It’s typically performed with a blood test, although a saliva sample can also be used. The Importance of Genetic Testing for BRCA1 and BRCA2 Mutations Genetic testing for BRCA1 and BRCA2 mutations is vital as it helps individuals understand their risk of developing cancers, including breast and ovarian cancer. Knowing your genetic risk can lead to early detection or prevention measures . Who Should Consider Genetic Testing for BRCA1 and BRCA2 Mutations? Individuals with a strong family history of breast or ovarian cancer should consider testing. In addition, people with Eastern European (Ashkenazi) Jewish heritage have a higher prevalence of BRCA1 and BRCA2 mutations. Additionally, people diagnosed with breast cancer may be encouraged to take the test to learn about family members’ risk . However, it’s crucial to consult a healthcare provider or genetic counselor before taking the test. They can assist in understanding the potential risks, benefits, and limitations of genetic testing. What Can the Results From a BRCA1 and BRCA2 Test Reveal? Genetic test results can be positive, negative, or uncertain. A positive result means that a person has a mutation in BRCA1 or BRCA2 and, therefore, a higher risk of developing certain types of cancer . However, a positive test does not mean a cancer diagnosis is inevitable. Rather, it means that the risk is higher than the general population. A negative result can be more difficult to interpret because it depends on the individual’s family history of cancer . It can mean no mutation detection, but this doesn’t mean you have no risk of developing these cancers. It is essential to discuss your results with your healthcare provider or genetic counselor to understand what they mean for you. How to Manage a Positive BRCA Mutation Test Result If you have a positive BRCA mutation test result, several risk-reducing strategies are available, including more frequent screenings, medications, and preventive surgeries . A genetic counselor can provide detailed information based on your situation. What Are the Risks and Limitations of BRCA1 and BRCA2 Genetic Testing? While genetic testing can be useful, it also has potential limitations, including: Uncertain Results Sometimes, genetic tests identify a change in BRCA1 or BRCA2 that hasn’t been previously associated with cancer, called a variant of uncertain significance (VUS). Psychological Impact Learning about an increased risk of cancer can cause anxiety and stress. You may also have concerns about what this means for other biological family members . Test Limitations A negative test result doesn’t eliminate your risk of cancer. Understanding genetic testing for BRCA1 and BRCA2 mutations can empower individuals to make informed decisions about their health . Genetic testing is just one piece of the puzzle; other factors like lifestyle and environmental influences can also contribute to your risk. Genetic testing can provide valuable insights, but it’s not a crystal ball predicting your future health. Count On Us for Information, Resources, and Support Whether you’re newly diagnosed with breast cancer , are navigating survivorship, or are the loved one of someone experiencing breast cancer, you can count on SurvivingBreastCancer.org to keep you informed. We provide educational information to help you better understand symptoms , testing, treatment options , surgery, etc., and podcasts that feature professionals, advocates, and caregivers that share valuable information. Your donations enable SurvivingBreastCancer.org to offer resources and support every day, every month, and every year. Note: This article is designed to provide general information and is not meant to replace professional medical advice. Always discuss your test results with your healthcare provider. Learn more: The Power of Knowledge (My BRCA Story) Genetic Testing for Cancer – What You Need to Know Reassurance for Genetic Testing Newly Diagnosed. Now What? You Might Also Like: Breast Cancer Conversations Podcast Episode 49: Understanding the Complexities of Genetic Testing SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By Kelly Hsu My mother was diagnosed with triple-negative breast cancer in the winter of 2015. During this time, I was just a sophomore in high school. Everything in my life became peripheral as our family cared for her through her journey with cancer. After surgery and a grueling year of chemotherapy, she was finally cancer-free. Prior to a routine OB-GYN visit over the summer, I was sent an online screening questionnaire. This form asked me routine questions about my family history of cancer, and I provided information I knew about my mother. At my OB-GYN appointment, my physician explained the purpose of the screening questionnaire, and that based on the information I’d provided, I qualified for genetic testing . Because of my strong family history of cancer, this would be covered by my insurance. Since I was already getting labs drawn, I figured a few extra tubes of blood would not make a difference. About two weeks later, I got a phone call from a genetic counselor . She informed me that I tested positive for the BRCA2 mutation, which increases one’s predisposition to developing breast cancer. She set up a virtual appointment for us to talk. I had heard of BRCA before, on a TV show, “ The Bold Type .” In this show, the protagonist chooses to have a prophylactic double mastectomy to minimize her risk of breast cancer. Hearing and processing this news for myself was terrifying and overwhelming. Prior to my genetic counseling appointment, I pored over pages and pages of internet resources and journal articles. I obsessed over the different numbers and percentages that told me my lifetime risk of cancer, and the preventative measures that I could take to reduce or minimize my risk. I learned that my BRCA mutation increased not only my risk for breast cancer, but also ovarian cancer. In this age of digital connectedness, having an abundance of information is a great resource, but at times, can also be a tremendous burden. At my genetic counseling appointment, I listened as my counselor asked me about my understanding of my results. She began by drawing a comprehensive picture of my family tree, asking me about my family members and their different histories of cancer. She outlined the risks and management options and asked me about my preferences. This hour felt long, but after my genetic counseling appointment, I felt much more reassured and redirected in my knowledge. I knew that there was not one singular path that individuals with BRCA mutations take, and that there are different management options for a person depending on their goals and values. With my genetic counselor, I came up with a plan that would work for me. My personal plan involves getting a mammogram and breast MRI yearly, beginning when I turn 25. Genetic counseling can be expensive out-of-pocket, but many insurance companies can cover most of the cost, especially if you have a strong familial history of cancer. In my case, the company that provided my genetic testing offered free testing for my family members within 90 days of my test results. BRCA mutations are autosomal dominant mutations , which means that if an individual has the BRCA mutation, there is a 50% chance that they can pass it down to their child. My mother received genetic testing a month after I received my results, as evidence most strongly pointed to her being a carrier. Surprisingly, she was negative for the BRCA2 mutation. My father tested soon after, and results confirmed that he was the carrier of the mutation. BRCA affects men as well, and men who have the mutation have an elevated risk of breast, prostate, and pancreatic cancer. This emphasized to me how crucial it is to never make assumptions. Only through genetic testing can you confirm and truly understand everyone’s personal genetic risk . Your genetic counselor can not only help you assess your risk, but also help you understand how to communicate with close relatives who may also be at risk. Everyone has a different preference for how much information they want to know, and the decision to get genetic testing is a personal choice . However, knowledge is the best way to plan for early prevention and/or detection of cancer. Since my visit with my genetic counselor, I feel more empowered and adequately informed to plan ahead. As of now, I am set up with my local breast health center, and am scheduled to start my preventative visits in a few months. If you think that you may be eligible for genetic testing, you should speak to your physician or a genetic counselor to learn how to take the next steps. You are not alone. Your clinicians and genetic counselor can help you make informed decisions about your personal and familial risks, and help guide you as you make the most appropriate decisions for yourself and your loved ones. Learn More: Genetic counseling on the SBC podcast, Breast Cancer Conversations Genetic Testing for Cancer: What You Need to Know Breast Cancer and Genetic Testing Dear Kristen: Reassurance for Genetic Testing Living with the BRCA Gene Mutation Author bio: My name is Kelly Hsu and this is my first blog post for SBC. I am a recent graduate of Wellesley College (Class of ‘21), where I studied neuroscience. I am currently working as a Clinical Research Coordinator at the Massachusetts General Hospital Cancer Center on several patient-centered outcomes research studies. Through my experiences, I have developed passions for health education, psychosocial oncology, and palliative care. I plan to attend medical school next fall, where I hope to keep pursuing these interests. Thank you for sharing your story, Kelly. SBC loves you! SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By Jill Rackham Time has moved on and now two years have passed, since my breast cancer diagnosis hit me full on like a blast. But... Every day taking tablets is now part of what I do. I remind myself I’m lucky that these drugs are available to do what I need them to. Every time I hear the word menopause it reminds me this is part of my cancer management plan. Having this enforced on my body early is when all my side effects began. Every time I see my scars from surgery I’m reminded of what has been taken. Four times going into theatre has left me with flashbacks and feeling quite shaken. Every bone infusion I have takes me back to the hospital where all this began. I’ve got to know the nurses so well and I’m thankful they always help me in any way they can. Every review with the surgeon or oncologist seems to prompt bad dreams for me once more. But thankfully my appointments are much less frequent nowadays than before. Every time I have an ailment or pain of some kind. Knowing my risk of a distant recurrence, cancer thoughts once again take over my mind. Being a cancer patient means a GP visit often results in some kind of a further test. I’m glad everything is checked out, but it means my worry intensifies even when I try my best. I have so many daily reminders of what happened in this crazy journey of mine. But despite all this, the rocky road I’ve been travelling on is getting easier with time.   I try to think positive as my life continues in its new way. As I am so lucky to have got through all this, that I’m pleased to say. Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

A Deep Dive into Targeted Therapies for HR+, HER2-low, Triple-Negative, and BRCA-Associated MBC If you’ve recently been diagnosed with metastatic breast cancer (MBC), it can feel like you’re suddenly thrust into a new world filled with acronyms, treatment decisions, and unfamiliar terminology. One of the most empowering things you can do right now is to begin learning about the tools available to you. We take a deeper look at four innovative categories of treatment that are changing the landscape of metastatic breast cancer care: CDK4/6 inhibitors for hormone receptor-positive (HR+) MBC Antibody-drug conjugates like Enhertu and Trodelvy Immunotherapies for some triple-negative breast cancers (TNBC) PARP inhibitors for people with inherited BRCA mutations Each of these therapies offers new hope, especially as treatment becomes more personalized based on tumor biology. Let’s break each one down. CDK4/6 Inhibitors: Targeting Cell Cycle in HR+ MBC What are they? CDK4/6 inhibitors are a class of drugs that target two proteins—cyclin-dependent kinases 4 and 6—which are involved in cell division. In many HR+ breast cancers, these proteins are overactive, causing cancer cells to grow uncontrollably. By blocking CDK4/6, these drugs slow or stop the growth of cancer cells while allowing normal cells to recover. Common CDK4/6 inhibitors: Ibrance (palbociclib) Kisqali (ribociclib) Verzenio (abemaciclib) Who gets them? These therapies are used in people with hormone receptor-positive, HER2-negative metastatic breast cancer, which is the most common subtype of MBC. They are typically used in combination with hormone therapy such as letrozole or fulvestrant, especially for those who are newly diagnosed with MBC or whose cancer has recurred after initial endocrine therapy. What to expect: CDK4/6 inhibitors are taken orally (as pills), often in 3-week-on, 1-week-off cycles, depending on the specific drug. Common side effects include: Low white blood cell counts (neutropenia) Fatigue Nausea Diarrhea (more common with Verzenio) Hair thinning Routine blood work is important to monitor how your body is responding. Why they matter: CDK4/6 inhibitors have significantly extended progression-free survival—and in some cases, overall survival—for patients with HR+ MBC. Kisqali, for example, has shown particularly strong overall survival data in clinical trials. Antibody-Drug Conjugates: Precision Medicine in Action What are they? Antibody-drug conjugates (ADCs) are a new generation of cancer therapies that combine the targeting power of monoclonal antibodies with the cancer-killing power of chemotherapy—but delivered with precision. Think of ADCs like a “smart bomb”: The antibody seeks out cancer cells with a specific protein. Once attached, the chemotherapy payload is delivered directly into the cancer cell, sparing more of the healthy tissue. Two groundbreaking ADCs: Enhertu (trastuzumab deruxtecan): Targets HER2-low and HER2-positive breast cancers. Trodelvy (sacituzumab govitecan): Approved for triple-negative breast cancer (TNBC) and HR+/HER2- MBC that has already been treated with endocrine and chemo therapies. Who gets them? Enhertu is for people with HER2-positive MBC and more recently for HER2-low breast cancers, which now includes many patients previously considered “HER2-negative.” Trodelvy is used in TNBC after two prior therapies or in HR+ MBC after hormone and chemo treatment. What to expect: These drugs are given by IV infusion every few weeks. Your team will monitor your blood counts, heart function, and watch for any lung-related symptoms (especially with Enhertu). Common side effects: Nausea Hair loss Fatigue Diarrhea Neutropenia (low white blood cells) Enhertu also carries a risk of interstitial lung disease (ILD), so early detection of coughing, shortness of breath, or chest tightness is important. Why they matter: ADCs represent precision-targeted therapy that gives more treatment options for people whose tumors don’t respond well to traditional chemo. Enhertu, in particular, has transformed care for the newly defined category of HER2-low breast cancer—a group that includes nearly 50% of patients with MBC. Immunotherapy: Boosting Your Body’s Defense Against TNBC What is it? Unlike chemo or targeted drugs that attack the cancer directly, immunotherapy helps your own immune system recognize and attack cancer cells. In breast cancer, immunotherapy has shown the most promise in triple-negative breast cancer (TNBC), which tends to be more aggressive and harder to treat. Key immunotherapy: Keytruda (pembrolizumab): A PD-1 checkpoint inhibitor that works by removing the "brakes" from immune cells, allowing them to detect and fight cancer. Who gets it? Keytruda is used in TNBC that is PD-L1 positive, a marker found via biopsy or molecular testing. It is often given in combination with chemotherapy as a first-line treatment for metastatic TNBC. What to expect: Immunotherapy is usually given as an IV infusion every 3 or 6 weeks, often alongside chemo. Common side effects: Fatigue Rash Nausea But because immunotherapy revs up the immune system, it can also lead to immune-related side effects like: Inflammation in the lungs (pneumonitis) Colitis Thyroid issues Your team will monitor you closely and may use steroids to manage side effects. Why it matters: Immunotherapy has extended survival in some TNBC patients and offers a much-needed option for a group that previously had few targeted therapies. PARP Inhibitors: Targeting BRCA-Mutated Cancers What are they? PARP inhibitors work by exploiting a weakness in cancer cells with BRCA mutations—a kind of inherited mutation that affects the way cells repair DNA damage. In BRCA-mutated cancer cells, the DNA repair machinery is already compromised. PARP inhibitors make it even harder for these cells to fix themselves, leading to cancer cell death while sparing normal cells. Common PARP inhibitors: Olaparib (Lynparza) Talazoparib (Talzenna) Who gets them? These are used in people with HER2-negative metastatic breast cancer who also have an inherited BRCA1 or BRCA2 mutation. If you haven’t already had genetic testing, talk to your oncologist. Finding a BRCA mutation can open the door to these treatments and inform family risk. What to expect: PARP inhibitors are oral pills, typically taken once or twice a day. Common side effects: Fatigue Nausea Anemia Low platelet or white blood cell counts Routine blood work helps monitor for side effects. Why they matter: These drugs offer a targeted alternative to chemotherapy and have been shown to improve progression-free survival in people with BRCA-associated MBC. For many, they’re also better tolerated than traditional chemotherapy. Bringing It All Together Navigating metastatic breast cancer is complex, but you don’t have to do it alone—and you don’t have to understand it all at once. What matters most is that you begin to learn about your options and feel empowered to ask questions. Here’s a quick snapshot of when these treatments are used:

Understanding a Stage IV Diagnosis with Compassion, Clarity, and Hope Being told you have metastatic breast cancer (MBC) is life-altering. Whether this is your first diagnosis (known as de novo MBC) or a recurrence after early-stage treatment, hearing the words “stage IV” or “metastatic” can bring a whirlwind of emotions—fear, confusion, disbelief, and questions about what happens next. This blog is for you. It’s here to help you understand what metastatic breast cancer is, how it’s treated, and what living with MBC can look like, all grounded in evidence-based information and compassionate care. What Does “Metastatic” Mean? Metastatic breast cancer—also called stage IV breast cancer—means that the cancer has spread beyond the breast and nearby lymph nodes to other parts of the body. Common sites of metastasis include the bones, liver, lungs, and brain. When breast cancer cells travel through the blood or lymphatic system to other organs, they can grow and form new tumors. Important to know : Even when breast cancer spreads to another part of the body, such as the liver or bones, it is still considered and treated as breast cancer—not liver or bone cancer. This is because the cells remain breast cancer cells. De Novo vs. Recurrent Metastatic Breast Cancer There are two ways someone can be diagnosed with MBC: De Novo Metastatic Breast Cancer This means that the cancer is stage IV from the very beginning. You may not have known you had breast cancer at all before the metastatic diagnosis. About 6–10% of women  in the U.S. are diagnosed de novo, according to the American Cancer Society. Recurrent Metastatic Breast Cancer This happens when breast cancer returns after treatment for an earlier-stage diagnosis. It may recur months or even years later and appear in a different part of the body. It’s important to know that recurrence is not your fault —cancer biology is complex, and even with the best treatment, some cells can remain hidden and later become active. Understanding the Biology of MBC Breast cancer is not one disease—it’s many, with different subtypes and behaviors. To understand your treatment options, you and your medical team will look at several key factors: 1. Hormone Receptor (HR) Status HR-positive  means the cancer cells grow in response to estrogen and/or progesterone. These cancers can often be treated with hormone (endocrine) therapies . 2. HER2 Status HER2-positive  cancers make too much of the HER2 protein, which promotes cell growth. They may respond to targeted therapies  like trastuzumab (Herceptin), pertuzumab, or newer agents. 3. Triple-Negative Breast Cancer (TNBC) These tumors are negative for estrogen receptors, progesterone receptors, and HER2. TNBC tends to be more aggressive and may be treated with chemotherapy  or immunotherapy , depending on biomarkers like PD-L1. Knowing your cancer’s subtype helps guide your treatment plan and gives insight into how the disease might behave. Where Can Metastatic Breast Cancer Spread? Breast cancer can metastasize to many areas of the body, but the most common include: Bones : The most frequent site. Symptoms may include bone pain or fractures. Liver : May cause pain in the upper right abdomen, fatigue, or abnormal liver tests. Lungs : May cause a persistent cough or trouble breathing. Brain : Less common but may lead to headaches, vision changes, or balance issues. Your doctor may order scans such as CT, PET, MRI, or bone scans to assess the extent of spread. This process is called staging , and it’s crucial for determining your treatment options. How is Metastatic Breast Cancer Treated? Unlike early-stage breast cancer, the goal of MBC treatment is not cure but control . Many people live for years with MBC, managing it as a chronic condition . Treatment aims to: Slow the cancer’s growth Relieve symptoms Maintain or improve quality of life Treatment plans are personalized and may include: 1. Systemic Therapies These are drugs that treat the whole body: Hormone therapy : For HR-positive cancers Targeted therapy : For HER2-positive or BRCA-mutated cancers Chemotherapy : Especially for fast-growing or hormone-resistant cancers Immunotherapy : For certain TNBC patients with PD-L1 expression 2. Radiation Therapy Used to relieve pain or control tumors in specific areas, like bones or the brain. 3. Surgery Rarely used in MBC, but in some cases, it may help control symptoms or remove a primary tumor if it's causing problems. 4. Clinical Trials Clinical trials offer access to emerging therapies and are a key part of advancing treatment. Ask your doctor or visit clinicaltrials.gov  for options. Living With Metastatic Breast Cancer A metastatic diagnosis changes your life—but it doesn’t define you. Many women live full, meaningful lives while managing treatment. Here's what helps: Building Your Care Team This includes your oncologist, oncology nurse, radiologist, social worker, palliative care team, and perhaps a counselor or therapist. You deserve a team that listens, respects your goals, and partners with you in decision-making. Symptom Management Also called palliative care, this includes pain relief, managing fatigue, and treating side effects like nausea or neuropathy. It’s not about giving up—it’s about living better. Mental and Emotional Health It’s normal to feel overwhelmed, anxious, or even numb. You’re not alone. Support groups, therapy, expressive writing, and connecting with others who understand can be lifelines. Tip: Organizations like SurvivingBreastCancer.org  offer free programs, peer support, and weekly community meetups just for MBC thrivers. Planning for the Future Planning can bring peace of mind. This might mean talking about your hopes, bucket lists, or creating an advanced care plan. Having these conversations can help you feel more in control and supported. Common Myths About MBC Let’s bust a few: Myth #1 : Metastatic breast cancer is a death sentence. Truth : While it is not curable, many people live for years—some for a decade or longer—with MBC thanks to advances in treatment. Myth #2 : If the cancer spread, something went wrong with my treatment. Truth : No. Cancer can be unpredictable. Metastasis can occur even after doing everything “right.” Myth #3 : I must start chemotherapy right away. Truth : Treatment depends on many factors, and not everyone starts with chemo. There may be less aggressive options with fewer side effects. Hope and Progress in MBC Research There has never been more progress in understanding and treating metastatic breast cancer than there is today. Some recent advances include: CDK4/6 inhibitors  (like Ibrance, Kisqali, Verzenio) for HR-positive MBC Antibody-drug conjugates  like Enhertu and Trodelvy Immunotherapies  like Keytruda for certain TNBC patients PARP inhibitors  for those with BRCA mutations More clinical trials are focused on personalized medicine, liquid biopsies, and novel pathways to outsmart cancer cells. Researchers are listening to patient voices more than ever, driving innovation with humanity at the center. You Are Not Alone A metastatic diagnosis can be isolating, especially if others in your life don’t understand what “stage IV” really means. But there is a powerful community of people—other thrivers, caregivers, advocates, researchers, and healthcare providers—walking this road with you. Take things one step at a time. Ask questions. Seek support. And give yourself permission to grieve, hope, rest, and live—however that looks for you. You are more than your diagnosis. You are resilient, powerful, and not alone. Resources You Can Turn To Metastatic breast cancer is complex, but understanding your diagnosis is the first step toward taking back some control. As you move forward, remember: you don’t have to have all the answers today. You just have to keep showing up for yourself, one day at a time. You are worthy of support, quality care, and love. And we’re here for you—every step of the way. SurvivingBreastCancer.org : Free MBC meetups, blogs, meditations, and expressive writing programs Metastatic Breast Cancer Network : mbcn.org Living Beyond Breast Cancer : lbbc.org METAvivor : metavivor.org

November 24, 1980 – December 31, 2024 https://www.dignitymemorial.com/obituaries/cleveland-oh/melissa-niskala-12151278 Memories from Our SBC Family: Elisa:   Melissa was an admirable human being, she was a teacher who left her job to heal after her breast cancer diagnosis, she participated in most of our programs, she was part of our Expressive Arts class, we shared some beautiful moments being artsy, she shared about her journey and we shared her process from our screens. I wish we had more time to meet in person. She touched my soul with hers, and I hold her memory, her resilience, her bravery in my heart. Gloria: Our beloved SBC Sis-star, Melissa; we hold you in our individual and collective heart as you journey back to Source on angel wings!!! From the very first day of your attending Encourage & Empower Cohort #5, your essence of discovery, exploration and new learning in awe and curiosity struck me as the gift that you came to earth to share with all of us as we journeyed together. Whether that journeying was for a short couple years or a lifetime - it sure impressed upon all our hearts and minds the opportunity of always being open to a new POV (Point of View). These combined with equanimity were truly your gifts that you shared with me and I would daresay all your SBC sis-stars that you met at the various programs you attended. I thoroughly enjoyed your presence in our weekly Meditation and our conversations around therapeutic touch and other energy modalities of healing!!! May your soul soar as you reconnect to the collective One Source that we all originated from and I look forward to seeing you when next our souls connect again!!! For all aching hearts - we hold peace in our loving active compassionate hearts individually and collectively for each of you in your own divine timing!!! Namaste - May Peace Be With You Gloria Marie:   Melissa and I met in one of the SBC programs. We shared with each other our appreciation of Reiki energy. Melissa in her sweet kindness and generous spirit shared information of two on-line distance Reiki programs. We would see each other upon occasion in these zoom platform programs. I continue to remember and honor Melissa's caring spirit each time I attend and benefit from her shared Reiki programs.  Maria:   Melissa I do not know where to begin, I was very shaken by the news of your passing. But I have comfort in knowing that you now are in a place where nothing hurts and you’re at peace. I want to say that I admire you for fighting so hard. I will always remember you for your bright smile and for showing up even when you weren’t up for it. You were an extremely extraordinary person. When I read your obituary it made me kind of sad we never got to discuss your life story because wow I would have loved to hear about your museum days and your travels abroad!  I hope that our souls connect again one day under an extraordinary circumstance and not because of “this.” May you continue to feel the love of your friends and relatives who have to continue without you for a little while. To Missy’s family and friends I offer my sincere condolences sending you all love and light as you navigate this life without your loved one.  Peace out Melissa catch you on the flippity flip Your SBC friend  Maria Tawnya: Melissa— When we began SBC’s E&E group and you, Kris, and I quickly learned that we were the three triple negative girls, I instantly appreciated your candor, realness, and bravery. I am so very sorry that your fight didn’t bring you the outcomes you so desperately wanted in this life. My heart aches for you and your loved ones. May you rest in peace.  Tawnya Kristin:   The big thing I remember about her is the multi-colored Christmas lights she had up in her home during the Encourage & Empower calls. It was well past Christmas but she said she left them up because she needed the light. And apparently I did too because it really was a joy to see them, such a small thing but it brightened my day. And that’s how I will always remember her- surrounded by those joyful multi-colored Christmas lights.  SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

(Redefining what it means to be a woman) By William Laferriere she walks to the mirror hesitantly opening her mind a monumentally different reflection stares back she gazes at a body altered, a soul grappling with change breasts are gone, uterus removed lost in the transformation, is her sense of self she searches for the woman she once was the femininity that seemed so integral to her identity in this new form she questions whether she is still a woman, or if that part of her has been erased and yet her heart beats with strength her spirit unscathed but in her mind, a profound uncertainty lingers is it the body that defines us, or is it something deeper? is it the soul that holds our very essence? in this time of loss and pain she seeks to rediscover herself to redefine what it means to be a woman to be a person, to be whole as a community we stand with her   this darkness to be overcome and remind her that her worth is not measured by what she has lost that strength lies in her resilience, in her quiet, unyielding spirit a woman, still, with a heart that endures in her eyes, a spark of resilience remains a flame still flickers still burns bright that sense of self, that sense of pride she recognizes a WOMAN, still, with a heart that beats anew Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By Kiara Ford  A breast cancer diagnosis brings about many losses. These may include: the loss of ability to work and engage in family and social life as you once did, the fear of loss of life, and the loss of self-image. Breast cancer often leads to changes in appearance in ways that can feel dehumanizing or outside of traditional aesthetic standards.  While to some this loss may seem small compared to everything else being impacted by the disease, the blow to self-esteem these losses can cause is devastating, and contributes further stress to an already difficult situation. It is important to normalize discussion of these losses and acknowledge that the pain they cause is valid. Continue reading to learn how side effects such as weight gain, hair loss, and surgical changes can impact those with cancer – and how to acknowledge and process the emotions that come along with them. Treatment-related weight gain Weight gain is a common side effect of breast cancer treatment . This can be caused by numerous factors. It may be more difficult to exercise  during cancer treatment due to pain, fatigue, and nausea. Additionally, some medications and treatments can cause weight gain, such as steroids or corticosteroids, which can increase appetite. Corticosteroids in particular can also increase fatty tissue, which may additionally cause loss of muscle mass.  Chemotherapy is another common cause of weight gain. Despite the nausea often associated with chemotherapy, some people find that treatment causes them to crave sweets and carbohydrates. Additionally, it can bring on early menopause , which can slow metabolism and cause weight gain around the stomach. On average, women gain between 5 to 14 pounds  over the course of a year during chemotherapy.  While these treatments can be life-saving, the side effects are incredibly difficult to experience. It is important to remember that our society in particular glorifies a “ thin ideal ,” which can make any amount of weight gain feel distressing. For those who are used to their body looking a certain way, this sudden loss of control can be deeply upsetting and cause major blows to their confidence and self-worth.  Chemotherapy and hair loss Another side effect of chemotherapy which can be harmful to an individual’s self-image is hair loss . Hair is something many people take for granted until they start losing it, at which point they realize what a major role it played in their confidence. Chemotherapy targets any fast-growing cells in the body in the hope of eradicating cancer cells, but this means it also targets the fast-growing cells in the roots of the hair. This typically causes hair to fall out about two to four weeks after the beginning of treatment. The amount lost and how quickly it falls out will depend on individual treatment, but any amount can feel overwhelming.   For women in particular, a long head of hair can be associated with beauty and femininity, and the loss of it can bring these two things into question. A bald head on women is also often identified as a sign of cancer – information which an individual may want to remain private. While there may be some comfort found in remembering that hair loss is usually temporary and that wigs can be worn during treatment, it is also important to acknowledge that even with these reassurances, hair loss can be upsetting. Mastectomies: a permanent physical change One final and particularly important matter to discuss in relation to self-image is mastectomies. A mastectomy  is a surgery which removes all breast tissue, and may include some breast skin and the nipple in some cases. Unlike weight gain and hair loss, the bodily changes caused by a mastectomy are permanent, and may feel like a much heavier decision than other treatment options.  Although mastectomies and other breast surgeries can have benefits for both treating breast cancer and reducing the risk of recurrence, surgical recovery is physically difficult and can alter the way a woman regards her body. Reconstructive surgery  is an option that can help restore breast shape through the use of implants, tissue reconstruction, or a combination of both. This may help improve self-esteem for some people post-mastectomy, and may in particular help to restore feelings of femininity for those that desire it. That being said, breast reconstruction is a very personal decision and many people opt instead for aesthetic flat closure . No one should feel obligated to have reconstructive surgery if they do not want it, and beauty is not contingent on breast tissue. Nevertheless, no matter the reconstruction decision, many people mourn the loss of their pre-surgery body. Physical changes compound cancer challenges Nothing about breast cancer is easy. Physical changes are just one more challenge that people with breast cancer face every day . When a health situation like cancer is out of someone’s control, it can be particularly painful to also lose control of physical appearance – something they had previously been able to craft and decide for themselves.  For people experiencing these changes, it’s important to acknowledge any challenging emotions as they come up and process them in your own time.  If someone you love is experiencing these physical changes, you may feel the urge to  reassure them that they are beautiful no matter what. However, it’s also important to validate that what they are going through is hard, without dismissing their feelings. L isten to your loved one express themselves about these changes , and let them know that you’re there for them through it all. Read more: Metabolic Changes After A Breast Cancer Diagnosis A Patient-Centered Approach to Plastic Surgery Reconstruction The Choice to Go Flat On the Podcast: Breast Cancer Conversations Breast Reconstruction and Plastic Surgery Explained About the Author: Kiara Ford is a graduate of Emerson College, where she majored in communication studies and minored in health and society. She is a certified community health worker and has worked extensively in disability advocacy. She is passionate about health equity, and hopes to raise awareness and increase understanding of patients’ rights through her work. From the Same Author: Metastatic Breast Cancer: Understanding the Significance of Stage IV Breast Cancer and Healthcare Access Within the Hispanic Community Inflammatory Breast Cancer: Breaking Down the Basics Datopotamab Deruxtecan Shows Promise in Clinical Trials Getting through the Holidays with Breast Cancer Overlaps Between Breast Cancer and Domestic Violence The Cost of Breast Cancer Homelessness and Breast Cancer SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events