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  • Chemo Brain Fog

    By Cara Scinto Calling a breast cancer diagnosis overwhelming is an understatement. From the moment you hear the words, "you have cancer," the mind goes into overdrive. From the whirlwind appointments, the need to make critical decisions, and jumping into surgery and various therapies, it's no wonder our minds become distracted. But aside from the discombobulation a cancer diagnosis throws at us, is it possible that our treatments are impairing our cogitative function? What is Chemo Brain? What exactly is “Chemo brain?” We’ve all heard the term. Perhaps we’ve also, on occasion, experienced the fog associated with cancer treatment. According to the Mayo Clinic, “Chemo brain is a common term used by cancer survivors to describe thinking and memory problems that can occur during and after cancer treatment”. It is also referred to as chemo fog, (cancer-related) cognitive impairment, or cognitive dysfunction. Examples include decreases in short-term memory, difficulty finding words, concentrating, and multitasking. The causes of concentration and memory problems aren't well-understood. According to Fremonta Meyer, MD , a clinical psychiatrist in Dana-Farber's Department of Psychosocial Oncology and Palliative Care , suggests that "Cyclophosphamide, Adriamycin , 5-FU, and Taxol seem to be noteworthy culprits of chemo brain, but there are others that can cause the condition. Dose dense chemotherapy may be associated with more chemo-brain symptoms, but chemotherapy can cause symptoms regardless of whether that specific drug crosses the blood-brain barrier." Chemo Brain Symptoms No matter the cause, chemo brain can be a frustrating and debilitating side effect of cancer and its treatment. There are teams of researchers working to understand the memory changes that cancer patients endure during and post-treatment. The Mayo Clinic associates the following symptoms with Chemo brain: Being unusually disorganized Confusion Difficulty concentrating Difficulty finding the right word Difficulty learning new skills Difficulty multitasking Feeling of mental fogginess Short attention span Short-term memory problems Taking longer than usual to complete routine tasks Trouble with verbal memory, such as remembering a conversation Trouble with visual memory, such as recalling an image or a list of words How to Combat Chemo Brain Symptoms With this in mind we turned to survivingbreastcancer.org friend Cara Scinto. Cara is a Certified Dementia Practitioner, Personal Trainer, with an MS in Nutrition and an agile, sensible website: TheBalancedBod.com . Cara writes: “As if having cancer isn’t hard enough, the side effects of treatment can seem even worse to deal with. Chemo brain — a type of dementia — can interfere with memory and judgement; not something helpful to a patient facing doctors' appointments, taking medications, and all of the other things life throws your way. The good news is that it does not have to last forever. There are techniques you can use to cope with this frustrating side effect of chemotherapy: Make lists. If you are tech savvy, use a note on your phone. You have the option to make it shareable with a family member or your physician. Keep your mind active. Word puzzles, test yourself while you watch jeopardy, memorize a short children’s book, or attend an online class that interests you. Meditate daily. You can use an app like insight timer or reach out to me for a curated YouTube playlist - just for you. Having a mindfulness practice can help minimize distractions and drop into your calming breath when you need it most. Tell a loved one what you’re going through. Tell your family, so that they’ll understand if you forget things you normally wouldn’t forget. They may be able to help and encourage you. Speak with an oncology social worker. If living with symptoms of Chemo brain makes you anxious or sad, seek help. Being a part of a support group and making use of resources such as survivingbreastcancer.org can be a comforting reminder that you are not alone.” Do you experience chemo-brain? What tips and strategies do you recommend? Send us an email and let us know! (info@survivingbreastcancer.org)

  • Informed Consent of Care

    By Brady Scheiner Informed consent in medical practice, not to be confused with informed consent in sexual activity, is the process by which patients are educated about the possible risks of and alternatives to a healthcare intervention before consenting to receive that intervention. In the United States, this is done to satisfy the legal (and moral) obligations of the physician to ensure a patient understands the consequences of a procedure or intervention. Although informed consent is generally required to be received from the patient themselves, there are scenarios in which this would not be the case. More specifically, informed consent will not be required from the patient if the patient is unable to give it; a patient would be unable to give informed consent if they are a minor (in which case their legal guardians would), if they are severely mentally handicapped (in which case their healthcare power of attorney would), or if they are unconscious. In the case that they are unconscious and will die without prompt treatment, the need for informed consent is waived entirely, unless otherwise stated in their medical file. Debates Surrounding Informed Consent of Care There is a great deal of controversy surrounding informed consent. For example, if a doctor were to be performing an unrelated surgery on a patient who he then found to have cancerous tissue, should he be allowed, by law, to do what he feels is necessary to remove it immediately? If you think he should, then would your answer change knowing that this may even include womb or testicle removal, preventing the patient from reproducing without ever giving them options in the matter? Some of you may believe that physicians know best, so it should be done right away, no matter what, but others of you may believe that physicians should always provide wholly encapsulating information on every single medical proposal, no matter how big or small. Now, let’s say the doctor did remove the tissue; If determining this case purely based on the doctrine of informed consent, then the doctor acted negligently because he did not inform the patient about the risks of or alternatives to the cancer’s surgical removal, but it’s not always this clear. Differing Interpretations of Consent of Care There is even more discourse surrounding the “standard of care” that should be followed when informed consent is given. The standard is always intended for the benefit of the patient; however, states generally have two varying approaches to this. The first is the “patient standard”, which holds that the legal standard for determining informed consent cases is what a “reasonable patient…would expect to be told prior to making a decision about treatment” (Studdert 104). In contrast, the “professional standard” holds that the legal standard is “testimony by medical experts about which risks and alternatives physicians customarily convey” in analogous situations (Studdert 105). The conflict between these two approaches is reflected in the state laws surrounding which standard must be followed. In 25 states and the District of Columbia, the patient standard is codified in law, whereas the professional standard is practiced in 23 states (Studdert 105). The leftover two states follow a hybrid of the two approaches (Studdert 105). To find out the specific standard for informed consent laws in your state, check out the figure below from “Geographic Variation in Informed Consent Law: Two Standards for Disclosure of Treatment Risks” and look for your state! Citations “Informed Consent.” AMA Principles of Medical Ethics, American Medical Association, www.ama-assn.org/delivering-care/ethics/informed-consent . Shah, Parth. “Informed Consent.” StatPearls [Internet]., U.S. National Library of Medicine, 22 Aug. 2020, www.ncbi.nlm.nih.gov/books/NBK430827/#:~:text=The%20patient%2 0must%20be%20competent,what%20happens%20to%20their%20bo dy . Studdert, David M., et al. “Geographic Variation in Informed Consent Law: Two Standards for Disclosure of Treatment Risks.” Journal of Empirical Legal Studies, vol. 4, no. 1, 2007, pp. 103–124., doi:10.1111/j.1740-1461.2007.00083.x .

  • The Utility of Do Not Resuscitate Orders

    By Brady Scheiner Do-not-resuscitate orders, also known as DNR orders, are typically intended to legally indicate that someone does not want to receive cardiopulmonary resuscitation (CPR) in the case of cardiac arrest. Sometimes, they are used to prevent other life-saving interventions, but this is not as common. In order to properly give a DNR order, the physician must obtain the informed consent of the patient (or their guardian). For more information on the process of informed consent , click here ! The Types of DNR Orders There are two general types of DNR orders: DNR Comfort Care (DNR-CC) orders and DNR Comfort Care-Arrest (DNR-CCA) orders, with DNR-CCA orders being the most common type. This order permits the use of life-saving interventions, such as chemotherapy, curative surgery, or medication, up until one’s breathing or heart stops; after this point, only interventions relating to one’s comfort are permitted (Ethics Committee). Basically, CPR will not be provided, but physicians are still expected to provide the patient with comfort care to the best of their abilities. In contrast, DNR-CC orders require that only comfort care be provided even before the patient’s breathing or heart stops (Ethics Committee). This type of order is typically used in the case of a short life expectancy or terminal illness where curative treatment does not prove to be beneficial. Another option at some hospitals is often referred to as DNR-Specified, which is a custom order crafted by a patient in consultation with their physician (Ethics Committee). This allows for a more individualized DNR order, but it is unavailable at many hospitals and non-transferable between institutions. When DNR orders are discussed broadly, they are likely referring to DNR-CCA orders, as they are the least restrictive and most frequent. Frequent Issues with DNR Orders Like a lot of legislation in the medical field, DNR orders are not without complication. In recent years, researchers have found that the presence of a DNR order in a patient’s charts can unintentionally decrease the use of non-CPR medical interventions (McCaughey). Ultimately, this lower level of care can prove fatal; in fact, it was found that, following a hip surgery, patients with DNR orders had over double the mortality rate of patients without one (McCaughey). Another frequent issue with DNR orders is that physicians may not adequately discuss the complications with DNR orders, which would constitute a lack of informed consent . Additionally, a DNR order may be overridden against a patient’s wishes; a survey of physicians showed that 69% would be very likely to disregard a DNR order and perform CPR anyway if their treatment caused a cardiac arrest (Tan). This is thought to be due to lawsuit concerns, guilt, or a lack of consideration of this possibility (Tan). On the other end of this issue, DNR orders are sometimes placed against a patient’s will, which is known as a unilateral DNR (Courtwright et al.). Generally, this decision is made by an ethics committee or physician when they deem further treatment to be futile (Courtwright et al.). This is especially concerning because in some cases, the patients were found to have potentially treatable conditions (Courtwright et al.). There is a lot of ongoing debate and contention surrounding this issue, even among doctors, as roughly half are opposed to this practice (Putman). To find out the specifics of DNR orders in your state, search “DNR order laws” followed by your state! For example, a search for “DNR order laws in (insert state here)” should bring up all the information you need! Citations Courtwright, A., et al. “Unilateral Do-Not-Attempt Resuscitation Orders at the Massachusetts General Hospital.” Medical Futility Blog, 11 May 2014, medicalfutility.blogspot.com/2014/05/unilateral-do-not-attempt-resusci tation.html?utm_source=twitterfeed&utm_medium=twitter . Ethics Committee. “DNR Orders and Comfort Care.” Ethics Resources and Services, Cleveland Clinic, my.clevelandclinic.org/ccf/media/Files/Bioethics/DNR%20Handout%204_28.pdf?la=en#:~:text=DNR%20Comfort%20Care%2DArrest%3A%20DNR,person's%20heart%20or%20breathing%20stops . McCaughey, Betsy. “Do Not Sign A DNR Before You Read This.” Investor's Business Daily, 28 Mar. 2018, www.investors.com/politics/columnists/do-not-resuscitate-dnr-orders- dangerous-for-patients/ . Putman, Micheal S. “Ethics of Unilateral DNR Orders: Physicians Are Evenly Divided.” Relias Media - Continuing Medical Education Publishing, 1 Feb. 2018, www.reliasmedia.com/articles/142102-ethics-of-unilateral-dnr-orders-physicians-are-evenly-divided . Tan, S. Y. “Consent and DNR Orders.” The Hospitalist, 14 Feb. 2018, www.the-hospitalist.org/hospitalist/article/158675/business-medicine/ consent-and-dnr-orders .

  • Breast Cancer and Nutrition: The Effects of Alcohol, Soy, and Sugar

    You may be familiar with the phrase; you are what you eat. What may surprise you is that its origins date back to the 1800s, when a French lawyer, politician, and famous gastronome, was said to have first uttered a similar French version of the popular saying. Since then, the concept has been the basis for best-selling books and entire nutrition plans. We’ve known for a long time that diet contributes to our health . It’s a simple concept: good nutrition helps children grow and develop and contributes to health over a lifespan. An unhealthy diet is associated with harmful effects, including obesity, heart disease, stroke, Type 2 diabetes, and cancer. Studies have also found a correlation between a diet high in refined sugars and impaired brain function —and evidence that it can worsen symptoms of mood disorders, such as depression. The Connection Between Breast Cancer and Nutrition It’s likely that you’ve heard conflicting reports about the effect of certain foods on breast cancer. One year, you read that soy contributes to breast cancer, and a year later, you read that soy reduces breast cancer. Understandably, a person could easily become confused and frustrated. What is going on? Why can’t they get it right? Science is constantly evolving. Advances in technology enable researchers to gain new information and learn new things. A great example of this is the progress of genetic testing for breast cancer that became available only twenty-five years ago. That new knowledge may lead scientists to draw new conclusions that contradict earlier information. It doesn’t mean that the science is flawed, only that new evidence has been discovered. Watch Now Alcohol and Breast Cancer Multiple studies have shown a link between alcohol consumption and breast cancer. Two landmark papers published in The New England Journal of Medicine in 1987 determined that, even at moderate levels, alcohol consumption was associated with the risk of breast cancer. Since then, numerous global studies have been conducted with the same findings. Several studies examined alcohol consumption with other known breast cancer risk factors, such as diet, genetic conditions, body mass index, physical activity levels, and smoking. Soy and Breast Cancer There’s been a lot of debate over the past 25 years on whether soy increases breast cancer risk. On the contrary, recent research findings indicate that soy and soy-based foods, including tempeh, tofu, and miso, lower breast cancer risk . A study commissioned by the National Cancer Institute and the World Cancer Research Fund determined that the culprit is cow’s milk. Drinking cow’s milk increases a woman’s risk of breast cancer by as much as 80 percent compared with drinking soy milk. The Mayo Clinic chalks up the confusion to isoflavones (plant estrogens) found in soy. High levels of estrogen have been linked to an increased risk of breast cancer; however, the levels of isoflavones in food sources of soy aren’t high enough to increase breast cancer risk. Soy or isoflavone supplements, however, generally contain higher isoflavone levels. Some studies have suggested a link between soy or isoflavone supplements and an increased risk of breast cancer in women who have a family or personal history of breast cancer or thyroid problems. It’s helpful to understand the differences between natural, unprocessed soy and soy supplements and additives. Sugar and Breast Cancer Sugar has been implicated as a cause of breast cancer, depicted as providing a feeding frenzy enabling cancer cells to grow out of control quickly. Like all cells, cancer cells require energy to grow and multiply, and use glucose as their primary fuel source. Glucose is the simplest form of sugar and comes from any food that contains carbohydrates. That list includes healthy foods, such as vegetables, fruits, dairy, whole grains, refined carbohydrates, and foods with added sugars, such as white bread, pasta, sweetened beverages, and sweets. The idea that sugar expedites cancer cells’ growth has led some people to completely cut out all carbohydrates from their diet based on the belief that cancer cells need glucose; eliminating it will stop cancer growth. Sugar has not been found to make cancer cells grow faster , nor has cutting sugar out of your diet been connected with slowing down cancer cells’ growth. It’s not that simple. Glucose is a critical component needed for healthy cells to function, and there is no way for our bodies to let healthy cells have the glucose they need but stop it from feeding the cancer cells. Removing carbohydrate intake from the foods we eat doesn’t work because our bodies will make glucose from other sources, such as protein and fat. There is an indirect link between sugar and cancer. We know that eating a lot of sugary foods such as cakes, cookies, and sweetened beverages can contribute to weight gain and excess body fat. Research has shown that being overweight or obese increases the risk of 11 types of cancers, including postmenopausal breast cancer. Another study in the American Journal of Clinical Nutrition found that in a cohort of more than 100,000 people whose dietary intake was assessed every six months, sugar was associated with cancer, especially with breast cancer. Sugars from fruit, however, were not associated with cancer risk. Some scientists are investigating the possibility of measuring sugar to detect breast cancer . We continue to learn the impact of nutrition on our health and how understanding our dietary choices can benefit our ability to prevent breast cancer. Following a healthy diet can also help you feel your best. Explore our guidelines for a healthy diet , and become part of our empowering community, including our Breast Cancer Survivor & Friends Meet and Greets . We’re always here for you! Watch Now

  • Financial Literacy and Breast Cancer

    It's no secret that money is a major cause of stress for far too many people. A breast cancer diagnosis can certainly be a major cause of stress. The two combined create a devastatingly stressful situation. While it's never a bad time to educate yourself about personal and family finances, the fresh start that a new season and month bring is a great time to do so. What is Financial Literacy? Where is the best place to start? Financial literacy is defined as the ability to understand and effectively use various financial skills, including personal financial management and budgeting. But who anticipates large medical bills? Breast cancer treatment typically involves screening, surgery, chemotherapy, radiation, and oncological team and hospital expenses that can approach hundreds of thousands of dollars. Insurance and Medicare do cover many of these bills, but not all in most cases. For instance, Breast cancer patients with lymphedema — a common side effect after the removal of lymph nodes as part of cancer treatment — experience an average exceeding $2,000 in out-of-pocket costs per year, compared to just over $1,000 for those without lymphedema ( Forbes, 2020 ) . Are you familiar with your insurance’s deductibles and out-of-pocket payments? Plans are all different, and most of us do not necessarily know the financial details until we are hit with a crisis and need to tap into medical insurance. Some plans offer low deductibles and copays, while others do not. In fact, some deductibles run as high as $5000 annually. Even if and when you reach your deductible, it is never guaranteed that insurance companies will pick up 100% of the balance thereafter, thus adding additional financial burden. Incorrect Medical Bills In addition to the incredibly high costs associated with cancer treatment, oftentimes, bills are incorrect, and many patients do not take the time to review their bills line by line. The nonprofit Patient Advocate Foundation estimates that about “half of all medical bills contain incorrect charges, wrongly denied claims or surprise bills”. They may charge you for the wrong service or charge you twice for the same service, or say you had an ibuprofen when you didn’t. That’s why it’s important to take notes during and after your appointments, make a note of the dates and the names of the doctors you’ve seen, so you can easily remember the services, shots, scans, and infusions you received and be able to thoroughly review your bill when it arrives. Lastly, many medical providers don’t include an itemized list of charges when they first bill you, especially for a hospital visit. Instead, they lump all the charges together in what's called a “summary” bill, with a “total due” at the bottom. Some initial statements don’t factor in payments from Medicare or your insurance company, which could give you the impression that you owe more than you do. The Impact of Financial Stress on Cancer Patients Dr. Greenup, a surgeon at Duke Cancer Institute, and her colleagues investigated the costs of cancer treatment and its impact on the patients. “One-third of the participants reported that the costs of their breast cancer care turned out to be higher than they expected. Although most said that paying for their cancer treatment did not interfere with their other medical care, a quarter of the women with the lowest incomes reported avoiding doctors and medical tests.” ( NIH, 2019 ) Financial Stress is, therefore, most understandable. As April is Financial Literacy Month, we've highlighted some resources below to help you learn about ways to lessen the financial burdens and stress of a cancer diagnosis. Health Insurance Literacy and Financial Hardship in Cancer Survivors A recent study indicated that health insurance literacy may be an important intervention for addressing financial problems associated with cancer. Rising costs of cancer care can result in financial hardship for cancer survivors—even among those with health insurance. Read More. Ways To 'Celebrate' Financial Literacy Month (That Don't Cost Anything) While it might seem like a strange topic to “celebrate,” the more education you have about finances, the more equipped you’ll be to make smart decisions. According to the Financial Industry Regulatory Authority, financial literacy is declining among Americans. Read More. The Association of Community Cancer Centers & Financial Advocacy The goal of the Financial Advocacy Network is to empower providers to proactively integrate financial health into the oncology care continuum and help patients gain access to high-quality care for a better quality of life. Read More. Steps for Managing Finances & Health Insurance After A Cancer Diagnosis Studies show that cancer survivors with financial burden had significantly higher rates of depression. Fortunately, there are ways to minimize the financial burden of a cancer diagnosis. Read More.

  • Adolescents and Young Adults (AYA) with Breast Cancer

    Almost 90,000 “young people,” defined as anyone aged 15-39, are diagnosed with cancer each year in the United States, according to the American Cancer Society , accounting for about 5 percent of all cancer diagnoses. And among the 25- to 39-year-olds considered “young people,” breast cancer and thyroid cancer are the most common. ( NCI’s Surveillance, Epidemiology, and End Results Program Cancer Stat Facts So why are there so many AYA cancer diagnoses, yet so little focus on this group as compared to childhood or adult cancers? Young people find themselves in an “in-between” group—there is no specific medical home or doctors specializing in treating the AYA population, a recent study by the National Cancer Institute found, and they are often in transition periods in their lives without consistent relationships with medical providers. Furthermore, “AYAs have lower enrollment in clinical trials compared with people treated for cancer in childhood or older adulthood,” said Emily Tonorezos, M.D., M.P.H., director of NCI’s Office of Cancer Survivorship . Typically, in the U.S., breast cancer screenings do not begin until the age of 40. In other countries, it can be as high as 50 or even 55. With no effective breast cancer screening tool yet for women under 40, according to YoungSurvival.org , most young adults find a lump or change in their breast themselves. Routine breast self-exams help you become familiar with how your breasts look and feel, so you can be cognizant of any changes that may occur. A cancer diagnosis at any age is isolating and scary, but as the most underserved community by age, it can be especially so for those in the AYA population who receive a diagnosis. Many are told time and time again that they are wrong and too young for what they are feeling in their body to be cancer. Always remember that the best advocate for yourself and your health is you. Demand the testing, scans, and answers to what you feel is going on in your body. As Adolescents and Young Adults (AYA) Cancer Awareness Week 2021 draws to a close, we've highlighted some resources below to help you learn about breast cancer in the AYA community. Breast Cancer Statistics in Young Adults Although breast cancer in young adults is rare, more than 250,000 people living in the United States today were diagnosed under age 40. In young adults, breast cancer tends to be diagnosed in its later stages and tends to be more aggressive. Read More. Breast Cancer In Young Women Though more common in older adults than younger women, more than 13,000 women ages 40 or under will be diagnosed this year. What are the unique challenges young women with breast cancer face? Read More. Too Young to Screen: Breast Cancer in Younger Women If you’re under age 40, which is when it’s recommended that women begin having screening mammograms, you may think you are too young to get breast cancer—but that’s not true. While breast cancer in younger women is rare, it is the most common cancer among women ages 15 to 39. Read More. Young, High-Risk Women Benefit From Breast Self-Exam Diagnosis Studies found that a breast self-exam (BSE) can be an important way to find cancer in young women, especially young women with a higher-than-average risk of developing breast cancer. The results offer another point of view in the ongoing discussion about the role of BSE in breast cancer screening. Read More.

  • The Benefits of Acupressure

    2020 was a year that forced doctors, patients, and their caregivers to rethink how they work together–virtual appointments over Zoom, conversing through electronic portals, viewing diagnoses through the lens of a global pandemic. One bright spot, however, was that patients and caregivers had to get creative and look into alternative forms of therapy and relief. The numerous benefits of acupuncture, acupressure, and other forms of alternative treatment have been widely shared and discussed, but the stay-at-home orders as a result of the pandemic shone a new light on just how great those benefits are, and how easily some of them, like acupressure, can be administered at home. Acupressure is an ancient healing art that’s based on the traditional Chinese medicine practice of acupuncture, but instead of using needles, pressure is put on specific places on the body, called acupoints. Pressure on acupoints helps to relieve muscle tension, promote blood circulation, and can even relieve many common side effects of chemotherapy. Pressure Point P-6, also known as Neiguan and located on your inner arm near your wrist, for example, can help relieve nausea and vomiting related to chemotherapy, according to Memorial Sloan Cancer Center . Acupressure is a great option not only for relief from chemotherapy symptoms, but it can also be used to help alleviate lingering symptoms of treatment that many breast cancer survivors experience. The results of a randomized study published in JAMA Oncology found that six weeks of self-administered acupressure reduced fatigue in breast cancer survivors by as much as 34% as compared to those with no intervention. Suzanna M. Zick, ND, MPH, of the departments of family medicine and nutritional sciences at the University of Michigan in Ann Arbor, one of the authors of the study, notes, “Fatigue is an underappreciated symptom across a lot of chronic diseases, especially cancer. It has a significant impact on quality of life.” Acupressure requires little to no cost and is easy and safe to learn and self-administer. Read on to learn more about the benefits of this ancient healing art and ways you can incorporate it into your own daily practice. Acupressure for Cancer-Related Fatigue Difficult-to-treat, cancer-related fatigue is a common, distressing clinical issue. It impedes daily activities, severely affecting patients’ quality of life. Read More. Acupressure Relieves Breast Cancer Treatment Symptoms, Study Finds A new study finds acupressure could be a low-cost, at-home solution to a suite of persistent side effects that linger after breast cancer treatment ends. Read More. Acupressure Helps with Depression, Sleep After Breast Cancer Treatment A recent study found that acupressure could help alleviate multiple symptoms women often experience after breast cancer treatment. Read More. Young, High-Risk Women Benefit From Breast Self-Exam Diagnosis Learn how to perform acupressure for the treatment of nausea and vomiting from Jonathan Siman, an acupuncturist at the Memorial Sloan Kettering Integrative Medicine Service. Watch Now.

  • You, Your Environment, and Your Breast Health

    Thursday, April 22nd, 2021, marked the 51st anniversary of Earth Day . What started in 1970 with over 20 million Americans calling for action to protect our planet has grown into the worldwide celebration we know today, with over 1 billion people in more than 190 countries celebrating our planet and highlighting the work that needs to be done to protect it. The invention of the automobile and the increase in industry resulted in Americans consuming vast amounts of leaded gas, smoke, sludge, and polluted air–no thought was given to how a polluted environment threatens human health. The release of Rachel Carson’s Silent Spring in 1962 raised public awareness and concern for the environment, pollution, and its link to public health. How does this relate to breast cancer? We all know the sobering fact that about 12%, or 1 in 8, women in the United States will develop breast cancer during their lifetime, and although scientists have identified many of the risk factors that increase a woman’s chance of developing breast cancer, there is still very little knowledge about what causes normal cells to become cancerous. Most experts agree that breast cancer is caused by a combination of genetic, hormonal, and environmental factors . In fact, evidence cited in a 2017 study from The National Center for Biotechnology Information reinforces the conclusion that exposure to a wide variety of toxins–many of which are found in things we eat, drink, touch, or breathe–can lead to an increased risk for the development of breast cancer. So where are we now? A deeper appreciation of how the environment affects breast health and the importance of research in this area, combined with a society that is increasingly more concerned with overall health and well-being, has thankfully led to more studies, such as The Sister Study , and people taking a more active stance in what they expose themselves to in their environments. Read on to learn more about advances in research, studies, and steps you can take to protect not only our environment, but yourself and your loved ones. Breast Cancer and the Environment The National Institute of Environmental Health Sciences plays a leadership role in funding and conducting studies on the ways in which environmental exposures increase breast cancer risk. Identifying and reducing contact with environmental factors linked to breast cancer presents a tremendous opportunity to prevent this disease. Read More. Every Day Earth Tips We love our planet, right? So, protecting it seems like a no-brainer. Breast Cancer Prevention Partners has put together some easy ways to help you go green and keep the planet clean. Since we have no planet B, let’s make a difference and care for the one we have. Read More. Why Study Environmental Chemicals and Breast Cancer? In order to truly lift the burden of breast cancer, the important contribution of environmental chemicals to the development of the disease must be an integral part of cancer prevention strategies. Read More. State of the Evidence 2017: An Update on the Connection Between Breast Cancer and the Environment This review examines the continually expanding and increasingly compelling data linking radiation and various chemicals in our environment to the current high incidence of breast cancer. Read More.

  • Writing As A Therapeutic And Creative Outlet

    Writing can serve as a therapeutic and creative outlet. More specifically, journaling offers opportunities for expression and reflection and can help those going through a cancer diagnosis process the emotions and loss that come with the territory. Writing isn’t necessarily just for the patient, either. It is a powerful tool that can be useful for families, caregivers, and children. There is no right or wrong way to start this mindful practice. Set aside 10 minutes during your day; it could be the first thing when you wake up (before you pick up your phone and start scrolling through news and emails), or it can be during your lunch break or in the evenings as part of your nighttime routine. Writing can take on many forms, such as journaling about your day, keeping a gratitude journal, or even making lists of all of the accomplishments from the day (think – opposite of a “to-do” list!). Research from the University of Rochester Medical Center suggests that writing and journaling can have numerous benefits and help: Manage anxiety Reduce stress Cope with depression It can also improve mood by: Helping you prioritize problems, fears, and concerns Tracking any symptoms day-to-day so that you can recognize triggers and learn ways to better control them Providing an opportunity for positive self-talk and identifying negative thoughts and behaviors So how do you get started? It’s simple. Set a timer and let your mind relax as you write your stream of consciousness. Don’t worry about penmanship, grammar, or punctuation. Writing helps us make sense of our lived experiences. It can help us process what we are going through as well as provide an outlet for decompressing. Whether it is journaling or writing expressive poetry, it is a beautiful and therapeutic art form that we encourage you to try! If you are stuck on what to write about, try any of these writing prompts: Three things I value about myself are….(perfect for fostering abundance and self-worth) I feel like myself when…(one of my very faves and a great way to get to know your inner self) I would love to get some support with…(if you're trying to do it all on your own, but it's just not happening) Emotional and physical health benefits of expressive writing Over the past 20 years, a growing body of literature has demonstrated the beneficial effects that writing about traumatic or stressful events has on physical and emotional health. The immediate impact of expressive writing is usually a short-term increase in distress, negative mood and physical symptoms, and a decrease in positive mood compared with controls. Expressive writing participants also rate their writing as significantly more personal, meaningful and emotional. However, at longer-term follow-up, many studies have continued to find evidence of health benefits in terms of objectively assessed outcomes, self-reported physical health outcomes and self-reported emotional health outcomes. Read More . The Power of Writing: 3 Types of Therapeutic Writing Some of us think that writing is only for writers. But writing is for all of us. As Julia Cameron notes in her book The Right to Write: An Invitation and Initiation into the Writing Life, “I believe we all come into life as writers.” Writing can be beneficial for all of us, because it can be therapeutic. One of the most powerful parts of therapy is cultivating the ability to observe our thoughts and feelings, said Elizabeth Sullivan, a licensed marriage and family therapist in San Francisco. And that’s what writing helps us do. “Most of us do not think in complete sentences but in self-interrupted, looping, impressionistic cacophony,” she said. Writing helps us track our spinning thoughts and feelings, which can lead to key insights (e.g., I don’t want to go to that party; I think I’m falling for this person; I’m no longer passionate about my job; I realize how I can solve that problem; I’m really scared about that situation.) Writing is “speaking to another consciousness — ‘the reader’ or another part of the self. We come to know who we really are in the present moment,” she said. Read More. Evidence of the Healing Power of Expressive Writing Seeking counseling from a therapist is one of the most common recommendations for people who are struggling to cope with a recent emotional upheaval or with past traumas. Yet writing therapy, or expressive writing, has proven to be a powerful, free, and easily accessible remedy for both the mind and the body. Read More. The puzzling way that writing heals the body In 1986 the psychology professor James Pennebaker discovered something extraordinary, something which would inspire a generation of researchers to conduct several hundred studies. He asked students to spend 15 minutes writing about the biggest trauma of their lives or, if they hadn’t experienced a trauma, their most difficult time. Read More.

  • Empowering Breast Cancer Survivors Through Community

    Humans are social beings. Early humans depended on the community for survival . Living in clans enabled them to share food, care for infants, and build social networks to meet the daily challenges of their environments. We’re not so different today. We forge social connections and embrace communities to learn new things, share our experiences, and give or receive support. Hardwired to Connect Extensive neuroscience research shows that humans are hardwired to connect with others. We find solace when we belong. Scientific evidence even demonstrates that mirror neurons in our brains are stimulated when we interact, making pathways in our brain light up to mirror the emotions and behaviors the other person is conveying when talking with someone. The Importance of Human Connection Maslow’s “hierarchy of needs” theory, published in 1943, argued that a person couldn’t reach fulfillment without love and belonging and that it followed closely behind basic needs, such as food and shelter. At the time, there was little scientific evidence to support his theory. However, emerging research gives his theory credibility and takes it a step further, suggesting that the human need to connect socially is a basic human need , as crucial to survival as food, shelter, and water. Even without scientific proof that humans need to be connected, the way we live our lives clarifies that humans desire a sense of community. We thrive in groups; whether belonging to a social group, a religious group, Boy Scouts, Girl Scouts, or a fitness group, we find solace by belonging. I n every culture, women have fostered and nurtured communities. From sewing circles to book clubs, sororities to professional associations, running clubs to quilting clubs, women have historically understood the power of community. While some people are quick to point out the downside of modern technology, the other side of the coin is that it can alleviate isolation for those who are unable, for various reasons, to connect in person. The pandemic made that fact clear. Social platforms such as Facebook provide people with a way to connect with like-minded people based on interests, and you can find a MeetUp online for just about any interest. The Link Between Community and Health It doesn’t just feel good to be part of a group; being connected has proven tangible health benefits. Just how powerful is a person’s social connection to health? One landmark study showed that lack of social connection is a greater detriment to health than obesity, smoking, and high blood pressure. Research has also shown compelling evidence that strong social connections can: Increase longevity by as much as 50 percent Strengthen your immune system Help you recover from the disease faster Experience lower levels of anxiety and depression Boost your self-esteem The Breast Cancer Community Receiving a diagnosis of any serious disease, such as breast cancer, can send a person’s life into a tailspin. Accessing information is essential, but equally as important is connecting with others experiencing similar things. It’s not just helpful for survivors, but their families and caretakers, too. Online breast cancer support communities provide you with an opportunity to meet other women in various stages, including some who had it many years ago and are living happy, healthy lives. Knowing long-term survivors can help you realize that breast cancer doesn’t automatically mean you’re doomed. You can also build a sense of comradeship with those at your stage who understand your fears and concerns because they’re going through a similar experience. You are never alone when you become part of our global community. Instead, you’re surrounded by others who have been touched by breast cancer. Our Thursday Night Thrivers MeetUp goes beyond a steady dose of breast cancer stories. Sure, people are generous with their personal stories and helpful hints, but it’s also a chance to form long-lasting friendships. They will support you, laugh with you, empower you, and always be by your side. Not in the mood to discuss cancer? No problem, check out our Breast Cancer Book Club™ . Connect with our community for resources and support, and know that you are not alone!

  • PTSD and Breast Cancer

    Many breast cancer patients suffer from post-traumatic stress disorder (PTSD), an anxiety disorder typically brought on by a traumatic event. Notably, PTSD can happen after any life-threatening situation, and a breast cancer diagnosis or cancer recurrence certainly qualifies. PTSD can affect one’s ability to cope with life’s daily tasks and make it difficult to function. Several years ago, while hosting an exhibit table at a pre-COVID-19 era Nurse Navigator conference in Las Vegas, we were asked to explain the function of our organization, survingbreastcancer.org (SBC). Our response was that “our programming for the breast cancer community was predicated on the ongoing needs and concerns of the breast cancer patient”. The Nurse Navigator attendees would invariably respond with further territorial probing, to which we would reply: “At SBC, we realize that the oncology teams were the primary caregivers, but that once a patient enters into the realm of post-active treatment, PTSD may begin to set in. After surveying literally thousands of survivors, we found that 'fear of recurrence' was an overarching theme.” How PTSD Emerges in Breast Cancer Patients Most newly diagnosed breast cancer patients feel like their emotions are all over the place, e.g., scared, stressed, worried, and angered. This is certainly understandable due to the physiological, psychological, and surgical impacts of the Dx. But what separates “normal” stress from PTSD symptoms? PTSD symptoms last longer than a month and may severely affect one’s daily life. Symptoms include: Memory loss (“ Chemo Brain ”) Concentration issues Nightmares or about the whole cancer experience Continuously focusing on the cancer experience Over the top irritability Emotional numbness Loss of appetite Self-destructive behavior (drug or alcohol abuse) Being startled or frightened easily PTSD symptoms may appear within 3 months of a traumatic event, last longer than a few weeks, and may severely affect daily life. But in some cases, symptoms don't appear for years after the traumatic event. How is Cancer PTSD Treated? Treatment options can include medications, such as antidepressants, and therapy to help you learn ways to cope with situations that may trigger a traumatic response. Above all, treatment and therapy help the patient understand that a disorder like this one develops because of extraordinary stress, not because of weakness. The following may help if you’re coping with PTSD brought on by breast cancer: Stick to your treatment plan Get plenty of rest/sleep Exercise regularly Eat a healthy diet Minimize caffeine and nicotine Don’t use alcohol or drugs Surround yourself with supportive people Consider joining a support group like SBC's Thursday Night Thrivers In addition, some complementary, holistic techniques have been shown to ease anxiety, stress, and fear, such as aromatherapy (my favorite is lavender), journaling, meditation, and art as healing. It also should be noted that the parents and or loved ones of patients who go through cancer treatment can also suffer from PTSD, with similar triggers and symptoms. The key is to get treatment early. Symptoms and mental distress are often long-lasting and can affect your relationships, your job, and your overall health. At SBC, we urge all to seek help before these symptoms have a chance to further disturb your life. To make sure you get the help you need, talk to your doctor right away if you’re having PTSD symptoms.

  • Diet and Breast Cancer

    Evidence-Based Recommendations For A Healthy Diet Parents spend countless hours pleading, cajoling, and even bribing their children to eat their vegetables, and for a good reason. Science makes strong connections between a healthy diet (and veggies are packed with the good stuff) and good health and chronic disease prevention . A nutritional diet even plays a role in our mental and emotional well-being . Research also tells us that individuals who follow five essential habits—eating a healthy diet, exercising regularly, keeping a healthy body weight, not drinking too much alcohol, and not smoking— live more than a decade longer than those who don’t. Maintaining these practices may help us live longer and potentially protect us from diseases , such as type 2 diabetes, cardiovascular disease, and some cancers. Unfortunately, there isn’t a magical diet that guarantees protection against breast cancer or any foods that can cure cancer. However, some foods can make your body as healthy as possible, boost your immune system, minimize your risk, and even some that may control the side effects of treatments. That being said, no one’s perfect. Sticking to a healthy diet is sometimes easier said than done, so this isn’t meant to add guilt or judgment if you stray from a healthy diet. Hopefully, this information will provide tips to make diet choices to feel better. Recommended Diet Choices Good nutrition— ensuring that your body gets the nutrients it needs—is important for everyone. However, it may be even more essential when you’re facing a breast cancer diagnosis. A well-balanced diet before, during, and after cancer treatment can help you feel better, preserve your strength, and speed your recovery. Choose Protein-Rich Foods Protein supports the body repair cells and tissue, supports your immune system, and supports recovery from illness. Good sources of lean protein include: Lean meats such as chicken, fish, or turkey Eggs Low-fat dairy products such as milk, yogurt, and cheese or dairy substitutes Nuts and nut butters Beans Soy foods Include Whole-Grain Foods Whole-grain foods are a good source of carbohydrates and fiber, which contribute to energy levels. A diet high in fiber and antioxidants is the best way to reduce your risk of breast cancer . One study even showed that a low-fat diet reduces the risk of death from breast cancer by 21 percent . Good sources of whole grain foods include: Oatmeal Whole wheat breads Brown rice Whole grain pastas Sources of Fiber There are two types of fiber: soluble and insoluble. They’re both parts of a healthy diet that can help lower your cancer risk. Soluble fiber attracts water and turns to gel during digestion, slowing the digestive process. A partial list of foods high in soluble fiber include: Oats Barley Nuts and seeds Peas Avocado Oranges Brussels sprouts Insoluble fiber helps food pass more quickly through the stomach and intestines. Examples of foods high in Insoluble fiber include: Apples Whole grains Wheat bran Eat a Variety of Foods that Provide Antioxidants Good news for chocolate lovers! While fruits and vegetables are the stars of the antioxidant food list, dark chocolate is also a good source of antioxidants! Antioxidants contain nutrients that boost your immune system and protect against free radicals, the molecules that damage tissue and lead to cancer growth. They can also block the cancer-causing effects of carcinogens and lower blood sugar and estrogen levels, slowing or halting tumor growth. For the most significant benefit, choose various colorful fruits and vegetables and strive to eat a minimum of five servings of whole fruits and vegetables daily—cook fresh fruits and vegetables for those in treatment with a weakened immune system, including: Blueberries Strawberries Artichokes Goji Berries Raspberries Kale Red Cabbage Beans Beets Spinach Choose Sources of Healthy Fat Avoid fried, greasy, and fatty foods. Instead, choose baked, broiled, or grilled foods. Healthy fats include: Olive oil Avocados Nuts Seeds Preventive Dietary Measures On the flip side, some foods are best avoided for those living with breast cancer. One study found that nutrition impacts 35 percent of all breast cancer cases . Consider the following dietary findings: Meat and Dairy: Another study specifically linked meat and dairy to an elevated risk of breast cancer . It found that women who ate as little as one-quarter of a cup of full-fat milk or dairy a day had an increased risk of breast cancer. Sugar: The link between sugar and breast cancer is inconclusive. While there is no definitive direct connection, there may be an indirect one, so it’s probably advisable to limit your sugar intake . Many foods may seem healthy but contain hidden sugar. For example, dried fruit contains much more sugar than fresh fruit. Alcoholic drinks and some diet foods may also have high amounts of sugar. It’s best to check the labels when considering your sugar intake. Alcohol: Alcohol consumption has been known to increase estrogen levels in women, and just three drinks a week is enough to increase your risk of breast cancer by 15 percent . We understand that everyone’s cancer experience is unique. Side effects due to treatments may affect your ability to follow these recommendations. If you’re struggling with any side effects, such as loss of appetite, nausea, diarrhea, vomiting, or any other nutritional concerns, your needs may be different. A registered dietitian can suggest nutrition guidelines that will be appropriate for you and your situation. We’ll keep you up-to-date as science uncovers information about the impact of nutrition on breast cancer. In the meantime, explore our guidelines for a healthy diet , and become part of our empowering community, including our Breast Cancer Survivor & Friends Meet and Greets . We’re always here for you! SurvivingBreastCancer.org Resources, Support, & Events: Nutrition And Exercise For Breast Cancer Upcoming Events Our Weekly MeetUp

  • Pilates for Breast Cancer Survivors

    By Naomi Aaronson MA OTR/L and Ann Marie Turo OTR/L 2 Experts In Breast Cancer Rehabilitation Share Their Insight Into The Benefit Of This Safe, Effective Form Of Exercise Why Pilates For Breast Cancer? Pilates is a gentle form of exercise that engages the mind, body, and spirit. The various Pilates exercises help develop muscular flexibility and strength while increasing me­tabolism and promoting lymphatic, respiratory, and circulatory func­tion. They improve balance and co­ordination and also help you relax and “get centered.” Pilates is able to meet you where you are, and it can be done throughout your life and wherever you are, even while seat­ed. For these reasons, it is an excel­lent approach to healing for breast cancer survivors. The Pilates method was first developed by Joseph Pilates to strengthen muscles, increase flex­ibility, and improve overall health. It is a mixture of yoga, martial arts, and gymnastics. He first taught his method as “Contrology,” a mash-up of Eastern and Western philoso­phies and techniques, to a small group of devoted teachers and stu­dents in the United States after emigrating from Germany follow­ing World War I. Years later, in the 1950s, Pilates used his techniques to rehabilitate dancers at his studio in New York City without receiving much recognition for his method. One of Pilates’s first protégés was Eve Gentry, whom he rehabilitated after a radical mastectomy. Eve was able to regain full use of her arm and torso, which is remark­able because all of her lymph nodes and chest muscles, as well as breast tissue, had been removed. Doctors could not believe the success that she had obtained with the Pilates method. He was a man ahead of his time. Research is now being con­ducted that documents the benefits of the Pilates method for breast cancer recovery. What are the Benefits of Pilates? Beth Mast, an occupational thera­pist and Pilates practitioner, used Pilates to recover from breast can­cer and is now using the method on her journey through living with metastatic cancer. She says that Pi­lates has always been available to her, even on really bad days. It was the only exercise she could tolerate after going through chemotherapy and becoming increasingly ane­mic, unable to stand even to brush her teeth. Here are the specific benefits Beth has found with her Pilates practice: You can do Pilates in many different positions: supine (on the back), prone (on the stomach), side-lying, standing, and seated. The exercises and equipment can be modified for any level. You will be able to use the affected arm(s) more easily and naturally because Pilates is a whole-body exercise system that includes the arms and legs in the movements. The principles help you live in the moment by keeping you focused on moving properly, with control and without momentum. Deep rib cage breathing and the multidimensional breathing patterns help ease tension, encourage lymphatic drainage, and stretch tight areas affected by scars. Pilates provides a gentle introduction or reintroduction to exercise. Pilates increases muscle strength, especially in the back of the shoulders and the middle back, where you need it after breast cancer surgery. Pilates increases your ability to perform activities of daily living as you build core strength, allowing you to more easily roll over and move from different positions. Pilates improves muscle proprioception (the reception of stimuli) and kinesthesia (awareness of the position and movement of the parts of the body by means of sensory organs) in the muscles and joints; these sensations are often lost after surgery, when nerves and muscles may have been inadvertently cut. Pilates strengthens the transverse abdominis, a muscle that is very important for back stability and strength after a TRAM (transverse rectus abdominis myocutaneous) flap or DIEP (deep inferior epigastric perforator) flap breast reconstruction procedure. Pilates can help with bladder control problems, such as stress incontinence, a common complication of menopause. Many treatments for breast cancer can induce menopause in women who are not yet meno­pausal. Pilates helps by strength­ening the pelvic floor muscles, which are responsible for bladder control. Pilates takes the focus off the damaged areas of your body and what you cannot do and rein­forces what you can do. You will appreciate all the movement your body is capable of, no matter how small or limited at first, and its capacity to heal. American Cancer Society Recommends Regular Physical Activity for Breast Cancer Survivors The ACS Guidelines on Nutrition and Physical Activity for Cancer Prevention recommend that breast cancer survivors avoid inactivity and return as soon as possible to normal activities after surgery and during radiation and adjuvant treatment (chemotherapy, hormone therapy, and/or targeted therapy). The guidelines recommend regular physical activity and strength training at least twice a week, aiming for 150 minutes of exercise per week. Physical activity offers additional benefits for breast cancer survivors: Boosts positive mood Improves physical condition and movement Improves body image Increases sexuality Decreases depression Decreases fatigue Maintains bone health We know that exercise is good for us. We just need to start somewhere and feel safe. Pilates is a gentle, safe place to begin. What Does the Research Say? The first study on the benefits of Pilates for breast cancer survivors was completed by physical therapists in 2008. It was a pilot study with only four participants, so the conclusions we can draw are limited. The researchers found that Pilates increased the flexibility of the affected arm after a 12-week program during which participants exercised three times a week. Another study, done in 2010, examined the effects of Pilates exercises on functional capacity, flexibility, fatigue, depression, and quality of life in female breast cancer patients. Pilates was performed three times a week for eight weeks. After participation in the exercises, improvements were noted in the subjects’ levels of fatigue, flexibility, quality of life, and performance on a six-minute walking test. This study proved that Pilates was safe and effective for breast cancer survivors. The most recent study, published in 2012, found that after 12 weeks of Pilates, 13 participants improved their shoulder and neck flexibility. Improvements were noted in mood, body image, and quality of life. Although volume increased on the affected arm (a sign of lymphedema), one must note that this program did not modify the exercises for the class and that the sessions increased in frequency over the 12-week period. This article was posted with permission and was originally published at awomanshealth.com. SurvivingBreastCancer.org Resources, Support, & Events: Fitness Tips For Breast Cancer Thrivers Nutrition And Exercise For Breast Cancer Upcoming Events Our Weekly MeetUp

  • Breast Cancer and The Transgender Community

    As we continue to celebrate LGBTQIA+ Pride Month, this week, we are featuring several articles and stories about transgender people who are diagnosed with breast cancer. While breast cancer is much more prevalent in those assigned female at birth, it can be found in all genders, including both transgender men and women. Below, we bring you stories of transgender people who are breast cancer survivors. These thrivers share their experiences and struggles with the life-changing news of a breast cancer diagnosis, in navigating the stigmas and misconceptions within the medical field, and in their relationships with supportive, understanding physicians and oncologists. These incredible humans are helping to advocate and educate others in their community so that future thrivers may have more supportive experiences. We also share research on the risks of cancer among transgender individuals and the LGBTQIA+ community at large. As always, let us know your thoughts and how you’d like to contribute to the discussion. Living as a Man, Fighting Breast Cancer: How Trans People Face Care Gaps Eli Oberman was 27 when he was diagnosed with breast cancer. Eight years earlier, he started taking testosterone for its masculinizing effects, but never opted for "top surgery" (breast reduction). Facing a double mastectomy to treat his aggressive cancer, he felt conflicted about receiving the surgery. “I felt guilty, able to get free surgery I didn’t want because I had cancer, and so many others want it and can’t get it,” he said. In this article from the New York Times, he goes on to discuss the challenges, stigma, and discrimination he and other transgender friends have faced in the healthcare system. Eli's physician, Dr. Asa Radix, at the Callen-Lorde Community Health Center in New York, is empathetic and understanding of the barriers that transgender patients face and why they may try to avoid the healthcare system altogether. Still, Oberman noted that he did not join breast cancer support groups for fear of not being accepted. Hopefully, by discussing these challenges more openly, we can create a more accepting community for other thrivers like Eli. Read More . Study Shows Increased Risk of Breast Cancer in Transgender Women Whether to undergo gender-affirming hormone replacement therapy (HRT) is a very personal decision for transgender individuals. There are a number of factors to discuss with one's physician before starting treatment, including a slightly higher risk of breast cancer. A 2019 Dutch study found that transgender women (people assigned male at birth, identifying as female) using hormone treatment have a higher rate of breast cancer than cisgender males (assigned male at birth, identifying as male). This finding is similar to previous studies that have found increased risk of breast cancer in postmenopausal women using HRT. However, the risk for transgender women is still lower than that of the general female population. Furthermore, since the risk of breast cancer in cisgender men is very low to begin with, even with this increased risk, the absolute risk to transgender women still remains low. Like cisgender women (assigned female at birth), transgender individuals should remain aware of the signs and symptoms of breast cancer and talk to their doctor if they have any concerns. Read More . Cancer Incidence and Survivorship in Transgender Patients A 2020 report estimates that 62,530 of the nearly 17 million cancer survivors in the United States are transgender. The researchers used 2014–2018 data from the Behavioral Risk Factor Surveillance System for the 37 states and one territory (Guam) in the United States, based on gender identity questions on their surveys. The study found that transgender men were twice as likely as cisgender men to have gotten a cancer diagnosis. However, gender nonconforming individuals and transgender women did not have a rate of cancer prevalence that was significantly different from that of cisgender men and cisgender women. While the actual rates of cancer diagnosis among transgender women are similar to those of the general population, the researchers found that transgender and non-binary people were less likely to have health insurance and were more likely to be low-income and have unmet medical needs because of the cost of care. These findings are important to health outcomes for those diagnosed. “We hope these findings are a wake-up call for health-care providers that transgender cancer survivors have complex medical needs,” said study lead author Ulrike Boehmer , PhD, Associate Professor of Community Health Sciences at Boston University School of Public Health (BUSPH). Read More. Trans Woman Urges to Be 'Proactive' After Rare Breast Cancer Diagnosis After finding a lump in her breast that would not go away, Beverly Lipscomb learned she had triple-negative breast cancer, a rare and aggressive form of cancer. As part of her cancer treatment, Beverly's doctors recommended that she stop taking her gender-affirming hormones. Having taken these hormones since she was a teen, Beverly was worried about how discontinuing their use would change her body. "Luckily for Lipscomb, the staff worked with her to make sure she felt comfortable with all the decisions, including stopping her hormones. Dr. Joshua Safer, Executive Director of the Mount Sinai Center for Transgender Medicine and Surgery, said it’s essential that transgender patients receive respectful treatment. Many transgender patients put off seeing a doctor because of worries about being misgendered or not being taken seriously. Dr. Safer said that it is important to create a medical environment that is friendlier to transgender people because the earlier that breast cancer is detected, the better the chance of saving the patient's life. Thankfully for Lipscomb, her fears were not confirmed: “Here I am, I’m Black. I’m trans and I’m going to this hospital to be taken care of, I said, ‘How are they going to receive me?’” she said. “But nothing. No kind of racism. No anti-trans anything. I was really worried. I had already built up a wall of defense.” Now, she has finished radiation and is encouraging other trans women to seek care as needed. Read Mor e.

  • Natural Remedies For Cancer Treatment Toxicities

    By Annie Appleseed Project Explore Simple, Natural Strategies As Complementary Therapy During Conventional Treatment Natural Remedies Reiki Reiki (pronounced "ray-kee") is a therapeutic technique in which healing energy is channeled, or conducted, through a practitioner's hands into the person receiving the treatment. It is believed that Reiki brings the body into emotional and spiritual balance, supporting the body's natural ability to heal itself. Yoga Yoga is used for fatigue, insomnia, depression, and general quality of life. It can reduce high blood pressure. Exercise Exercise has been studied to reduce fatigue DURING treatment with chemotherapy and radiation therapy. Examples: Walking, biking, swimming, etc. Aromatherapy Aromatherapy is used for nausea (being taught at MD Anderson Cancer Center in Houston, TX). It can stimulate lymphatic flow, reduce fatigue, and anxiety. Examples: Lavender for headaches, insomnia, and high blood pressure Orange for insomnia, constipation, depression, and anxiety Peppermint as a digestive aid Rosemary for fatigue Ylang-Ylang for calming Acupuncture Acupuncture is used for reducing nausea, fatigue, keeping blood counts normalized, and much more. Protection for Radiotherapy Curcumin In vitro studies showed that curcumin increases tumor cell apoptosis, decreases cell growth rate, and reduces the number of clonogenic cells in a dose-dependent manner. Hiroshi Inano at the Research Center for Radiation Safety, National Institute of Radiological Sciences, Japan, says the results are very interesting and that he hopes to be able to use curcumin in clinical applications, particularly given its low toxicity and strong antioxidant activity. (12/10/2002; Lancet Oncology) Calendula Calendula is highly effective for the prevention of acute dermatitis of grade 2 or higher and should be proposed for patients undergoing postoperative irradiation for breast cancer. (Journal of Clinical Oncology, Vol 22, No 8 (April 15), 2004: pp. 1447-1453) Abana Treatment of mice with abana before irradiation caused a significant depletion in lipid peroxidation, followed by a significant elevation in GSH concentration in the liver of mice at day 31 post-irradiation. Abana scavenged •OH, DPPH, ABTS•+, and NO• in a concentration-dependent manner in vitro. Our results indicate that the radioprotective activity of Abana, a polyherbal drug, may be due to free radical scavenging and increased GSH level in irradiated mice. (British Journal of Radiology (2004) 77, 1027-1035) Tea Extracts Tea extracts are an efficient, broadly available treatment option for patients suffering from acute radiation-induced skin toxicity. “The molecular mechanisms underlying the beneficial effects are complex, and most likely not exclusively dependent on effects of tea polyphenols such as epigallocatechin-gallate.” (BMC Medicine 2006, 4:28 doi:10.1186/1741-7015-4-28) Remedies for Insomnia Poppy Seeds: Include poppy seeds in your diet; they are a natural sleep aid. Pumpkin Seeds: Pumpkin seeds are “more likely to attract the sand man than warm milk, a book, or Lavender scents on the pillow." Butternut Squash Seeds: Like turkey, butternut squash seeds and pumpkin seeds have high concentrations of the compounds that tend to make guests sluggish after a Thanksgiving meal. Herbs: Herbs such as magnesium and skull cap valerian with calcium are great remedies for insomnia. Massage & Baths: Self-massage, starting with the soles of your feet. Hypnotize yourself, feel total relaxation, and then move on up. Take a warm bath in which you add a couple of drops of one or more essential oils, such as orange blossom, meadowsweet, or hops. (Dana Ullman, Homeopath) Blankets: Wool blankets are better able to regulate skin and body temperature than synthetic blankets. A comfortable comforter may help you sleep better. Honey: Taking 1 teaspoon of raw, organic honey before bed may help you sleep better. Mantra: A mantra is usually a one or two-syllable word that you repeat over and over and over again. You use it as a way to calm the mind. Using a mantra can also clear the mind and encourage sleep. Music: Use music to relax. Neuropathy Artemin “Our results indicate that the behavioral symptoms of neuropathic pain states can be treated successfully, and that partial to complete reversal of associated morphological and neurochemical changes is achievable with artemin." (Nature Medicine November 2003 Volume 9 Number 11 pp 1383–1389) Vitamin B12 Vitamin B12 can help! "The recommended daily allowance for vitamin B12 is 2.4 micrograms. Huge doses of vitamin B12 can penetrate the intestinal wall. (But) B12 deficiency is an uncommon cause of burning feet." (From an article by syndicated columnist Dr. Paul Donohue, To Your Health, in the Palm Beach Post.) Urea "Urea-containing preparation appears to be an excellent choice for the prevention and treatment of capecitabine-induced hand-foot syndrome. This minimizes drug delays, schedule interruptions, and maintains the dose density. Owing to reduced morbidity, the drug tolerance and acceptance is considerably improved.” (ASCO 2004 Abstract No: 8105) Oral Glutamine Oral Glutamine is “effective for preventing Oxaliplatin-induced Neuropathy in Colorectal cancer patients." (The Oncologist, Vol. 12, No. 3, 312-319, March 2007; doi:10.1634/theoncologist.12-3-312) Acupuncture A study published in a recent issue of the Journal of Alternative and Complementary Medicine has found that acupuncture can reduce pain and peripheral neuropathy in HIV-infected individuals, especially when treatment is directed at a patient's specific symptoms. (Journal of Alternative and Complementary Medicine 2004;10(3):449-455.) Acetyl-L-Carnitine While nerve conduction velocity did not improve, vibration perception increased. Clinical symptoms also improved in groups treated with acetyl-L-carnitine compared to placebo. Participants who received 1,000 milligrams of acetyl-L-carnitine thrice daily demonstrated significant improvement in pain at the study’s midpoint and conclusion. Vitamin E Neuroprotective Conclusion: “Supplementation of patients receiving cisplatin chemotherapy with vitamin E decreases the incidence and severity of peripheral neurotoxicity.” (Journal of Clinical Oncology, Vol 21, Issue 5 (March), 2003: 927-931) Nausea Ginger, ginger, ginger – recent studies PROVE it! Use it, even if on meds. This article was shared with Annie Appleseed Project's permission and was originally compiled from studies and articles that can be found on www.annieappleseedproject.org. SurvivingBreastCancer.org Resources, Support, & Events: Positive Thinking For Healing Fitness Tips For Breast Cancer Thrivers Nutrition And Exercise For Breast Cancer Upcoming Events Our Weekly MeetUp

  • Experimental Breast Cancer Vaccines

    Cleveland Clinic Breast Cancer Vaccine This past year, we have seen firsthand the life-altering effects that vaccines can provide. The COVID-19 vaccine offered a sense of relief, hope, health, and normalcy to people all over the world. Given all the positive impacts that vaccines provide, it seems only natural to explore the vaccine potential in other diseases, particularly breast cancer. In December of 2020, the Cleveland Clinic and Anixa Biosciences received the news that their ground-breaking triple-negative breast cancer vaccine had received the Food and Drug Administration (FDA) approval to begin clinical trial testing in humans. Triple-negative breast cancer (TNBC) makes up about 10% of all breast cancers and usually has a poorer prognosis than other types due to its aggressive nature. While researchers have spent years working on a breast cancer vaccine, the Cleveland Clinic vaccine marks the first vaccine to receive FDA approval, and testing could begin in humans as early as this year. How the Vaccine Works The vaccine works by immunizing patients against the alpha-lactalbumin protein, which is a protein that is expressed in a woman’s mammary glands when they develops breast cancer. Once vaccinated, the immune system is trained to attack and destroy the cells that produce the alpha-lactalbumin protein. The goal is for the immune system to recognize the cells before they can reproduce and eventually become a tumor. Pre-clinical trials of the vaccine conducted on animals have been promising, with one study on female mice showing that every single one that didn’t receive the vaccine eventually developed breast cancer and died. The Future of Breast Cancer Vaccines The Cleveland Clinic hopes that if their vaccine proves safe and effective, there is potential not only to effectively inhibit the emergence of TNBC but also to apply the vaccine to other forms of breast cancer. While the trials are still in their beginning phase, and there is no set timeline for when the vaccine could become widely available, it is a monumental step towards a future without breast cancer. As always, let us know your thoughts and how you’d like to contribute to the discussion. Resources: https://www.verywellhealth.com/breast-cancer-vaccine-greenlit-clinical-trials-5094403 https://electronichealthreporter.com/can-this-promising-vaccine-really-stop-breast-cancer/ https://www.miamiherald.com/news/health-care/article250974549.html https://geneticliteracyproject.org/2021/03/16/could-there-ever-be-a-vaccine-for-breast-cancer/

  • Cancer as a Parent and Support for Children

    Receiving a breast cancer diagnosis is difficult, and for those with children, concern for how this will impact their children can be an added layer of concern. This month, we are launching #PinkKids , a resource to support kids and teens whose parents have been diagnosed with breast cancer or have passed away because of breast cancer. This initiative was started by the incredible Kyla Thompson, who lost her own mom to metastatic breast cancer. You can listen to her story about losing a parent to breast cancer in our podcast conversation . As part of our MBC Sunday Webinar series, we broach these topics (and more)! Download the PDF on anticipatory grief and listen to part I and part II of our podcast on how these moms explain breast cancer to their children, and then the questions that still linger from a child's perspective. In the articles below, we share resources on how to talk to your children about your breast cancer diagnosis, which may differ depending on their age, and how to provide the emotional support they need during such a challenging time for the whole family. When a Parent Has Cancer, Children Are Often the Forgotten Victims (Healthline) "Cancer affects the entire family. But the emotional and psychosocial impact on a child whose parent has cancer often goes unnoticed and unattended. The American Cancer Society estimates that about 1.7 million adults will be diagnosed with cancer in 2016. That leaves 749,000 children under the age of 18 years old who will be affected this year. It is estimated that nearly 3 million children under the age of 18 are currently living with the challenge of coping with a parent who has cancer." In this article from Healthline , parents and grandparents who have or have had cancer share how their families have navigated the added stress and worry on children that a cancer diagnosis brings. Read More. The System Often Forgets Children of People with Cancer: Here’s How to Help Them (Psychlopaedia) "For a parent, talking to children about their cancer may be the only thing more difficult than facing their own diagnosis. But open and honest communication about cancer’s impact can help everyone cope better." "Providing young people with information – including diagnosis, medical tests, treatment, side effects, likely outcomes, and chances of recovery – in a family environment that fosters open communication is one way parents can support their children." Explore for more tips on how to talk to teen and young adult children about your cancer diagnosis. Read More. What It’s Like to Get Cancer as a Parent: ‘I Began Planning Out My Next 5 Years’ (Global News) "Just trying to be a parent can be tough as well. 'This may be the result of your body being exhausted from treatment or wanting to make sure your child has an enjoyable time with you,' says Erlanger Turner, a licensed psychologist and assistant professor of psychology at Pepperdine University in Los Angeles. Some parenting styles also change, he notes, and parents become more laid back. But it is still important for parents to discipline their child for inappropriate behavior or breaking rules." Turner also states, "Children may exhibit different behavior to cope with their parents’ cancer, such as anxiety, anger, or behavioral problems at school." Working with a licensed mental health professional may help you and your family cope with your diagnosis and improve your relationship with your child. Read More. Supporting Your Young Child When You Have Breast Cancer (Halza) "Children are able to sense when their parents are stressed or when something is wrong, although young children might not be able to verbalize it. Unless your child is an infant, it may be best to bring up the subject before they invent their own completely misguided story about why Mommy is acting differently." This article provides advice on how to explain your diagnosis, treatment, and what this change means for your child, all in an age-appropriate way. "Conversations about treatment should continue after the initial conversation. Providing too much information at once, especially to younger children, will not be effective. However, as expected side effects are about to happen, it is important to tell your child so that they are not surprised at hearing Mommy vomit or seeing her hair fall out. Tell the child that even though Mommy seems sicker, it is actually part of getting better. Tell your child that cancer is not contagious and that we don’t know why some people get it, but the child had nothing to do with it." Read More.

  • Breast Cancer and Budgeting

    A breast cancer diagnosis is not only emotionally overwhelming—it can also carry an enormous financial burden. From tests and treatments to lost income and unexpected costs, the price of breast cancer goes well beyond the clinic. Understanding these expenses and learning how to manage them can help ease one of the many stresses that come with a diagnosis. The True Cost of Breast Cancer The financial impact of breast cancer varies depending on the stage of diagnosis, insurance coverage, type of treatment, and geographic location. On average, the cost of treatment for breast cancer can range from $20,000 to over $100,000 in the first year alone. This can include: Diagnostic testing : Mammograms, biopsies, MRIs, and genetic testing can cost hundreds or even thousands of dollars. Surgery : Lumpectomies, mastectomies, and reconstructive surgeries may require hospitalization and multiple procedures. Chemotherapy and radiation : These treatments are not only lengthy and intensive, but also costly, especially if administered over several months. Targeted therapies and immunotherapy : Newer, more personalized treatments can be highly effective—but also significantly more expensive. Hormonal therapy : For some patients, medication may be prescribed for 5–10 years post-treatment. Follow-up care and scans : Even after active treatment, ongoing appointments, imaging, and lab tests add up. Medical bills are just the beginning. Many people diagnosed with breast cancer face non-medical costs as well: transportation to appointments, wigs and prostheses, specialized bras, dietary supplements, mental health counseling, and more. For those who need to reduce work hours or take unpaid leave, lost income becomes another stressor. In case you missed it on Monday, we have a stellar podcast episode with Dianne Webb, CFP, all about financial planning. She breaks it down in easy and relatable ways! Creating a Medical Budget Taking control of your finances after a breast cancer diagnosis can feel empowering. Here are some tips to help you get started: 1. Understand Your Insurance Take time to understand your health insurance plan—what’s covered, what’s not, and what your out-of-pocket maximum is. Be aware of deductibles, co-pays, and whether you need pre-authorization for certain treatments. Call your insurance provider and ask for a case manager —someone who can help explain benefits, track claims, and serve as a point of contact throughout your treatment. 2. Estimate and Track Costs Ask your healthcare team for a treatment plan with projected costs. Create a spreadsheet to track: Medical appointments Prescriptions Lab work and imaging Out-of-pocket costs Insurance payments and balances Being organized helps you stay on top of bills and spot errors. 3. Explore Financial Assistance Many patients are unaware of the financial assistance available. Start by speaking with your hospital’s social worker or financial counselor. They can help you: Apply for charity care or hospital financial aid programs Access co-pay assistance foundations (e.g., PAN Foundation, CancerCare, The Assistance Fund) Find nonprofit grants (such as SurvivingBreastCancer.org ’s support resources) Pharmaceutical companies also often offer assistance programs for costly medications. 4. Budget for Non-Medical Needs Transportation, meals during treatment, childcare, and help with daily chores can add up. Consider including these categories in your budget: Gas, parking, or rideshare to appointments Prepared meals or grocery delivery In-home care or cleaning services Mental health services and support groups If friends or family ask how they can help, point them toward gift cards for essentials or services that will ease your load. 5. Plan for Work Interruptions Talk to your employer about medical leave, FMLA (Family and Medical Leave Act), or short-term disability. Understand your rights, and don’t be afraid to ask for flexibility. If you’re self-employed, consider applying for temporary financial assistance or crowdsourcing platforms like GoFundMe to bridge income gaps. Budgeting won’t eliminate the stress of cancer—but it can give you back a sense of control in a time that often feels uncertain. Content Across The Web Budgeting 101 and Breast Cancer ( Rethink Breast Cancer ) “Budgeting is understanding your income and your expenses. What comes in, and then what goes out. When serious life changes happen, the earlier we can adjust our spending to reflect our financial realities, the less of a mess we’re creating for ourselves later on. Taking it step-by-step and starting early will prevent adding [more] stress later.” Once you know how much you’re already spending, start thinking about additional expenses that should be added to your budget, like travel during treatment, medication, lost income from your partner’s time off work, etc. Talking to your doctor and insurance company as early as possible is important to help better understand how much these expenses will be. From there you can start planning how you will pay for them, whether that is from existing savings or borrowing from a bank. Read More. Managing Finances When You Have Breast Cancer ( Very Well Health ) You don't need to navigate this unfamiliar space alone. Financial counselors and oncology social workers are well-versed in the expenses that come along with a cancer diagnosis and can help you come up with a payment plan and better understand your insurance coverage. "Most cancer centers have social workers on staff. If yours doesn't, you can get free help from CancerCare." Disability insurance is also something to consider and is best to look into as early as possible. "Loss of income is one of the greatest concerns for those facing breast cancer, especially metastatic. If you have recently been diagnosed, it may feel like it is too early to consider disability insurance. It's not. This is another issue better dealt with before it's needed. You may have disability insurance through your work or through a private policy, or you may need to consider Social Security disability. Since the process of applying for social security disability is lengthy, the best time to apply is as soon as you need it. " Read More. Managing The Known and Hidden Costs of Breast Cancer ( Money Under 30 ) Knowing all the associated expenses that come with a cancer diagnosis can help plan and budget for them as they arise. Some expenses are more obvious, like treatment, mastectomies, and breast reconstruction surgeries. But there are some additional "hidden" costs you may not have accounted for: Transportation Insurance copays and/or out-of-pocket expenses Medications and nutritional supplements Extra childcare Time off for yourself Time off for your family members. Read More. Tips For Choosing A Financial Planner ( BreastCancer.org ) As mentioned above, a financial planner can help you navigate the expenses that come with a breast cancer diagnosis. Here are some tips to choose the right financial planner for your situation. "If you’re concerned about affording a financial planner, see if your care team or social worker can recommend someone who provides pro bono (free) or reduced-fee services for people with cancer. If cost isn’t a major concern, you can search for a Certified Financial Planner™ in your area through the Financial Planning Association . There are other organizations with searchable databases as well, such as the National Association of Personal Financial Advisors and the Society of Financial Service Professionals . In addition to finding a professional who is certified, you’ll want to know that he or she has experience helping people deal with the unique financial challenges that serious illness brings. Read More.

  • Art and Cancer

    If you joined our Summer Soirée last month, you'll likely remember that we included a rock painting activity, or perhaps you participated in our recent Creative Legacy Projects event. These both serve as great examples of how you don't need to be a museum-worthy artist to enjoy the relaxation benefits of art. There are so many mediums to explore: painting, sketching, sculpting, photography, poetry, compositional writing, and mixed-media collages. These are all ways to document your breast cancer journey or to process and release the emotions you are feeling. A particularly enjoyable way to tap into your artistic side and connect with friends at the same time can be a paint night. Many venues (preferably outside with this Pandemic still raging), host these events where you can enjoy a cocktail (or mocktail!) while a professional artist leads you and your friends through a simple painting like a landscape or still-life. It's so fun to see how everyone's interpretation of the same image is a little different. And you end up with a keepsake of your evening out with friends! Win-win! Content From SBC Writing As A Therapeutic And Creative Outlet Writing can serve as a therapeutic and creative outlet. More specifically, journaling offers opportunities for expression and reflection and can help those going through a cancer diagnosis process the emotions and loss that come with the territory. Writing isn’t necessarily just for the patient, either. It is a powerful tool that can be useful for families, caregivers, and children. Podcast Episode #30: The Art of Healing with Dr. Carole Weaver Upcoming Event: A Space for Expressive Writing with Thomas Join us for a 75 minute writing workshop, led by the incredible Thomas Dooley. After reading a few poems, participants will be invited to reflect on, write, and share their own personal narratives in a supportive and safe space. Join Us. Content Across The Web Art Therapy for Coping with Metastatic Breast Cancer: What to Know ( Healthline ) “Art therapy uses creative activities to help people with any type of health condition work through challenging thoughts and feelings. Also called expressive arts therapy or creative arts therapy, it’s based on the philosophy that art can be a tool for emotional healing." Some benefits of art therapy include: decreased symptoms of distress increased ability to cope with breast cancer reduced signs of depression improved quality of life promoted positive body image lowered rates of anxiety Read More. How nature helps empower people going through cancer treatment ( UCLA Newsroom ) As we wrote about in another recent Feature Friday, nature can be very beneficial emotionally and psychologically for those going through breast cancer treatment. However, this isn't always accessible to everyone. The Tree of Life Fulfillment workshop at UCLA's cancer center combines imagery of trees with art therapy and mindfulness to help patients cope with cancer diagnoses. Participants both imagine themselves as having the strength and groundedness of a tree, as well as draw the trees or forests they are visualizing. Read More. A pilot study of improved psychological distress with art therapy in patients with cancer undergoing chemotherapy ( BMC Cancer ) A 2020 study examining the benefits of art therapy for patients undergoing chemotherapy for a variety of types of cancer found that "art therapy improved the emotional distress, depression, anxiety, and pain among all cancer patients." "Each art therapy session encouraged the patient to engage their creative side and employed consistent, standardized art therapy practices aimed to engage the mind, body, and spirit of the participant. Each participant was allowed full freedom of materials to work with, including supplies for painting, drawing, clay work, and collage construction. Sessions concluded with an art therapist-guided patient reflection on their own art." Read More. Earliest Images of Breast Cancer Found in Renaissance Paintings ( Smithsonian ) A study from 2018 used Renaissance art to examine the prevalence of breast cancer in centuries past. "Raffaella Bianucci and Antonio Perciaccante, two co-authors of a new study published in the journal The Lancet: Oncology tell Maarten Rikken at ResearchGate that there's a perception that breast cancer is a modern disease. As the thinking goes, lifestyle, longevity and other factors have made the cancer much more prevalent in the industrial age. But recent research is showing that the disease was quite common all the way back to antiquity." In "The Night" by Michele di Ridolfo (seen above), the woman's left breast is smaller than the right and her nipple is retracted, all signs of cancer. Other paintings, such as "The Allegory of Fortitude" by Maso da San Friano, show other symptoms of breast cancer, although experts say it is unlikely that the artists at the time knew what these deformations indicated; rather they just painted what they saw. Read More.

  • Breast Cancer Awareness Month Survival Guide

    To be frank, and at the risk of being cliché, Breast Cancer Awareness Month is the best of times and the worst of times. People can feel empowered and supported with an outburst of community engagement, such as walks, runs, and even pink ribbons plastered on everything from public transportation to egg cartons at the grocery store! However, there are others who would rather hibernate for the next 31 days and reemerge on November 1, once the outpour of pink has dissipated. At the height of community discourse on diversity and inclusion, how does that translate into the important work taking place within our breast cancer network? Let's be cognizant of the language we use this month, how we can support the multitude of emotions that October may trigger, and take that extra step in compassion and empathy. Some people love pink and all that the ribbon represents. For others, it can feel quite marginalizing. Let's not only celebrate those who are SURVIVING, day in and day out, but let us remember all of our friends, and members of our vaunted breast cancer community that we have lost to this hideous disease. If you would like to honor a friend or a loved one who has passed to MBC by sharing their story in remembrance, please consider submitting an article and photos that we can honor and acknowledge at SBC! Please send submissions to Desiree at dleroy@survivingbreastcancer.org. Below is a survival list for Breast Cancer Awareness Month. Mindfulness Tips Sparkly pink survivor sashes can certainly be a badge of honor, but let's remember that not everyone identifies with being a "survivor". Let's follow the money when making donations in the name of Breast Cancer Awareness. Make sure you know how your money is being spent. Let's remember that if we start with finding a cure for metastatic disease, which is a terminal illness and takes lives, everyone else with earlier-stage breast cancer will benefit. Let's check in on each other. Let's share the diversity we enjoy within our breast cancer communities. Let's unite. Let's partner. Let's take Awareness and strive for Action and Advocacy . Advocating for Yourself It is important to advocate for yourself at every step of your diagnosis: whether you want a second opinion on a symptom you think could be breast cancer, or want to get more information about all of the available treatment options. Remember, you are your own best advocate and need to speak up when something doesn’t feel right or you want to make better-informed decisions. Your doctors and care team all want what's best for you. At the end of the day, however, it’s your body and you will feel more empowered. Connect with Others in the Breast Cancer Community Consider participating in a number of events and programs being offered this month through our organization. October for SBC is business as usual with a few additional bells and whistles. Join us for our Thursday Night Thrivers meetups, attend one of our Movement Monday sessions, or our upcoming Writing as Healing workshop on October 11. Cozy up with a book and join us for our Breast Cancer Book Club meeting on Sunday, where we pick readings that have absolutely nothing to do with cancer! If you are looking for some of those bells and whistles events, head to Chicago, where we are hosting two fundraisers: a burlesque show and watercolor painting workshop! Check out everything that is happening this month here! Give Voice One of the most powerful ways to navigate BCA Month is to give voice to your experience. This can be done through social media, posting on Twitter, or even being a guest on a podcast. You may find that writing about your experience is the perfect outlet for letting the world know what BCA month means to you, whether or not you love this month! We've developed a list of 20 writing prompts, and if you are interested, we'd encourage you to share with our community! Read on for more from survivors and healthcare professionals explaining why self-advocacy is so necessary, their experiences advocating for themselves, and tips on how you can do the same. From SurvivingBreastCancer.org Podcast Episode 72: How To Self-Advocate Q & A with Liz Mover How to self-advocate is a topic that comes up often among those diagnosed with breast cancer. We are always telling each other that we have to advocate for ourselves, but really, what does that mean? How can we do it, what are the tools we need, and why are we so concerned about hurting our oncologists' feelings? Listen Now. Breast Cancer Stories: A Call For Self-Advocacy "I cannot stress the importance of getting a second opinion! ... My first breast surgeon gave me the news that I had cancer and the choice to keep my “healthy” breast. They didn’t explain my condition or their plan of action the way that I expected. In fact, the 8 minutes I sat with them was not enough time to explain very much at all about anything. As a result, I went for a second opinion, and it was a completely different experience. This breast surgeon spent over an hour explaining the type of breast cancer I had, what it meant, gave a detailed course of action, and was empathetic that I had to face this at such a young age. I hope to be a voice that raises awareness that breast cancer can happen to healthy young women, too! Awareness and early detection are so important, so never ignore your symptoms! Know your body, and if something’s off, GET IT CHECKED OUT!" Read More. Content Across The Web Breast Cancer Detection: 4 Ways to Practice Self-Advocacy ( Healthline ) Advocating for your health helps you get the care you need and make important decisions regarding your well-being. Persevere for prompt and proper care: If you have to wait months to be seen, look around to see if other clinics in your area could see you sooner. Consider a second opinion: In addition to persevering for access to care, it’s vital to explore all potential treatment avenues. Since breast cancer is treated differently depending on your situation, it’s important to seek another opinion on the best course of action. If you get the same (or similar) recommendations from another physician, you can feel fairly confident it’s the best plan for you. Ask trusted loved ones for help: The presence of a friend or family member at doctors’ appointments can ease the burden of obtaining so much information — especially at the first few appointments. Ask questions to get what you need: Asking questions is important because it ultimately helps you make the right choice for you. Read More. The Healing Power of Self-Advocacy ( National Breast Cancer Foundation ) “If you want to get good care and live as fully as possible during and after cancer treatment, you must advocate for yourself to your healthcare team. Your physicians and nurses can respond with expertise and compassion only if they understand what you’re experiencing and worrying about. Here’s the thing: They depend on you to tell them. I know this as both a 25-year cancer survivor and a physician. In my office, despite my efforts to encourage patients to share everything, occasionally, patients kept their symptoms, concerns, or questions to themselves. Their silence both frustrated and puzzled me. Then my cancer diagnosis yanked me to the other side of the stethoscope, where I found myself hesitating to tell my physicians about certain symptoms or worries. Insights and affirmations—and practice! —have helped me overcome common obstacles to self-advocacy. ... Cancer care is a shared mission. Through self-advocacy, we enable our physicians and nurses to provide us the best care, which increases our chance of achieving the best possible outcome today, tomorrow, and every day.” Read More. How to Be Your Own Advocate as a Cancer Patient ( Verywell Health ) “It's not just your health you may need to advocate for, but your pocketbook as well. With the vast variety of insurance plans, most of which have different limits and tiers of treatment, your choices for a treatment plan may go beyond your personal preferences. Talk with your insurance company about any areas that leave you feeling uncertain, and ask for your case to be reviewed if you think you fall under an exception to one of the rules. If you don't understand your bill or see charges you don't expect, don't just accept it. Make a phone call. Sometimes silly mix-ups can cause an insurance claim denial , even something as simple as having your birth date entered incorrectly on a clinic form. Check out these tips on how to fight an insurance claim denial . Some people may wish to consider hiring a medical billing advocate when overwhelmed with the whole insurance process. You may not understand your bills, be swamped with those your insurance is refusing to pay, or be so ill that the thought of sorting through those papers is just too draining.” Read More. Self-Advocacy: Navigating Through Uncharted Territory When You Get Sick ( Rethink Breast Cancer ) “Know your rights. Even though you’re a patient, you still have rights. The internet is so overwhelming that it’s often hard to filter out the helpful sites from the not-so-helpful sites. Rethink Breast Cancer has developed a set of 10 care guidelines for newly diagnosed women. Having someone on the ‘inside’ is also helpful . Depending on where you are treated, there may be a nurse/patient navigator who is there to guide you through your cancer journey. This person may be able to help with setting up appointments, answer your questions, or just be there to listen. Sometimes you are referred to a navigator and sometimes the onus is on you to seek one out. At your first appointment, ask if there is a navigator available to assist you with questions you may have or in making difficult treatment choices. And speaking of questions… There are no dumb questions! Write down questions as they pop into your head, then a day or so before your appointment, go over the questions to make sure you aren't missing anything. Some patients feel like they are taking up too much of the doctor’s time if they have a laundry list of questions to ask. You may want to confirm with your doctor at the beginning of your appointment how much time you have. Let the doctor know that you would like to take 10 minutes at the end of the appointment to answer any questions you have that may not be covered during the appointment.” Read More.

  • Supporting Caregivers

    A breast cancer diagnosis affects more than just the patient. Caregivers of those with breast cancer have their own new challenges to face: increased stress, losing sleep, worry for your loved one’s health, and scheduling challenges of accompanying your loved one to doctors’ appointments. As the spouse/friend/daughter/son/parent of someone with breast cancer, it’s easy to put your own health and well-being on the back burner and think you shouldn’t complain or prioritize yourself, because the struggles you are facing are “small” compared to those of the person with cancer. However, you do need to take the time to support your own wellbeing so that you can fully show up as the best caregiver you can be. Like they say on airplanes, you have to put your own oxygen mask first before helping others. At survivingbreastcancer.org, we have resources available for caregivers and families of those with breast cancer. From SurvivingBreastCancer.org Podcast Episode #111 Complicated Grief and Caregiver Bereavement | The Caregiver Perspective In this episode, we speak with Andrew Silver, Jimmy Boratyn, and Christian Garnett, who have all lost their beloved wives to metastatic breast cancer (MBC). This is part II of our discussion, where we get into the coping strategies that these men turned to as they stress the importance of making time for yourself so that you can be strong for others. Andrew, Jimmy, and Christian also describe in great detail the passing of their wives, Sonya, Melissa, and Emily. Listen Now. Therapy and Breast Cancer A past Feature Friday focused on the benefits of therapy. This is equally important for caregivers as it is for patients. Mental health professionals such as social workers, psychologists, and psychiatrists are trained to help people work through the spectrum of emotions you may be feeling. Read More. Content Across The Web If You’re About To Become A Cancer Caregiver ( American Cancer Society ) Being a caregiver for a loved one with breast cancer is a large responsibility, but it can also be very rewarding and strengthen your bond with the person you are caring for. The American Cancer Society shares advice about what is important to know as you take on this role. “You might find that caregiving enriches your life. You might feel a deep sense of satisfaction, confidence, and accomplishment in caring for someone. You may also learn about inner strengths and abilities that you didn’t even know you had, and find a greater sense of purpose for your own life. ... Caregiving can also be frustrating and painful. People caring for very sick patients may notice their own feelings of severe sadness and emotional distress. They may feel sadness and grief over their loved one’s illness and may also feel overwhelmed or frustrated as they try to manage many difficult problems.” Remember, this job doesn’t have to be all on you. “Most importantly, don’t try to do it all yourself. Caregiving alone for any period of time is not realistic. Reach out to others. Involve them in your life and in the things you must do for your loved one. Some caregivers feel they have to do it all alone. They may believe that, as the partner, sibling, son, or daughter, they’re responsible for the sick loved one. It’s painful for them to admit that they can’t do it all and still keep their own health and sanity. They’ll bend over backward to meet their loved one’s every need. Some feel guilty if they can’t do it all and say they feel ‘selfish’ if they ask for help. Set realistic limits on what you can do. For instance, if you have a back injury, and/or if your loved one is too big for you to lift, you may be able to help them roll over in bed, but don’t try to lift them alone or catch them when they fall. (You may end up seriously injured or sick and become unable to help anyone.) This is where expert help is needed – home care nurses or physical therapists can show you how to do it safely.” Read More. Support For Caregivers of Cancer Patients ( NIH National Cancer Institute ) Taking time to recharge your mind, body, and spirit can help you be a better caregiver. You may want to think about the following: Make Time for Yourself: Dedicating time to yourself is not selfish, even when donning the role of caretaker. Your loved ones need you at your strongest, and 'you-time' can provide you with the release you need to continue caring. Join a Support Group: Support groups can meet in person, by phone, or online. They may help you gain new insights into what is happening, get ideas about how to cope, and help you know that you're not alone. In a support group, people may talk about their feelings, trade advice, and try to help others who are dealing with the same kinds of issues. Learn More about Cancer: Sometimes understanding your cancer patient’s medical situation can make you feel more confident and in control. It may help you to know what to expect during treatment, such as the tests and procedures that will be done, as well as the side effects that will result. Talk to Others about What You're Going Through: It's especially helpful when you feel overwhelmed or want to say things that you can't say to your loved one with cancer. Try to find someone you can really open up to about your feelings or fears. You're allowed to feel angry, frustrated, or overwhelmed. Write in a Journal: You might write about your most stressful experiences. Or you may want to express your deepest thoughts and feelings. You can also write about things that make you feel good, such as a pretty day or a kind coworker or friend. Be Thankful: You may feel thankful that you can be there for your loved one. You may be glad for a chance to do something positive and give to another person in a way you never knew you could. This doesn't mean that caregiving is easy, stress-free, or not frustrating. But finding meaning in caregiving can make it easier to manage. Read More. Effects of a psychosocial intervention on the quality of life of primary caregivers of women with breast cancer ( European Journal of Oncology Nursing ) Most breast cancer treatment today is given in outpatient treatment centers rather than in hospitals requiring inpatient stay. While this means that the patient can maintain more of their regular routines and enjoy the comfort of their own home, it also means that more of the day-to-day responsibilities fall on caregivers. This additional burden can take a real toll on the caregiver’s quality of life. Receiving adequate support and connecting with other caregivers can be beneficial for your mental well-being. A Nigerian study, published in 2019, found that caregivers who received a psychosocial intervention, which included weekly educational sessions on information about breast cancer, the emotional aspect of caring, adjustment to the role of caregiver, and communication strategies, had better quality of life outcomes than those who did not. You can implement this principle in your own life by joining support groups for cancer caregivers. Your loved one’s oncology center may be able to direct you to local resources. Read More. Coping strategies and quality of life in women with advanced breast cancer and their family caregivers ( Psychology & Health ) "Coping with advanced breast cancer is a challenge for both women and their family caregivers. The primary purposes of this study were to compare coping strategies used by patients with advanced breast cancer and their family caregivers and to examine how those strategies related to patient and caregiver quality of life. The sample consisted of 189 patient-family member dyads with advanced breast cancer. Profile analysis showed that patients reported greater use of emotional support, religion, positive reframing, distraction, venting, and humor coping, while family members reported greater use of alcohol/drug coping. Regression analyses showed that among both patients and family caregivers, active coping was associated with higher quality of life, and avoidant coping was associated with lower quality of life. In addition, the patient’s level of symptom distress moderated the relationship between coping and quality of life. The negative relationship between family caregivers’ avoidant coping strategies and family caregivers’ mental quality of life was strongest when patients had low levels of symptom distress and weakest when patients had high levels of symptom distress." Read More.

  • Male Breast Cancer Toolkit

    Although much more rare than breast cancer in women, breast cancer does occur in men too. On top of the stress any cancer diagnosis brings, men diagnosed with breast cancer often report feeling more shame and stigma for having what is often thought of as a “women’s disease.” Additionally, many men feel disconnected from the pink ribbons and “pink-washing” of breast cancer awareness, and the primarily female support networks of patients and survivors. This has led to the creation of the male breast cancer awareness ribbon, which is pink with blue, like the one shown above. Read on for how to connect with other male breast cancer survivors, and information about risk factors, symptoms, and treatment of male breast cancer. Please reach out if you or a man in your life would like to share about your experience with male breast cancer. From SurvivingBreastCancer.org Men Do Get Breast Cancer, Even Me “​​Men don’t get breast cancer, right? Especially males like me who have always taken pride in taking decent care of oneself. Males like me don’t get breast cancer who have spent 24 years selling to medical professionals in the pharmaceutical healthcare industry. Males like me don’t get breast cancer who carefully invest and plan so well for retirement and now active as an Independent Medicare Healthcare Consultant. Darn! Guess what? It happens and yes, why not me? Men do get breast cancer, even me. Thank God for my wife who has been so supportive!” Read More Men and Breast Cancer Read quotes from the men in our community who have been diagnosed with breast cancer. Read More. Honoring You “Gary’s cheery disposition and optimism infected those around him. He was determined to never give up, and he espoused a healthy diet and regular exercise, not just to give himself extra time, but for a better quality of life. Gary knew breast cancer is not just about men or women, rather it was more about beating cancer itself. He had just been appointed to the Board of Advisors for ProjectLifeMBC, a survivor initiative based in San Francisco, for those with metastatic breast cancer. He was a diligent advocate for all guys with breast cancer.” Read More. From Around The Web Male Breast Cancer Coalition “MBCC shares stories from male breast cancer survivors all over the world. Learn more here and find resources for men and their families navigating through what is usually a women’s only club. MBCC also honors lives lost in the “In Memoriam” section. Our survivors want students to know every individual is his/her own best advocate for their bodies. We participate in events around the world to raise awareness of male breast cancer. We attend conferences, so we can become more knowledgeable and advocate. Until we educate everyone, including the medical community concerning the need for more testing and clinical trials focusing on men with breast cancer, our mission continues to be an uphill battle.” Read More. What You Need To Know About Male Breast Cancer ( Going Beyond The Pink ) “When I was diagnosed, I had no idea. I thought it was a woman’s disease, and too many other men believe that to this day. ” — Tom Kennedy, breast cancer survivor Men rarely get the same reminders from doctors and public service ads on tv to do regular self-exams for breast cancer. And, even if they do notice a lump, they are less likely to think of breast cancer as a possible explanation, oftentimes when men do get diagnosed with breast cancer it has already progressed to a later stage. Read More. Breast Cancer In Males: Symptoms and Signs ( VeryWell Health ) Currently, about 1 in every 833 men develop breast cancer compared to 1 in every 8 women. Here are a few risk factors that may increase a man’s likelihood of breast cancer: Family history Genetics Klinefelter's Syndrome History of cancer treatment Hormone imbalance Smoking Heavy alcohol use Obesity “Klinefelter syndrome is a rare genetic problem that is associated with a 20-30% increased risk in male breast cancer. This syndrome occurs when someone assigned male at birth is born with an extra X chromosome, resulting in 47 chromosomes instead of 46. It is often represented as 47 (XXY). Because they have a Y chromosome, children with this syndrome develop stereotypical male characteristics and genitals. But the extra X chromosome associated with Klinefelter syndrome often causes smaller testicles, enlarged breasts, and possibly impaired fertility.” Read More. Breast Cancer in Men ( UK NHS ) Despite being much less prevalent in males, men should pay attention for many of the same signs and symptoms of breast cancer that women are often urged to check for. This includes: Alump in the breast – this is usually hard, painless and does not move around within the breast The nipple turning inwards Fluid oozing from the nipple (nipple discharge) , which may be streaked with blood A sore or rash around the nipple that does not go away The nipple or surrounding skin becoming hard, red or swollen Small bumps in the armpit (swollen glands) Men may be inclined to avoid discussing family medical history with female relatives, especially when it comes to more personal areas, like the breasts. But just like for women, it is important to know your family history since men can also inherit the BRCA genes that make someone more susceptible to breast cancer. Read More.

  • Diet and Breast Cancer

    Because of early detection strategies and advances in cancer treatments, survival rates among those diagnosed with breast cancer are improving. With more women (and men) living longer, more research is starting to emerge on how a healthy lifestyle reduces mortality and improves quality of life. Maintaining a healthy weight, eating well, and moving your body also has a positive effect in fighting fatigue, stiffness, and other side effects brought on by breast cancer treatment. Additionally, much of this research centers around how diet, nutrition, and exercise can have either protective or risk-increasing effects. It’s important to note that the word “diet” simply refers to what one eats, and not necessarily dieting to lose weight. Below, we share insights on foods you may want to either incorporate or avoid to maintain or enhance your health after a breast cancer diagnosis. From SurvivingBreastCancer.org Breast Cancer and Sugar “[Many] studies make it seem possible that if you had no sugar in your diet, it could help stop cancer developing or growing. But all our other cells also need glucose to survive, and there’s no way of letting just the healthy cells get the amount of glucose they need while starving the cancer cells. Perhaps the most important prescription for cancer patients is to limit the amount of sugar in their diet, read our labels, enjoy simple, unprocessed foods, and follow the advice of our nutritionist/oncology team to focus on getting the nutrients you need to stay strong during and after treatment. In short, eat the healthy sugars found in fruits and veggies while shying away from the cookies, cakes, and processed cereals.” Read More Diet and Breast Cancer “Research tells us that individuals who follow five essential habits—eating a healthy diet, exercising regularly, keeping a healthy body weight, not drinking too much alcohol, and not smoking— live more than a decade longer than those who don’t. Maintaining these practices may help us live longer and potentially protect us from diseases , such as type 2 diabetes, cardiovascular disease, and some cancers. Unfortunately, there isn’t a magical diet that guarantees protection against breast cancer or any foods that can cure cancer. However, some foods can make your body as healthy as possible, boost your immune system, minimize your risk, and even some that may control the side effects of treatments.” Read More. Soy Estrogen Myth: Is It Good or Bad to Consume Soy? “Natural soy foods contain phytoestrogens, plant-based estrogen compounds. Since estrogen is linked to certain types of hormonal breast cancer, many individuals fear that soy can increase their risk for breast cancer development. There have been several research studies conducted to assess the association between soy consumption and breast cancer development; animal studies have primarily established a positive correlation between soy consumption and breast cancer, but human population studies have not produced this same result.” Read More. Natural Remedies For Cancer Treatment Toxicities Foods that may alleviate insomnia include poppy seeds, pumpkin seeds, butternut squash seeds, herbs like valerian and lavender, and honey. Ginger is also great for nausea. Read More. From Around The Web Breast Cancer Survivors ( World Cancer Research Fund ) “Lifestyle factors and survival after breast cancer" In this report from our Continuous Update Project (CUP) – the world’s largest source of scientific research on cancer prevention and survivorship through diet, nutrition, and physical activity – we analyze global research on how certain lifestyle factors affect how likely it is that a person will survive after developing breast cancer. There is some evidence of links between better survival after breast cancer and: Being at a healthy body weight Being physically active Eating foods containing fibe r Eating foods containing soy A lower intake of total fat and, in particular, saturated fat.” Read More. Diet and Risk of Breast Cancer ( Contemporary Oncology ) "Studies have found that diets high in meat, alcohol, and certain types of fat can increase the risk of breast cancer, while diets high in fiber, vitamin D, and phytoestrogens (which can be found in soy, for example) can have protective effects. Epidemiological studies have reported conflicting results regarding the association of dietary fat with breast cancer risk. Diets high in polyunsaturated fat have been reported to increase the occurrence of mammary tumors in animal models. ... Fat from different types of food may have different effects on the risk of breast cancer. For example, intake of alpha-linolenic acid (ALA) from fruit and vegetable oils is inversely associated with risk of breast cancer." Read More. Two New Studies Suggest Diet Can Help Breast Cancer Survivors Live Longer ( American Institute for Cancer Research ) Two recent studies found that “overall, breast cancer survivors who eat a diet high in vegetables and low in fruit juice and carbohydrate-packed diets have a lower risk of dying during an average of almost a dozen years after their treatment ended. ... The [first] paper found that women who ate the greatest amounts of fruits and vegetables after their breast cancer diagnosis had an overall lower risk of dying during the course of the study compared to those who ate the least amounts. When Maryam Farvid, PhD, and her colleagues teased this finding apart, it was the overall vegetable intake that appeared to drive the survival link with the greatest effect, pointing to cruciferous and green leafy vegetables. Cruciferous vegetables include broccoli , cauliflower , cabbage, and Brussels sprouts . Fruit intake by itself did not show a link with mortality.” Read More. Breast Cancer Diet: Foods To Eat, Avoid, and Healthy Tips ( Healthline ) Breast cancer treatments like chemo and radiation can include side effects like nausea, mouth sores, and loss of appetite. Therefore, it is important to make sure you are actually eating enough during this time so that you can maintain your energy and a healthy body weight. Foods you should consider including: Whole, nutrient-dense foods like fruits and vegetables, whole grains, legumes, and proteins Foods high in healthy fats and protein. If you need to maintain or gain weight, incorporate sources of healthy fat like nuts and seeds, avocados, and olive oil, as well as protein sources like eggs, chicken, lentils, and fish. Protein-rich foods are especially important for maintaining muscle mass. Blended liquids such as milkshakes, smoothies, juices, or soups for those times when you don‘t feel like eating solid foods H igh fiber foods like whole grains, flax seeds, legumes, vegetables, and fruits to treat constipation In certain situations determined by your doctor, you may need to avoid or reduce your consumption of specific foods and beverages, including: Alcohol could interact with the cancer drugs you take. There is also some limited evidence that drinking alcohol may increase the risk of recurrence and mortality for existing breast cancer. Spicy, crunchy, or acidic foods. These may increase mouth soreness, which is a common chemotherapy side effect. Undercooked foods. If you have breast cancer, you’re at a higher risk of developing infections. Avoid raw foods like sushi and oysters during your treatment. Cook meats, fish, and poultry to a safe temperature before eating them. Read More.

  • Pet Companionship Offers Comfort for Breast Cancer Patients and Survivors

    Most people are familiar with the devastating physical effects of cancer. It's rare to find someone whose life hasn't been affected by it in some way—whether indirectly, through a friend or relative, or directly. But what many people don't know is that the mental and emotional repercussions of cancer can be just as insidious as its physical side effects—and often much harder to recognize and address. In addition to the fear and stress of facing a life-threatening illness and extensive, painful medical treatments, many cancer patients feel isolated and lonely . Often, they no longer have the energy or ability to participate in social events or activities, or the people in their lives cannot fully understand what they're going through. For many breast cancer patients dealing with such feelings, pet companionship offers great comfort. Loneliness: Health Consequences and Negative Impact The connection between cancer and loneliness is even more concerning in light of the research showing that loneliness comes with its own set of health-related consequences , including substance abuse, depression, and heart problems. In addition, loneliness isn't necessarily tied to the amount of social contact. Even a cancer patient with loving caregivers and a supportive network of friends and family can experience loneliness and stress. Even though most research around cancer focuses on prevention and treatment, cancer survivorship, which covers the unique experience and risks associated with being a cancer survivor, is receiving more attention. According to experts, loneliness is just as crucial for survivors as it is for cancer patients. For example, one study showed a significant correlation between loneliness and recurrence for breast cancer survivors. The Benefits of Pets for Cancer Patients and Survivors For cancer patients and survivors suffering from the effects of loneliness, one potential solution may be a drive to the local animal shelter. The health benefits of owning a pet are widely recognized by now; among them, the CDC lists things such as decreased blood pressure and cholesterol, reduced feelings of stress and loneliness, and increased physical fitness . In addition to providing unconditional love and much-needed physical contact, having a pet may come with the added benefit of giving life a sense of purpose and structure for cancer patients and survivors. Caring for a pet can supply an external sense of motivation and responsibility for people who might otherwise feel hopeless. Even for cancer patients and survivors who don't own a pet, animal-assisted therapy during treatment can help to alleviate the pain or boredom of treatments and lift their spirits. While many pets can provide a sense of companionship, dogs tend to show up most frequently in discussions of the therapeutic benefits of pets. For example, you may have heard stories about dogs reportedly being able to sniff out cancer. But, in addition to their diagnostic capabilities, dogs can help their owners in various other ways. For example, dogs need exercise, which means their owners are likely to be more active. Physical exercise results in the release of endorphins, which can help with pain management and mood improvement. In addition, just petting dogs has been shown to result in decreased levels of cortisol (the stress hormone) and increased levels of oxytocin (the feel-good hormone) . It's worth noting that, while pets and animal therapy can have enormous benefits for people experiencing the effects of cancer, these options might not be a good idea for everyone, especially patients or survivors who are immunocompromised. Because of the potential risk of catching diseases from animals, patients should consult with their doctors about whether having a pet is safe and which animals are most suitable for them. SurvivingBreastCancer.org (SBC) is dedicated to supporting those affected by breast cancer and their families. SBC provides an educational and virtual community platform to help breast cancer patients, survivors, and their families navigate prevention, diagnosis, treatment, and beyond. Check out our resources or consider donating today! SurvivingBreastCancer.org Resources & Support: Our Podcast Online Support Groups Free, Weekly Events

  • Breast Cancer and Gratitude

    For many in the US, celebrating Thanksgiving represents a chance to reflect on what we are truly grateful for. At SurvivingBreastCancer.org , we recognize that gratitude matters and plays a critical role in positive reinforcement. We are eternally grateful to all of our community and Board members, medical advisors, sponsors, collaborators, and you. In addition, we have recently reached out to our community to ask what they are grateful for. What follows are five of the prominent themes that members of our community shared that they are most grateful for: Family, friends, and loved ones ranked highest: We found that the loving and mutually respectful support and comfort that is derived from this group enables us to collectively meet the challenge of a breast cancer diagnosis. The SBC breast cancer community: Playing a role within our vaunted community significantly adds to the positivity and understanding of our prognosis and future. Those who are newly diagnosed can take advantage of the experiences of those who came before them, with the associated offers of hope and support. SBC allows us to experience cancer not in isolation, but rather, with our new breast cancer family. Positive people: What a difference positivity makes in the healing process as we continue to navigate our way through the trials and tribulations of this heinous diagnosis. Intimacy: The majority of this beautiful community have been deprived of estrogen, or have experienced surgical scarring, breast tissue reduction, or breast removal, and note that the associated lack of sex drive can be countered with a timely, loving embrace, e.g., hugging, handholding, and loving proximity. Note: The opportunity to spend physical time with your loved ones is something that we feel should never be taken for granted—as we’ve come to know all too well in this community. Random acts of kindness: in this day and age, we are bombarded by negativity on TV, in the news, at work, responses to the COVID-19 virus, and our Social Media. How refreshing it is to observe in real time, or through the lens of SM, a random act of kindness. We have all come across/viewed an act of kindness and immediately felt the benefit of the intentionality. And so we close by asking, “Have you performed a small random act of kindness to another, and how did it make you feel”? From SurvivingBreastCancer.org Feature Friday: Breast Cancer and Journaling Among many forms of journaling, gratitude journaling is a popular practice for reminding us of the positive things in our lives, even during tough times. Read More. Cancer Helped Me Find Myself “If there’s one gift I’ve received from getting MBC, it is a clearer vision of what really matters to me. Thankfully, I’ve had some time to put that into practice: to care more lovingly for myself, to decide what really “fills my bucket” and get as much of that as I can, to heap love on my family and friends, to create things (such as my children’s baby albums, finally—they are 25 and 23!), to spend time in nature, to whittle out things and people and responsibilities that don’t serve me anymore.” Read More. Choosing To Change “As I continued to practice being present, I realized that I no longer desperately searched for the ‘other side’ of cancer, my mind wasn’t constantly wandering to the what-ifs and the how-will-life-be's. Instead, I had many moments of acceptance, surrender, peace, and gratitude every single day. It felt amazing, but also very unfamiliar. Contemplating this unfamiliar sense of stillness one day, I silently wondered ‘ what am I feeling’ and I heard a voice in my head respond with ‘Home….you've come home.’ When I let go of the death grip I had on all the qualifiers of how life needed to be in order for me to be happy and ok, I found my center, my true self, and it felt like coming home. I felt a belonging and recognition -- like ahhh, there you are, I've been searching for you, but I didn't know it was you I was searching for!” Read More. Acting On Internal Guidance Gloria has fought several forms of cancer over the years, including breast cancer. She writes, “I live each day in gratitude as I walk the journey of my life in daily meditation, journaling, putting healthy boundaries, eating healthy foods, and daily walks in nature while chanting. I'm very grateful for Alistair Cunningham, who was guided to write the book entitled “A Healing Journey” and all the workbooks that go with all the various modules, and run by Wellspring Canada!!!” Read More. From Around The Web Ten Reasons to Be Thankful Through Your Cancer Treatment ( TriHealth ) Here are a few reasons to be thankful that you might not have thought of. Read on for all ten. Small Victories Any kind of positive result is a victory. Be grateful for each step that gets you closer to beating cancer. Whether it is a successful surgery, clean scans, or just a “good day”, soak in these small victories and be thankful for the hope they provide. Insurance Having insurance is a reason to be thankful that is often overlooked. Without insurance, you may not be able to go through the treatments you need. A lot of people turn down treatment because they have no insurance. If you are a person who does not have insurance, be thankful that you have the ability to seek alternative resources that can help you with treatment costs. Honest Dialogue with a Confidant Whether it is a family member, a friend, your doctor, or a counselor, honest dialogue with someone you trust about your diagnosis is a reason to be thankful. To be able to talk openly about your emotional, mental, and physical struggles relieves stress and takes away the pressure you feel to carry the burden alone.” Read More. Using a Gratitude Intervention to Improve the Lives of Women With Breast Cancer: A Daily Diary Study ( Frontiers in Psychology ) A 2019 study published in Frontiers in Psychology explored the effects on quality of life that gratitude practices can provide for women with breast cancer. In this study, “each day for 2 weeks, 42 women with breast cancer described their psychological well-being, social support, and coping strategies. Women in the intervention condition reported the reasons why they felt grateful that day. Moreover, all participants took part in a pre-test session where trait measures were taken to control for dispositional differences. Listing the reasons for gratitude led to higher levels of daily psychological functioning, greater perceived support, and greater use of adaptive coping strategies. These results suggest that gratitude interventions may improve the lives of oncological patients.” Read More. Cultivating gratitude and hope during cancer treatment ( University of Texas MD Anderson Cancer Center ) “How gratitude can help during cancer treatment: Often, people assume gratitude is merely ignoring any difficulties they are facing and only focusing on the positive. But in reality, practicing gratitude gives people the ability to accept whatever their current challenges are while still finding joy throughout their struggles. Research shows that there are many benefits to practicing gratitude. Gratitude can: Increase our resilience in the face of stress and crisis Open us up to new opportunities and experiences Impact our physical responses, including lowered blood pressure, increased immunity, and reduced stress, which may lower our risks for health complications Bring an increase in healthy behaviors, such as regular exercise, preventive health care, and a healthy diet Contribute to more satisfying relationships with friends, family, and our respective communities How to Cultivate Gratitude Engaging in daily activities and exercises, such as reflection and journaling, may help to cultivate a habit of gratitude. Use this list to help kick-start your practice of gratitude: Four minutes of gratitude: Set a timer for four minutes and write down everything you are grateful for. Reflecting on this entry during times of distress or unhappiness can help put the brain into the mode of gratitude. Gratitude reminder: Pick something you see every day in your bedroom, office, classroom, hospital room, etc., that redirects you towards gratitude. Focus on this item during difficult times. Gratitude hot seat: Take turns during get-togethers with family and friends this month to verbalize your gratitude towards each other. Gratitude letters: Write a letter, send a note or mail a holiday card to someone who has had an impact on you. Use the opportunity to express your appreciation for how this person's actions have impacted you. Benefits list: Create a list of things in your life that you are grateful for. Reflect on how these are often taken for granted or how your life would be different if they were absent.” Read More. The 411: A New Approach To Gratitude ( Rethink Breast Cancer ) Shawna Rich-Ginsberg, a counsellor, gets real about ways to experience gratitude during breast cancer and some of the challenges of doing so. “For women with breast cancer, or anyone in a health crisis, there are a number of challenges [around experiencing gratitude]: The Tyranny of Positive Thinking We have this notion with health that the mind/body connection is just so powerful that if we just think positively ALL THE TIME (even when we are feeling our worst) everything will be better. In the cancer world, this is called the “tyranny of positive thinking” because it can be a burden to carry with you, especially when you are having a bad day and feeling sorry for yourself. There is also the idea that somehow positive thinking can actually cure cancer or stop it from spreading, which is absolutely unfounded. Cancer is NOT a Gift A gift or present implies something that is wanted or something for which no payment is expected in return. I can safely say after working with cancer patients for seven years that there is a price to pay for getting cancer, and it’s high. I know plenty of people who would say they have stronger relationships because of their illness, a new career, a greater appreciation for certain things, or they don’t sweat the small stuff. All of which may warrant some gratitude, but let’s be clear – no one is grateful for a life-threatening disease they didn’t ask for – they are perhaps grateful for the lessons it taught them or that they got through treatment.” Read More.

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