By Kiara Ford  A breast cancer diagnosis brings about many losses. These may include: the loss of ability to work and engage in family and social life as you once did, the fear of loss of life, and the loss of self-image. Breast cancer often leads to changes in appearance in ways that can feel dehumanizing or outside of traditional aesthetic standards.  While to some this loss may seem small compared to everything else being impacted by the disease, the blow to self-esteem these losses can cause is devastating, and contributes further stress to an already difficult situation. It is important to normalize discussion of these losses and acknowledge that the pain they cause is valid. Continue reading to learn how side effects such as weight gain, hair loss, and surgical changes can impact those with cancer – and how to acknowledge and process the emotions that come along with them. Treatment-related weight gain Weight gain is a common side effect of breast cancer treatment . This can be caused by numerous factors. It may be more difficult to exercise  during cancer treatment due to pain, fatigue, and nausea. Additionally, some medications and treatments can cause weight gain, such as steroids or corticosteroids, which can increase appetite. Corticosteroids in particular can also increase fatty tissue, which may additionally cause loss of muscle mass.  Chemotherapy is another common cause of weight gain. Despite the nausea often associated with chemotherapy, some people find that treatment causes them to crave sweets and carbohydrates. Additionally, it can bring on early menopause , which can slow metabolism and cause weight gain around the stomach. On average, women gain between 5 to 14 pounds  over the course of a year during chemotherapy.  While these treatments can be life-saving, the side effects are incredibly difficult to experience. It is important to remember that our society in particular glorifies a “ thin ideal ,” which can make any amount of weight gain feel distressing. For those who are used to their body looking a certain way, this sudden loss of control can be deeply upsetting and cause major blows to their confidence and self-worth.  Chemotherapy and hair loss Another side effect of chemotherapy which can be harmful to an individual’s self-image is hair loss . Hair is something many people take for granted until they start losing it, at which point they realize what a major role it played in their confidence. Chemotherapy targets any fast-growing cells in the body in the hope of eradicating cancer cells, but this means it also targets the fast-growing cells in the roots of the hair. This typically causes hair to fall out about two to four weeks after the beginning of treatment. The amount lost and how quickly it falls out will depend on individual treatment, but any amount can feel overwhelming.   For women in particular, a long head of hair can be associated with beauty and femininity, and the loss of it can bring these two things into question. A bald head on women is also often identified as a sign of cancer – information which an individual may want to remain private. While there may be some comfort found in remembering that hair loss is usually temporary and that wigs can be worn during treatment, it is also important to acknowledge that even with these reassurances, hair loss can be upsetting. Mastectomies: a permanent physical change One final and particularly important matter to discuss in relation to self-image is mastectomies. A mastectomy  is a surgery which removes all breast tissue, and may include some breast skin and the nipple in some cases. Unlike weight gain and hair loss, the bodily changes caused by a mastectomy are permanent, and may feel like a much heavier decision than other treatment options.  Although mastectomies and other breast surgeries can have benefits for both treating breast cancer and reducing the risk of recurrence, surgical recovery is physically difficult and can alter the way a woman regards her body. Reconstructive surgery  is an option that can help restore breast shape through the use of implants, tissue reconstruction, or a combination of both. This may help improve self-esteem for some people post-mastectomy, and may in particular help to restore feelings of femininity for those that desire it. That being said, breast reconstruction is a very personal decision and many people opt instead for aesthetic flat closure . No one should feel obligated to have reconstructive surgery if they do not want it, and beauty is not contingent on breast tissue. Nevertheless, no matter the reconstruction decision, many people mourn the loss of their pre-surgery body. Physical changes compound cancer challenges Nothing about breast cancer is easy. Physical changes are just one more challenge that people with breast cancer face every day . When a health situation like cancer is out of someone’s control, it can be particularly painful to also lose control of physical appearance – something they had previously been able to craft and decide for themselves.  For people experiencing these changes, it’s important to acknowledge any challenging emotions as they come up and process them in your own time.  If someone you love is experiencing these physical changes, you may feel the urge to  reassure them that they are beautiful no matter what. However, it’s also important to validate that what they are going through is hard, without dismissing their feelings. L isten to your loved one express themselves about these changes , and let them know that you’re there for them through it all. Read more: Metabolic Changes After A Breast Cancer Diagnosis A Patient-Centered Approach to Plastic Surgery Reconstruction The Choice to Go Flat On the Podcast: Breast Cancer Conversations Breast Reconstruction and Plastic Surgery Explained About the Author: Kiara Ford is a graduate of Emerson College, where she majored in communication studies and minored in health and society. She is a certified community health worker and has worked extensively in disability advocacy. She is passionate about health equity, and hopes to raise awareness and increase understanding of patients’ rights through her work. From the Same Author: Metastatic Breast Cancer: Understanding the Significance of Stage IV Breast Cancer and Healthcare Access Within the Hispanic Community Inflammatory Breast Cancer: Breaking Down the Basics Datopotamab Deruxtecan Shows Promise in Clinical Trials Getting through the Holidays with Breast Cancer Overlaps Between Breast Cancer and Domestic Violence The Cost of Breast Cancer Homelessness and Breast Cancer SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

Watch the video version of this poem below! By Marie McGuire I am able now, I wasn’t able then I had to follow the rules set forth for me Some of those rules have lingered and spring up in various situations Those rules set forth by others No longer apply I visualize a goodbye box and inside the box I place these rules Saying goodbye You are no longer a part of who I am I decide today and each day the rules from divine guidance that are best for me Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By Elisa Herrera I met a girl who left her home, chasing a life she had never known. Dreams in her hands, a bag packed light, she stepped into the endless night. I met a young woman, lost but strong, in a land where words felt wrong. No taste of home, no stars above, she longed for laughter, a mother’s love. Long days beneath an unkind sun, cold, dark nights—alone, undone. Silent stares, the weight of fear, a stranger’s world, no welcome near. I met a woman, weary, worn, her dream now tangled, bruised, and torn. Cancer came, a ruthless thief, alone she stood in pain and grief. She searched for help, for hands to hold, for voices warm, for hearts consoled. At SurvivingBreastCancer.org , she found a guide, a place where love and hope reside. I met a girl who chose to fight, through every chemo, every night. She learned to rest, to breathe, to heal, to face her fears with strength so real. A child, a woman, a soul so bright, who walked through darkness toward the light. She fought her battles, she found her way, and still she stands, unshaken today. Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By Kiara Ford  In our series on the financial side of breast cancer, we have already examined the breast cancer to poverty pipeline, and the economic toll a breast cancer diagnosis carries with it . But missing from this conversation is the question: what happens if you are already experiencing poverty when you are diagnosed with breast cancer ? More specifically, how would someone experiencing homelessness be able to detect, treat, and recover from breast cancer?  Continue reading to learn more about how homelessness can complicate breast cancer screening, diagnosis, and treatment. Homelessness: Breaking the Stigma Before answering this question, let’s define what it means to be a person experiencing homelessness. There are numerous toxic narratives attached to the word “homeless,” but it is important to remember that many of the prejudices are based on stereotypes and are not representative of the population. We must avoid making generalizations about people experiencing homelessness, because the circumstances that lead to homelessness can vary so greatly.  The Social Security Administration   defines a person experiencing homelessness as “an individual with no permanent living arrangement, i.e., no fixed place of residence.” This could be a family staying in transitional housing, a person fleeing domestic violence , or someone struggling with unemployment. The circumstances that lead to homelessness are most often complex and unique to the individual, so sweeping statements about the entire homeless population can be harmful. What can be said, however, is that most people experiencing homelessness will have to navigate financial hardship, limited resources, and instability. Breast Cancer Screening Barriers These difficulties are contributing factors into why unhoused people with breast cancer are almost twice as likely  to die as those with consistent housing. One of the greatest barriers is access to preventative care and early detection. For women at average risk, mammograms are recommended over the age of 40  every other year, in the hopes that the cancer can be found and treated as early as possible. One 2014 study   found that only 59% of unhoused women surveyed had had a mammogram in the past two years, and that 53% of those who had had one did not know the results.  The Toll of Delayed Cancer Detection and Treatment This lack of regular screening makes it more likely that cancer will be diagnosed later, which is compounded further by the fact that people experiencing homelessness may be forced to delay treatment. Doctors typically recommend   starting treatment soon after diagnosis in order to improve survival odds, but the barriers created by homelessness can make this impossible. One study   from Boston Medical Center found that 90% of patients in the sample deferred care by at least 30 days, and the average time between diagnosis and treatment was 98 days. The most common reasons given for these delays were comorbidities and mental illness interfering with treatment, having no place to recover after surgery, and inability to cover the cost of care.  Cancer Care is Prohibitively Expensive Covering the cost of care is one of the greatest barriers to healthcare in America, especially for those without insurance. Research   has shown that around 60% of people experiencing homelessness are not insured. Although many of this group would be eligible for coverage under Medicare or Medicaid, acquiring the necessary documentation and filling out the forms without an address can prove challenging. This leaves uninsured, unhoused people with limited options.  There are safety net hospitals , which receive federal funding to provide service to any patient in need, regardless of ability to pay. There are also medical respite facilities, which provide accommodation for individuals experiencing homelessness who are too sick to stay in a shelter or on the street, but not sick enough to be admitted to the hospital. While both these services provide vital care, they can also be difficult to locate and are not always accessible to people who may need them.  Homelessness is a complex issue and it cannot be solved overnight, especially with a breast cancer diagnosis further complicating the situation. What we can do is meet people where they are, withhold judgments, and invest in screening programs such as mobile mammograms for lower income individuals. Read more about safety net hospitals: https://healthcareconsumernavigatorcenter.com/consumer-information-navigator/section-4/safety-net-hospitals-resource-healthcare-consumers/ On the Podcast: Breast Cancer Conversations Breast Cancer and the Law: Resources for Patients and Caregivers About the Author: Kiara Ford is a graduate of Emerson College, where she majored in communication studies and minored in health and society. She is a certified community health worker and has worked extensively in disability advocacy. She is passionate about health equity, and hopes to raise awareness and increase understanding of patients’ rights through her work. From the Same Author: Metastatic Breast Cancer: Understanding the Significance of Stage IV Breast Cancer and Healthcare Access Within the Hispanic Community Inflammatory Breast Cancer: Breaking Down the Basics Datopotamab Deruxtecan Shows Promise in Clinical Trials Getting through the Holidays with Breast Cancer Overlaps Between Breast Cancer and Domestic Violence The Cost of Breast Cancer SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By Suzanne McCoy I’m a 68-year-old woman who’s fallen madly and deeply in love … with herself. Sure, there’s parts of me that, at times, get on my nerves, but I’ll often look the other way. This wasn’t always the case. After a nearly 25-year absence, my breast cancer returned to a place she once called home: my left breast. This time however, instead of a small overnight bag with just the essentials, she brought a much larger bag: a suitcase with a new appropriately-labeled luggage tag: INVASIVE ! I was not happy to see her again. I had two teenage girls . I had shared custody of my daughter from a prior relationship and my niece (who was very much like a daughter to me). Oh, and let’s not forget about our dog Coco, a rescue from a local shelter. At the same time, my ex (the other mother of my daughter), who I shared custody with, had been rushed to the hospital with a brain aneurysm. So here came the big “What if?” — What if we both die? Her on the operating table… and me a slower but sure death. Who’s going to take care of the kids? And... what about Coco? Sure, we had relatives who we trusted to take the kids in and give them the love they would surely need… but what if they couldn’t take Coco? What then? Back to the shelter? I was not in a good place! I was, however, in a relationship  with a woman for the past 7+ years. This too... was not in a good place. In the beginning it was good. Other than me, a “toilet paper under” kind of gal, and her insisting the right way is over… it appeared we were on the same page… with the things that really mattered. When my ex called me from the ER asking me to run to the house to take care of the kids, I remember thinking to myself: “My partner is not going to support me.” She had never been supportive in the past regarding me already having a pre-existing family. She had zero interest in becoming part of an extended family. I had no reason to believe that at this crucial time, things would be any different. A week or so later, I headed to my partner’s house so we could spend some time together. I had been spending most of my time taking care of the kids while my ex was in the hospital. When I called her to tell her I was almost there, she began to rave and rant, shouting, “This is not what I signed up for! No one else would put up with this shit. Everyone here at work says… blah blah blah…” I had begun to un-hear her. I knew then that it was now or never. I had to let her go. I won’t lie. It hurt. But I knew, if I was going to have my best chance at beating this cancer again, I needed to rid myself of this toxicity, to concentrate on another one. So, with the support of loved ones and a good medical team, I put those boxing gloves on, and brought the figurative semi-automatic (just in case). I kicked cancer’s butt a second time! I was overjoyed! I was grateful! Life was good! … Until it wasn’t. A new battle had begun. A different kind of battle. I was still alive and breathing, but felt a new disease spreading . I was STUCK! No medical team could save me. I existed as a much dimmer version of myself . It wasn’t that I was afraid of the cancer returning. If it did, we would attack it like we did the last time, me and my medical team with surgery, hormone blockers, etc... In that case, I knew the enemy. We knew what weapons to use. It was a no brainer, really. But this battle... this was different. Who and where is the enemy? Why won’t they appear? Show yourself, dammit! And then, one day she did appear. Staring back at the reflection in the mirror, I said, “l don’t know you.” She said, “I know you don’t, but you will. You WILL know me, and you WILL love me… like I love you.” Bittersweet tears fell from our eyes, just as they are now as I write these words. It didn’t happen all at once, but slowly... surely... over time... I fell so deeply and madly in love with her. We searched for ourselves. We rediscovered one another. We saw, perhaps for the first time, who we really were, or had now become. Together, we took selfies. We printed and displayed them on our living room wall. The scars reminded us not only of the battle we had won against cancer, but equally, if not more important (to us anyway), our victory over the battle within. Until this time, I can honestly say, I have never really loved myself. In my own defense, I didn’t know that I didn’t. Cancer took my left breast, but it was the catalyst for saving this life. Had I not gotten my second bout of breast cancer, I may never have found the courage to leave a relationship that had become toxic. I may never have met the love of my life: me! I am truly living proof that there is life and love after cancer. I also am living proof that you can be in love with two people at the same time. I recently met my “soulmate.” I am madly and deeply in love with both of us! What was that you said? “Who do I love more?” ;) I wish for all of you who read this… the absolute JOY of falling for yourself ! Read More: How Cancer Trauma Can Impact Your Life – and Ways to Move Forward Invasive vs. Non-Invasive Breast Cancer: Key Differences and What They Mean Parenting and Breast Cancer Navigating Relationships After a Breast Cancer Diagnosis Overlaps Between Breast Cancer and Domestic Violence On the Podcast: Breast Cancer Conversations Discovering Your Divine Purpose with Dr. Sophia Edwards-Bennett Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

SurvivingBreastCancer.org (SBC) is excited to unveil new accessibility features on our website ! As mentioned in our 2024 Impact Report , SBC is committed to making our website and mobile app as accessible as possible. Through our accessibility efforts, SBC aims “to break down barriers so that every person diagnosed with breast cancer can easily access the resources, support, and community they need, no matter their circumstances.” What exactly do we mean by making our website accessible, and why is this important? Let’s take a closer look. What is website accessibility? When a website is described as “accessible,” this means the site can be used by people with various disabilities, which can include visual, auditory, and motor impairments. Accessible websites use specific designs and features to facilitate access for these site users. As explained by the U.S. Department of Justice Civil Rights Division , “People who are blind may use screen readers, which are devices that speak the text that appears on a screen. People who are deaf or hard of hearing may use captioning. And people whose disabilities affect their ability to grasp and use a mouse may use voice recognition software to control their computers and other devices with verbal commands.” Why is web accessibility important? When a website isn’t designed and planned with accessibility in mind, it’s very likely that site visitors with various disabilities will be unable to use some or all of the site’s content and features. The Civil Rights Division  goes on to describe just how detrimental this can be for potential site users: “Inaccessible web content means that people with disabilities are denied equal access to information. An inaccessible website can exclude people just as much as steps at an entrance to a physical location.” Through our accessibility efforts, SBC aims to make all of our resources more accessible for everyone – from those diagnosed with breast cancer and their loved ones to individuals wanting to know more about breast cancer risk factors, signs and symptoms, and treatment options. What’s new on SBC’s website? The SBC website now includes an accessibility toolbar from Recite Me. This toolbar allows our website users to customize their website experience based on their accessibility needs. By clicking the “Accessibility Tools” button at the top of our website, users can choose from a variety of accessibility options. These include text-to-speech, text size customization, automated translation, magnifier, and more. Give it a try and find the settings that work best for you! We aim to make our website accessible to everyone. If you have any questions or feedback regarding our website accessibility, please reach out to us at info@survivingbreastcancer.org .

After receiving a breast cancer diagnosis , it’s natural to feel uncertain, scared, and inundated with complex medical information. However, asking the right questions can help you gain clarity and confidence as you navigate the road ahead. By advocating for yourself and learning from medical professionals, you can make informed decisions about your treatment and care. Below are some essential questions to ask your doctor  to better understand your individual situation and make the right decisions for you. Understanding Your Diagnosis What type of breast cancer do I have? Not all breast cancers  are the same. Ask for specific details about the characteristics of your tumor, such as hormone receptor status (estrogen receptor-positive or progesterone receptor-positive) and HER2 status. These factors significantly affect treatment options. What stage is my cancer, and what does that mean for my treatment and prognosis? Breast cancer is typically staged from 0 to 4 . Understanding your cancer stage helps clarify how far it has spread and will guide treatment recommendations. It’s important to understand whether the cancer has spread to lymph nodes or other organs. Your doctor can explain the staging criteria and its implications for your prognosis. Are there any additional tests or scans I need before treatment? Additional diagnostics — like an MRI, CT scan, or PET scan — may be necessary to confirm the extent of your breast cancer. Ask if these tests are right for you and how they might influence your treatment plan. Should I undergo genetic testing? Certain breast cancers are linked to genetic mutations like BRCA1 and BRCA2. Genetic testing can inform treatment strategies and help family members understand their own risks. Ask your doctor about genetic testing, especially if you have a family history of breast or ovarian cancer. Exploring Treatment Options What are my treatment options, and which do you recommend? Common treatments for breast cancer include surgery, chemotherapy, radiation therapy, and immunotherapy. Hormone therapy may be recommended for people with hormone-positive breast cancer. Each has benefits, risks, and side effects. Work with your doctor to tailor a plan based on your specific cancer type and overall health. What is my overall prognosis? While no doctor can predict the future with certainty, understanding your prognosis can inform your mental and emotional preparations. Ask about factors that influence survival rates, such as the cancer’s stage, grade, and your individual health profile. How long will my treatment last, and what is the follow-up schedule? From surgery to radiation and beyond, each phase of treatment can vary in duration. Clarifying your timeline helps you plan for work, family obligations, and personal goals. Also, find out how often you’ll need check-ups or imaging post-treatment. What about clinical trials? Clinical trials  can offer cutting-edge treatments that might not be widely available. If standard treatments don’t seem optimal or if you want to explore innovative options, ask whether there’s a trial that might be a good fit for you. Is a second opinion necessary? Seeking a second opinion  from another oncologist or a cancer center of excellence can provide extra reassurance or reveal alternative approaches. Most doctors understand and encourage this step. Assessing Possible Side Effects What are the short-term and long-term side effects of each treatment option? Side effects vary widely. Chemotherapy can lead to hair loss, fatigue, and nausea, while radiation might cause skin changes and fatigue. Ask about potential long-term effects on the heart, bones, or other organs, so you can prepare for and minimize risks. Also, ask your doctor about the possibility of cognitive changes such as chemo brain . Will treatment affect my fertility? Some treatments can impact fertility . If you’re of childbearing age or considering future pregnancy, discuss fertility-preservation options — like egg or embryo freezing — before starting treatment. How can I manage treatment-related side effects? Medications, dietary changes, and supportive care options are available to help you cope. Ask for referrals to nutritionists, physical therapists, or mental health professionals who specialize in oncology support. Planning for Recovery and Support What lifestyle changes should I consider? A balanced diet, regular exercise, and stress management can support your recovery and improve your overall health. Ask for tailored recommendations on nutrition , fitness, and emotional well-being. How will this diagnosis affect my mental health, and what resources are available? Depression, anxiety, and stress are common for anyone impacted by breast cancer. Ask your doctor about counseling, support groups , or mental health professionals who specialize in cancer care. Can I work during treatment, and what are my rights? Many people continue working through treatment, but you may need workplace accommodations. Discuss your options and ask for help understanding disability rights  or Family and Medical Leave Act (FMLA) provisions. What financial resources or assistance programs can help manage treatment costs? Cancer treatment can be expensive . Ask for information about financial counselors, nonprofit organizations, or other resources that can help cover medical bills, transportation, or lodging during extended treatments. Count On Us for Information, Resources, and Support Navigating breast cancer does not have to be a solitary journey. Your family, friends, and health care team can offer invaluable support, and a larger community of survivors and advocates are waiting to connect. Surrounding yourself with people who share your experience can provide emotional encouragement and practical insights. Whether you’re newly diagnosed with breast cancer , are navigating survivorship, or are the loved one of someone experiencing breast cancer, you can count on SurvivingBreastCancer.org to keep you informed. We provide educational information to help you better understand symptoms , testing, treatment options , surgery, etc., and podcasts  that feature professionals, advocates, and caregivers who share valuable information. Your donations  enable SurvivingBreastCancer.org , a community dedicated to empowering those affected by breast cancer with knowledge, understanding, and a network of care, to offer resources and support every day, every month, and every year.  Note: This article offers general information and does not replace professional medical advice. Make sure to discuss your options with your healthcare provider. Read More: Newly Diagnosed. Now What? Questions to Ask Your Oncologist Different Types of Breast Cancer Understanding the Different Stages of Breast Cancer: What You Need to Know Understanding Genetic Testing for BRCA1 and BRCA2 Mutations Clinical Trials Why a Second Opinion Matters for Breast Cancer The Psychological Impact of Breast Cancer: Strategies for Coping Coping With Expectations After a Breast Cancer Diagnosis: The Realities and Challenges Managing the Emotional Stages of a Breast Cancer Diagnosis How to Tell Your Friends and Coworkers You Have Breast Cancer On the Podcast: Breast Cancer Conversations Enhancing Patient-Provider Communication in Breast Cancer Care Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By Joelle Kaufman Growing up, vigilance against cancer shaped my life. My mother battled breast cancer at thirty-six  and again at thirty-eight, and her experiences cast a long shadow. Every doctor wanted to know about my early onset family history  and ensure I was educated on self-examination. From age thirty-three, my frequent visits to the Mills-Peninsula Women’s Center for mammograms, ultrasounds, and MRIs became a running joke; if loyalty programs existed for imaging centers, I’d be at their highest tier. Yet nothing can prepare you for the gut punch of hearing a doctor say, “I'm sorry, you have breast cancer .” Your world stops spinning at that moment, and you’re left gasping for breath, desperate for a lifeline.  Because of my mother and sister’s breast cancers, I was regularly screened every six months alternating between a mammogram plus ultrasound with bilateral MRI with contrast. All three of us were found to have the BRCA1 genetic mutation . Out of an abundance of caution, given the combination of our history and genetics, I had multiple biopsies any time the scans showed anything irregular. I had considered having preventative (prophylactic) mastectomies  with every biopsy.  In 2022, I decided to move forward with the surgery to radically reduce the possibility of breast cancer . I scheduled my bilateral mastectomies with DIEP flap reconstruction surgery for January 10, 2023. As part of the standard practice preceding a prophylactic mastectomy, I was asked to have a mammogram and ultrasound. The escalation to an MRI was not unusual for me. When my medical team said they needed to biopsy an area, I pushed to have the biopsy and results prior to the surgery to keep my 10 to 14-hour procedure including reconstruction on track. Dr. Lee Char called with the biopsy results on January 9, 2023 while I was on a Zoom call. Excusing myself, I took the call, still expecting I’d proceed with the prophylactic bilateral mastectomy planned for the next day. “I’m so sorry,” she said, “it’s malignant.” Breathe, I told myself. Stay calm. I planned to remove my breasts the next day—cancer had won this inning, but I was still in control of the game. “So we do the surgery tomorrow, and then what?” I asked. “I’m sorry, Joelle,” she replied. “We can’t proceed with surgery. With your tumor pathology, the standard of care is chemotherapy before surgery. Your oncologist will explain.” I felt sucker punched. My plan to avoid cancer had failed, and now I was facing chemotherapy. My mother’s chemo 40 years earlier and my sister’s chemo 20 years prior flooded my memory. I was committed to shaping a different experience as I faced cancer. Batting Rituals One of my tactics to face the speed and shape of cancer’s curveballs was to adopt a set of regular rituals and routines that I named “happiness tripwires.” These transformed the weekly cancer treatments into experiences with positive associations. I renamed infusion days as Cancer Obliteration Days. Cancer obliteration days were five and a half hours long, not including travel, as I used cold-capping to preserve my thick, iconic hair.  Every chemo day began with washing my hair. As part of my cold-capping protocol, I could only wash my hair once a week. That weekly shower, with water running over my scalp, was a self-care ritual that set the tone for the day. Afterward, I chose comfy, loose-fitting clothes and packed slippers for the infusion center. My go-bag contained comforting items  like my binder with my notes, drug and side effect print-outs, letters from my son, transliteration of prayers, and other paperwork, iPad, aromatherapy oils, and a stuffed dinosaur named Stego. With permission from my oncology team, I drank Athletic Greens for nutrients. I continued exercising five days a week, alternating between weightlifting, metabolic conditioning, and walking with my best friend, Jessica. These activities strengthened my body and kept me grounded. There’s growing evidence that regular exercise can reduce chemotherapy side effects . Breakfast was fuel: pastured eggs with spinach, onions, and peppers paired with a glass of water. My ride to the center doubled as a social visit with a friend. Arriving early to the hospital ensured my labs were done promptly, speeding up the infusion process. After labs, I’d read a weekly letter from my son, Taylor. Away at college, he described his days and baseball games. These letters reminded me to focus on the joy of my children’s lives. My other collegiate son, Ben, provided the musical playlist for my obliteration day. During the infusion, my rituals kept me centered. My rabbi had compiled a playlist of prayers and songs, which I’d listen to while reading my binder of personal prayers. Humor was essential—jokes with staff, funny emails from friends, and even Stego’s antics lightened the mood. These routines, paired with micro-milestones and celebrations, helped me maintain a positive mindset and broke up the monotony. Survivorship: A New Chapter Four months later than I had originally planned, I had the 14-hour bilateral mastectomy and DIEP flap reconstruction . Prior to the surgery, my oncologist had confirmed through a fine needle biopsy that I was clinically cancer-free, but nothing is 100% certain until the pathology is confirmed after surgery. My pathological complete response (PCR) didn’t reach me until I was back at the infusion center for immunotherapy after surgery and the nurse incorrectly suggested that I was starting Adriamycin (AC) chemotherapy. When I was surprised and resistant, a flurry of activity led the team to discover I was cancer-free but no one had told me! No AC needed, thankfully. When I received the news that I was cancer-free , I felt massive relief and joy. But what followed was a void. The center of my universe was no longer UCSF, cancer treatment, and surgeries. The gravitational pull of cancer was lifted, leaving me in a space of not-knowing as my body used its energy to heal and my mind processed WTF just happened. Despite feeling profoundly grateful and healthy, it was not how I thought I would spend my time on this planet. My sister, a two-time survivor, shared the sentiment: “People expect to feel relieved at the end of their cancer journey or treatment. And so I think I was surprised when I didn’t. The doctors tell you that you are healthy. Don’t smoke. Exercise regularly. Good luck to you. Which, after being in the thick of the fight, feels like a little bit of a letdown.” The void left by cancer felt peculiar. I recognized cancer itself lacked inherent meaning—it was merely an occurrence in my life. While there were aspects of the healthcare system I’d like to enhance, I was grateful for the remarkable advancements in treatment and side effect management. My journey starkly contrasted with those of my mother and sister. I paused within this vacuum to dwell in the space where there was neither urgency to propel forward nor battles to be fought. At the same time, my body recovered while my mind reset. Remarkably, within this calm, new possibilities began to form. I realized I needed to drift a while before charging on to the new course ahead. Crossing into survivorship was a profound transition. With my pledge year to the survivor sorority complete, I was now an official member of this resilient fraternity. When the phone rings or email dings, I offer reassurance, a calm ear, and friendship to anyone reeling from a diagnosis. Surprisingly, the journey with cancer is interspersed with moments of joy, sprouting in response to struggles. The familiar faces and new ones around me fortified me with love, prayers, and humor. As I peer into the future, I’m intrigued by the opportunities that might unfold and what I might conceive in my subsequent chapter. So far, it’s been a journey of profound gratification. I wish you such a journey. Lessons Learned Uplift yourself with humor.  A funny friend, a daily joke app, or lighthearted stories can provide much-needed relief. Create meaningful rituals.  Infusion-day “happiness tripwires” that bring comfort and joy can transform the experience. Create new rituals for survivorship – gratitude is excellent. Prepare your home.  Post-treatment, create a space to relax and recover, respecting your need for peace. In survivorship, your home may reflect new directions and interests – or not. It’s up to you. Celebrate milestones.  Micro-celebrations break up the journey and provide moments of joy. Celebrate milestones of survivorship, too. Welcome support.  Let others help you. Their love and care can lighten the load. ABOUT THE AUTHOR Joelle Kaufman is the author of Crushing the Cancer Curveball : A Playbook for the Newly Diagnosed, their Family And Friends . Her life has been shaped by breast cancer since age 13, culminating in her own 2023 diagnosis—the fourth in her immediate family. As CEO and Founder of GTM Flow, she combines cancer-forged resilience with cutting-edge go-to-market leadership strategies. Joelle’s expertise spans healthcare and business, earning her positions on the UCSF Patient Experience Council and the Advisory Board of USC’s The Pink Test. Her insights have been featured in the New York Times, Wall Street Journal, and Fortune Magazine. You can learn more at www.joellekaufman.com . Read More: Understanding Genetic Testing for BRCA1 and BRCA2 Mutations Exploring Breast Reconstruction Surgery: Pros and Cons The Power of Knowledge (My BRCA Story) HOW? From Fear to Freedom: Embracing a Risk Reduction Mastectomy On the Podcast: Breast Cancer Conversations Breast Reconstruction and Plastic Surgery Explained Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By Jill Rackham The dreaded day of which I’m sure no one wants to happen had arrived – the day of my breast surgery. All my breast tissue was to be removed, thankfully my three tumours were caught early. Walking through the hospital doors felt hard as I had to be on my own. COVID rules of no visitors made the hospital feel far away from home. On the ward, all checked in, the surgeon came to talk me through proceedings. He drew on my body and took photos as my mind raced with so many feelings. The surgeon’s words were factual and as kind and comforting as can be. I knew this surgery had to happen today to get the awful cancer out of me. A nurse came to collect me as my theatre time was here. I tried to remain calm in an attempt to eradicate my fear. My body did not feel like my own, I felt like it had let me down. I was so sad that it had enabled cancer to turn my smile into a frown. The anaesthetic room was cold with lots of equipment beeping. My stress levels were rising as I knew it would not be long until I was sleeping... The next thing I knew a nurse was smiling down at me with the lengthy surgery now finished! I felt very groggy and tired but so relieved my tumours were now diminished! For me this was such an important day. At last my cancer had been taken away. Many months have now passed by and this day is still firmly etched in my mind. It was a tough day and memories of it are always easy to find.   The changes to my body and my scars have taken some getting used to. But now my body is my own once more and I am grateful in all it enables me to do. The scars remind me daily of what my body has been through. More surgery ended up following, but this day is the day my mind is always drawn to. I am so hopeful that I will remain cancer free. It’s been a tough old journey so far for both myself and those around me. I’m starting to dare to dream about happy times the future may bring. My prognosis is positive and that is such a very important thing! Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By William Laferriere We often hear about the dangers of too much sun exposure, but did you know that moderate sunlight can actually be a powerful ally for your health ? Let’s explore the numerous benefits that sunshine can bring to our physical and mental well-being. Vitamin D: The Sunshine Vitamin One of the most crucial benefits of sunlight is its role in vitamin D production . When our skin is exposed to UVB radiation from the sun, it triggers a process that converts 7-dehydrocholesterol into vitamin D3. This essential vitamin  plays a vital role in: Maintaining strong bones and teeth Supporting immune function Regulating blood pressure  and blood sugar Reducing inflammation Interestingly, it only takes about 10-15 minutes of daily sun exposure on your arms, hands, and face to produce adequate vitamin D levels. For those with darker skin tones, slightly longer exposure may be necessary. Mood and Mental Health Booster Have you ever noticed how a sunny day can instantly lift your spirits? There’s a scientific reason behind this phenomenon. Sunlight stimulates the production of serotonin , often referred to as the “happy hormone.” This increase in serotonin can: Elevate mood Reduce symptoms of depression and anxiety Promote an overall sense of well-being In fact, sunlight exposure is so effective at improving mood that light therapy is often recommended for treating various forms of depression, including seasonal affective disorder  (SAD). Sleep Quality and Circadian Rhythm Exposure to natural sunlight, especially in the morning, can help regulate your body’s internal clock, known as the circadian rhythm .  This regulation can lead to: Improved sleep quality Easier time falling asleep at night More energy during the day Other Health Benefits Beyond vitamin D production and mood enhancement, sunlight offers several other health benefits: Immune system support : Consistent sun exposure can help strengthen your immune system, potentially reducing the risk of illnesses and infections. Weight management : Some studies suggest that morning sunlight exposure may help with weight management by influencing metabolism. Skin conditions : Controlled UV exposure has been recommended by health organizations to treat certain skin conditions like psoriasis, acne, and eczema. Enjoying Sunlight Safely While the benefits of sunlight are numerous, it’s essential to practice sun safety: Limit exposure during peak hours (usually 10 a.m. to 4 p.m.) Apply sunscreen with at least SPF 30 for extended outdoor activities Wear protective clothing and sunglasses Seek shade periodically Remember, you don’t need excessive sun exposure to reap the benefits. Even short periods of sunlight can significantly impact your health and well-being. Note: This article offers general information and does not replace professional medical advice. Make sure to discuss your options with your healthcare provider. Read More: Nutrition After a Cancer Diagnosis EFT and Brainspotting: Complementary Therapies for Breast Cancer Recovery Packing a Care Bag for Cancer Treatment Controlling a Controllable: Thriving Through Exercise & Movement On the Podcast: Breast Cancer Conversations What is Energy Medicine with Inflammatory Breast Cancer Survivor Dianne Faure Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By Diane M. Simard Pink, pink, pink. That nauseating, breast cancer shade of pink was everywhere when I was diagnosed with invasive ductal carcinoma  four days before Valentine’s Day in 2015. I have a mostly hate relationship with pink. In my early childhood, whenever I felt sick, I would freeze in place, get dizzy, then hurl on the spot. My instinctive mother learned to recognize the droopy look on my face before I unleashed. She always told me to run to the bathroom whenever I felt sick, but my brain didn’t work that fast. Once, when I was nearly four, I was in our kitchen, standing near the refrigerator before bedtime. My body unexpectedly felt like it was melting into my stomach and I was about to faint. Then everything turned sideways as Mom stormed across the kitchen, picked me up, and held me horizontally under one arm while making a beeline for the bathroom. But the damage was already done. I left a vomit trail of destruction down the hallway. Mom got the floor cleaned up and helped me find a fresh set of pajamas, then sat me down and gave me a lecture. It was one of the few times I remembered her raising her voice when she spoke to me. “You have to run to the bathroom whenever you feel sick. Why can’t you learn that?” “I can’t, Mommy,” I said between sniffles. “I can’t move cuz it happens so fast.” Getting sick or getting the lecture were not the worst part. The worst part was the punishment of having to swallow a spoonful of gut-rot dark pink Pepto-Bismol every time I got sick in an inappropriate location.  Reflecting back on those memories as I faced my diagnosis in 2015: Pepto-Bismol was pink, pink was the official color of breast cancer, and I hated both. The shock of my diagnosis  was raw. My largest of three breast tumors was only 2 cm, and I’d had no symptoms . In fact, no one on my medical teams could feel any tumors, yet the cancer had already spread to the axillary lymph nodes in my left armpit. Thankfully, two of the largest tumors were close enough together that they indicated something was possibly clustering, which had appeared on my annual mammogram in late January and I was called back for additional testing.  After my diagnosis, when I was at work, I was able to keep my mind off of breast cancer, except when my coworkers wandered into my office to have what I called “cancer talk.” At night and on the weekends at home, though, my mind raced  as I continued to contemplate the possibility of a terminal cancer prognosis. Oddly, I was filled with determination instead of panic. I was obsessed with becoming “good” at cancer for whatever time I had left, but I didn’t know how to become good at cancer because I didn’t know whether to plan to live or plan to die. So, I followed my standard business approach and assumed the worst. I ordered self-help books on how to eat right . I fretted about the side effects of chemotherapy , searching for an explanation of what treatment was going to feel like. I had a paranoid obsession of gaining weight, so I drastically adjusted my diet. I speed-read through five books in three days, searching for the latest breakthroughs in cancer nutrition and self-care. One of the books focused on the body’s natural abilities to heal itself, using those abilities to complement traditional medical cancer treatments. For example, the author suggested that regular physical activity  tended to activate the body’s immune system versus living a sedentary lifestyle. Check. I had exercised every day of my adult life, yet I still had cancer. This book also suggested that cancer patients should choose foods with a low glycemic index (such as agave nectar) instead of foods with a high glycemic index (like white or brown sugar). Check. I was already doing that, too. I appreciated the reinforcement that I was already doing some things right, but I needed new, innovative strategies . Something, anything , to help me survive breast cancer. I implemented lists of self-help tips and bought anticancer foods and supplements that I read would keep me healthy during treatment and prevent cancer from returning, assuming I survived. I sprinkled turmeric on my food because it was touted as a potential anticancer “wonder seasoning,” but everything tasted like it was coated with mustard-flavored dirt. I drank green tea, overdosed on broccoli, and choked down kale salads. I pushed myself to do everything right according to the nutrition books, and I grasped onto a false hope that if I suddenly changed my eating patterns, my statistical chances for getting rid of cancer would improve. This type of diligence had always worked in my professional life, so I had no reason to think it wouldn’t work with cancer. I dutifully read through the pamphlets included in what I called the “Welcome to Breast Cancer” packet provided by the imaging center where my breast MRI was performed. The pamphlets offered encouragement and pictures of pink ribbons and smiling bald women with carefully applied makeup and adorably fashionable headscarves. They were superficial and not helpful, because they attempted to present breast cancer in a gentle, peaceful manner. I didn’t need the sugarcoated version of breast cancer; I needed honesty. I needed to understand what treatment was going to feel like . All the philosophizing and reflection of why I had gotten breast cancer was useless and exhausting. Finally, I wisely began to shift my focus away from the why and toward the how of healing and recovery . Not to mention the preparation required for the unimaginable battle if the disease had indeed already spread beyond my lymph nodes. I had been in training for almost 50 years to prepare for cancer, which I knew was going to be my ultimate challenge. I had learned how to achieve what I wanted, but also how to cope when life threw an unexpected twist, such as when I didn’t win, got rejected, or something imploded that I cared about but over which I had no control. I could control some things about my breast cancer experience , like attitude, diet, self-care, and schedules, but I couldn’t control whether any of those activities would actually heal my body. After a month of testing and second opinion consults , I was staged as 3C , which my medical team agreed was the best approach, given all my anomalies. I was prescribed sixteen rounds of chemo, followed by surgery, then thirty-three rounds of radiation. I slogged through active treatment over the next ten months. The chemo nausea was so severe I had three acupuncture treatments, which unleashed a crystal in my inner ear and landed me in the emergency room to deal with a whopper bout of vertigo. I couldn’t wear heels for six months and I didn’t switch driving lanes for another year for fear of launching another vertigo attack.  Toward the end of chemo, I became concerned about my mental health  and how I seemed to be slipping into depression due to my heightened state of anxiety. When I asked my medical oncologist for a referral to a counselor who works specifically with cancer patients, she said she knew they existed, but didn’t know of any. Plus, if I did find someone they likely wouldn’t take health insurance. I was alarmed and incensed at the lack of mental health support for cancer care in 2015, and decided I would advocate for more educational resources. As a result, I seed-funded and founded a specialty at the University of Denver in Colorado called the Center for Oncology Psychology Excellence (COPE), which is now part of their behavioral health offering for clinical psychology students. COPE provided coursework and clinical education opportunities to over two hundred graduate level students. In addition, I wrote a memoir-style book about my cancer experience, The Unlikely Gift of Breast Cancer , that won several awards, including being named one of the best breast cancer books of all time by Book Authority. COPE and The Unlikely Gift  were what I called my life raft out of my breast cancer funk, and they opened the door to the second phase of my life when I turned fifty during treatment. Today, I advocate for more attention and educational resources for the psychological impact of cancer through writing, speaking, and podcasting. My third book, Unlikely Gifts Unwrapped: Unfiltered Reflections on Life After Breast Cancer , is the sequel to The Unlikely Gift  and will be released March 18.  In hindsight, cancer was a miserably unpleasant voyage, but it was also a test. It was an assessment of the strength of my character and the value I place on living. It provided a symbolic transformation for me from enabler to leader, from victim to advocate. It also helped me unwrap an unlikely gift and helped me discover the self-acceptance I had searched for a lifetime to find. Read More: Newly Diagnosed: Now What? The Psychological Impact of Breast Cancer: Strategies for Coping Making Food Choices During Breast Cancer Treatment Navigating Cancer Treatment: Top Tips from an Oncology Pharmacist Exercise and Breast Cancer Permission to Feel Why a Second Opinion Matters for Breast Cancer On the Podcast: Breast Cancer Conversations 11 Years of Survivorship - A Breast Cancer Survivor’s Story Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By Casey Kang Cancer changes more than just your body. It shakes up how you see yourself and leaves behind challenges that go way beyond the physical . Whether your treatment ends or is ongoing, people around you might expect life to “go back to normal” at some point – but for many of us, that’s far from reality.  This is especially true for those living with metastatic cancer . On the outside, everything may look fine, but inside, you’re still trying to figure out what normal even means now and move forward. Many people living with metastatic disease may look “healthy,” despite being in cancer treatment. It can be hard to continue to move forward when there is no treatment “finish line,” so to speak.   I understand the challenges of cancer treatment and beyond because I’ve been there myself. My name is Casey Kang, and I’ve faced cancer three times. The first time I was diagnosed, I was just 31. Cancer didn’t just challenge my body – it shook my confidence, my sense of self, and my ability to trust my own instincts. Through that journey, I learned something important: real healing takes more than time – it takes care, compassion, and courage to face what’s beneath the surface.   Here are three common ways trauma might be affecting your life, even if it’s been years since your treatment ended – and how you can start feeling more like yourself again.   1. You’re Keeping Busy to Avoid What’s Really Going On Staying busy can feel like a coping strategy, right? It’s easier to fill your time with work, errands, and taking care of everyone else than to sit still and face what’s really going on inside. But that constant busyness? It’s a form of avoidance, and while it might help in the short term, it doesn’t get rid of the underlying stress.   How it might look: You tell yourself, “I’m too busy,” and fill your schedule with tasks. You’re always on the go, focused on everyone else’s needs while ignoring your own. On the surface, it seems like you’ve got everything under control. But inside, there’s a growing sense of exhaustion and unease.   Avoiding your emotions might make you feel safe in the moment, but it only postpones the healing process. You don’t have to carry everything alone – it’s okay to slow down and make space for what you’re feeling . Slowing down doesn’t mean you’re weak; it means you’re giving yourself what you need to truly heal.   2. You Want to Make Changes, But You Feel Stuck You’ve probably told yourself, “I need to take better care of myself and get healthy ,” more times than you can count. You genuinely want to feel better – maybe that means exercising more , eating healthier, or finding time to rest. But every time you try to start, something seems to hold you back.   How it might look: You’ve got good intentions, but when it comes time to take action, things don’t go as planned. Maybe you start a new routine but can’t stick with it or keep telling yourself, “I’ll start tomorrow.” After a while, it’s easy to feel stuck and wonder if you’ll ever find the motivation again.   This isn’t about willpower – it’s about trauma. Trauma keeps your body stuck in survival mode, making it hard to find the energy to do what you know will help. The key isn’t forcing yourself to push harder – it’s about taking small, manageable steps and learning how to support yourself along the way.   3. You’re Waiting for Things to Get Better with Time How many times have you heard someone say, “Just give it time, and you’ll feel better”? Time alone doesn’t heal trauma. Without the right kind of care, those feelings of overwhelm, frustration, and exhaustion don’t fade – they build.   How it might look: You might think, “Maybe I just need more time,” or hear loved ones say, “It’ll be okay eventually.” But as the months or even years go by, you still feel stuck in the same place. I’ve worked with women who are 5, 10, and even 15 years post treatment, and the feelings they’re struggling with haven’t gone away on their own. They just continue to magnify.   Trauma needs more than time – it needs compassion, patience, and the right tools to help your body release what it’s holding onto.   Trauma isn’t just something you think about – it’s something your body holds onto. You might be able to talk about what happened, but until your body feels safe again, those old patterns of stress and fear can stick around. That’s why you might feel fine one minute, and then something small – like a smell, a sound, or even a thought – can send you spiraling the next.   This is where somatic (body-based) healing comes in. Somatic healing focuses on gently tuning into your body, noticing what’s happening without judgment, and creating space for those sensations to shift. For example, a simple somatic practice might be taking a few minutes  to notice your breath or scanning your body for areas of tension. These exercises can help signal to your brain that you’re safe, reducing stress and promoting calm.   Unlike traditional talk therapy, which starts with your thoughts and works from the top down, somatic work takes a bottom-up approach – focusing on calming the body first so the mind can follow, making it easier to process emotions and regain a sense of control.   If any of this feels familiar, know this: you’re not broken, and you’re not alone. What you’re feeling is a normal response to an extraordinary experience. Healing isn’t about “fixing” yourself – it’s about offering yourself the same care and compassion you give to others.   You are surviving after a cancer diagnosis, and that’s no small thing. It takes strength, courage, and resilience, every single day – whether you’re currently in treatment, finished with treatment, or living with metastatic disease. Now, it’s time to turn some of that strength inward – to care for yourself as deeply as you care for the people around you.  It’s now your full-time job to take care of you first. Maybe for the first time, ever.    Because you’re worth it. Every bit of it.   Casey Trauma-Informed Cancer Coach & 3x Survivor Together we are Stronger!     About the Author: Casey Kang is a three-time cancer survivor and a trauma-informed cancer coach. Drawing from her personal experience and professional training, she is passionate about helping female cancer survivors move beyond survival mode and thrive in their “new normal” by addressing the emotional and physical impact of cancer trauma. Learn more about her 13-week program, A Happier Healthier You , here . SBC Meditations on Demand Read More: Permission to Feel Navigating Cancer Treatment With the Help of Energy Medicine The Psychological Impact of Breast Cancer: Strategies for Coping Exercise and Breast Cancer Metabolic Changes After A Breast Cancer Diagnosis Metastatic Breast Cancer: Understanding the Significance of Stage IV On the Podcast: Breast Cancer Conversations Somatic Experience, Applied Neurology & Inner Healing With Jennifer Wallace Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By Charlene Meeker September 7, 2022 marked the beginning of my fiftieth year navigating the complexities of the human condition. I found myself at a crossroads of personal transformation. Between 2019 and 2021, I had extricated myself from an abusive relationship, weathered the challenges of the pandemic, and mourned the losses of both my birth father and my stepfather. I was ready to embrace life’s brevity. FEAR was an omnipresent force, and instead of expecting it to magically dissipate, I set tangible goals for the gifted year ahead. Foremost among them was a comprehensive evaluation of my health. In April 2023, I received word that I had tested positive for the CHEK2 genetic mutation . As I began meeting with my medical team, I found myself also confronting a familial legacy of breast cancer . My paternal grandmother’s tragic battle with breast cancer, which metastasized to her bones and claimed her life at age 32, is a story of loss that haunts my family. My maternal grandmother and my mother’s sister, facing breast cancer later in life, underwent double mastectomies and grueling treatments. In the delicate space between trepidation and resilience, I confronted a pivotal choice that would redefine the trajectory of my life. Confronted with the stark reality of an elevated risk of breast cancer due to my CHEK2 gene mutation , I stood at the crossroads of uncertainty and courage. It was not a decision born of surrender, but fueled by an unwavering determination to seize control of my destiny. The looming prospect of a risk reduction mastectomy  became a surgical dance with both fear and hope.  As I carefully considered the gravity of this decision, I realized that within the scars, a testament to battles fought would be etched — a declaration of an unyielding commitment to life. In that transformative moment, I chose the path of empowerment, understanding that by sacrificing a part of myself, I was affording the chance for a future unburdened by the shadows of what might have been. The operating room became my battleground, and the scars, my victory marks — a tangible symbol of the strength summoned to safeguard the precious gift of life.  Apologies are owed to Angelina Jolie for the ignorance I once carried regarding her prophylactic double mastectomy . Initially dismissing it as a purely cosmetic and vain choice, I now recognize the courage it took to make such a personal decision. Her celebrity status drew valuable attention to this potentially life-saving decision to greatly reduce breast cancer risk, and I commend her bravery.  The decision to proceed with the surgery was daunting but undeniably right for me. Opting for reconstruction  added another layer of fear, yet it, too, felt like the right path. Graced with an exceptional healthcare team at Vail Health in Colorado and supported by a beautiful circle of friends, I embarked on a journey that my insurance covered comprehensively, alleviating the looming stress of potential debt . Recovering from my mastectomy, I often thought of my family members who had gone through breast cancer as I faced the challenges of surgery recovery without  the added burden of cancer treatment. Their grit, courage, and tenacity shine through the genetic codes we share.  As of this writing, one week post-reconstruction, my mind races ahead of my healing body. The haunting question, “What do you truly want to do with the time you have left?” persists. I cannot revert to life before my mastectomy now that I have newfound tools and experiences, and my commitment to share my story, advocate for healthcare options, and support others on this path remains steadfast. Living a long, healthy life demands a renewed commitment to making sound physical and emotional choices . And punctuating it all is the imperative to overcome fear and embrace creativity — a step in the direction of a new chapter. In fifty-one years, I’ve navigated my fair share of frightening situations, but my mastectomy stands as the catalyst — a personal manifestation of fear. I can confront it squarely, acknowledging the depth of my abilities. The next chapter awaits with excitement.  Here’s to health, fears conquered, and the embracing of new beginnings! Read More: Genetic Testing for Cancer: What You Need To Know A Patient-Centered Approach to Plastic Surgery Reconstruction My Previvor Story On the Podcast: Breast Cancer Conversations Prophylactic Mastectomy and BRCA Mutation: A Personal Story Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By  Brookshire McDonald Lose my hair Oh NO! My head will be exposed SO!! Your head shape Will be revealed to you; And a surprise may come Right out of the blue. Without the loss You never would know, Just how your face Can come aglow!! So try not to be sad Or bemoan, And even refrain From a slightest groan. You’ll get through this And be happy too; They have a medicine To address cancer in you!! Some of you Will get to ring bells, After completing the fight To kill cancer cells, Others who didn’t Go that route, Will still see What it’s all about. So grab your scarf, wig, hat, Or even stay bald. No one choice Is perfect for all! Then look in the mirror And see the strong person You are. You’ll become ahead in this race And closer to win—by far! Brookshire McDonald Patron Saint SBC Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

Breast cancer is one of the most common cancers worldwide, affecting millions of individuals annually. Understanding breast cancer stages  is crucial for patients and their loved ones to make informed decisions about treatment and prognosis. This article delves into what breast cancer is, explains the stages of breast cancer , and provides details about symptoms, treatments, and survival rates at each stage. What Is Breast Cancer? Breast cancer  occurs when abnormal cells in the breast grow uncontrollably. These cells often form tumors, which can be benign (non-cancerous) or malignant (cancerous). Malignant tumors have the potential to spread to other parts of the body through the lymphatic system or bloodstream. While breast cancer is most common in women, individuals of any gender can develop the disease. Early detection is vital for improving outcomes, which underscores the importance of understanding breast cancer staging . How Breast Cancer Is Staged The breast cancer staging  system helps doctors assess the size of the tumor, whether it has spread to lymph nodes, and if it has metastasized to distant organs. This information is critical for determining treatment options and predicting outcomes. The stages range from 0 to IV, with subcategories that further detail the cancer’s characteristics. The stages are based on the TNM system: T (Tumor):  Size and extent of the primary tumor. N (Node):  Whether cancer has spread to lymph nodes. M (Metastasis):  Whether cancer has spread to other parts of the body. Detailed Overview of the Stages of Breast Cancer Stage 0: Ductal Carcinoma In Situ  (DCIS) What It Is:  Stage 0 breast cancer is non-invasive . The cancer cells are confined to the ducts of the breast and have not spread to surrounding tissue. Symptoms:  Typically asymptomatic and often detected through mammograms. Treatment:  Surgery (lumpectomy or mastectomy) followed by radiation therapy. Hormone therapy may also be recommended for hormone receptor-positive DCIS. Survival Rate:  Nearly 100% when treated early. Learn more about the continuum of breast cancer care  and how early intervention improves outcomes. Stage I: Early-Stage Invasive Breast Cancer What It Is:  Cancer has begun to invade nearby breast tissue but remains small (up to 2 cm) with minimal or no lymph node involvement. Symptoms:  May include a lump in the breast, nipple discharge, or skin changes. Treatment:  Surgery (lumpectomy or mastectomy) with possible sentinel lymph node biopsy. Radiation and hormone therapy are common, and chemotherapy may be considered. Survival Rate:  The 5-year survival rate for stage I is approximately 99% . Stage II: Larger Tumors or Limited Spread to Lymph Nodes What It Is:  Tumors range from 2 to 5 cm or involve 1 to 3 lymph nodes. Symptoms:  Noticeable lumps, breast swelling, or skin dimpling. Treatment:  Surgery is often combined with chemotherapy, radiation therapy, and hormone therapy for hormone receptor-positive cancers. Survival Rate:  The 5-year survival rate for stage II remains high at about 86%-99% . Explore ways to   reduce the risk of recurrence  after treatment. Stage III: Locally Advanced Breast Cancer What It Is:  Cancer has spread to 4 or more lymph nodes or invaded the chest wall or skin. Tumors may be larger than 5 cm. Symptoms:  Significant breast changes, such as redness, swelling, or skin ulceration. Treatment:  Treatment usually begins with chemotherapy to shrink the tumor, followed by surgery and radiation therapy. Targeted therapies may also be used for HER2-positive cancers . Survival Rate:  The 5-year survival rate for stage III is approximately 86% . For those with aggressive subtypes like triple-negative breast cancer , emerging therapies offer hope. Learn more here . Stage IV: Metastatic Breast Cancer What It Is:  Cancer has spread to distant organs such as the bones, liver, lungs, or brain. Symptoms:  Symptoms vary based on the location of metastasis and may include bone pain, fatigue, and difficulty breathing. Treatment:  While stage IV breast cancer is not curable, treatment focuses on prolonging life and managing symptoms. Options include systemic therapies like chemotherapy, targeted therapy, hormone therapy, and immunotherapy. Survival Rate:  The 5-year survival rate  for stage IV is about 31% , but individual outcomes vary widely. Key Takeaways on Survival Rates and Recurrence Early detection improves prognosis significantly, with stage 0 and stage I having survival rates close to 100%. Breast cancer recurrence rates increase by stage, highlighting the importance of vigilant follow-up care. Advancements in treatment, such as immunotherapy  and targeted therapies, continue to improve outcomes across all stages. Visit SurvivingBreastCancer.org  for resources, support, and updated information on managing breast cancer at every stage. Symptoms to Watch For Knowing the signs of breast cancer is essential for early detection. Common symptoms include: A lump or thickening in the breast or underarm. Changes in breast size, shape, or appearance. Nipple discharge, particularly if it is bloody. Breast pain or tenderness. Skin changes, such as redness, scaling, or dimpling. Treatment Advancements and Emerging Trends Treatment strategies for breast cancer have evolved significantly, incorporating cutting-edge technologies and personalized medicine. For aggressive cancers, such as metastatic triple-negative breast cancer,   emerging therapies  offer new hope. Additionally, support networks play a vital role in helping you navigate the physical and emotional challenges of treatment. Explore resources such as SurvivingBreastCancer.org ’s weekly support groups . Understanding breast cancer stages  empowers you to take control of your health and advocate for the best possible care. From early detection to advanced treatment, knowledge is a powerful tool in the fight against breast cancer. By staying informed about the stages of breast cancer , recognizing symptoms, and seeking appropriate care, you can improve your outcomes and quality of life. For more information about risk reduction, treatments, and survivorship, visit SurvivingBreastCancer.org . Count On Us for Information, Resources, and Support  If you or a loved one is experiencing breast cancer at any stage, understanding the nature of the diagnosis is crucial for navigating treatment options and establishing a support plan. Speaking with healthcare professionals, connecting with cancer support groups , and educating yourself can provide comfort and empowerment. Whether you’re newly diagnosed with breast cancer , are navigating survivorship, or are the loved one of someone experiencing breast cancer, you can count on us to keep you informed. We provide educational information to help you better understand symptoms , testing, treatment options , surgery, etc., and podcasts  that feature professionals, advocates, and caregivers who share valuable information. Your donations  enable SBC, a community dedicated to empowering those affected by breast cancer with knowledge, understanding, and a network of care, to offer resources and support every day, every month, and every year.  Note: This article offers general information and does not replace professional medical advice. Make sure to discuss your options with your healthcare provider. Read More: Ductal Carcinoma in Situ (“Stage Zero” Breast Cancer): What You Need To Know Invasive vs. Non-Invasive Breast Cancer: Key Differences and What They Mean The Promise of the Triple Negative Breast Cancer Vaccine Metastatic Triple-Negative Breast Cancer: Emerging Therapies Deliver Hope Metastatic Breast Cancer: Understanding the Significance of Stage IV Advances in Immunotherapy: A New Frontier in Breast Cancer Treatment On the Podcast: Breast Cancer Conversations The Role of Advanced Imaging in Breast Cancer Diagnosis and Treatment Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By Susan Marshall 1. You are allowed to feel and act whiny, tired and pathetic (unless you want to be heroic and stoic, which is fine too). In fact, you are allowed to act and feel however you want . If ever there was a time for not editing your feelings, that time is now. Make the most of it! 2. If people offer to help , gracefully accept if you think it will actually help, otherwise suggest they do something else. “Come round and vacuum my home, anyone?” (Nope – no one ever offers that.) Then thank everyone for everything profusely. Unless you don’t feel like it (see above). Don’t expect them to keep doing it. Once may be all you get. Be grateful. 3. If no one’s offering help, then ask. The worst they can do is say no and then you never have to speak to them again. 4. Yes, your hair will grow back – but boy does it still suck. And new boobs – well, that’s a whole post on its own. 5. The medical definition of “urgent” (e.g. appointments, test scheduling, results) may well be different from yours. No, really! Scanxiety is a thing. Forget about being patient – go straight to distractions; rubbish TV, trashy novels, carbs (plenty of those – it’s only temporary). Wine (but not too  much – you don’t want a scanxiety hangover as well).  6. Or – other options – super healthy foods , yoga, breathing. Anything that works for you . Swing wildly between the two extremes if you like. This will confuse your brain and endocrine system and make it harder to sit and panic. 7. On receiving “helpful” advice from people who’ve never been where you are – smile and wave.  8. As much as possible, rest. And more rest. Did I mention resting?   9. Some of your very bestest, bestest friends and family members  will be terrified out of their wits and ghost you as they run for the hills. Try to forgive them – but if you can’t, then you’re allowed to feel as hurt and angry as you like (see 1. above). Just try not to put it in writing to them. They may come back at some point. It’s up to you if you want to accept that. 10. When you feel totally furious about the whole thing and need to express it – go for it. Pillows are useful – you can cry or scream into them or thump them. Stomp around. Throw rolled-up socks at a wall. Find a rage room where you can pay to go and break stuff. Make yourself a playlist of rage music. Write furious letters to cancer, any medical staff you don’t like, the aforementioned best friends and family, etc. (but DON’T SEND THEM). And don’t kick the cat. Or your partner if you have one – (don’t take down your team). Otherwise whatever works.  11. Ok – well, this is a bonus 11th top tip – and possibly the most important – if anyone ever, under any circumstances, offers you a warm blanket – just say yes! More Stories from Our Breast Cancer Community: Cancer Sucks, and That’s Okay Remember You Are Not Alone No Scars to Your Beautiful Thoughts on October: Breast Cancer “All Too Aware” Month Learn More: Unlocking the Power of Emotional Intelligence: Taking Control of Your Cancer Experience Supporting Loved Ones with Breast Cancer: How to Offer Meaningful Help Making Food Choices During Breast Cancer Treatment Navigating Relationships After a Breast Cancer Diagnosis On the Podcast: Breast Cancer Conversations The Power of Storytelling in Breast Cancer Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By Dianne Faure I had been sick most of my adult life. Always battling some virus, infection, or pain, my health became worse as I aged . After being diagnosed with multiple auto-immune diseases, including rheumatoid arthritis and connective tissue disease, I was desperate to find relief and willing to try anything . I discovered energy medicine and found it reversed all of my illnesses. I was so impressed with its effectiveness that I became a full-time Eden Energy Medicine practitioner. For over a decade, I had a successful practice in the DC Metro area, specializing in difficult cases like auto-immune diseases and cancer. Without having any risk factors other than my auto-immune history, I was shocked in 2021 when I was diagnosed with stage III inflammatory breast cancer , a rare and aggressive disease. The normal treatment for this type of cancer is chemotherapy, a full mastectomy, and 35 rounds of radiation . I was petrified: I am allergic to most medications and my auto-immune history would make it virtually certain that I would have all the common side effects and more.  Why couldn’t I just use my energy medicine tools, I wondered . That way, I wouldn’t have to go through what is known to be the most grueling of all breast cancer treatments. Unfortunately, the type of cancer I had was so aggressive that if I didn’t undergo all three treatments, I could be dead within six months. Having to face this monster head-on, I desperately searched for a book that could tell me what to expect , but I couldn’t find any. I had basic but urgent questions that were burning inside of me: What does chemo feel like? How can I deal with its side effects? How long do the side effects last? What does it feel like to lose one’s breast? How long does it take to recover from surgery? What is radiation treatment like? Will I ever be able to recover and feel like myself again? How could energy medicine help me this time? Not finding any book to answer my questions, I decided to keep a journal so I could track my journey as it unfolded.   As difficult as it was to go the traditional medicine route, I had tools at my disposal that could help mitigate the dangers on that road . I didn’t realize what a difference those tools were making for me until while I was getting a chemotherapy infusion the woman across from me went into anaphylactic shock and the woman next to me started violently vomiting and was told by the medical staff there was nothing they could do for her. It was at that moment that I decided to turn my journal into a book that could help others. But what hope could I offer? I was in the throes of this battle too! An enormous task lay ahead of me: It was as if I was white water rafting down dangerous rapids not knowing if I would make it down safely all the while trying to make note of what turns or techniques I was using to help me survive.  After eighteen months of painful, overwhelming, and debilitating treatment, I slowly picked up the pieces in an attempt to put myself back together again. From the outset, my goal had been to emerge from my onslaught with as much of my sense of self intact and as little long-term collateral damage as possible . Over the next two years, as I continued to heal myself, I whittled down the countless journal entries to pull from them the richest insights and most profound information I could glean so that cancer patients could embark on their journey with less physical and emotional pain, greater grace, and potential victory.   The result of my efforts is the book, Cancer & Energy Medicine: A Healing Journey . By sharing my story, I hope to empower cancer patients by teaching them simple energy medicine techniques so they can better navigate their chemotherapy, surgery, and radiation treatments . But more than that, I hope to empower readers so they will not just become cancer survivors, but thrivers who are not defined or limited by their cancer experience. Join our inflammatory breast cancer support group Note: This article is designed to provide general information and is not meant to replace professional medical advice. Always discuss your options with your healthcare provider. About the author: Dianne Faure Dianne was diagnosed with inflammatory breast cancer in 2021. She decided to track her experience and incorporate her energy medicine tools to help manage the treatment and its side effects. In 2024, she published her memoir/self-help book: Cancer and Energy Medicine: A Healing Journey . Since finishing her cancer treatment, Dianne has resumed her private energy medicine practice. Using the techniques featured in her book, she teaches cancer patients, survivors, and their loved ones how energy medicine can help them on their healing journey. Read More: Inflammatory Breast Cancer: Breaking Down the Basics Different Types of Breast Cancer Treatment Tips & Questions to Ask Your Medical Oncology Team On the Podcast: Breast Cancer Conversations What is Energy Medicine with Inflammatory Breast Cancer Survivor Dianne Faure Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By  Francine Strother The mammogram found a suspicious mass, An ultrasound and biopsy will show if I pass. I wasn’t afraid, the professionals I did trust, I will do what you recommend, if I must. Yes, it is cancer and surgery must be done, To preserve my health is number one. Each step along the way, I was told what would happen to me, It was so reassuring that nothing was a confusing mystery. The surgeon said, off to radiation you go, I knew nothing about it, but the experts will tell me what I need to know. Contract to sign, please give me a reason why you might say, We’ll tell you if the treatment changes along the way? Radiation makes people tired, I suppose, But that is not an answer to the question I posed. Are you afraid? was my encouragement on the first day, I wasn’t, but should have been, as only vague information would come my way. I feel vulnerable as an imposing machine I lay under, Surely they will tell me how it moves, I wonder. Treatment went well the whole first week, A positive experience is what I did seek. I was always ready on time and did as they asked, I trusted completely that they were guiding me through the task. A longer first day, then the treatments will be quick. For 5 days, I watched the same machine rotation pattern tick. I’ve done 25% of my time under the machine, I’m doing good, now I know the routine. I didn’t expect the rotation pattern to change, But an abrupt reversal of rotation to begin the next day startled and disoriented my mind out of reality range. What is wrong, this isn’t the way it is supposed to be, Why did they change the treatment I’ve had for a week? I am so scared. Déjà vu to the contract wording, Why didn’t they tell me my treatment hadn’t been working? 2 way communication doesn’t work, no use to scream, Please tell me this is a nightmare dream. Afterwards, they said it was really the same, I don’t believe you, my eyes are not playing a game. No big deal, confusion happens all the time, such as this, Neither of 2 technicians could spare 10 seconds to warn me of this. Go home in a daze, don’t want to continue, No sleep, confusion, use up a box of tissue. Surely the doctor will tell me why my treatment was reversed, thus, It was a misunderstanding. The door is squeaking. And you are just criticizing us. Now I see where I stand. I’ll bother you no more to help me understand. Finally, a reason why backwards the machine rolled, Extra x-rays are taken every 5 days, but patients aren’t told. So I will have this again next Tuesday? No. But you just said...?  You are again confusing me. A new schedule was printed and handed to me, One day is shown with different words from all the others I see. To ease my mind, I ask what will come about? I committed a mortal sin by daring to ask, I was quickly chided and taken to task. They say, Oh gee, I knew that would freak you out. Hand me a revised schedule with those words deleted, Poof! With those words gone, no answer is needed. What is happening to me, I have a right to know, Oh, well, not so, pull open the heavy door myself and go. I don’t want to go back, no sleep, confusion, a struggle to continue, but my body needs to heal, Go into survivor mode, the days left are few, pretend I am on an even keel. Thanks for giving me 3 nice tubes of cream when I was done halfway, I asked for instructions, just go put it on, she did say. I struggled emotionally through the remaining days, Once done, in two weeks someone will call you, he says, To check and see how you are doing, But no phone or messages ever did ring. 3 month checkup, I’m still at loose ends, It is just a bump in the road he says. Request medical records 3 times to see what I can learn, Mailed twice, but the PO lost them in turn? In 6 months, a new mammogram, the nurse says it’s clear, So you don’t need another one for a year. But the doctor told me every 6 months to be sure, I am utterly confused, my mind is a blur. Breast cancer radiation has no physical pain, But emotional and psychological pain remains. Psych yourself out and go in everyday, Hoping with this invisible force, on this earth you will stay. Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By Cheri Silver Before it was common, I was interested in natural medicine and remedies. When I was pregnant, I decided that I would breastfeed because I felt it may be my only chance to try it. My sister had told me that it usually takes a month to get used to. I decided to join La Leche League since my sister passed before I gave birth the first time. It turns out they used a lot of common sense child rearing practices and also were into healthy eating practices. This led me to joining a healthy food co-op.  Later, I learned that the more I nursed, the better chance I had of reducing my cancer risk. I nursed both my girls. I had friends who had been diagnosed with cancer, and nursing seemed like an easy way to keep cancer at bay. That and eating healthy.  In 2019, my doctor asked my husband and I to take a Color DNA test, which would show us if either one of us carried any gene mutations associated with cancer  risk. We did and all came out negative. A year later, in the middle of the pandemic, my aunt mentioned that my cousin had just finished radiation for breast cancer. That night, around 1:00 a.m., I felt a big lump in my breast. It felt like a hard-boiled egg. I was a few months late with my mammogram due to Covid. I had needed some biopsies in the past, but they were always benign. Since I wanted a diagnostic exam, I needed to see a doctor first. I managed to get in with an ob-gyn a few days later. She could tell my lump was big and wanted me to have a mammogram and an ultrasound. Since I couldn’t get one scheduled for five weeks, I called her back and there was a cancellation for the next day.  The radiologist was pretty sure it was metaplastic carcinoma and put that on the report. The gynecologist was upset that she wrote that. While I may not be a brain surgeon, I knew that carcinoma meant cancer. The gynecologist kept arguing that she might be wrong and it may be benign. I asked what were the chances it was benign. She said 5-10%. Now I don’t claim to be a mathematician, but I do know that means there is a 90-95% chance my lump is cancer.  I went through a week or two with the breast surgeon and plastic surgeon arguing with me that maybe I only need a lumpectomy or only a single mastectomy because there is a chance that my lump is benign. My gut was telling me otherwise. I heard of some people who had a lumpectomy or single mastectomy and then had to have a double a week or two later. I was already 71 when my lump was found. I’d already nursed two children and had been married almost 50 years. I was happy to have been cancer-free for 71 years. I didn’t shed a tear nor feel sorry for myself. I had friends who had mastectomies because of the BRCA gene mutation and they seemed fine. I also considered myself small-breasted and had this image of getting new perky breasts to replace mine.  I also had this idea that since I had this one big lump which was 3.5 cm, it would be removed during surgery and I would get the new breasts and be done. Ha! I was very naïve. My friends with the BRCA gene mutation  did not have cancer. I did. I had a double mastectomy on September 23, 2020. A week later, I was told that I have stage 2B metaplastic triple negative carcinoma.  Two lymph nodes were removed and fortunately they were clear. But the oncologist informed me that I would still need chemo, the kind with hair loss. Since my lymph nodes were clear, I would not have to have radiation.  When hearing about my diagnosis, I was told I was negative for three things . My husband was with me and said, “That sounds good, being negative on everything.” My surgeon said quietly, “No, triple negative is the worst.” We were stunned. I learned I have a very rare form of breast cancer, metaplastic, that is fast-growing and aggressive, and that triple negative is very aggressive, too. I had been naïve. I thought there was only one kind of cancer for breast , one kind for colon, one for stomach… Over the last four years, I have learned that only 5-10% of breast cancers are metaplastic and 10-20% are triple negative (TNBC). Great. I’ve accepted that my body is never normal.  The hair loss didn’t bother me too much because I only had chemo for five months and due to the pandemic, we weren’t going anywhere and no one was allowed to visit.  I have several groups of friends. I told my closest friends and my family and didn’t care if they shared the news with others. My daughter started a CaringBridge page for me which was very helpful. This way, I could let my friends know the results of tests and what was next. I didn’t want to chance leaving a friend out, plus I like to write what’s happening . If I’m down or sorting my emotions out, I wait with writing.  Meanwhile, friends and relatives came out of the woodwork  and began bringing food, gift certificates, presents… I felt very loved and cared for. People thought I was brave and strong. I just kept going to all the tests and doctors I was sent to. I was more like a robot.  It was a weird time. No one was allowed in hospitals with a patient due to Covid . I had to go for surgeries and treatments alone. My husband dropped me off at the hospitals by the front door. The surgeon gave me a pain block when I had the mastectomy so I felt fine the first three days. I had surgical drains for about 10 days post-mastectomy. Others had suggested joining lots of support groups online , which usually was helpful. This is where I learned the most. I also got into a support group which met online due to the pandemic. The women in the group had different kinds of cancer but were very helpful.  My first chemo  was delayed due to allergies I developed from ChloraPrep, a cleanser used on my chest prior to my double mastectomy . My first chemo was Adriamycin-Cytoxan (AC) , known as the Red Devil, for two months. I got very bad mouth sores, so I primarily did a liquid diet of high protein drinks and soups. I didn’t like the magic mouthwash. Baking soda wasn’t as harsh.  Then I developed an infection from my breast expanders, so I had to have the exchange surgery before finishing chemo . A few weeks later, I went on Taxol chemotherapy. I tried the ice mittens and boots which were to prevent neuropathy. Maybe my case was milder, but I got the neuropathy so bad that I never finished all the Taxol. My fingers and toes hurt so bad at bed time.  After stopping treatment, I wasn’t bouncing back to my precancer disposition, nor was my hair coming in very quickly. More facts I learned. Sometimes our bodies take a year or two or maybe three or four to return. Hair comes in very slowly for the first six months.  Scans were being done on me over the next couple years. The first ones showed lymph nodes seemed to have grown and later nodules. Many tests were run, including biopsies. My nodules were very small and were being checked for precaution. I finally had my lung sectioned in April 2024 to discover that my breast cancer was now in my lung.  I was on speakerphone when we spoke to my oncologist, who informed me that I was no longer curable. Needless to say, I became very depressed for about two or three weeks. Then someone told me that other diseases were not curable either like diabetes, arthritis, MS… And the doctors try to make patients comfortable with quality of life . I’ve had arthritis for half my life. Even though I was informed that I was now considered Stage 4 , it was no longer a death sentence . I joined groups online with this diagnosis to learn of people who have had this for 15-20 years and longer. I felt some relief.  My oncologist wanted me to try getting into a clinical trial, which I did for a year. In it, I took a targeted therapy, Trodelvy, with an immunotherapy , Keytruda. I also joined another support group. The other one was all women who were diagnosed with metastatic breast cancer (MBC). I learned that after scans I wanted to be considered stable, with no spread or growth of cancer cells. When my nodules did grow, I went back to my local oncologist, took a couple months off treatment, and now I’m back on chemo. This time I’m on Gemzar and carboplatinum.  There are now a lot of different treatments for cancer. I’m grateful for that. I’ve also been fortunate to talk with oncology dietitians and use suggestions on what is best to eat , plus I have been doing nutrition for most of my life. My side effects seem mild next to others. Sure, I have a little nausea at times, but no barfing. And yes, I have some constipation and I’ve had a couple small episodes of diarrhea, but in all my years I’ve learned to listen to my body and can usually counteract problems.  I still fear more growth, which is very common among cancer patients. I also fear any possible pain I may get that might not be treatable. I’ve slowed down a lot, which is frustrating, and I’m no longer good at multitasking. So far, my memory is still very good, but I get a bit of anxiety about not being able to recall everything. I have put together photo journals which I have labeled with the people included to help jog my memory if this happens. I try to be proactive. I have also written some memory books for my family about some of my memories.  In the meantime, I continue having meals with friends and family, socializing over games or just chatting, discussing good books… I also like to cook so when I’m feeling up to it, I make double or triple portions and freeze them. Much of my cooking is now done from a seated position with help from my husband.  Update: 1/13/2025 The Gemzar and carboplatinum did not work. I decided to go to City of Hope for another opinion since it is a cancer hospital and only 45 minutes from us. The oncologist I was assigned has worked with metaplastic carcinoma. We discussed different options and decided to try Enhertu .  The first time was uneventful, but the second dose was the worst treatment ever. I was shaky, unsteady and at first it hurt to breathe. Three weeks later, when I went back, I had a chest scan which showed my lung had become inflamed and the cancer had grown again. I went on a heavy dose of steroids for two weeks to give my lung a chance to recover.  Now I’m on Xeloda , which is oral chemotherapy taken at home. Again, my side effects did not show up until the second week. My heels hurt to walk on, and my mouth sores are back.  At City of Hope, I also see support staff. The naturalist recommended some supplements.  I’m hoping this treatment works because it’s hard to keep changing and get acclimated to new treatments. It’s also depressing. So far, the cancer is only in my lungs.  Cancer is a hard journey that most people don’t fully understand. I continue to stay positive.  Read More: SurvivingBreastCancer.org Support Groups Metastatic Breast Cancer: Understanding the Significance of Stage IV Different Kinds of Breast Cancer Advances in Immunotherapy: A New Frontier in Breast Cancer Treatment Understanding Genetic Testing for BRCA1 and BRCA2 Mutations Cancer Etiquette: How to Talk With Loved Ones About Their Breast Cancer Cancer in a Pandemic On the Podcast: Breast Cancer Conversations TNBC Metaplastic Breast Cancer | Jess Duemig Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

Hearing the words “breast cancer” can instantly turn your world upside down. With so many types of breast cancer ,  knowing what lies ahead can feel overwhelming. However, understanding the difference between invasive and non-invasive breast cancer can offer some clarity and perhaps some light on the path forward. Each type has unique signs and symptoms, shapes treatment decisions, and influences the road to recovery.  Continue reading to learn about the distinctions, what they mean for you or your loved one, and how they might impact your treatment plan. What Is Non-Invasive Breast Cancer? Non-invasive breast cancer, or in situ  breast cancer, refers to cancer cells that have not spread beyond their site of origin within the breast. Cancer cells remain confined to the ducts or lobules at this stage, and have not invaded surrounding breast tissue. The most common type of non-invasive breast cancer is ductal carcinoma in situ  (DCIS). Main Characteristics of Non-Invasive Breast Cancer Containment : Cancer cells are confined to the breast ducts or lobules. Minimal Risk of Metastasis : Non-invasive cancers do not spread to other body parts. High Cure Rate : With early detection, treatments for non-invasive cancers—such as surgery or radiation—often result in successful outcomes. What Is Invasive Breast Cancer? Invasive breast cancer is a more advanced type of cancer where cells have broken free from their initial location in the ducts or lobules and begun to invade surrounding breast tissue. This type of cancer has the potential to spread to nearby lymph nodes and other parts of the body, which can complicate treatment. Types of Invasive Breast Cancer Invasive Ductal Carcinoma  (IDC) : This is the most common type of invasive breast cancer, accounting for about 80% of all cases. It begins in the milk ducts but invades surrounding tissue. Invasive Lobular Carcinoma  (ILC) : A type of invasive breast cancer that originates in the lobules, or milk-producing glands, and can spread to surrounding tissues. Diagnosing Invasive vs. Non-Invasive Breast Cancer Breast cancer diagnosis involves a combination of imaging tests, such as mammograms, MRI scans, and biopsy procedures. A biopsy is essential for determining whether the cancer is invasive or non-invasive and often informs the stage of the tumor. Non-Invasive Cancer : Typically appears as clusters of abnormal cells in the ducts or lobules. Invasive Cancer : Shows evidence of cell spread beyond the ducts or lobules. Treatment Options: How Invasiveness Influences Approach The invasiveness of breast cancer significantly impacts treatment recommendations. Here’s a general look at how treatment options vary: Non-Invasive Breast Cancer Treatment Treatment for non-invasive breast cancer typically involves local therapies, such as: Surgery : Options include lumpectomy (removing only the tumor) or mastectomy (removing the breast). Radiation Therapy : Often used after surgery to reduce recurrence risk. Because non-invasive cancers are less likely to spread, systemic therapies like chemotherapy are rarely necessary. Invasive Breast Cancer Treatment Invasive breast cancer often requires a multi-modal approach : Surgery : Typically, lumpectomy or mastectomy. Radiation : To reduce the risk of recurrence in the treated area. Chemotherapy : Used in cases where cancer has spread or is likely to. Hormone Therapy : For hormone receptor-positive cancers, this can slow or stop the growth of cancer cells. Immunotherapy : This involves activating and “training” the immune system in specific ways to target and destroy cancer cells. In many cases, it offers a tailored treatment option with fewer side effects than traditional therapies. Prognosis: What Patients Should Know The prognosis for both non-invasive and invasive breast cancer can be favorable with early detection. Non-invasive breast cancers generally have an excellent prognosis. In contrast, the outlook for invasive breast cancers depends on factors such as cancer stage, size, and whether it has spread to lymph nodes or other parts of the body. Count On Us for Information, Resources, and Support  If you or a loved one is dealing with non-invasive or invasive breast cancer, understanding the nature of the diagnosis is crucial for navigating treatment options and establishing a support plan. Speaking with healthcare professionals , connecting with cancer support groups , and educating yourself can provide comfort and empowerment. Whether you’re newly diagnosed with breast cancer , are navigating survivorship, or are the loved one of someone experiencing breast cancer, you can count on SurvivingBreastCancer.org to keep you informed. We provide educational information to help you better understand symptoms , testing, treatment options , surgery, etc., and podcasts that feature professionals, advocates, and caregivers who share valuable information. Your donations  enable SurvivingBreastCancer.org , a community dedicated to empowering those affected by breast cancer with knowledge, understanding, and a network of care, to offer resources and support every day, every month, and every year.  Note: This article offers general information and does not replace professional medical advice. Make sure to discuss your options with your healthcare provider. Read More: Ductal Carcinoma in Situ (“Stage Zero” Breast Cancer): What You Need To Know Is Invasive Ductal Carcinoma (IDC) Curable? Understanding Lobular Breast Cancer: Insights, Diagnosis, and Treatment Understanding Your Pathology Report: A Comprehensive Step-By-Step Guide Questions to Ask Your Medical Oncology Team My Lobular Breast Cancer Story: Not a “Journey” On the Podcast: Breast Cancer Conversations My Black Experience with Stage II A Lobular Breast Cancer Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By Dr. Courtney Sproat, PT, DPT, CLT Physical therapist Dr. Courtney Sproat shares information on cancer rehab and how it can help you before, during, and after your breast cancer treatment. Cancer rehab is a fairly new and growing specialty in the therapy world. It is not widely known about, nor is it utilized enough. One of the first statements I often receive from patients on their first visit is, “I’m not sure why I am here, but my surgeon recommended it so I came.” A popular question from other healthcare providers is, “This may seem like a silly question, but what exactly do you do?” Even during my two years of working in a well-known healthcare system in a big city, coworkers within our own building did not know about cancer rehab or where we were located. It was quite frustrating, especially when it is a much-needed service . Individuals recently diagnosed with cancer, going through cancer treatment, or navigating survivorship can all benefit from cancer rehabilitation . Studies have shown that rehabilitation has a positive impact on these patients and it should be implemented from the point of diagnosis . Even if your physician or oncologist does not recommend physical therapy, do yourself a favor and ask for it! Be an advocate for yourself. Being educated from the beginning of treatment can improve the effectiveness of your treatment, make you feel better during and after your treatment, and decrease your chance of recurrence. Cancer treatment takes a major toll on your body—physically, mentally, and emotionally. Some potential physical side effects from cancer treatment may include: decreased movement decreased strength pain chemotherapy-induced peripheral neuropathy fatigue decreased balance scar tissue axillary web syndrome muscle tightness  lymphedema A physical therapist specialized in cancer rehabilitation can help guide you in safe exercises throughout your entire cancer experience and can provide hands-on techniques to reduce or treat these potential symptoms and side effects.  Physical therapy is not just about exercise , but research has shown that exercise has many positive impacts for those diagnosed with cancer, including: improving your physical function improving your quality of life providing you with a sense of control decreasing anxiety decreasing depression reducing cancer-related fatigue reducing your risk of developing lymphedema These benefits are great, but some patients feel lost on where to begin or what is considered safe. A specialized cancer rehab therapist—whether it be a physical therapist , occupational therapist, speech therapist, or massage therapist—can help educate and empower you. A therapist can help prevent or lessen some side effects and maintain your strength and motion for work or everyday tasks. For those in survivorship, working with a therapist can help you regain strength and mobility after completing treatment. I could go on about cancer rehab and its benefits, but simply put, this therapy can be used before, during, and after cancer treatment . Physical therapy looks different for every individual, but having someone specialized in your cancer on your team is a big benefit to you. If you have been diagnosed with cancer, ask about physical or occupational therapy. If you know someone recently diagnosed with cancer, share this blog with them and encourage them to reach out to a physical therapist or occupational therapist, even if they just have questions. I recommend seeking help from a therapist who has experience working with the cancer population or one who has received additional education in cancer rehab. You never know how your treatment may affect you or when it will have an impact on your life. I encourage taking action before treatment and learning as much as you can. Having a specialized physical therapist on your cancer team can make a world of a difference. Note: This article offers general information and does not replace professional medical advice. Make sure to discuss your options with your healthcare provider. Join us for yoga, Pilates, and other mindfulness and movement programs! Watch on-demand movement classes About the Author: Dr. Courtney Sproat I am a physical therapist in cancer rehabilitation currently specializing in breast cancer rehab. I jumped into this specialty right after graduation and have been working in cancer rehab for over 2 years now. After one day of shadowing during my clinical rotation, I realized my passion and calling was in cancer rehab. After starting my career, I received additional education to become a certified lymphedema therapist and a certified breast cancer rehabilitation therapist. I recently joined Auburn Massage & Wellness Centre in Auburn, Indiana, to offer my services as an out-of-network provider. Read More: The Importance of Physical Therapy During and After Cancer Treatment Lymphedema is a Chronic Condition & Why I Love Swimming The Link Between Breast Cancer and Back Pain Exercise and Breast Cancer The Healing Power of Pilates: Benefits for Breast Cancer Patients On the Podcast: Breast Cancer Conversations The Importance of Physical Therapy in Breast Cancer Recovery Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By Pooja Jain Scribble, doodle, write your heart out Scratch the paper with your sorrow, Decorate it with your love, Color it with your anger. Why must we turn to guns to end injustices? Who will hear when people are dying? Pick up the mighty pen, Scribble, doodle, Write your heart out. Let the world listen Give someone a chance to read, And write back to you. Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By Pooja Jain know a girl who once tried to grow her hair longer with herbal packs, sesame, and coconut oils, and gently coloring with henna paste. After chemotherapy, she learned to come to peace with her bald head. I know a woman who always worked to keep her weight in check – walking, dancing, yoga, all part of her healthy lifestyle. But after breast cancer treatments and strong medications, She now feels the weight is here to stay. When she looks in the mirror, She sees a masterpiece. A beautiful, imperfect, Wabi-Sabi work of art. She decorates her masterpiece with bright lipstick, Plans healthy meals each day, And walks, always seeking nature’s company for well-being. Love and kindness toward oneself. A constant reminder to us all. Hello fellow beings, How do you take care of your masterpiece? Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By William Laferriere sacred flames flicker  a swirling dervish dance   ancestral spirits arise smoke carries prayers to unseen deities  the past whispers and echoes a portal opens wide  the veil between worlds thins as the cosmic dance begins healing energies flow washing spirits clean the shaman swirls  her wisdom unfurls the ancient calendar turns and realigns  intentions and affirmations are set ablaze  desire takes flight negative energies burn in the fire’s pure light offerings consumed  transformation ignites  personal growth blooms  and reaches new heights balance achieved as positive and negative embrace Mayan traditions pulse in this sacred space generational wisdom passed down modern hearts connect and contend  an ancestral grounding in protection in abundance both flow freely dreams manifest in the fire’s alchemy cultural threads weave into the myth of time The sublime ritual of a Mayan fire ceremony Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

By Triona Lonergan I’ve been chosen….. yeah, wasn’t even aware there was a competition, but here I am ….winning!!!  Requirements for entry were ever so difficult, but I sailed through without even studying! Sounds pretty elite…. But that’s just me, right   Everyone wants to belong, be part of something, feel significant, have commonality with like-minded folk. Friend groups…communities, cool kids, artists, writers, pop groups. But you cannot join my group. You only qualify as groupie. I can’t decide ‘not’ to be part of this group. When you’re in, you’re in (it’s like the mafia) and there’s no going back. No welcome letter, No Christmas card, It’s a secret Society, and you only learn of other members through whispers and nods.   I like to think of us as astrologists, Except it doesn’t matter what your birth month is…. There’s only ONE zodiac sign matters!! My initiation was not a champagne toast or round of applause as I was called to a podium in a billowing ball gown, bowing while being presented with my certificate of acceptance to the Knights Templar, Freemasons or Illuminati.   It’s a lifetime membership, with no benefits, And I made the cut!    Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events