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  • Natural Remedies For Cancer Treatment Toxicities

    By Annie Appleseed Project Explore Simple, Natural Strategies As Complementary Therapy During Conventional Treatment Natural Remedies Reiki Reiki (pronounced "ray-kee") is a therapeutic technique in which healing energy is channeled, or conducted, through a practitioner's hands into the person receiving the treatment. It is believed that Reiki brings the body into emotional and spiritual balance, supporting the body's natural ability to heal itself. Yoga Yoga is used for fatigue, insomnia, depression, and general quality of life. It can reduce high blood pressure. Exercise Exercise has been studied to reduce fatigue DURING treatment with chemotherapy and radiation therapy. Examples: Walking, biking, swimming, etc. Aromatherapy Aromatherapy is used for nausea (being taught at MD Anderson Cancer Center in Houston, TX). It can stimulate lymphatic flow, reduce fatigue, and anxiety. Examples: Lavender for headaches, insomnia, and high blood pressure Orange for insomnia, constipation, depression, and anxiety Peppermint as a digestive aid Rosemary for fatigue Ylang-Ylang for calming Acupuncture Acupuncture is used for reducing nausea, fatigue, keeping blood counts normalized, and much more. Protection for Radiotherapy Curcumin In vitro studies showed that curcumin increases tumor cell apoptosis, decreases cell growth rate, and reduces the number of clonogenic cells in a dose-dependent manner. Hiroshi Inano at the Research Center for Radiation Safety, National Institute of Radiological Sciences, Japan, says the results are very interesting and that he hopes to be able to use curcumin in clinical applications, particularly given its low toxicity and strong antioxidant activity. (12/10/2002; Lancet Oncology) Calendula Calendula is highly effective for the prevention of acute dermatitis of grade 2 or higher and should be proposed for patients undergoing postoperative irradiation for breast cancer. (Journal of Clinical Oncology, Vol 22, No 8 (April 15), 2004: pp. 1447-1453) Abana Treatment of mice with abana before irradiation caused a significant depletion in lipid peroxidation, followed by a significant elevation in GSH concentration in the liver of mice at day 31 post-irradiation. Abana scavenged •OH, DPPH, ABTS•+, and NO• in a concentration-dependent manner in vitro. Our results indicate that the radioprotective activity of Abana, a polyherbal drug, may be due to free radical scavenging and increased GSH level in irradiated mice. (British Journal of Radiology (2004) 77, 1027-1035) Tea Extracts Tea extracts are an efficient, broadly available treatment option for patients suffering from acute radiation-induced skin toxicity. “The molecular mechanisms underlying the beneficial effects are complex, and most likely not exclusively dependent on effects of tea polyphenols such as epigallocatechin-gallate.” (BMC Medicine 2006, 4:28 doi:10.1186/1741-7015-4-28) Remedies for Insomnia Poppy Seeds: Include poppy seeds in your diet; they are a natural sleep aid. Pumpkin Seeds: Pumpkin seeds are “more likely to attract the sand man than warm milk, a book, or Lavender scents on the pillow." Butternut Squash Seeds: Like turkey, butternut squash seeds and pumpkin seeds have high concentrations of the compounds that tend to make guests sluggish after a Thanksgiving meal. Herbs: Herbs such as magnesium and skull cap valerian with calcium are great remedies for insomnia. Massage & Baths: Self-massage, starting with the soles of your feet. Hypnotize yourself, feel total relaxation, and then move on up. Take a warm bath in which you add a couple of drops of one or more essential oils, such as orange blossom, meadowsweet, or hops. (Dana Ullman, Homeopath) Blankets: Wool blankets are better able to regulate skin and body temperature than synthetic blankets. A comfortable comforter may help you sleep better. Honey: Taking 1 teaspoon of raw, organic honey before bed may help you sleep better. Mantra: A mantra is usually a one or two-syllable word that you repeat over and over and over again. You use it as a way to calm the mind. Using a mantra can also clear the mind and encourage sleep. Music: Use music to relax. Neuropathy Artemin “Our results indicate that the behavioral symptoms of neuropathic pain states can be treated successfully, and that partial to complete reversal of associated morphological and neurochemical changes is achievable with artemin." (Nature Medicine November 2003 Volume 9 Number 11 pp 1383–1389) Vitamin B12 Vitamin B12 can help! "The recommended daily allowance for vitamin B12 is 2.4 micrograms. Huge doses of vitamin B12 can penetrate the intestinal wall. (But) B12 deficiency is an uncommon cause of burning feet." (From an article by syndicated columnist Dr. Paul Donohue, To Your Health, in the Palm Beach Post.) Urea "Urea-containing preparation appears to be an excellent choice for the prevention and treatment of capecitabine-induced hand-foot syndrome. This minimizes drug delays, schedule interruptions, and maintains the dose density. Owing to reduced morbidity, the drug tolerance and acceptance is considerably improved.” (ASCO 2004 Abstract No: 8105) Oral Glutamine Oral Glutamine is “effective for preventing Oxaliplatin-induced Neuropathy in Colorectal cancer patients." (The Oncologist, Vol. 12, No. 3, 312-319, March 2007; doi:10.1634/theoncologist.12-3-312) Acupuncture A study published in a recent issue of the Journal of Alternative and Complementary Medicine has found that acupuncture can reduce pain and peripheral neuropathy in HIV-infected individuals, especially when treatment is directed at a patient's specific symptoms. (Journal of Alternative and Complementary Medicine 2004;10(3):449-455.) Acetyl-L-Carnitine While nerve conduction velocity did not improve, vibration perception increased. Clinical symptoms also improved in groups treated with acetyl-L-carnitine compared to placebo. Participants who received 1,000 milligrams of acetyl-L-carnitine thrice daily demonstrated significant improvement in pain at the study’s midpoint and conclusion. Vitamin E Neuroprotective Conclusion: “Supplementation of patients receiving cisplatin chemotherapy with vitamin E decreases the incidence and severity of peripheral neurotoxicity.” (Journal of Clinical Oncology, Vol 21, Issue 5 (March), 2003: 927-931) Nausea Ginger, ginger, ginger – recent studies PROVE it! Use it, even if on meds. This article was shared with Annie Appleseed Project's permission and was originally compiled from studies and articles that can be found on www.annieappleseedproject.org. SurvivingBreastCancer.org Resources, Support, & Events: Positive Thinking For Healing Fitness Tips For Breast Cancer Thrivers Nutrition And Exercise For Breast Cancer Upcoming Events Our Weekly MeetUp

  • Experimental Breast Cancer Vaccines

    Cleveland Clinic Breast Cancer Vaccine This past year, we have seen firsthand the life-altering effects that vaccines can provide. The COVID-19 vaccine offered a sense of relief, hope, health, and normalcy to people all over the world. Given all the positive impacts that vaccines provide, it seems only natural to explore the vaccine potential in other diseases, particularly breast cancer. In December of 2020, the Cleveland Clinic and Anixa Biosciences received the news that their ground-breaking triple-negative breast cancer vaccine had received the Food and Drug Administration (FDA) approval to begin clinical trial testing in humans. Triple-negative breast cancer (TNBC) makes up about 10% of all breast cancers and usually has a poorer prognosis than other types due to its aggressive nature. While researchers have spent years working on a breast cancer vaccine, the Cleveland Clinic vaccine marks the first vaccine to receive FDA approval, and testing could begin in humans as early as this year. How the Vaccine Works The vaccine works by immunizing patients against the alpha-lactalbumin protein, which is a protein that is expressed in a woman’s mammary glands when they develops breast cancer. Once vaccinated, the immune system is trained to attack and destroy the cells that produce the alpha-lactalbumin protein. The goal is for the immune system to recognize the cells before they can reproduce and eventually become a tumor. Pre-clinical trials of the vaccine conducted on animals have been promising, with one study on female mice showing that every single one that didn’t receive the vaccine eventually developed breast cancer and died. The Future of Breast Cancer Vaccines The Cleveland Clinic hopes that if their vaccine proves safe and effective, there is potential not only to effectively inhibit the emergence of TNBC but also to apply the vaccine to other forms of breast cancer. While the trials are still in their beginning phase, and there is no set timeline for when the vaccine could become widely available, it is a monumental step towards a future without breast cancer. As always, let us know your thoughts and how you’d like to contribute to the discussion. Resources: https://www.verywellhealth.com/breast-cancer-vaccine-greenlit-clinical-trials-5094403 https://electronichealthreporter.com/can-this-promising-vaccine-really-stop-breast-cancer/ https://www.miamiherald.com/news/health-care/article250974549.html https://geneticliteracyproject.org/2021/03/16/could-there-ever-be-a-vaccine-for-breast-cancer/

  • Cancer as a Parent and Support for Children

    Receiving a breast cancer diagnosis is difficult, and for those with children, concern for how this will impact their children can be an added layer of concern. This month, we are launching #PinkKids , a resource to support kids and teens whose parents have been diagnosed with breast cancer or have passed away because of breast cancer. This initiative was started by the incredible Kyla Thompson, who lost her own mom to metastatic breast cancer. You can listen to her story about losing a parent to breast cancer in our podcast conversation . As part of our MBC Sunday Webinar series, we broach these topics (and more)! Download the PDF on anticipatory grief and listen to part I and part II of our podcast on how these moms explain breast cancer to their children, and then the questions that still linger from a child's perspective. In the articles below, we share resources on how to talk to your children about your breast cancer diagnosis, which may differ depending on their age, and how to provide the emotional support they need during such a challenging time for the whole family. When a Parent Has Cancer, Children Are Often the Forgotten Victims (Healthline) "Cancer affects the entire family. But the emotional and psychosocial impact on a child whose parent has cancer often goes unnoticed and unattended. The American Cancer Society estimates that about 1.7 million adults will be diagnosed with cancer in 2016. That leaves 749,000 children under the age of 18 years old who will be affected this year. It is estimated that nearly 3 million children under the age of 18 are currently living with the challenge of coping with a parent who has cancer." In this article from Healthline , parents and grandparents who have or have had cancer share how their families have navigated the added stress and worry on children that a cancer diagnosis brings. Read More. The System Often Forgets Children of People with Cancer: Here’s How to Help Them (Psychlopaedia) "For a parent, talking to children about their cancer may be the only thing more difficult than facing their own diagnosis. But open and honest communication about cancer’s impact can help everyone cope better." "Providing young people with information – including diagnosis, medical tests, treatment, side effects, likely outcomes, and chances of recovery – in a family environment that fosters open communication is one way parents can support their children." Explore for more tips on how to talk to teen and young adult children about your cancer diagnosis. Read More. What It’s Like to Get Cancer as a Parent: ‘I Began Planning Out My Next 5 Years’ (Global News) "Just trying to be a parent can be tough as well. 'This may be the result of your body being exhausted from treatment or wanting to make sure your child has an enjoyable time with you,' says Erlanger Turner, a licensed psychologist and assistant professor of psychology at Pepperdine University in Los Angeles. Some parenting styles also change, he notes, and parents become more laid back. But it is still important for parents to discipline their child for inappropriate behavior or breaking rules." Turner also states, "Children may exhibit different behavior to cope with their parents’ cancer, such as anxiety, anger, or behavioral problems at school." Working with a licensed mental health professional may help you and your family cope with your diagnosis and improve your relationship with your child. Read More. Supporting Your Young Child When You Have Breast Cancer (Halza) "Children are able to sense when their parents are stressed or when something is wrong, although young children might not be able to verbalize it. Unless your child is an infant, it may be best to bring up the subject before they invent their own completely misguided story about why Mommy is acting differently." This article provides advice on how to explain your diagnosis, treatment, and what this change means for your child, all in an age-appropriate way. "Conversations about treatment should continue after the initial conversation. Providing too much information at once, especially to younger children, will not be effective. However, as expected side effects are about to happen, it is important to tell your child so that they are not surprised at hearing Mommy vomit or seeing her hair fall out. Tell the child that even though Mommy seems sicker, it is actually part of getting better. Tell your child that cancer is not contagious and that we don’t know why some people get it, but the child had nothing to do with it." Read More.

  • Breast Cancer and Budgeting

    A breast cancer diagnosis is not only emotionally overwhelming—it can also carry an enormous financial burden. From tests and treatments to lost income and unexpected costs, the price of breast cancer goes well beyond the clinic. Understanding these expenses and learning how to manage them can help ease one of the many stresses that come with a diagnosis. The True Cost of Breast Cancer The financial impact of breast cancer varies depending on the stage of diagnosis, insurance coverage, type of treatment, and geographic location. On average, the cost of treatment for breast cancer can range from $20,000 to over $100,000 in the first year alone. This can include: Diagnostic testing : Mammograms, biopsies, MRIs, and genetic testing can cost hundreds or even thousands of dollars. Surgery : Lumpectomies, mastectomies, and reconstructive surgeries may require hospitalization and multiple procedures. Chemotherapy and radiation : These treatments are not only lengthy and intensive, but also costly, especially if administered over several months. Targeted therapies and immunotherapy : Newer, more personalized treatments can be highly effective—but also significantly more expensive. Hormonal therapy : For some patients, medication may be prescribed for 5–10 years post-treatment. Follow-up care and scans : Even after active treatment, ongoing appointments, imaging, and lab tests add up. Medical bills are just the beginning. Many people diagnosed with breast cancer face non-medical costs as well: transportation to appointments, wigs and prostheses, specialized bras, dietary supplements, mental health counseling, and more. For those who need to reduce work hours or take unpaid leave, lost income becomes another stressor. In case you missed it on Monday, we have a stellar podcast episode with Dianne Webb, CFP, all about financial planning. She breaks it down in easy and relatable ways! Creating a Medical Budget Taking control of your finances after a breast cancer diagnosis can feel empowering. Here are some tips to help you get started: 1. Understand Your Insurance Take time to understand your health insurance plan—what’s covered, what’s not, and what your out-of-pocket maximum is. Be aware of deductibles, co-pays, and whether you need pre-authorization for certain treatments. Call your insurance provider and ask for a case manager —someone who can help explain benefits, track claims, and serve as a point of contact throughout your treatment. 2. Estimate and Track Costs Ask your healthcare team for a treatment plan with projected costs. Create a spreadsheet to track: Medical appointments Prescriptions Lab work and imaging Out-of-pocket costs Insurance payments and balances Being organized helps you stay on top of bills and spot errors. 3. Explore Financial Assistance Many patients are unaware of the financial assistance available. Start by speaking with your hospital’s social worker or financial counselor. They can help you: Apply for charity care or hospital financial aid programs Access co-pay assistance foundations (e.g., PAN Foundation, CancerCare, The Assistance Fund) Find nonprofit grants (such as SurvivingBreastCancer.org ’s support resources) Pharmaceutical companies also often offer assistance programs for costly medications. 4. Budget for Non-Medical Needs Transportation, meals during treatment, childcare, and help with daily chores can add up. Consider including these categories in your budget: Gas, parking, or rideshare to appointments Prepared meals or grocery delivery In-home care or cleaning services Mental health services and support groups If friends or family ask how they can help, point them toward gift cards for essentials or services that will ease your load. 5. Plan for Work Interruptions Talk to your employer about medical leave, FMLA (Family and Medical Leave Act), or short-term disability. Understand your rights, and don’t be afraid to ask for flexibility. If you’re self-employed, consider applying for temporary financial assistance or crowdsourcing platforms like GoFundMe to bridge income gaps. Budgeting won’t eliminate the stress of cancer—but it can give you back a sense of control in a time that often feels uncertain. Content Across The Web Budgeting 101 and Breast Cancer ( Rethink Breast Cancer ) “Budgeting is understanding your income and your expenses. What comes in, and then what goes out. When serious life changes happen, the earlier we can adjust our spending to reflect our financial realities, the less of a mess we’re creating for ourselves later on. Taking it step-by-step and starting early will prevent adding [more] stress later.” Once you know how much you’re already spending, start thinking about additional expenses that should be added to your budget, like travel during treatment, medication, lost income from your partner’s time off work, etc. Talking to your doctor and insurance company as early as possible is important to help better understand how much these expenses will be. From there you can start planning how you will pay for them, whether that is from existing savings or borrowing from a bank. Read More. Managing Finances When You Have Breast Cancer ( Very Well Health ) You don't need to navigate this unfamiliar space alone. Financial counselors and oncology social workers are well-versed in the expenses that come along with a cancer diagnosis and can help you come up with a payment plan and better understand your insurance coverage. "Most cancer centers have social workers on staff. If yours doesn't, you can get free help from CancerCare." Disability insurance is also something to consider and is best to look into as early as possible. "Loss of income is one of the greatest concerns for those facing breast cancer, especially metastatic. If you have recently been diagnosed, it may feel like it is too early to consider disability insurance. It's not. This is another issue better dealt with before it's needed. You may have disability insurance through your work or through a private policy, or you may need to consider Social Security disability. Since the process of applying for social security disability is lengthy, the best time to apply is as soon as you need it. " Read More. Managing The Known and Hidden Costs of Breast Cancer ( Money Under 30 ) Knowing all the associated expenses that come with a cancer diagnosis can help plan and budget for them as they arise. Some expenses are more obvious, like treatment, mastectomies, and breast reconstruction surgeries. But there are some additional "hidden" costs you may not have accounted for: Transportation Insurance copays and/or out-of-pocket expenses Medications and nutritional supplements Extra childcare Time off for yourself Time off for your family members. Read More. Tips For Choosing A Financial Planner ( BreastCancer.org ) As mentioned above, a financial planner can help you navigate the expenses that come with a breast cancer diagnosis. Here are some tips to choose the right financial planner for your situation. "If you’re concerned about affording a financial planner, see if your care team or social worker can recommend someone who provides pro bono (free) or reduced-fee services for people with cancer. If cost isn’t a major concern, you can search for a Certified Financial Planner™ in your area through the Financial Planning Association . There are other organizations with searchable databases as well, such as the National Association of Personal Financial Advisors and the Society of Financial Service Professionals . In addition to finding a professional who is certified, you’ll want to know that he or she has experience helping people deal with the unique financial challenges that serious illness brings. Read More.

  • Art and Cancer

    If you joined our Summer Soirée last month, you'll likely remember that we included a rock painting activity, or perhaps you participated in our recent Creative Legacy Projects event. These both serve as great examples of how you don't need to be a museum-worthy artist to enjoy the relaxation benefits of art. There are so many mediums to explore: painting, sketching, sculpting, photography, poetry, compositional writing, and mixed-media collages. These are all ways to document your breast cancer journey or to process and release the emotions you are feeling. A particularly enjoyable way to tap into your artistic side and connect with friends at the same time can be a paint night. Many venues (preferably outside with this Pandemic still raging), host these events where you can enjoy a cocktail (or mocktail!) while a professional artist leads you and your friends through a simple painting like a landscape or still-life. It's so fun to see how everyone's interpretation of the same image is a little different. And you end up with a keepsake of your evening out with friends! Win-win! Content From SBC Writing As A Therapeutic And Creative Outlet Writing can serve as a therapeutic and creative outlet. More specifically, journaling offers opportunities for expression and reflection and can help those going through a cancer diagnosis process the emotions and loss that come with the territory. Writing isn’t necessarily just for the patient, either. It is a powerful tool that can be useful for families, caregivers, and children. Podcast Episode #30: The Art of Healing with Dr. Carole Weaver Upcoming Event: A Space for Expressive Writing with Thomas Join us for a 75 minute writing workshop, led by the incredible Thomas Dooley. After reading a few poems, participants will be invited to reflect on, write, and share their own personal narratives in a supportive and safe space. Join Us. Content Across The Web Art Therapy for Coping with Metastatic Breast Cancer: What to Know ( Healthline ) “Art therapy uses creative activities to help people with any type of health condition work through challenging thoughts and feelings. Also called expressive arts therapy or creative arts therapy, it’s based on the philosophy that art can be a tool for emotional healing." Some benefits of art therapy include: decreased symptoms of distress increased ability to cope with breast cancer reduced signs of depression improved quality of life promoted positive body image lowered rates of anxiety Read More. How nature helps empower people going through cancer treatment ( UCLA Newsroom ) As we wrote about in another recent Feature Friday, nature can be very beneficial emotionally and psychologically for those going through breast cancer treatment. However, this isn't always accessible to everyone. The Tree of Life Fulfillment workshop at UCLA's cancer center combines imagery of trees with art therapy and mindfulness to help patients cope with cancer diagnoses. Participants both imagine themselves as having the strength and groundedness of a tree, as well as draw the trees or forests they are visualizing. Read More. A pilot study of improved psychological distress with art therapy in patients with cancer undergoing chemotherapy ( BMC Cancer ) A 2020 study examining the benefits of art therapy for patients undergoing chemotherapy for a variety of types of cancer found that "art therapy improved the emotional distress, depression, anxiety, and pain among all cancer patients." "Each art therapy session encouraged the patient to engage their creative side and employed consistent, standardized art therapy practices aimed to engage the mind, body, and spirit of the participant. Each participant was allowed full freedom of materials to work with, including supplies for painting, drawing, clay work, and collage construction. Sessions concluded with an art therapist-guided patient reflection on their own art." Read More. Earliest Images of Breast Cancer Found in Renaissance Paintings ( Smithsonian ) A study from 2018 used Renaissance art to examine the prevalence of breast cancer in centuries past. "Raffaella Bianucci and Antonio Perciaccante, two co-authors of a new study published in the journal The Lancet: Oncology tell Maarten Rikken at ResearchGate that there's a perception that breast cancer is a modern disease. As the thinking goes, lifestyle, longevity and other factors have made the cancer much more prevalent in the industrial age. But recent research is showing that the disease was quite common all the way back to antiquity." In "The Night" by Michele di Ridolfo (seen above), the woman's left breast is smaller than the right and her nipple is retracted, all signs of cancer. Other paintings, such as "The Allegory of Fortitude" by Maso da San Friano, show other symptoms of breast cancer, although experts say it is unlikely that the artists at the time knew what these deformations indicated; rather they just painted what they saw. Read More.

  • Breast Cancer Awareness Month Survival Guide

    To be frank, and at the risk of being cliché, Breast Cancer Awareness Month is the best of times and the worst of times. People can feel empowered and supported with an outburst of community engagement, such as walks, runs, and even pink ribbons plastered on everything from public transportation to egg cartons at the grocery store! However, there are others who would rather hibernate for the next 31 days and reemerge on November 1, once the outpour of pink has dissipated. At the height of community discourse on diversity and inclusion, how does that translate into the important work taking place within our breast cancer network? Let's be cognizant of the language we use this month, how we can support the multitude of emotions that October may trigger, and take that extra step in compassion and empathy. Some people love pink and all that the ribbon represents. For others, it can feel quite marginalizing. Let's not only celebrate those who are SURVIVING, day in and day out, but let us remember all of our friends, and members of our vaunted breast cancer community that we have lost to this hideous disease. If you would like to honor a friend or a loved one who has passed to MBC by sharing their story in remembrance, please consider submitting an article and photos that we can honor and acknowledge at SBC! Please send submissions to Desiree at dleroy@survivingbreastcancer.org. Below is a survival list for Breast Cancer Awareness Month. Mindfulness Tips Sparkly pink survivor sashes can certainly be a badge of honor, but let's remember that not everyone identifies with being a "survivor". Let's follow the money when making donations in the name of Breast Cancer Awareness. Make sure you know how your money is being spent. Let's remember that if we start with finding a cure for metastatic disease, which is a terminal illness and takes lives, everyone else with earlier-stage breast cancer will benefit. Let's check in on each other. Let's share the diversity we enjoy within our breast cancer communities. Let's unite. Let's partner. Let's take Awareness and strive for Action and Advocacy . Advocating for Yourself It is important to advocate for yourself at every step of your diagnosis: whether you want a second opinion on a symptom you think could be breast cancer, or want to get more information about all of the available treatment options. Remember, you are your own best advocate and need to speak up when something doesn’t feel right or you want to make better-informed decisions. Your doctors and care team all want what's best for you. At the end of the day, however, it’s your body and you will feel more empowered. Connect with Others in the Breast Cancer Community Consider participating in a number of events and programs being offered this month through our organization. October for SBC is business as usual with a few additional bells and whistles. Join us for our Thursday Night Thrivers meetups, attend one of our Movement Monday sessions, or our upcoming Writing as Healing workshop on October 11. Cozy up with a book and join us for our Breast Cancer Book Club meeting on Sunday, where we pick readings that have absolutely nothing to do with cancer! If you are looking for some of those bells and whistles events, head to Chicago, where we are hosting two fundraisers: a burlesque show and watercolor painting workshop! Check out everything that is happening this month here! Give Voice One of the most powerful ways to navigate BCA Month is to give voice to your experience. This can be done through social media, posting on Twitter, or even being a guest on a podcast. You may find that writing about your experience is the perfect outlet for letting the world know what BCA month means to you, whether or not you love this month! We've developed a list of 20 writing prompts, and if you are interested, we'd encourage you to share with our community! Read on for more from survivors and healthcare professionals explaining why self-advocacy is so necessary, their experiences advocating for themselves, and tips on how you can do the same. From SurvivingBreastCancer.org Podcast Episode 72: How To Self-Advocate Q & A with Liz Mover How to self-advocate is a topic that comes up often among those diagnosed with breast cancer. We are always telling each other that we have to advocate for ourselves, but really, what does that mean? How can we do it, what are the tools we need, and why are we so concerned about hurting our oncologists' feelings? Listen Now. Breast Cancer Stories: A Call For Self-Advocacy "I cannot stress the importance of getting a second opinion! ... My first breast surgeon gave me the news that I had cancer and the choice to keep my “healthy” breast. They didn’t explain my condition or their plan of action the way that I expected. In fact, the 8 minutes I sat with them was not enough time to explain very much at all about anything. As a result, I went for a second opinion, and it was a completely different experience. This breast surgeon spent over an hour explaining the type of breast cancer I had, what it meant, gave a detailed course of action, and was empathetic that I had to face this at such a young age. I hope to be a voice that raises awareness that breast cancer can happen to healthy young women, too! Awareness and early detection are so important, so never ignore your symptoms! Know your body, and if something’s off, GET IT CHECKED OUT!" Read More. Content Across The Web Breast Cancer Detection: 4 Ways to Practice Self-Advocacy ( Healthline ) Advocating for your health helps you get the care you need and make important decisions regarding your well-being. Persevere for prompt and proper care: If you have to wait months to be seen, look around to see if other clinics in your area could see you sooner. Consider a second opinion: In addition to persevering for access to care, it’s vital to explore all potential treatment avenues. Since breast cancer is treated differently depending on your situation, it’s important to seek another opinion on the best course of action. If you get the same (or similar) recommendations from another physician, you can feel fairly confident it’s the best plan for you. Ask trusted loved ones for help: The presence of a friend or family member at doctors’ appointments can ease the burden of obtaining so much information — especially at the first few appointments. Ask questions to get what you need: Asking questions is important because it ultimately helps you make the right choice for you. Read More. The Healing Power of Self-Advocacy ( National Breast Cancer Foundation ) “If you want to get good care and live as fully as possible during and after cancer treatment, you must advocate for yourself to your healthcare team. Your physicians and nurses can respond with expertise and compassion only if they understand what you’re experiencing and worrying about. Here’s the thing: They depend on you to tell them. I know this as both a 25-year cancer survivor and a physician. In my office, despite my efforts to encourage patients to share everything, occasionally, patients kept their symptoms, concerns, or questions to themselves. Their silence both frustrated and puzzled me. Then my cancer diagnosis yanked me to the other side of the stethoscope, where I found myself hesitating to tell my physicians about certain symptoms or worries. Insights and affirmations—and practice! —have helped me overcome common obstacles to self-advocacy. ... Cancer care is a shared mission. Through self-advocacy, we enable our physicians and nurses to provide us the best care, which increases our chance of achieving the best possible outcome today, tomorrow, and every day.” Read More. How to Be Your Own Advocate as a Cancer Patient ( Verywell Health ) “It's not just your health you may need to advocate for, but your pocketbook as well. With the vast variety of insurance plans, most of which have different limits and tiers of treatment, your choices for a treatment plan may go beyond your personal preferences. Talk with your insurance company about any areas that leave you feeling uncertain, and ask for your case to be reviewed if you think you fall under an exception to one of the rules. If you don't understand your bill or see charges you don't expect, don't just accept it. Make a phone call. Sometimes silly mix-ups can cause an insurance claim denial , even something as simple as having your birth date entered incorrectly on a clinic form. Check out these tips on how to fight an insurance claim denial . Some people may wish to consider hiring a medical billing advocate when overwhelmed with the whole insurance process. You may not understand your bills, be swamped with those your insurance is refusing to pay, or be so ill that the thought of sorting through those papers is just too draining.” Read More. Self-Advocacy: Navigating Through Uncharted Territory When You Get Sick ( Rethink Breast Cancer ) “Know your rights. Even though you’re a patient, you still have rights. The internet is so overwhelming that it’s often hard to filter out the helpful sites from the not-so-helpful sites. Rethink Breast Cancer has developed a set of 10 care guidelines for newly diagnosed women. Having someone on the ‘inside’ is also helpful . Depending on where you are treated, there may be a nurse/patient navigator who is there to guide you through your cancer journey. This person may be able to help with setting up appointments, answer your questions, or just be there to listen. Sometimes you are referred to a navigator and sometimes the onus is on you to seek one out. At your first appointment, ask if there is a navigator available to assist you with questions you may have or in making difficult treatment choices. And speaking of questions… There are no dumb questions! Write down questions as they pop into your head, then a day or so before your appointment, go over the questions to make sure you aren't missing anything. Some patients feel like they are taking up too much of the doctor’s time if they have a laundry list of questions to ask. You may want to confirm with your doctor at the beginning of your appointment how much time you have. Let the doctor know that you would like to take 10 minutes at the end of the appointment to answer any questions you have that may not be covered during the appointment.” Read More.

  • Supporting Caregivers

    A breast cancer diagnosis affects more than just the patient. Caregivers of those with breast cancer have their own new challenges to face: increased stress, losing sleep, worry for your loved one’s health, and scheduling challenges of accompanying your loved one to doctors’ appointments. As the spouse/friend/daughter/son/parent of someone with breast cancer, it’s easy to put your own health and well-being on the back burner and think you shouldn’t complain or prioritize yourself, because the struggles you are facing are “small” compared to those of the person with cancer. However, you do need to take the time to support your own wellbeing so that you can fully show up as the best caregiver you can be. Like they say on airplanes, you have to put your own oxygen mask first before helping others. At survivingbreastcancer.org, we have resources available for caregivers and families of those with breast cancer. From SurvivingBreastCancer.org Podcast Episode #111 Complicated Grief and Caregiver Bereavement | The Caregiver Perspective In this episode, we speak with Andrew Silver, Jimmy Boratyn, and Christian Garnett, who have all lost their beloved wives to metastatic breast cancer (MBC). This is part II of our discussion, where we get into the coping strategies that these men turned to as they stress the importance of making time for yourself so that you can be strong for others. Andrew, Jimmy, and Christian also describe in great detail the passing of their wives, Sonya, Melissa, and Emily. Listen Now. Therapy and Breast Cancer A past Feature Friday focused on the benefits of therapy. This is equally important for caregivers as it is for patients. Mental health professionals such as social workers, psychologists, and psychiatrists are trained to help people work through the spectrum of emotions you may be feeling. Read More. Content Across The Web If You’re About To Become A Cancer Caregiver ( American Cancer Society ) Being a caregiver for a loved one with breast cancer is a large responsibility, but it can also be very rewarding and strengthen your bond with the person you are caring for. The American Cancer Society shares advice about what is important to know as you take on this role. “You might find that caregiving enriches your life. You might feel a deep sense of satisfaction, confidence, and accomplishment in caring for someone. You may also learn about inner strengths and abilities that you didn’t even know you had, and find a greater sense of purpose for your own life. ... Caregiving can also be frustrating and painful. People caring for very sick patients may notice their own feelings of severe sadness and emotional distress. They may feel sadness and grief over their loved one’s illness and may also feel overwhelmed or frustrated as they try to manage many difficult problems.” Remember, this job doesn’t have to be all on you. “Most importantly, don’t try to do it all yourself. Caregiving alone for any period of time is not realistic. Reach out to others. Involve them in your life and in the things you must do for your loved one. Some caregivers feel they have to do it all alone. They may believe that, as the partner, sibling, son, or daughter, they’re responsible for the sick loved one. It’s painful for them to admit that they can’t do it all and still keep their own health and sanity. They’ll bend over backward to meet their loved one’s every need. Some feel guilty if they can’t do it all and say they feel ‘selfish’ if they ask for help. Set realistic limits on what you can do. For instance, if you have a back injury, and/or if your loved one is too big for you to lift, you may be able to help them roll over in bed, but don’t try to lift them alone or catch them when they fall. (You may end up seriously injured or sick and become unable to help anyone.) This is where expert help is needed – home care nurses or physical therapists can show you how to do it safely.” Read More. Support For Caregivers of Cancer Patients ( NIH National Cancer Institute ) Taking time to recharge your mind, body, and spirit can help you be a better caregiver. You may want to think about the following: Make Time for Yourself: Dedicating time to yourself is not selfish, even when donning the role of caretaker. Your loved ones need you at your strongest, and 'you-time' can provide you with the release you need to continue caring. Join a Support Group: Support groups can meet in person, by phone, or online. They may help you gain new insights into what is happening, get ideas about how to cope, and help you know that you're not alone. In a support group, people may talk about their feelings, trade advice, and try to help others who are dealing with the same kinds of issues. Learn More about Cancer: Sometimes understanding your cancer patient’s medical situation can make you feel more confident and in control. It may help you to know what to expect during treatment, such as the tests and procedures that will be done, as well as the side effects that will result. Talk to Others about What You're Going Through: It's especially helpful when you feel overwhelmed or want to say things that you can't say to your loved one with cancer. Try to find someone you can really open up to about your feelings or fears. You're allowed to feel angry, frustrated, or overwhelmed. Write in a Journal: You might write about your most stressful experiences. Or you may want to express your deepest thoughts and feelings. You can also write about things that make you feel good, such as a pretty day or a kind coworker or friend. Be Thankful: You may feel thankful that you can be there for your loved one. You may be glad for a chance to do something positive and give to another person in a way you never knew you could. This doesn't mean that caregiving is easy, stress-free, or not frustrating. But finding meaning in caregiving can make it easier to manage. Read More. Effects of a psychosocial intervention on the quality of life of primary caregivers of women with breast cancer ( European Journal of Oncology Nursing ) Most breast cancer treatment today is given in outpatient treatment centers rather than in hospitals requiring inpatient stay. While this means that the patient can maintain more of their regular routines and enjoy the comfort of their own home, it also means that more of the day-to-day responsibilities fall on caregivers. This additional burden can take a real toll on the caregiver’s quality of life. Receiving adequate support and connecting with other caregivers can be beneficial for your mental well-being. A Nigerian study, published in 2019, found that caregivers who received a psychosocial intervention, which included weekly educational sessions on information about breast cancer, the emotional aspect of caring, adjustment to the role of caregiver, and communication strategies, had better quality of life outcomes than those who did not. You can implement this principle in your own life by joining support groups for cancer caregivers. Your loved one’s oncology center may be able to direct you to local resources. Read More. Coping strategies and quality of life in women with advanced breast cancer and their family caregivers ( Psychology & Health ) "Coping with advanced breast cancer is a challenge for both women and their family caregivers. The primary purposes of this study were to compare coping strategies used by patients with advanced breast cancer and their family caregivers and to examine how those strategies related to patient and caregiver quality of life. The sample consisted of 189 patient-family member dyads with advanced breast cancer. Profile analysis showed that patients reported greater use of emotional support, religion, positive reframing, distraction, venting, and humor coping, while family members reported greater use of alcohol/drug coping. Regression analyses showed that among both patients and family caregivers, active coping was associated with higher quality of life, and avoidant coping was associated with lower quality of life. In addition, the patient’s level of symptom distress moderated the relationship between coping and quality of life. The negative relationship between family caregivers’ avoidant coping strategies and family caregivers’ mental quality of life was strongest when patients had low levels of symptom distress and weakest when patients had high levels of symptom distress." Read More.

  • Male Breast Cancer Toolkit

    Although much more rare than breast cancer in women, breast cancer does occur in men too. On top of the stress any cancer diagnosis brings, men diagnosed with breast cancer often report feeling more shame and stigma for having what is often thought of as a “women’s disease.” Additionally, many men feel disconnected from the pink ribbons and “pink-washing” of breast cancer awareness, and the primarily female support networks of patients and survivors. This has led to the creation of the male breast cancer awareness ribbon, which is pink with blue, like the one shown above. Read on for how to connect with other male breast cancer survivors, and information about risk factors, symptoms, and treatment of male breast cancer. Please reach out if you or a man in your life would like to share about your experience with male breast cancer. From SurvivingBreastCancer.org Men Do Get Breast Cancer, Even Me “​​Men don’t get breast cancer, right? Especially males like me who have always taken pride in taking decent care of oneself. Males like me don’t get breast cancer who have spent 24 years selling to medical professionals in the pharmaceutical healthcare industry. Males like me don’t get breast cancer who carefully invest and plan so well for retirement and now active as an Independent Medicare Healthcare Consultant. Darn! Guess what? It happens and yes, why not me? Men do get breast cancer, even me. Thank God for my wife who has been so supportive!” Read More Men and Breast Cancer Read quotes from the men in our community who have been diagnosed with breast cancer. Read More. Honoring You “Gary’s cheery disposition and optimism infected those around him. He was determined to never give up, and he espoused a healthy diet and regular exercise, not just to give himself extra time, but for a better quality of life. Gary knew breast cancer is not just about men or women, rather it was more about beating cancer itself. He had just been appointed to the Board of Advisors for ProjectLifeMBC, a survivor initiative based in San Francisco, for those with metastatic breast cancer. He was a diligent advocate for all guys with breast cancer.” Read More. From Around The Web Male Breast Cancer Coalition “MBCC shares stories from male breast cancer survivors all over the world. Learn more here and find resources for men and their families navigating through what is usually a women’s only club. MBCC also honors lives lost in the “In Memoriam” section. Our survivors want students to know every individual is his/her own best advocate for their bodies. We participate in events around the world to raise awareness of male breast cancer. We attend conferences, so we can become more knowledgeable and advocate. Until we educate everyone, including the medical community concerning the need for more testing and clinical trials focusing on men with breast cancer, our mission continues to be an uphill battle.” Read More. What You Need To Know About Male Breast Cancer ( Going Beyond The Pink ) “When I was diagnosed, I had no idea. I thought it was a woman’s disease, and too many other men believe that to this day. ” — Tom Kennedy, breast cancer survivor Men rarely get the same reminders from doctors and public service ads on tv to do regular self-exams for breast cancer. And, even if they do notice a lump, they are less likely to think of breast cancer as a possible explanation, oftentimes when men do get diagnosed with breast cancer it has already progressed to a later stage. Read More. Breast Cancer In Males: Symptoms and Signs ( VeryWell Health ) Currently, about 1 in every 833 men develop breast cancer compared to 1 in every 8 women. Here are a few risk factors that may increase a man’s likelihood of breast cancer: Family history Genetics Klinefelter's Syndrome History of cancer treatment Hormone imbalance Smoking Heavy alcohol use Obesity “Klinefelter syndrome is a rare genetic problem that is associated with a 20-30% increased risk in male breast cancer. This syndrome occurs when someone assigned male at birth is born with an extra X chromosome, resulting in 47 chromosomes instead of 46. It is often represented as 47 (XXY). Because they have a Y chromosome, children with this syndrome develop stereotypical male characteristics and genitals. But the extra X chromosome associated with Klinefelter syndrome often causes smaller testicles, enlarged breasts, and possibly impaired fertility.” Read More. Breast Cancer in Men ( UK NHS ) Despite being much less prevalent in males, men should pay attention for many of the same signs and symptoms of breast cancer that women are often urged to check for. This includes: Alump in the breast – this is usually hard, painless and does not move around within the breast The nipple turning inwards Fluid oozing from the nipple (nipple discharge) , which may be streaked with blood A sore or rash around the nipple that does not go away The nipple or surrounding skin becoming hard, red or swollen Small bumps in the armpit (swollen glands) Men may be inclined to avoid discussing family medical history with female relatives, especially when it comes to more personal areas, like the breasts. But just like for women, it is important to know your family history since men can also inherit the BRCA genes that make someone more susceptible to breast cancer. Read More.

  • Diet and Breast Cancer

    Because of early detection strategies and advances in cancer treatments, survival rates among those diagnosed with breast cancer are improving. With more women (and men) living longer, more research is starting to emerge on how a healthy lifestyle reduces mortality and improves quality of life. Maintaining a healthy weight, eating well, and moving your body also has a positive effect in fighting fatigue, stiffness, and other side effects brought on by breast cancer treatment. Additionally, much of this research centers around how diet, nutrition, and exercise can have either protective or risk-increasing effects. It’s important to note that the word “diet” simply refers to what one eats, and not necessarily dieting to lose weight. Below, we share insights on foods you may want to either incorporate or avoid to maintain or enhance your health after a breast cancer diagnosis. From SurvivingBreastCancer.org Breast Cancer and Sugar “[Many] studies make it seem possible that if you had no sugar in your diet, it could help stop cancer developing or growing. But all our other cells also need glucose to survive, and there’s no way of letting just the healthy cells get the amount of glucose they need while starving the cancer cells. Perhaps the most important prescription for cancer patients is to limit the amount of sugar in their diet, read our labels, enjoy simple, unprocessed foods, and follow the advice of our nutritionist/oncology team to focus on getting the nutrients you need to stay strong during and after treatment. In short, eat the healthy sugars found in fruits and veggies while shying away from the cookies, cakes, and processed cereals.” Read More Diet and Breast Cancer “Research tells us that individuals who follow five essential habits—eating a healthy diet, exercising regularly, keeping a healthy body weight, not drinking too much alcohol, and not smoking— live more than a decade longer than those who don’t. Maintaining these practices may help us live longer and potentially protect us from diseases , such as type 2 diabetes, cardiovascular disease, and some cancers. Unfortunately, there isn’t a magical diet that guarantees protection against breast cancer or any foods that can cure cancer. However, some foods can make your body as healthy as possible, boost your immune system, minimize your risk, and even some that may control the side effects of treatments.” Read More. Soy Estrogen Myth: Is It Good or Bad to Consume Soy? “Natural soy foods contain phytoestrogens, plant-based estrogen compounds. Since estrogen is linked to certain types of hormonal breast cancer, many individuals fear that soy can increase their risk for breast cancer development. There have been several research studies conducted to assess the association between soy consumption and breast cancer development; animal studies have primarily established a positive correlation between soy consumption and breast cancer, but human population studies have not produced this same result.” Read More. Natural Remedies For Cancer Treatment Toxicities Foods that may alleviate insomnia include poppy seeds, pumpkin seeds, butternut squash seeds, herbs like valerian and lavender, and honey. Ginger is also great for nausea. Read More. From Around The Web Breast Cancer Survivors ( World Cancer Research Fund ) “Lifestyle factors and survival after breast cancer" In this report from our Continuous Update Project (CUP) – the world’s largest source of scientific research on cancer prevention and survivorship through diet, nutrition, and physical activity – we analyze global research on how certain lifestyle factors affect how likely it is that a person will survive after developing breast cancer. There is some evidence of links between better survival after breast cancer and: Being at a healthy body weight Being physically active Eating foods containing fibe r Eating foods containing soy A lower intake of total fat and, in particular, saturated fat.” Read More. Diet and Risk of Breast Cancer ( Contemporary Oncology ) "Studies have found that diets high in meat, alcohol, and certain types of fat can increase the risk of breast cancer, while diets high in fiber, vitamin D, and phytoestrogens (which can be found in soy, for example) can have protective effects. Epidemiological studies have reported conflicting results regarding the association of dietary fat with breast cancer risk. Diets high in polyunsaturated fat have been reported to increase the occurrence of mammary tumors in animal models. ... Fat from different types of food may have different effects on the risk of breast cancer. For example, intake of alpha-linolenic acid (ALA) from fruit and vegetable oils is inversely associated with risk of breast cancer." Read More. Two New Studies Suggest Diet Can Help Breast Cancer Survivors Live Longer ( American Institute for Cancer Research ) Two recent studies found that “overall, breast cancer survivors who eat a diet high in vegetables and low in fruit juice and carbohydrate-packed diets have a lower risk of dying during an average of almost a dozen years after their treatment ended. ... The [first] paper found that women who ate the greatest amounts of fruits and vegetables after their breast cancer diagnosis had an overall lower risk of dying during the course of the study compared to those who ate the least amounts. When Maryam Farvid, PhD, and her colleagues teased this finding apart, it was the overall vegetable intake that appeared to drive the survival link with the greatest effect, pointing to cruciferous and green leafy vegetables. Cruciferous vegetables include broccoli , cauliflower , cabbage, and Brussels sprouts . Fruit intake by itself did not show a link with mortality.” Read More. Breast Cancer Diet: Foods To Eat, Avoid, and Healthy Tips ( Healthline ) Breast cancer treatments like chemo and radiation can include side effects like nausea, mouth sores, and loss of appetite. Therefore, it is important to make sure you are actually eating enough during this time so that you can maintain your energy and a healthy body weight. Foods you should consider including: Whole, nutrient-dense foods like fruits and vegetables, whole grains, legumes, and proteins Foods high in healthy fats and protein. If you need to maintain or gain weight, incorporate sources of healthy fat like nuts and seeds, avocados, and olive oil, as well as protein sources like eggs, chicken, lentils, and fish. Protein-rich foods are especially important for maintaining muscle mass. Blended liquids such as milkshakes, smoothies, juices, or soups for those times when you don‘t feel like eating solid foods H igh fiber foods like whole grains, flax seeds, legumes, vegetables, and fruits to treat constipation In certain situations determined by your doctor, you may need to avoid or reduce your consumption of specific foods and beverages, including: Alcohol could interact with the cancer drugs you take. There is also some limited evidence that drinking alcohol may increase the risk of recurrence and mortality for existing breast cancer. Spicy, crunchy, or acidic foods. These may increase mouth soreness, which is a common chemotherapy side effect. Undercooked foods. If you have breast cancer, you’re at a higher risk of developing infections. Avoid raw foods like sushi and oysters during your treatment. Cook meats, fish, and poultry to a safe temperature before eating them. Read More.

  • Pet Companionship Offers Comfort for Breast Cancer Patients and Survivors

    Most people are familiar with the devastating physical effects of cancer. It's rare to find someone whose life hasn't been affected by it in some way—whether indirectly, through a friend or relative, or directly. But what many people don't know is that the mental and emotional repercussions of cancer can be just as insidious as its physical side effects—and often much harder to recognize and address. In addition to the fear and stress of facing a life-threatening illness and extensive, painful medical treatments, many cancer patients feel isolated and lonely . Often, they no longer have the energy or ability to participate in social events or activities, or the people in their lives cannot fully understand what they're going through. For many breast cancer patients dealing with such feelings, pet companionship offers great comfort. Loneliness: Health Consequences and Negative Impact The connection between cancer and loneliness is even more concerning in light of the research showing that loneliness comes with its own set of health-related consequences , including substance abuse, depression, and heart problems. In addition, loneliness isn't necessarily tied to the amount of social contact. Even a cancer patient with loving caregivers and a supportive network of friends and family can experience loneliness and stress. Even though most research around cancer focuses on prevention and treatment, cancer survivorship, which covers the unique experience and risks associated with being a cancer survivor, is receiving more attention. According to experts, loneliness is just as crucial for survivors as it is for cancer patients. For example, one study showed a significant correlation between loneliness and recurrence for breast cancer survivors. The Benefits of Pets for Cancer Patients and Survivors For cancer patients and survivors suffering from the effects of loneliness, one potential solution may be a drive to the local animal shelter. The health benefits of owning a pet are widely recognized by now; among them, the CDC lists things such as decreased blood pressure and cholesterol, reduced feelings of stress and loneliness, and increased physical fitness . In addition to providing unconditional love and much-needed physical contact, having a pet may come with the added benefit of giving life a sense of purpose and structure for cancer patients and survivors. Caring for a pet can supply an external sense of motivation and responsibility for people who might otherwise feel hopeless. Even for cancer patients and survivors who don't own a pet, animal-assisted therapy during treatment can help to alleviate the pain or boredom of treatments and lift their spirits. While many pets can provide a sense of companionship, dogs tend to show up most frequently in discussions of the therapeutic benefits of pets. For example, you may have heard stories about dogs reportedly being able to sniff out cancer. But, in addition to their diagnostic capabilities, dogs can help their owners in various other ways. For example, dogs need exercise, which means their owners are likely to be more active. Physical exercise results in the release of endorphins, which can help with pain management and mood improvement. In addition, just petting dogs has been shown to result in decreased levels of cortisol (the stress hormone) and increased levels of oxytocin (the feel-good hormone) . It's worth noting that, while pets and animal therapy can have enormous benefits for people experiencing the effects of cancer, these options might not be a good idea for everyone, especially patients or survivors who are immunocompromised. Because of the potential risk of catching diseases from animals, patients should consult with their doctors about whether having a pet is safe and which animals are most suitable for them. SurvivingBreastCancer.org (SBC) is dedicated to supporting those affected by breast cancer and their families. SBC provides an educational and virtual community platform to help breast cancer patients, survivors, and their families navigate prevention, diagnosis, treatment, and beyond. Check out our resources or consider donating today! SurvivingBreastCancer.org Resources & Support: Our Podcast Online Support Groups Free, Weekly Events

  • Breast Cancer and Gratitude

    For many in the US, celebrating Thanksgiving represents a chance to reflect on what we are truly grateful for. At SurvivingBreastCancer.org , we recognize that gratitude matters and plays a critical role in positive reinforcement. We are eternally grateful to all of our community and Board members, medical advisors, sponsors, collaborators, and you. In addition, we have recently reached out to our community to ask what they are grateful for. What follows are five of the prominent themes that members of our community shared that they are most grateful for: Family, friends, and loved ones ranked highest: We found that the loving and mutually respectful support and comfort that is derived from this group enables us to collectively meet the challenge of a breast cancer diagnosis. The SBC breast cancer community: Playing a role within our vaunted community significantly adds to the positivity and understanding of our prognosis and future. Those who are newly diagnosed can take advantage of the experiences of those who came before them, with the associated offers of hope and support. SBC allows us to experience cancer not in isolation, but rather, with our new breast cancer family. Positive people: What a difference positivity makes in the healing process as we continue to navigate our way through the trials and tribulations of this heinous diagnosis. Intimacy: The majority of this beautiful community have been deprived of estrogen, or have experienced surgical scarring, breast tissue reduction, or breast removal, and note that the associated lack of sex drive can be countered with a timely, loving embrace, e.g., hugging, handholding, and loving proximity. Note: The opportunity to spend physical time with your loved ones is something that we feel should never be taken for granted—as we’ve come to know all too well in this community. Random acts of kindness: in this day and age, we are bombarded by negativity on TV, in the news, at work, responses to the COVID-19 virus, and our Social Media. How refreshing it is to observe in real time, or through the lens of SM, a random act of kindness. We have all come across/viewed an act of kindness and immediately felt the benefit of the intentionality. And so we close by asking, “Have you performed a small random act of kindness to another, and how did it make you feel”? From SurvivingBreastCancer.org Feature Friday: Breast Cancer and Journaling Among many forms of journaling, gratitude journaling is a popular practice for reminding us of the positive things in our lives, even during tough times. Read More. Cancer Helped Me Find Myself “If there’s one gift I’ve received from getting MBC, it is a clearer vision of what really matters to me. Thankfully, I’ve had some time to put that into practice: to care more lovingly for myself, to decide what really “fills my bucket” and get as much of that as I can, to heap love on my family and friends, to create things (such as my children’s baby albums, finally—they are 25 and 23!), to spend time in nature, to whittle out things and people and responsibilities that don’t serve me anymore.” Read More. Choosing To Change “As I continued to practice being present, I realized that I no longer desperately searched for the ‘other side’ of cancer, my mind wasn’t constantly wandering to the what-ifs and the how-will-life-be's. Instead, I had many moments of acceptance, surrender, peace, and gratitude every single day. It felt amazing, but also very unfamiliar. Contemplating this unfamiliar sense of stillness one day, I silently wondered ‘ what am I feeling’ and I heard a voice in my head respond with ‘Home….you've come home.’ When I let go of the death grip I had on all the qualifiers of how life needed to be in order for me to be happy and ok, I found my center, my true self, and it felt like coming home. I felt a belonging and recognition -- like ahhh, there you are, I've been searching for you, but I didn't know it was you I was searching for!” Read More. Acting On Internal Guidance Gloria has fought several forms of cancer over the years, including breast cancer. She writes, “I live each day in gratitude as I walk the journey of my life in daily meditation, journaling, putting healthy boundaries, eating healthy foods, and daily walks in nature while chanting. I'm very grateful for Alistair Cunningham, who was guided to write the book entitled “A Healing Journey” and all the workbooks that go with all the various modules, and run by Wellspring Canada!!!” Read More. From Around The Web Ten Reasons to Be Thankful Through Your Cancer Treatment ( TriHealth ) Here are a few reasons to be thankful that you might not have thought of. Read on for all ten. Small Victories Any kind of positive result is a victory. Be grateful for each step that gets you closer to beating cancer. Whether it is a successful surgery, clean scans, or just a “good day”, soak in these small victories and be thankful for the hope they provide. Insurance Having insurance is a reason to be thankful that is often overlooked. Without insurance, you may not be able to go through the treatments you need. A lot of people turn down treatment because they have no insurance. If you are a person who does not have insurance, be thankful that you have the ability to seek alternative resources that can help you with treatment costs. Honest Dialogue with a Confidant Whether it is a family member, a friend, your doctor, or a counselor, honest dialogue with someone you trust about your diagnosis is a reason to be thankful. To be able to talk openly about your emotional, mental, and physical struggles relieves stress and takes away the pressure you feel to carry the burden alone.” Read More. Using a Gratitude Intervention to Improve the Lives of Women With Breast Cancer: A Daily Diary Study ( Frontiers in Psychology ) A 2019 study published in Frontiers in Psychology explored the effects on quality of life that gratitude practices can provide for women with breast cancer. In this study, “each day for 2 weeks, 42 women with breast cancer described their psychological well-being, social support, and coping strategies. Women in the intervention condition reported the reasons why they felt grateful that day. Moreover, all participants took part in a pre-test session where trait measures were taken to control for dispositional differences. Listing the reasons for gratitude led to higher levels of daily psychological functioning, greater perceived support, and greater use of adaptive coping strategies. These results suggest that gratitude interventions may improve the lives of oncological patients.” Read More. Cultivating gratitude and hope during cancer treatment ( University of Texas MD Anderson Cancer Center ) “How gratitude can help during cancer treatment: Often, people assume gratitude is merely ignoring any difficulties they are facing and only focusing on the positive. But in reality, practicing gratitude gives people the ability to accept whatever their current challenges are while still finding joy throughout their struggles. Research shows that there are many benefits to practicing gratitude. Gratitude can: Increase our resilience in the face of stress and crisis Open us up to new opportunities and experiences Impact our physical responses, including lowered blood pressure, increased immunity, and reduced stress, which may lower our risks for health complications Bring an increase in healthy behaviors, such as regular exercise, preventive health care, and a healthy diet Contribute to more satisfying relationships with friends, family, and our respective communities How to Cultivate Gratitude Engaging in daily activities and exercises, such as reflection and journaling, may help to cultivate a habit of gratitude. Use this list to help kick-start your practice of gratitude: Four minutes of gratitude: Set a timer for four minutes and write down everything you are grateful for. Reflecting on this entry during times of distress or unhappiness can help put the brain into the mode of gratitude. Gratitude reminder: Pick something you see every day in your bedroom, office, classroom, hospital room, etc., that redirects you towards gratitude. Focus on this item during difficult times. Gratitude hot seat: Take turns during get-togethers with family and friends this month to verbalize your gratitude towards each other. Gratitude letters: Write a letter, send a note or mail a holiday card to someone who has had an impact on you. Use the opportunity to express your appreciation for how this person's actions have impacted you. Benefits list: Create a list of things in your life that you are grateful for. Reflect on how these are often taken for granted or how your life would be different if they were absent.” Read More. The 411: A New Approach To Gratitude ( Rethink Breast Cancer ) Shawna Rich-Ginsberg, a counsellor, gets real about ways to experience gratitude during breast cancer and some of the challenges of doing so. “For women with breast cancer, or anyone in a health crisis, there are a number of challenges [around experiencing gratitude]: The Tyranny of Positive Thinking We have this notion with health that the mind/body connection is just so powerful that if we just think positively ALL THE TIME (even when we are feeling our worst) everything will be better. In the cancer world, this is called the “tyranny of positive thinking” because it can be a burden to carry with you, especially when you are having a bad day and feeling sorry for yourself. There is also the idea that somehow positive thinking can actually cure cancer or stop it from spreading, which is absolutely unfounded. Cancer is NOT a Gift A gift or present implies something that is wanted or something for which no payment is expected in return. I can safely say after working with cancer patients for seven years that there is a price to pay for getting cancer, and it’s high. I know plenty of people who would say they have stronger relationships because of their illness, a new career, a greater appreciation for certain things, or they don’t sweat the small stuff. All of which may warrant some gratitude, but let’s be clear – no one is grateful for a life-threatening disease they didn’t ask for – they are perhaps grateful for the lessons it taught them or that they got through treatment.” Read More.

  • Physical Therapy After Breast Cancer: What Survivors Need to Know

    Among the many not-so-pleasant side effects of breast cancer treatments is decreased strength and mobility. While often necessary for treating breast cancer, surgeries, like lumpectomies, mastectomies, and reconstruction, can damage nerves and muscles and leave scar tissue after healing, all of which can limit our movement. This is especially true of movements involving the arms and chest since those are so closely connected with the surgery sites. Physical therapy can help alleviate tightness and help you regain your strength and range of motion. Working with a physical therapist or a trainer who has experience with those diagnosed with breast cancer is also important in terms of safely returning to exercising and strength training on your own. A physical therapist can walk you through stretches and exercises that can help you recover, and can make sure that you progress gradually in a safe way so that you do not injure yourself or cause complications after breast surgery. Like any exercise, it’s important to talk with your doctor before beginning. It’s also important to remember to be patient with your progress. Take things slowly; your body has been through a lot of physical trauma. Incorporate other gentle movements. Get outdoors when possible. Why Physical Therapy Matters After Breast Cancer Treatments for breast cancer, while lifesaving, can leave lasting physical effects. These may include: Limited range of motion in the shoulder and arm Post-surgical pain or tightness Scar tissue adhesions Lymphedema (swelling in the arm or chest wall) Weakness or fatigue Postural changes and balance issues Axillary web syndrome (cording) Physical therapy can address each of these issues in a personalized and supportive way, helping survivors return to their daily routines with strength and confidence. Types of Physical Therapy for Breast Cancer Survivors Here are the most common and effective forms of physical therapy used during and after breast cancer treatment: 1. Range of Motion & Stretching Exercises Post-surgery, many survivors experience stiffness and reduced mobility, particularly in the shoulder and chest area. A physical therapist will guide you through gentle stretching exercises to: Improve flexibility in the chest, arms, and upper back Prevent “frozen shoulder” Make daily activities like dressing, driving, and reaching overhead easier Common exercises might include wall climbs, shoulder rolls, and gentle arm lifts — always adapted to your recovery stage. 2. Strength Training After months of treatment, it’s common to feel physically weakened. Supervised strength training helps: Rebuild muscle tone, especially in the arms and upper body Improve posture and prevent muscle imbalances Support bone health, especially for those on hormone therapy Physical therapists often begin with low-resistance bands or light weights, gradually increasing intensity as strength improves. 3. Scar Tissue Mobilization Surgical scars (especially after mastectomy or reconstruction) can become tight and restrict movement. Scar tissue mobilization is a manual therapy technique that involves: Gentle massage around the scar area Techniques to break up adhesions and soften tissue Improvement in skin flexibility and comfort This therapy can also help with body image by reducing discomfort and improving how your body feels. 4. Lymphedema Management Lymphedema — a buildup of lymphatic fluid causing swelling in the arm, breast, or chest wall — can occur after lymph node removal or radiation. Specialized physical therapists, known as Certified Lymphedema Therapists (CLTs) , can provide: Manual lymphatic drainage  (gentle massage to move fluid) Compression therapy  (bandaging, sleeves, or garments) Lymphatic exercises  to promote drainage Skin care education  to prevent infection Early detection and treatment are key to preventing long-term complications. 5. Postural Re-Education Breast cancer surgery and reconstruction can affect posture, leading to rounded shoulders, neck strain, and back pain. PT can include: Posture correction exercises Core strengthening Alignment awareness training Proper posture not only improves physical function — it can also improve self-esteem and body confidence. 6. Neuromuscular Re-Education Sometimes, breast cancer treatment affects nerve sensation or leads to neuropathy (especially from chemotherapy). PT may include: Balance and gait training Exercises to improve coordination Desensitization techniques to retrain nerve endings These exercises help survivors feel more stable and safe during daily activities. When to Start Physical Therapy The ideal time to begin physical therapy depends on your treatment plan. Some survivors start prehab  (pre-surgery PT) to build strength ahead of time, while others begin rehab just a few weeks after surgery. Always check with your oncologist or surgeon before starting, and look for a physical therapist with experience in oncology rehabilitation. Healing is More Than Medical Physical therapy after breast cancer isn’t just about fixing what’s broken. It’s about restoring you —your independence, your strength, and your sense of agency over your body. At SurvivingBreastCancer.org , we believe in a whole-person approach to healing. Whether it’s through movement, mindfulness, or creative expression, you deserve the tools and support to thrive long after treatment ends. If you’re unsure where to start, ask your care team for a referral to a breast cancer rehabilitation specialist or contact us to connect with others who have walked this path before you. You’ve already survived breast cancer. Now it’s time to reclaim your strength, one stretch, one step, and one breath at a time. More From SurvivingBreastCancer.org Men Do Get Breast Cancer, Even Me In detailing his treatment plan, Ted shares that after surgery and chemotherapy, he had to go through physical therapy before beginning radiation. This was to improve mobility in his right arm after breast tissue and lymph nodes had been removed on that side. Read More. The Benefits of Exercise Exercise has so many benefits for both your physical and mental health. After cancer treatments, you may have lost some of your previous strength and mobility, which can make exercising challenging. A physical therapist can help you safely get back to exercising. Read More. My Body Was Telling Me Something Was Wrong During Sonja’s lumpectomy, the surgeon needed to cut through the intercostobrachial nerve because of a growth on top of it. Therefore, she now sees a physical therapist for lymphedema and hypersensitivity. “I love my physical therapist. I just found out that due to the nerve being cut and due to having no lymph nodes in that area, I will always have the hypersensitivity.” Read More. From Around The Web Physical therapy a critical component while recovering from breast cancer surgery ( Cancer Treatment Centers of America ) “Whether it’s a lumpectomy or a double mastectomy , most breast cancer treatments involve some type of surgery, or even multiple surgeries, which often come with side effects, such as pain and lymphedema. ‘Physical therapy after breast surgery may help in three areas. One is range of motion and strength, the second is lymphedema, and the third is pain,’ says Miral Amin , MD, Surgical Oncologist and Oncoplastic Breast Surgeon at our Chicago hospital .” Read More. Exercises After Breast Cancer Surgery ( American Cancer Society ) The Oncology Section of the American Physical Therapy Association offers several suggestions of stretches you can do to help restore movement after surgery. “It’s very important to talk with your doctor before starting any exercises so that you can decide on a program that’s right for you. Your doctor might suggest you see a physical therapist or occupational therapist, or a cancer exercise specialist certified by the American College of Sports Medicine. These health professionals are specially trained to design an exercise program just for you. You might need this kind of help if you do not have full use of your arm within 3 to 4 weeks of surgery. Some exercises should not be done until drains and sutures (stitches) are removed. But some exercises can be done soon after surgery. The exercises that increase your shoulder and arm motion can usually be started in a few days. Exercises to help make your arm stronger are added later.” Read More. The Role of Physical Therapy in Breast Cancer Rehabilitation ( N2 Physical Therapy ) “Even before surgery, physical therapy can help. Prehabilitation is defined as the time of care that occurs between the time of diagnosis and actual cancer treatment. Evidence is showing that prehabilitation can improve psychological and physical outcomes of treatment. The goal of physical therapy in prehabilitation is to: Assess baseline measurements: range of motion of shoulders and spine, and circumference of both upper extremities. Identify any impairments that may affect recovery, such as muscle weakness, postural dysfunction, and pain. Educate on lymphedema and risk reduction. Establish an exercise program prior to and after surgery.” Read More .

  • Palliative and Hospice Care Toolkit

    Welcome to our Palliative Care Resources and Toolkit. Here you will find helpful information to assist you and your loved ones as you navigate a metastatic breast cancer diagnosis and end-of-life conversations, choices, and decisions. Two important facts we want to highlight and ensure you are aware of: If you are diagnosed with metastatic breast cancer, you are eligible for palliative care. If your physician has not offered you this resource, please ask if your oncologist can refer you to a palliative care team. People are eligible to receive hospice care up to six months. This means you do not need to wait days or weeks to have access to hospice. The sooner you are able to be connected with a hospice team, the more support and resources you will have access to. The goal of these resources is to help you and your loved ones be as prepared as possible with the logistics and to remove stressor so that you can focus on what is most important during this intimate time of transition. Podcast Episodes Palliative, Hospice Care, and End of Life Planning What is Palliative Care What is Included in Palliative Care? End of Life Planning with Dee Dee Turpin and Matt Whitaker End of Life Planning with Valerie Armond and Jennifer O'Brien End of Life Can Be Beautiful with Christy Knutson Financial and Estate Planning Estate Planning - Access and Authority with Anna Spencer, Part I Estate Planning with Anna Spence r ,Part II Navigating Difficult Conversations When Enough is Enough: Saying no to more chemo Managing Rogue Family Members at End of Life Having the Cards Stacked In Your Favor Can Help With Difficult Conversations (the Death Deck Card Game) Understanding Grief Giving Yourself Permission to Grieve with Kelly Groslags Caregiver Bereavement - Caregivers' Perspective Anticipatory Grief. How to Speak to Your Kids About Cancer Videos Additional Resources The Hospice Doctors Widow: A Journal Dying Your Way Exiting Gracefully LLC Survivingbreastcancer.org/events Staynear.co A Necessary Conversation Compassion and Choices Ciitizen/SBCtrials

  • End of Life Logistics, Advanced Directives, and Estate Planning Toolkit

    We understand that preparing for the end of life is a daunting task and can be a topic that many people and families avoid. This is not uncommon, and we know how challenging this can be. Talking about death and the end of life is no longer taboo. In fact, the more we talk about it, share our wishes, and speak with estate planners, we are not only ensuring that our end of life is as beautiful and comfortable as possible, we are also giving our families and loved ones peace of mind and enabling them time to grieve, instead of needing to manage the follow up that can quickly become overwhelming during a time of difficulty. Planning ahead is one of the greatest gifts you can leave your family. Podcasts Financial and Estate Planning Estate Planning - Access and Authority with Anna Spencer, Part I Estate Planning with Anna Spence r ,Part II Financial Planning with Dianne Webb Videos Why and How You Should Create A Trust & Estate Plan What is the Difference between HSA and FSA? Preparing Your Advanced Directives Signing a Health Care Surrogate Form Additional Resources

  • Download Resources

    This page is continuously being updated with resources and tools to best serve our breast cancer community. Be sure to check back often for any new content! Subscribe to our mailing list so you never miss news and information.

  • Parenting Toolkit

    Welcome to our Parenting Toolkit. Here you will find helpful information to assist you and your loved ones as you navigate a breast cancer diagnosis while also managing the day-to-day of being a parent. Podcast Episodes Explaining Cancer to your Children My Mom Has Breast Cancer, Now What? Support for Single Parents living with MBC Anticipatory Grief. How to Speak with your Children About Cancer Losing Mom to MBC - Panel Discussion Additional Resources Camp Kesem Inheritance of Hope Little Pink Houses of Hope #PinkKids Ciitizen/SBCtrials

  • Protecting your Heart and Long-term Vitality with Targeted Nutrition

    By Kim Dalzell, PhD, RD, Founder, Cancer Nutrition IQ Those I know who are living with metastatic breast cancer choose to feed themselves with things that support overall health and vitality. There is no talk of cure, which opens the door for living well intentionally every day. I believe this mindset makes food choices a little easier, knowing that you can consume something that will feed cancer stability and possibly stave off any side effects from ongoing treatment. A targeted nutrition plan can make your decisions a little more confident when deciding what to eat or which dietary supplements to take. One of the most serious side effects related to chemotherapy used to treat metastatic breast cancer is the weakening of the heart muscle, leading to heart damage that can impact your quality of life. And the cardiac side effects from chemo, like an enlarged heart or congestive heart failure, can appear during cancer treatment or years down the road. A recent study found that having a cardiovascular event, like a heart attack or stroke, may make breast cancer grow faster. (Nature Med, Jul 2020) Breast cancer survivors who developed specific cardiovascular diseases and events—namely heart attack, stroke, heart failure, coronary artery disease , or arrhythmia—had a 59% higher risk of breast cancer coming back and a 60% higher risk of dying from breast cancer than women who did not develop cardiovascular disease. Along with your doctor, who monitors for cardiotoxicity, there are some things you can do from a nutritional standpoint to decrease the negative impact of chemotherapy on your heart and support your goal of a stable diagnosis. Here are three classes of chemotherapy associated with damage to the heart muscle and the nutritional recommendations for each: Anthracyclines Anthracycline drugs like daunorubicin (Cerubidine), doxorubicin (Adriamycin, Doxil), epirubicin (Ellence), idarubicin (Idamycin), and valrubicin (Valstar) kill cancer cells by destroying their genetic material and preventing them from reproducing. This killing spree causes a buildup of unstable oxygen molecules, which leads to the development and progression of coronary artery disease. Researchers have discovered that if you can upregulate a gene called SESN2, the damaging cells clear out and you are more protected from heart damage. (J Mol Cell Cardiol, Aug 2019) Choosing foods that increase SESN2 activity may aid this process! Fruits and vegetables like strawberries, apples, mangoes, persimmons, kiwis, grapes, tomatoes, onions, and cucumbers contain a natural compound called fisetin, which upregulates SESN2. Fisetin may also decrease inflammation and stop the spreading of cancer cells. (Adv Exp Med Biol, 2016) One laboratory study found that fisetin dramatically inhibited the growth of primary breast tumors and reduced lung metastasis in triple-negative breast cancer cells. (Front Pharmacol, Jul 2018) Anti-Metabolites 5-fluorouracil (Adrucil) is one of the oldest chemotherapies for breast cancer and is used as palliative treatment for metastatic breast cancer patients. It is the second most common chemotherapeutic drug, after anthracyclines, associated with damage to the heart muscle. Cancer cells die when they incorporate anti-metabolites because their DNA and RNA become dysfunctional, preventing them from reproducing and making vital proteins. Unfortunately, this type of chemotherapy also causes collateral damage to the endothelium (the membrane that lines the inside of the heart and blood vessels). (Can J Cardio, Jul 2016) Choosing foods to support a healthy endothelium may help protect you against cardiotoxicity! Population studies and clinical trials reveal that omega-3 fatty acids can prevent cardiotoxicity and improve blood vessel responsiveness. Additional benefits of omega-3 fatty acids may include alleviating chemobrain and pain associated with chemotherapy (Nutrients, May 2019), and animal studies indicate a diet rich in omega-3 fatty acids protects against mouth or gut soreness and inflammation. (BMC Nutr, Mar 2016) High omega-3 foods include flaxseeds, chia seeds, fish, walnuts, tofu, shellfish, canola oil, navy beans, brussels sprouts, and avocados. It's almost impossible to get enough omega-3s through the diet. For synergistic cardioprotective benefits, choose an omega-3 supplement that contains a blend of balanced fatty acids combined with hawthorn berry, known to exert anti-cancer effects on human breast cancer cells. (Food Chem, Nov 2013) By the way, natural products containing folic acid may increase the effects of 5-FU, leading to more serious side effects like anemia, infections, and nerve damage, so check your dietary supplement labels carefully. Cyclophosphamide Alkylating agents, like cyclophosphamide (Cytoxan), kill cancer cells by slowing or stopping their growth. The incidence of acute heart failure is anywhere between 7% and 33% of patients receiving a total dose of more than 150 mg/kg of cyclophosphamide. To work in the body, cyclophosphamide requires the metabolic activation of the cytochrome CYP3A4 enzyme. If CYP3A4 expression is altered, drugs that are not metabolized may not work as designed. Or they may stay in the bloodstream longer, build up in the blood, and become toxic, increasing the risk for muscle damage and heart arrhythmia. Popular dietary supplements and foods that have a high risk for interaction with cyclophosphamide include grapefruit and grapefruit juice. Some less popular citrus fruits, such as Seville orange (bitter orange found in marmalade and savory dishes), pomelo, and star fruit, have similar properties to grapefruit and should be avoided as well. It is estimated that the inhibition of CYP3A4 can last for longer than 3 days after consuming grapefruit juice until new enzymes have been synthesized in the gut wall! (BMJ, Jan 2013) Some natural combinations have been tested in conjunction with cyclophosphamide administration and show some promise. For example, curcumin and black pepper (piperine) offered strong cardioprotection in animals. (Indian J Pharmacol, Jan-Feb 2017) Dietary glutamine given to animals decreases cardiac tissue damage and offers protection against the acute cardiotoxic effects of cyclophosphamide. (Nutrition, 2009). Nutrition recommendations include integrating turmeric and black pepper into meals and consuming glutamine-rich foods like chicken and fish, vegetables like beans, beets, cabbage, spinach, carrots, kale, and Brussels sprouts. When it comes to nutritional therapy, a general approach of healthy eating gets you started; however, when you choose a targeted approach based on the type of chemotherapy you are being treated with, as well as the subtype of breast cancer, you can pinpoint the foods to consume and learn which ones to avoid. Food is meant to be enjoyed, and with a targeted plan, you can relax knowing the foods and dietary supplements you choose will provide you with the best healing opportunities. --- Connect with Dr. Kim: Cancer Nutrition IQ FB community at CancerNutritionIQ YouTube Channel, DrKim Cancer Nutrition IQ

  • Acupuncture Offers Drug-Free Pain Relief for People Living with Breast Cancer

    If you or someone you know is dealing with ongoing pain or is currently undergoing breast cancer treatment, acupuncture may provide relief. Acupuncture, a drug-free pain management option, helps to control and improve many side effects from chemotherapy, radiation, and surgery. Several studies have shown that acupuncture can help with pain, fatigue, insomnia, neuropathy, and nausea. One of the most significant benefits of acupuncture is that it lasts for months, unlike pain medications, which many patients must take frequently. What is Acupuncture? Acupuncture is a central part of traditional Chinese medicine (TCM), an ancient system of medicine. A fundamental belief in Chinese medicine is that vital energy “qi” (pronounced “chee”) flows through 20 pathways in the body. Therefore, if qi is blocked, the body can’t function at its peak. The goal of acupuncture is to open specific points on these pathways and release blocked qi. The practice of acupuncture uses sterile, hair-thin needles inserted into specific points on the skin, called "acupuncture points," and then gently moved. Researchers theorize that acupuncture stimulates the nervous system to release natural painkillers and immune system cells. They then travel to weakened areas of the body and relieve symptoms. While there is no evidence to show that acupuncture can help treat or cure cancer, multiple studies have confirmed that it provides excellent pain management options. In addition, growing evidence suggests that acupuncture surpassed other pain therapies , such as physical therapy, steroids, and pain medicine traditionally used to ease ongoing muscle and joint pain among cancer survivors. Acupuncture is considered a complementary and alternative medicine (CAM), the term for medical products and practices not included in standard medical care. Other forms of CAM include massage, tai chi, and drinking green tea. Types of Acupuncture A recent study reviewed the effectiveness of two types of acupuncture: Electroacupuncture and Auricular (ear) acupuncture. Electroacupuncture uses tiny, thin needles—about the width of a hair—and a very low-frequency electric current to stimulate points on the body. It is different from other forms of acupuncture that don’t use an electrical current. Electroacupuncture is very customizable to each patient, and the needles are removed after each session. Auricular (ear) acupuncture uses small studs that look like tiny earrings to stimulate up to ten points in a patient’s ear. The points are the same for each person, and the needles stay in the person’s ear for three to four days. The study found that ​both types of acupuncture significantly reduced people’s chronic pain compared to usual care with or without medication; however, ear acupuncture is not as effective as electroacupuncture. In addition, people were better able to tolerate electroacupuncture. Less than one percent of electroacupuncture participants dropped out of treatment because of side effects (most commonly bruising). However, eleven percent of those receiving ear acupuncture dropped out of treatment, primarily due to ear pain. Important Things to Consider Before Trying Acupuncture Check with your doctor to see if acupuncture might be right for you. Although millions of people are treated successfully with acupuncture every year, as with all therapies, acupuncture carries certain risks. Check Certification Acupuncture practitioners must have a certain number of hours of training and should be certified. The American Board of Medical Acupuncture keeps a list of board-certified physicians training in an approved program. In addition, the National Certification Commission of Acupuncture and Oriental Medicine website has a searchable practitioner directory of certified acupuncture practitioners who are not medical doctors. Risk of Lymphedema Patients who have had lymph nodes removed from under the arm should not have needles inserted into that arm. Using acupuncture on that arm carries a risk of lymphedema or swelling caused by excess fluid in the arm. Instead, consider using other treatments on that arm, such as aromatherapy. Risk of Infection It is standard practice to use disposable, single-use, sterile needles and to swab acupuncture areas with alcohol or a similar disinfectant before using needles. Infection is always a risk, but the risk is higher if the acupuncturist does not follow this process. In addition, people with low white blood cell counts are at an increased risk of infection during acupuncture because a low white blood cell count weakens their immune systems. Risk of Bleeding for Certain People Because of the risk of bleeding, people who have bleeding disorders or low white blood cell counts and those who take blood thinners shouldn’t have acupuncture. Risk of Reducing Chemotherapy Effectiveness Due to Herbal Supplements Sometimes acupuncture incorporates the use of herbal supplements. However, do not take herbal supplements while undergoing chemotherapy, as they can reduce the effectiveness of chemotherapy. Resources You Can Count On Dealing with breast cancer and the pain of treatment can be challenging. Your support enables Surviving Breast Cancer to provide a suite of programs and resources and online support groups to ensure that no one is alone.

  • The Healing Power of Movement

    Most people are aware that some form of movement is beneficial. Whether exercising your muscles or your brain, moving every day can improve your health. It doesn’t need to be strenuous, sweat-inducing, high-impact exercise. Implementing movements like walking, yoga, or cycling can positively impact your overall health. The Body, Mind, Spirit Connection You may be familiar with the body, mind, spirit connection—a whole-person approach. The interconnection suggests how our thoughts, physical selves, and emotions affect one another. The way we look after our physical bodies will determine our emotional well-being and vice versa. The link between mind, body, and spirit isn’t just anecdotal; it’s a scientific fact. Research reveals three separate neural pathway networks, leading to the head, the gut, and the heart . Dubbed the three brains, they are all capable of controlling how we feel and react. If our physical health is sound, but our mental or spiritual well-being is not, the effects will eventually impact our physical health. Similarly, poor physical health affects our satisfaction, contentment, and mental state. The delicate balancing act leads to optimal health. Nourishes Your Mind, Body, and Spirit Some consider movement “free medicine.” Even small doses practiced with consistency can extend longevity and prevent and treat disease. As far back as Hippocrates and Plato, physical activity was viewed as good for health. Over the years, evidence-based studies have confirmed that movement reduces mortality risks and protects us from chronic medical conditions like type 2 diabetes, obesity, dementia, and cancer . One study found that breast cancer survivors benefited from low-impact aquatic exercise, which improved common side effects of breast cancer treatments. Although more research is needed, the study also suggests water exercise may help with lymphedema . Research also shows that your thoughts, feelings, and expectations can positively impact your physical health. For example, if you're sick but have hope and a positive attitude and believe that you'll get better, your brain will likely produce chemicals that boost your body's healing power. While this doesn’t mean that simply being optimistic can cure your body, it can be helpful in some instances. How Movement Helps Protect Against Breast Cancer In addition to the overall health benefits of movement, engaging in exercise can help lower the risk of breast cancer . Although how movement lowers breast cancer risk is not fully understood, researchers believe that physical activity regulates hormones, including estrogen and insulin, which are known to fuel breast cancer growth. Movement Helps the Newly Diagnosed, Patients, & Those Living with Metastatic Disease Virtually any form of exercise, from aerobics to yoga, can relieve stress, so it can be a significant help when a breast cancer diagnosis amplifies your stress levels. Incorporating movement into your life can also affect how well you treat, manage, or cope with your illness. Even if you’re not the athletic type or you’re out of shape, even a small amount of exercise can be a factor for stress management. In addition to increasing your overall health and sense of well-being, exercise also has specific stress-reducing benefits. Increases Your Endorphins Physical activity is an excellent way to foster the production of your brain's feel-good neurotransmitters, called endorphins. Reduces Negative Effects of Stress Exercise can provide stress relief for your body by imitating the effects of stress, such as the flight or fight response, to help your body and its systems practice working together through those effects. It can also help protect your body from harmful effects of stress, including your cardiovascular, digestive, and immune systems. Improves Your Mood Regular exercise can build your self-confidence, improve your mood, and help you relax. Movement can also reduce the symptoms of mild depression and anxiety. In addition, exercise can also improve your sleep. The Benefits of Yoga You don’t have to be a yogi to reap the benefits of a yoga class! Yoga is one example of the positive impact of movement for breast cancer patients and survivors. One study showed that breast cancer patients who practiced yoga reported less fatigue and higher vitality levels three months after treatment had ended. Getting Physical Can Help Prevent Breast Cancer Recurrence There’s also evidence that physical activity might prevent breast cancer recurrence. One report found that women who engaged in regular physical activity before their cancer diagnosis and after treatment were less likely to have their cancer come back (recur) or die than those who were inactive. According to a review published in the Canadian Medical Association Journal, exercise significantly affects survival rates. In addition, the study found that exercise appeared to be far more likely than other lifestyle factors to reduce the risk for breast cancer recurrence and mortality. Another study by the National Cancer Institute concurs that regular exercise may improve survival rates. Getting Started Talk with your oncologist and care team before starting a fitness routine. Then, if you feel well enough to start exercising, and if your oncologist and care team have given their approval, you can work out during treatment. It's important to start slow; try walking, yoga, or stretching before working your way up to a more active routine. You should also listen to your body to determine how much movement is right for you and increase your exercise slowly, especially if you are still in treatment. Get Moving with Surviving Breast Cancer Regular physical activity can help maintain or improve your health during and after treatment. It can: Help you avoid or reduce some side effects of cancer treatment , including fatigue, weight gain, osteoporosis, and lymphedema Prevent or minimize the loss of muscle tone and general fitness during and after treatment Reduce anxiety, stress, and depression to help your mental well-being Surviving Breast Cancer offers free, weekly mind, body, and spirit exploration to help you heal. Join other members of our empowering community for yoga, Pilates, meditation, and more. We’re here for you every step of the way!

  • Breast Cancer and Prosthetics: Know Your Options

    When you are diagnosed with breast cancer, you are confronted with many overwhelming choices, often without much time to consider all of your options. One choice is whether or not to have reconstructive breast surgery after a lumpectomy or mastectomy. Each woman’s choice is personal and unique, and should be honored as such. It’s part of your unique and personal story. If you choose not to undergo reconstruction, or have had reconstruction and later decided to have explant surgery and go flat , breast prosthetics can be a great accessory option for you. Of course, remaining flat is always certainly an option too! If you do decide that a breast prosthetic is a good alternative to implants or tissue reconstruction, the goal of breast prosthetics (or breast forms) is to create a natural body silhouette so that you feel balanced, comfortable and confident in your bra and clothing. Why Breast Forms? Wearing the right breast form can make a big difference in how you feel every day. Some women want to minimize the number of surgeries they have; others may not be candidates for reconstruction, based on health factors or treatments. The simplest reason you might choose a breast prosthesis is for your clothes to fit comfortably. They could be just a convenient accessory to wear only when you need them – like with a special-occasion outfit or top. High-quality silicone breast forms like the ones made by our partners at Amoena behave like a real breast, moving naturally when you walk and lie down. In fact, some women find that they feel better physically when they wear prosthetic breasts. Think about your posture and how you might hold your shoulders differently with and without the natural weight of your breasts. A properly-fitting breast form may be something to consider to help with back and neck pain. Breast form features vary; depending on your lifestyle and activities, you might choose: Silicone breast forms with an adhesive back that attaches directly to your chest; Lightweight breast form options A unique swim form for water activities Breast forms with soft gel-back layers to adapt to scars or tissue Volume-adjustable breast forms that can be adjusted (as you go through the reconstruction/expansion process, for example) Temperature-equalizing breast forms that can help prevent perspiration under the form Partial breast shapers that fill in for missing tissue, if you've had a lumpectomy Comfort should be your main consideration, and the broad choice includes special shapes, smart innovations like Amoena's AirChamber technology , and even custom-made breast forms . Finding a breast form that feels comfortable to you is definitely possible, whatever your needs. With the help of a certified fit specialist, you can try on different types to see which ones feel best. Many women say they forget they're wearing it. (Sponsored) How Does a Breast Form Fit? To securely hold a breast prosthesis, there are specially designed bras with hidden pockets in the cups. For many years, these mastectomy bras were medical-looking; you may even have written them off as "grandma bras." Today, our friends at Amoena have us, those diagnosed with breast cancer, in mind, and prosthetic bras are just as beautiful as any other brand. Yet, they have smart features that address particular needs, like: A slightly higher neckline and underarm A wider underbust band for support Soft, padded straps Even if you choose a self-adhesive breast form, we recommend wearing it with a bra for the best support. About six to eight weeks after surgery if your scars have healed, you can have a personal fitting before you purchase a mastectomy prosthesis. I don't need a prosthesis, but I'm a little uneven. What can I do? Breast surgeries can have unpredictable results, whether it's a lumpectomy or a mastectomy with reconstruction. And like natural breasts, reconstructed breasts can have imperfections; the most common of these is size. They aren’t always the same size as a remaining natural breast. Sometimes scar tissue and swelling cause breasts to become misshapen. Years after your initial surgery, you may notice that things have changed on one side or the other. For any of these reasons, or even for natural asymmetry, you might choose to wear a breast shaper, which is a kind of smaller version of a breast prosthesis, to help you feel like yourself again. Breast shapers fit right into your bra; here again, for best results, it's important to wear a bra that fits properly. Amoena makes Balance breast shapers that can be rotated to fit exactly where you need them. They offer shapes that are super thin and create a smooth surface if you have scarring or unevenness. They even have a shaper that can be adjusted with a small air pump, in case you have one bra that fits slightly differently from your others . A shaper is an accessory you can wear whenever you like! (Sponsored) Insurance should cover your breast forms or shapers As you know, health care costs in the U.S. can get complicated. But you should also know that if you have been diagnosed with breast cancer and have a prescription from your doctor, Medicare and private insurance should cover the cost of breast prosthetics, breast shapers, and even prosthetic nipples (yes, really). Where to Find More Information Amoena breast forms are designed for optimum comfort and performance. They’re meant to fit into your life and restore your body confidence. If you have any questions about Amoena prosthetics, you can find Amoena online and contact them directly on Facebook and Instagram, and their website - it has a chat feature if you’d like to reach out. Certified mastectomy fitters have experience with a wide variety of breast prosthetics for cancer patients, and can help you choose which breast form might work best for you. Many of them are breast cancer survivors themselves and wear the products. Allow plenty of time for a breast form fitting, so that you can try all of the options available to you. You can find a fitter near you using this Store Locator: www.amoena.us/stores

  • Harmony as Healing

    Music in its various manifestations has served humanity well throughout many thousands of years. It is believed to have originated during the middle of the Paleolithic Period, dating back 50,000 BP to 12,000 BP. Its evidence is even depicted by dancers in ancient original cave paintings. The rhythm of music is, and has long been, recognized far and wide as a powerful tool for uplifting one’s spirit. It’s quite capable of evoking an emotional response; it may relax or stimulate, and potentially help people heal. Indeed, nowadays it’s believed to improve medical outcomes and quality of life in a variety of ways. With that in mind, Laura and I recently had the distinct pleasure to speak with and record an interview with David Victor, a California-based Classic Rocker, on our podcast, Breast Cancer Conversations . David, a guitarist and lead singer for the band BOSTON, had an intriguing story to tell. For over an hour, he regaled us with his narrative, as well as sang several beautiful songs, including an original composition, all of which he accompanied himself with a lively, acoustic rhythm guitar. His story follows: As a performing member of the platinum-selling band BOSTON back in 2012, David noticed how fans were mesmerized and transported back to their youth. He was intrigued that even hardcore BOSTON fans didn’t seem to care who the on-stage bandmates were; “they only cared that we were reproducing this searing live music that resurfaced old, pleasant memories - which made them feel good”. While on one of the final tours, he was fortunate to have the opportunity to perform a live acoustic music show for some children at Miller Children’s Hospital in Long Beach, California. Even though these youngsters didn’t really know the BOSTON catalog, they nonetheless appreciated the vibe and spirit of the music, and that he was there singing to them. As he met and played for more and more of the kids, David realized that the spirit of music and the feeling it communicated channeled a universal healing power that went straight to their souls. He performed many songs for the children that day, then took special requests, performing for these young patients in their hospital rooms, accompanied by smiling parents. David came away from that visit with a powerful, uplifting, and profoundly meaningful emotional experience: “I very much enjoyed bringing live music to patients and their families in these extremely trying circumstances in an attempt to lift their spirits, ease their burden, and help them understand they were not alone”. When he left the hospital, he had an epiphany. “I felt as if I were on “Cloud 9”, and had a flash of inspiration that I needed to use music to raise the spirits and hopes of the most fragile among us: hospital patients, their families, and loved ones”. Thus, the idea of Harmony & Healing was born. The organizational goal is to get as many live musicians in front of as many hospital and hospice patients as possible, regardless of age, bringing them soothing and heartfelt live music that resonates in their souls, brings them solace, and gives them hope for tomorrow. Website: https://www.harmonyandhealing.org Founded in January 2019, Harmony & Healing is a hospital and healthcare facility music charity, and an IRS-recognized 501(c)(3) charitable organization, founded by San Ramon resident and former classic rock band BOSTON band member, David Victor.

  • Cancer Journey

    By Nagu Sathappan My name is Nagu Sathappan. I was diagnosed with breast cancer on May 13, 2024. During a routine mammogram screening, a few centimeters of DCIS (ductal carcinoma in situ) , grade 2, were discovered. Following the diagnosis, I had to undergo six cycles of chemotherapy. The first three cycles involved a combination of drugs, while the remaining three were with a more aggressive drug called docetaxel. The side effects included heavy nausea and pain which were severe, and to make things even more challenging, I was living alone—my family is back in India. At the time of my diagnosis , I informed only a couple of people at my office. Later on, I found a few friends who stood by me throughout this journey. I had informed them quite late, but I am immensely grateful for their unwavering support . My job is based at Cambridge, but because of my treatment I am staying in Manchester. And of course 3 days a week, I have to be in the office, which I am unable to do. My workload is being adjusted based upon my hospital appointments. I’m in my early 40s and single . The girls who supported me are all much younger than me. Interestingly, I never worried much about losing my hair or my appearance. Instead, I focused on engaging in meaningful activities. I started exploring arts and crafts , which brought me great joy. I also immersed myself in music and dance—recording my own videos. I was never very active on social media, but my friends created an account for me, and I began sharing my blog posts and poetry there. These creative outlets (diamond art, painting, and knitting) kept me going. During this period, I also attended a job interview and was selected. I’m currently working for my new employer. The journey has had its fair share of ups and downs. I experienced emotional breakdowns, lost a few relationships, and went through deep emotional pain —but I have no regrets. I try to understand others’ perspectives, even when it hurts. I know I’ve paid a heavy price, but this journey has taught me a lot. After completing my six chemotherapy cycles, I underwent a lumpectomy. Unfortunately, the margins weren’t clear. I then had a second surgery—a re-excision—but again, the margins were not clear. My third surgery was a major one: a vertical therapeutic mammoplasty on both breasts. It was then that I received a major surprise—the pathology report revealed that 70% of my right breast was filled with high-grade DCIS. The cancer cells were almost invisible and also I gave only partial response to chemotherapy. Ultimately, I underwent a fourth surgery: a mastectomy with reconstruction. I opted for an ADM (acellular dermal matrix) implant. Now, I’m undergoing 14 more cycles of chemotherapy with Kadcyla, a drug designed to prevent the recurrence of cancer. These cycles will continue for a year. In addition, I’ve started hormone therapy and take tamoxifen tablets daily. It’s been a tough journey, and I’ve been fighting this for about a year now. But I believe I’ll make it through. I hope that by sharing my story, I can inspire and help others going through similar struggles. In photos with Nagu: Juhi Srivastava Read More: Ductal Carcinoma in Situ (“Stage Zero” Breast Cancer): What You Need To Know Supporting Loved Ones with Breast Cancer: How to Offer Meaningful Help Breast Cancer in Young Women: Common Questions Answered Breast Cancer and Mental Health: Recognizing and Addressing Depression and Anxiety On the Podcast: Breast Cancer Conversations Beyond One and Done: The Realities of Surgery and Reconstruction with Veronica Novy Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetup s Free Events

  • Promising Developments in Breast Cancer Treatment

    Thanks to the dedication and diligence of researchers, there are some impressive developments in finding a cure for breast cancer . Scientists harness genetics, immunotherapy, and other innovative treatments to precisely diagnose and target the disease. As a result, the most recent breakthroughs are helping to shape the way breast cancer is treated. 3-D Mammography Also known as tomosynthesis or “tomo,” 3-D mammography captures X-ray images of breast tissue at multiple angles to create a digital 3-D picture of the breast. The dimensional images created by this new technology allow doctors to examine breast tissue layer-by-layer. Doctors can detect breast abnormalities and tumors earlier with these more precise images. According to one study , this technology can also reduce the number of false alarms that require women to return for additional, unnecessary testing. Tumor Profiling Previously, the two main factors in deciding treatment have been the tumor’s stage and whether it has a significant amount of hormone receptors, determining if specific therapies will be effective. Doctors are now implementing “tumor profiling,” looking for specific genes to help select the most appropriate treatment path. When used in early-stage, hormone-receptor-positive breast cancer patients, looking at the tumor's genetic profile can help predict whether the cancer is likely to recur or metastasize and determine whether to recommend chemotherapy. Tumor profiling, also known as molecular profiling, genomic testing, or biomarker testing, looks for changes (or mutations) to genes. Typically, tumor tissue is extracted during a biopsy or surgery, and then the DNA is removed from the tumor cells. The DNA is then tested or sequenced, allowing the doctors to understand how responsive (or not) a particular treatment may be. Immunotherapy The immune system plays an important role in fighting off disease. Many of our systems’ proteins (also known as checkpoints) ensure that our immune systems do not inadvertently destroy our healthy cells. When cancer lives in the body, the cancer cells exploit the immune checkpoints. Immunotherapy—using the body’s immune system to recognize and kill tumors—has shown great promise for several cancers in recent years. However, experts believed that breast cancer was immunologically silent, or undetectable to the body’s immune system. But some research suggests that immunotherapy could potentially be effective against two less-common aggressive subtypes, HER2-positive and triple-negative breast cancer. There are several immunotherapy options for those diagnosed with breast cancer, depending on their tumor type: Pertuzumab (Perjeta) and Trastuzumab (Herceptin) are monoclonal antibodies that are approved for people with HER2-positive breast cancer. There are also Antibody Drug Conjugates (ADCs) such as Trastuzumab (Kadcyla) and Trastuzumab Deruxtecan (Enhertu) that target the HER2 pathways for people with advanced-stage HER2-positive breast cancer. Similarly, Sacituzumab Govitecan (Trodelvy targets the TROP-2 pathway and is approved for those diagnosed with Triple Negative Breast Cancer (TNBC). MAPK4 Increasing scientific evidence supports the identification of MAPK4 as a potential target for triple-negative breast cancer (TNBC). Researchers at Baylor College of Medicine noticed significant levels of the enzyme MAPK4 present in cancer growth. Investigators believe their findings support further studies evaluating the potential of targeting MAPK4 in TNBC to offer improved treatments. However, the studies produced in their lab among animal models looked promising. Improved HER2+ Metastatic Breast Cancer Survival Rates Researchers have found that adding tucatinib to treatment with trastuzumab and capecitabine provides a lasting overall survival (OS) benefit for patients with previously treated, HER2-positive, metastatic breast cancer (MBC). Trastuzumab, a monoclonal antibody, blocks tumor growth in different ways. Some block the ability of tumor cells to grow and spread. Others find and kill tumor cells or carry tumor-killing substances to them. Drugs used in chemotherapy, like capecitabine, work in different ways to stop the growth of tumor cells, either by killing the cells or preventing them from dividing. Giving trastuzumab together with capecitabine may kill more tumor cells. Tucatinib is a member of a class of drugs known as tyrosine kinase inhibitors (TKIs). These drugs bind to the part of the HER2 protein inside the cell and prevent it from sending signals that promote cell growth. Other HER2-targeted TKIs include neratinib (Nerlynx) and lapatinib (Tykerb) . In Vitro Diagnostic Testing Many doctors and healthcare physicians rely on various tools to diagnose disease and guide treatment decisions. One of the most common and widely used is in vitro diagnostics (IVDs), which are clinical tests that analyze blood or tissue samples taken from the body. According to the DFA, in vitro diagnostics may be used in precision medicine to identify those diagnosed with breast cancer who are likely to benefit from specific treatments or therapies, including next-generation sequencing tests, which scan a person’s DNA to detect genomic variations. Illumina, Inc. and Agendia N.V.recently announced a partnership to co-develop in vitro diagnostic tests for oncology testing. With next-generation sequencing , they aim to develop new tests to enhance the care and management of breast cancer patients, using the Illumina MiSeq™ Dx sequencing platform to expand the range of gene panels available for solid tumor analysis. Liquid Biopsy Testing Liquid biopsies are blood-based tests that look at circulating biomarkers or indicators in a laboratory test of features to determine what might be happening with cancer. In 2013, the U.S. Food and Drug Administration (FDA) approved the first liquid biopsy test, the CellSearch® CTC enumeration platform, to monitor patients with advanced metastatic breast, colon, and prostate cancers based on the cancers’ level of circulating tumor cells. Since then, additional liquid biopsy tests have received FDA approval. Examples of liquid biopsies include circulating tumor DNA and DNA fragments shed by primary or metastatic tumors into the blood circulation. Another example of a liquid biopsy would be circulating tumor cells, whole cells shed by tumors into the circulatory system. Other examples of liquid biopsies are more exploratory. Liquid biopsy tests provide a quick and non-invasive way to analyze tumors using biomarkers circulating in the blood. The process has been refined using next-generation sequencing to target many cancer-related genes in advanced cancer. As a result, these tests have increased their range of clinical applications in cancer treatment, including monitoring cancer growth, detecting genetic mutations, identifying signs of relapse, and predicting sensitivity to immunotherapy. Precision Medicine Precision medicine has transformed cancer therapy from a one-size-fits-all approach to customized treatment. For example, precision medicine for breast cancer is an approach to diagnosis, treatment, and prevention that considers the genes you're born with (your genetic makeup) and the genes or other markers present within the cancer cells. With this approach, your blood or tumor tissue is collected for analysis, often genetic. For example, with the knowledge that biological changes within DNA, RNA, and proteins—the underlying cause of cancer—vary widely across patient populations, precision medicine provides personalized solutions for each patient. Count On Us for the Tools and Support You Need Whether you’re newly diagnosed with breast cancer , are navigating survivorship, or are the loved one of someone experiencing breast cancer, you can count on Surviving Breast Cancer to keep you informed. We also provide educational information to help you better understand symptoms, testing, treatment options , surgery, etc., and podcasts that feature professionals, advocates, and caregivers who share valuable information. Our global online community not only offers opportunities to connect with others for safe, judgment-free, peer-to-peer support but also ensures that you’re never alone. We also offer healing workshops and mindful movement classes , and you can join any of our groups or get matched with a mentor .

  • Spirituality and Breast Cancer

    Spirituality and Breast Cancer Thankfully, scientists have made many advances in breast cancer treatments. However, receiving a breast cancer diagnosis can still be devastating and terrifying. The immediate focus is on your medical treatment plan , but it usually doesn’t include any aspects addressing your mind, spirit, and soul. Integrating spirituality into your treatment plan can offer many benefits during your treatment. Defining Spirituality The word ​​spirituality is derived from the Latin spiritus, meaning breath. It’s the relationship you have with a force or power beyond yourself. That force could be God, or a life force, or an essence surrounding us all. Others might draw spiritual inspiration from philosophy or the arts. Spirituality differs from religion. It is the expression or experience of the sacred, the individual search for meaning, or a power greater than one’s existence. Religion is based on an organized system or group of practices and beliefs. Some people belong to a religious institution, while others can be spiritual but not religious. Religion and spirituality are similar in that they both have values and practices that help guide you through life. The main difference between spirituality and religion is that religion is a faith or belief system held by a community. Thus, religion is experienced as part of a group, whereas spirituality is more personal. Some people express their spirituality through religion. Cultural traditions, religious beliefs, and upbringing can impact spirituality. For example, some people may find comfort in childhood traditions while others may search for new ones. The Benefits of Spirituality How spirituality and health are related is not fully understood; however, research suggests that spirituality can help patients develop and maintain a positive attitude that helps them feel better and improves their well-being. Physical Well-Being Recent studies have shown that cancer patients who reported integrating spirituality and religion into their lives also reported better physical health and fewer physical symptoms of cancer. Mental Health Other studies reported that cancer patients with emotional aspects of religion and spirituality exhibited positive mental health . In other words, these patients had less anxiety, depression, or distress. Positive thinking can have a tremendous impact on everything from preventing illness to your healing capacity. How Spirituality Can Help You During Treatment Spirituality can be a significant resource for patients to help them cope with fear and anxiety during the various stages of the cancer journey. Those spiritual moments when you feel connected to a deeper meaning or reality, such as when you feel close to nature, speak with a loved one, or sense a greater power, can be extremely powerful and healing. A breast cancer diagnosis can leave you feeling many emotions. You may be scared, anxious, hopeless, lonely, and angry. It may force you to contemplate your mortality, which can be heavy at any age. It’s not unusual for your mind to be swimming with questions. You wonder what the outcome will be and why this is happening to you. Some people may find their beliefs and hopes for the future challenged. Others may feel anger toward God or a higher power and experience a loss of faith. Finally, those without a strong support system might feel alone. For some people, this is where the benefit of spirituality can make a difference. Research has shown that spirituality can offer many benefits to patients from diagnosis to survivorship . Spirituality can help you cope and decrease fear, anger, anxiety, and depression. It can also increase feelings of hope, optimism, and peace. Integrating spirituality into traditional and complementary treatment has also been shown to improve feelings of well-being and empowerment, which can benefit your treatment. Podcast #103. Yoga For Breast Cancer - It's More Than A Pose Integrating Spirituality Into Your Treatment Plan There are multiple ways to incorporate spiritual practices or rituals to help you cope with breast cancer. Spiritual exercises can be as simple as concentrating on gratitude or keeping a gratitude journal, listening to music , practicing mindfulness , or prayer . You can also find spirituality through guided imagery, yoga, pilates, or Tai Chi classes. Another option may be working with a Reiki energy healer. Tips for Strengthening Your Spirit There are many ways to focus on your spirituality, such as: Meditate or pray regularly. Meditating or praying can help you remain calm and hopeful during challenging times. Reflect quietly in nature: Take in the natural beauty around you, breathe and reflect on your inner peace. Seeing untouched nature can fill you with a sense of wonderment and harmony. Read spiritual writings. Sacred texts such as the Bhagavad Gita provide information about ancient wisdom traditions. Reading these materials may help you feel a sense of connection with more divine reality. Reach out to others for help. Speaking to someone about your feelings, fears, thoughts, and concerns can help you feel a sense of peace. You may consider speaking with a counselor, clergy or joining a support group. Visit spiritual places and works of art. Visiting spiritual sites, places of historical significance, and places with art and sculpture may help you appreciate beauty. Ask someone else to pray for you. Having someone who cares deeply about your well-being can help eliminate your feeling of loneliness. Repeat a passage from a vital spiritual or religious text. The act of repeating important text as if it were a mantra, using the language of your religion in your prayers, can have a calming effect. Count on Surviving Breast Cancer In addition to keeping you up-to-date on the most recent medical information, we offer multiple programs, including a few designed to help connect you with your spirituality. For example, Movement Mondays offer free, online classes including yoga, pilates, meditation, etc. Also, Healing Through The Arts is a free, online program to generate your creative side as a way to connect with your spirituality. You are always welcome to become part of our empowering community, including our weekly meetups . We’re always here for you!

  • Spreading Awareness of the Racial Disparity of Breast Cancer Among Asian-American Women

    By Hanah Kurosawa This is my first blog in my social outreach campaign focusing on racial disparities in breast cancer rates among Asian American women. I would like to start with a quick introduction. My name is Hanah Kurosawa and I am a senior at the University of Michigan studying biochemistry with a minor in the sociology of health and medicine. Outside of school, I am a volunteer tutor for The Education Project and an undergraduate research assistant at the University of Michigan School of Dentistry. I am passionate about medicine and am aspiring to become a future health practitioner. I am also very interested in the sociological aspect of health and well-being in the United States and globally. There are several disparities in the medical field in the United States today. Those disparities can be rooted in race, socioeconomic status, sexuality, and many other factors. Sociological factors play an instrumental role in determining a person’s access to healthcare, the quality of care they receive, and ultimately their well-being. One striking example of such disparity that I am focusing on in this blog is breast cancer rates among Asian-American women. What the Data Suggests About Breast Cancer in Asian-American Women As reported by Grace Hwang Lynch in her NBC News article , the steady increase over the past two decades in breast cancer rates among Asian-American women greatly contrast the stabilized rates in other racial groups. The article also mentions findings from research done at the Cancer Prevention Institute of California (CPIC) on breast cancer trends among women in the San Francisco Bay Area from seven different Asian-American groups from 1998 to 2013, that the groups that showed the most dramatic increases in breast cancer rates included South Asian (Indian and Pakistani), Vietnamese, and Southeast Asian (Cambodian, Laotians, Hmong, and Thai). Additionally, CPIC also reported that women of Filipino, Korean, and South Asian descent tend to be diagnosed with breast cancer at more advanced stages. Finally, the news article also highlights CPIC’s findings that Asian-American women may be prone to a more aggressive subtype of breast cancer, the HER2-Neu protein, than other racial groups. What Causes Asian-American Women to be Diagnosed Later? Factors that could be influential in these trends are lifestyle changes associated with immigration, the baseless belief prevalent among health practitioners that Asian women are less likely to get breast cancer, and the burden of daily physical needs that are experienced more among Asian-American and Pacific Islander women than the general population. In addition, both the NBC News article and Cancer Support Community blog written by Jenny Park mention that the stigma around the discussion about breast cancer remains very prevalent in the Asian-American community; women find difficulty in talking about it and consequently do not receive the support that they need. Park’s blog also mentions results from research done by the Asian-American Health Initiative that found cancer to be the leading cause of death only among the Asian-American population, which correlates with also having the lowest rate of breast cancer screenings and late diagnoses. As an Asian-American woman myself, I have seen and experienced the cultural differences in how health is perceived and discussed. Without addressing the misconceptions and barriers that arise from the differences in culture, the disparity in breast cancer rates among Asian-American women will only become exacerbated. Educating women who do not realize the cultural misconceptions or the resources accessible to them is a step in the right direction towards dismantling the health disparity.

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