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- Embracing My Soul
By Veronica Novy If I could look within to see myself As I gravitate everyday Toward becoming the woman that I so desperately wish to be I realize that I have brought myself from there to here in one milliliter of a second That actually felt like an eternity But in fact was the blink of an eye Everyday I search for remnants and fragments to stitch together that one day will Embrace my soul and return me to an earthly woman Who Am I? I know tidbits of who I was yesterday, and can only surrender parts of yesterday to myself for myself For my new self tomorrow Embracing One’s Soul means finding peace within and not conforming to fit someone else notion of Who I should be Embracing myself means caring for me and what I represent and Realizing that every teardrop shed was and is for a reason It is to fill the hearts of my Mothers Mother Mother’s Mother daughter. Embracing my Soul means finding courage and strength in the face of obstacles and danger And not relinquishing any part of me that might leave me a microcosm of Who I am As I surrender at the end of each day I leave it fuller that when I started Wiser for again reckoning with the voice(s) within And more righteous for having the guts to Embrace My Soul. 3/8/98 1:16am
- Shine
By MJ Lorenzo Routine… No big deal I know the drill Long pause, more pause… Double take, retake. Multiple expressions questionable. They ask for more… Marching orders From here to there Waiting rooms start to feel the same All just poker faces following protocol. The phone rings My heart stops Irregular beats Tunneled sounds A blurred vision Envelops me. The voice on the other end Penetrates the news A maddening repeat Running with tears Uncontrollably… Closed in Worse fear Can’t breathe… …Can’t breathe Stop…just stop I plead through ‘what if’s’… Can I just wake up? Can I go back? Did I get lost somewhere along the way? I stumble And fall hard Feeling so betrayed Anger rises, Confusion is on the other end I went in as one, And now have a team. Consults and decisions Medical terms and options Am I clear on everything? Buffet style choices The load is too heavy I don’t belong here My flesh screams ‘Why me’? Everyone and thing Continues on, continues on As I am left here…frozen. A whirlwind year Of hard transformations Out of the storm I am finally set free. There is a light to my path now I hear no other voices Yet another test waits at the corner. No time to mourn what was lost -A bigger test As the world stumbles can’t breathe-again Can’t. Breathe. A year of loss Followed by more loss… The fear I thought had me I rebuke with promises. Armed with truth My journey is filled with only hope... A great reset I am stronger With every step. You carried me… Through every storm, …You carry me. At my worse Your strength revealed Out of my darkness Your light shines.
- Stay Resolute
By William Laferriere Well now Who’s to say What the cause is, and What contribution did I make And will this get resolved Does it get resolved How What questions need I ask How many chemo drugs will be proffered Which ones will I need Which will produce the desired result Which yield the nastiest side effects What are the percentages Can they work to my advantage Surgery Oh boy More of the same Talk to me about options Please mention all After all It’s my body in the mirror It’s my decision But I need help
- Texting You
By Desiree LeRoy Message alert the scan showed four spots on my lungs i have a biopsy tomorrow he said short of a miracle it is cancer i just want to start the meds and be clear i have a lot of fight in me i replied, you do Message alert it’s weird it blows air into the hospital gown to keep me warm i turned it off cause I was getting sweaty, lol i deflated myself you sent a picture, your head adorned in a hospital beret, your face scared but a familiar silly Message alert i’m nervous but ready to know once they have all the facts they can attack i love you Message alert i haven’t gotten the results back yet but I promise to let you know ASAP any pointers when you choreograph a dance? i kind of scratched out a routine on the plane i need to cut the song i also need to work on my toe fall you sent a picture of the mountains Message alert i got the biopsy results back cancer i have to keep fighting also, can I teach my work friends the hip hop routine you taught me? i gotta try and break it down work it, girl Message alert i have a scan in a few weeks to find out if the treatment is working until then just keepin going Message alert hey can you update the gofundme? it needs to say stage 4 metastatic breast cancer it has now spread to my lungs and brain -- we met after your brain surgery we sipped on chamomile tea melting into your living room laughing all afternoon you asked about donating a box of shampoo to a local shelter our last dinner you shared travel plans filling every month of the year you could barely eat but you still said mmm after every bite tikka masala riches i was scared but your flight schedule held us both our texts, sacred i will never delete your contact our exchanges of life, love, fear, and onward your dance of messages, forever mine herceptin autocorrected to perspective and ibrance autocorrected to vibrance so I’m taking those with me strength remains strength and i refuse to type the word forget Follow Desiree on Instagram: @somaticpoetry
- Bellatrix
By William Laferriere Brilliant & lustrous Hot blue, corporeal Warrior to the end Once the Amazon star now fiend, and succubus Enamored of Voldemort A true Death Eater Inuit welcomed her Aussie Wardaman sang her glories She beckoned Spring and of course Renewal Friends of Rigel and Betelgeuse Residing on Orion’s enduring belt Illuminating navigational clarity Empowering all to decipher and chart a true bearing Throughout this insidious & calamitous voyage
- The Waiting Room
By Dr. Michelle R. LaFlamme Alfoce Center, the block lettering On the Wall Where I used to work In my long white coat Not that long ago I saw MY patient there, waiting Now I sit with trepidation Cold and tired Arms akimbo Afraid to ask for a blanket Which I used to GIVE and I spied them in their shinny warmer Unreachable Arms up, another scan The Donut of Truth That's what we called it When I was in charge I peered down the hall Saw my old colleagues working They seemed far and hazy And I couldn't reach them even in thought AS I hit the EXIT button And drifted away I realized the line between doctor and patient Is obscure And that I loathe the Waiting Room.
- Dimensional
By P. A. Mendelsohn GP: Time for your mammogram. You’ve forgotten to care for yourself. Too busy. Stop. Do it. First Dimension. Radiologist: See that? Like bubble gum on a shoe Dragged across your sultry bosom Loved no more. At war with your complacency. Second Dimension. Surgeon: I got it all. No need to thank me. It's my job. Next. Really, it's gone. Just a little radiation. More prevention. With a lasting shadow Across your lung to remember us by. See you next year. Third Dimension. Spirit. You are loved. You are safe. You are cradled in your fear You are held in your shadow. You are never, never alone. You are ours. We are yours. Just ask. Listen. Breathe. Repeat. Fourth Dimension.
- Chemo Cocktails
By Reyne M. Husky Getting my cocktails, one moment please From my favorite nurse putting me at ease She connects my port on the count of three Making sure that I’m pain free. I play my ukulele just to pass the time And sing my favorite songs to help me unwind I can go to places, right here in my chair Imaginary friends popping up everywhere. I’m feeling kind of beat, from the chemo meds My hands and feet are turning red Can’t wait, to get home to my bed To sleep off the things, dancing in my head.
- Peeling Equals Healing
By Pooja Jain Hey You...Who me? I am an onion. I keep peeling each layer of my life‘s experiences. I keep learning. Little me, loved to be in the bubble of my family, my friends, my school and my home town. I got stronger at heart. Time came to give my heart away and with that leave my bubble too. This young lady was ready to step in a new home, new country with confidence. For years, I worked hard to make ends meet and I made home a heaven on earth. Then I was ready to welcome a new life in the world. What a bundle of joy my boy is ... My baby boy made me a proud mom. Life was going good. Helping others and being a conscious world citizen. Who knew ? The peeling would now be done with a sharper knife. My body and soul were cut into pieces. A cancer diagnosis followed by a pandemic. Double the trouble .... Double the learning .... One more year has gone by... 365 days of peeling and learning. The pain equals gain ... The more layers I peel The more I learn. The more I get closer to nothing I ask ... is that nothing... everything?
- Out Damn Spot
By William Laferriere Out damn spot exclaimed the iniquitous Lady M In William’s foremost tale her fears well accounted for And the psychological toll knavishly awaiting all Out damn spot Out damn spot fill those diagnosed dreams A metastasizing growth proves every bit as daunting As the Lady M’s infamous lament so we too think, walk and talk about Out damn spot Out damn spot when the Lady somehow manages To fall into a fitful sleep she’s plagued by the nightmare Of blood and death on her hands her dreams too are made of iron and steel Out damn spot Out damn spot she rubs her hands And tries to erase “here’s yet a spot” she laments “The small of blood still” she cries out in desperation Out damn spot Out damn spot the grief, the guilt Sleep no more becomes the haunt and what is to become Of the life we so anticipated the anatomy of grief prevails Out damnable spot
- The Last Poet Standing
By Ilene Kaminsky For Melissa Blank and Ben North Lasting longer than the rest The final poet stood up Amidst thousands of books Burned down around her feet Now ashes to ashes, now complete. Dust to dust sunrise to dusk She asked the gods to slip Into her mind what she couldn’t find Descriptions, colors, thoughts Flowers she’s never seen, people she May never meet. And instead of bursting into flame The room cried a storm of tears And their ashes washed away down to the street Where they sunk into the earth Melting the soil leaving only The voices behind with her to hold. Yet only the words “death” And “afraid” And “cancer” Came instead. She cried out loud “You don’t even know me, yet you defend me.” Pleading,”please. Give me back my words, please.” Their brilliant brains battered them. Now in their silence and rest, The fates leaving her alone to give some reason. Resonance of what happens now, What do we do today Now they’ve gone away. A child asks these stupid things Adults respond without a clue Nothing to say, less they can do. Yet, She persisted and insisted on their behalf. It’s no good, to herself again Another crumpled page atop The mountain piled high. That night she sat Opening and straightening and reading But throwing each into the stove. Her words cremated and remain forever unheard. Her heart beat hard in her chest Under the thousand pounds of weight. She’d heard a ton of stones Weighs exactly the same as a Ton of feathers, Rocks kill quick While feathers from an unseen bird Float into her mouth taking her breath and Slowly suffocating the poetess. The world turned again And written in her hand the morning after She picked up the papers reading Only “death” and “fear” and “cancer” Not one the right answer. The poem, it’s complete Yet one simple question remained Unanswerable. What’s there to gain By knowledge, here anyway? But why choose me? In her head a baritone voice said: “You tell me why.” And then she did.
- Waves
By Dawn Oswald As I stare into the blue waves, I fear nothing The beautiful blue waves take all my thoughts away Away the cancer goes That little bit of time I stare into those blue waves I am a peace I am beautiful I am strong I can do anything O beautiful blue waves stay with me forever so I can be at peace Is it possible? Yes, When you are down take a deep breathe and remember me- the blue waves Dream of them and let them take away your pain For I am here to wave at you Just breathe and think of the blue waves Stare into that space and think of the beautiful blue waves Let your thoughts go Let it take your cancer away Stare Stare into the blue waves and fear nothing
- Grateful
By Brookshire McDonald I once wrote an essay Entitled my three “tits”. Now I am inspired to write A poem to “it”. Most of you are quite aware Breast cancer I had in my two Which has made me express More compassion and love for you. This year marks cancer anniversary Of number seventeen. Through each of those I have been blessed During the days in between. You are in my prayers every night Of the week, As on your journey Peace you do seek. To have found a new asset Of awareness of others Has been a true blessing From my sisters and brothers. I am grateful beyond all of this In my life That I didn’t have the third “tit” To bring me added strife!
- A POEM (or Sharing My Moment Remembered)
By P.A.M She laughed with delight as I explained the frission of sunshine that lept after his sparkling orbs recognized unexpectedly tantalizing fleeting just before they dipped again into a dim and unknown past. Because, she explained, in the midst of tragedy facing death in it's brutal subtle grip edging closer still to a vile darkening fate LIFE in its beautiful power asserted itself and claimed a right to love to dreams to passions not yet danced. The irrepressible spark LIT. Embarking on an Ahab quest Lashed to love again.
- It’s Another Thing Now
By Ilene Kaminsky I am willing to stand in gentle rain as the red sun sets, But not to stand in a wind storm of sorrow and regret. I used to own all the cloudless azure mornings still to come, Before I knew my darkness could yield to the sun. It is another thing now. I am willing to see the sea sparkle in my lover’s sky blue eyes, But not shield to my own for fear of drowning in life’s demise. With honest hearts I will share the depths of my pain, But with doubting minds I’ve no time left to explain. It is another thing now. I once slept deep cradled in his willing arms to rest, Tonight I’m alone, an ailing hospital guest. For warmer climes I’d give my body away to science, To have a chance for a single night slowly dancing in silence. It’s another thing now. My time is limited and the day’s run late, And I’m too busy netting butterflies to follow hardened dates. There’s no time to waste on those who demand plans written in pen — But long ago and once upon a time I had a calendar without end. It’s another thing now.
- Awareness
By Brookshire McDonald Surviving breast cancer.org has enabled us To become friends really fast. My hope is that all our friendships Will last and last. Our boobs have brought us together As our stories we do share Over states and even countries We come from almost everywhere. Boobs of ours Measured A,B,C,orD; And one of you even claimed To have been a G! Plastic surgeons try to match them up The best they can do. Mine don’t match at all; I don’t know about you. With breast cancer diagnosis Many options come your way- Lumpectomy, mastectomy, reconstruction, tattoos Or flat to stay. Having fallen from a ladder My journey did endure Three leg surgeries, a blood clot, then two primary breast cancers And many prayers for sure. I admire each of you As through breast cancer you go. Your struggles, courage, and strengths Really do show. On top of that road You are traveling today COVID-19 has thrown A wrench into play. Dealing with just one issue Was a master feat. Each of you now Has additional obstacles to beat. I can laugh with you, And I can cry with you, But I can’t really imagine All you’re going through. As you travel this journey- Not a choice you did choose, You are reaffirming my faith That I didn’t lose. You awakened my awareness' Of how blessed I have been; And to have you as my cancer sisters Has introduced a special kin. You may not realize it As your journey you do fight, But each positive gesture of yours Brings to someone a promising light.
- Don't Lose Yourself to Cancer
Raise your hand if you’ve ever had your attitude referred to in an unfavorable light. I would be lying if I told you that I was an angel growing up. I didn’t get into trouble or do bad things, but I remember the words, “She’s got a mouth on her, huh?” or “Too smart for her own good, that one…” coming from one or both of my grandmothers a time or two. I was smart-mouthed with an adult sense of humor. I had a temper and wasn’t afraid to use my words to diffuse a situation – but I also may have been the one to cause said situation. Over the years, I obviously grew up, learned how to read a room and developed a bit more tact, but let’s just say, even as an adult, my attitude was never classified as an asset. And then I got cancer. As I learned the official diagnosis from my surgeon, I had stage 2a triple negative, metaplastic breast cancer – one that accounts for less than 1% of all breast cancer diagnoses. I was 32, had no family history, no genetic mutations and no explanation as to why I was one of the chosen ones. I was completely caught off guard. I was building my career. I hadn’t met my person yet, and I didn’t have any kids. I had my whole life ahead of me and I was devastated with the fear of the unknown. Without even making a conscious effort, my attitude took over. I blinked the tears from my eyes in the surgeon’s office and told her, “Ok. I don’t have time for this shit. What’s the plan?” She walked me through the treatment plan: bilateral mastectomy followed by chemotherapy, and ultimately reconstruction. I was still in shock, but that shock had turned to determination. I have always strived for control in and of my life – that attitude was not about to change. I took control of every possible thing I could; and for those I couldn’t, I simply made the conscious decision to leave it to the professionals. The same way I put my finances in my Accountant’s hands every April, I put my boobs in my surgeon’s hands and trusted her to do what she does best. As my treatments progressed, I tried with all my might to keep a positive attitude and find the silver linings in my daily life. I kept as much of my life intact as possible, working on the days between chemo treatments and slowly adding more risky elements of my life back into my schedule. For example, I started traveling again shortly after starting my bi-weekly Taxol regimen. My attitude was one that said, “[Screw] you, cancer! This is my body and my life. You can leave.” It took my breasts; it took my hair; it took three years of my life; it took a lot of my body-image. It took so much of ‘me’ – it wasn’t going to take my life too. Obviously this method doesn’t work for everyone – and I absolutely recommend that you speak with your doctors before doing anything risky – but it’s also very important to live your life. Be smart, but don’t lose yourself to this disease. When was the last time you picked a fight or an argument you didn’t think you could win? Sun Tzu wrote in The Art of War, “Victorious warriors win first, and then go to war. Defeated warriors go to war first, and then seek to win.” In a nutshell, this means that you have to convince yourself that you’ll win first – before you even attempt to fight. From there, you go into battle with the resolve that the outcome is all but written in stone. You can’t go into your fight with cancer hoping to come out victorious. You need to decide to kick cancer’s ass and then go do it. There will be really tough days. There will be days where aside from the obvious physical indicators, you feel fine. Let yourself feel everything. Let yourself experience everything as it comes. Remember, it’s the rainy days that make the sunny ones feel that much better! Have an honest conversation with yourself – probably in the shower – and make a deal with your brain that you’re going to face this head on and fight to feel good. Once you decide to use your attitude as an asset, and strive to do just 1% better than you think you can, you’ll be surprised how strong you really are! If you’d like to read more about my story you can purchase WARRIOR. Any books purchased through the provided link will be autographed and provide a donation back to SurvivingBreastCancer.org.
- Year End Giving To Support Breast Cancer Community
Thank you for supporting Survivingbreastcancer.org throughout Breast Cancer Awareness Month (BCAM)! It was a very busy 31 days but our work doesn't stop just because it's no longer, BCAM. In fact, we are just gearing up! Before we jump into where we are heading, let's take a quick inventory of successes this October: Survivingbreastcancer.org's Breast Cancer Awareness Month Impact: 10K visitors came to our website to ready survivor stories, gain information via our news and blog articles, and access our resource pages 286 people attended at least one of our October virtual programs ranging from Survivorship Workshops and Thursday Night Thriver Meetups to Chair Yoga and webinars on grief & loss. Our podcast Breast Cancer Conversations was downloaded 2639 times with the number one episode being episode #60, Mastectomy Recovery Tips. We took a strong stance this October, moving beyond just awareness, and turned the spotlight onto Metastatic Breast Cancer, Going Flat, Informed Consent, and Breast Cancer Recurrence. All topics that make us one of the most unique, diverse and inclusive breast cancer communities out there! We are YOUR community! We take your words, your emails, your suggestions and turn them into blogs, podcasts and programming. Because of you, we have created our Breast Cancer Book Club which already has 51 members! Because of you, we are bringing in experts to talk to us about precision medicine and why our genes matter! Because of you, we are teaming up with organizations to bring you clinical trial matching! But our work is not done. We need your support now more than ever in these times of, not just breast cancer, but COVID-19 as we continue to provide necessary community, education and resources to those diagnosed with breast cancer and their families from day one and beyond. Did you know that roughly 30% of annual giving occurs between November and December, with about 10% of all annual giving concentrated in the last three days of the year? Asset Based Giving is a brilliant way to maximize your donation to charity, and reducing your tax payments. By donating non-cash assets, instead of selling them, paying taxes (if required) and then donating the proceeds, it typically allows you to receive a fair market value tax deduction, versus selling and paying a capital gain. For example: Bill and Judy have a small farm in Northern New England. It has been in their family name for 30 years. Bill and Judy purchased the farm for $35,000 and just this year it appraised at $350,000 market value. Bill and Judy are getting on in years and don't really spend much time away from their South Carolina Retirement Community. Judy was diagnosed with Stage II breast cancer 10 years ago, and was successfully treated at a Cancer Clinic. Since then, the couple have been partial to the breast cancer community and they wished to sell this farm and donate the proceeds. But doing so would have sent thousands of dollars to the federal government in the form of taxes, versus to the breast cancer community they were so supportive of. The couple learned through their accountant that one of their favorite charities, SurvivingBreastCancer.org was able to accept innovative, non-cash gifts such as real estate, business interests, jewelry, autos and boats, and they were thrilled to make their gift before the sale. Why would this be a brilliant choice? • Bill and Judy avoided paying capital gains tax, saving many thousands of dollars. These dollars went to support the breast cancer community work of SurvivingBreastCancer.org. • Higher charitable income tax deduction: They received a tax deduction of $350,000, the fair market value of their property. This created a considerable tax savings and allowed SurvivingBreastCancer.org to maximize the benefit. With the Asset Based donation, in this example, SurvivingBreastCancer.org would be able to own and operate the farm as a retreat and nutritional learning center for the breast cancer community. So how can we serve you? SurvivingBreastCancer.org would be honored to speak with you to explain how we can help you give in new, creative, and tax-smart ways. Please call us at (603)361-7018 or email William@SurvivingBreastCancer.org Background Out of the need to navigate the uncertainty and the strong desire for connection, support, and resources, surivingbreastcancer.org was born. A fundamental piece of the breast cancer journey revolves around well-being and quality of life. This translates into how community, education, support, and wellness complement one's treatment plans and continues not only through survivorship, but thrivership! SurvivingBreastCancer.org, Inc., Employer Number 82-2953427, is a non-profit 501(c)(3), dedicated to empowering breast cancer survivors, their families and caregivers, from day one. At Survivingbreastcancer.org, we believe that an integrative approach to a breast cancer diagnosis plays an important role during treatment and throughout survivorship. Our virtual educational and patient care community meets you where you are. Whether you are undergoing chemotherapy, radiation, or surgery, you are several years with no evidence of disease, or you are living with metastatic breast cancer, SurvivingBreastCancer.org is a complement to your care.
- Why Me Breast Cancer?
By Silke Pflueger, It’s late summer in 2013. I’m 48. Having drinks with my man and a friend. They talk shop. My thoughts drift. Until they stop drifting. My fingers feel something that doesn’t belong there. I race into the bathroom, and yes, there is a hard mass in my left boob. Doctor’s appointment the next morning. They find a place that takes me for a mammogram that afternoon. Need ultrasound, too. Ultrasound says that I need a biopsy, and I smooth talk my way into a biopsy that same afternoon. The phone call comes a few days later. It’s cancer. There are a lot of foreign words. Hormone positive. HER2 negative. More words. Colors become technicolor around me. Why me? I opt for a double mastectomy. Two lymph nodes involved. Onco score is low, so I opt for no chemo. Tamoxifen for a year, then chemically induced menopause and Arimidex. I’ll be fine. It won’t be me. I got this. Fast forward. It’s late summer of 2019. We are in Germany for work. My sciatic nerve has been a problem half my life, but it’s incredibly bad on this trip. I can barely walk. Everything hurts. Laying down. Sitting. Standing. Walking. Everything hurts so bad. I go to an ER. X-Ray shows the usual herniated disk, but the doc says it’s not bad enough for the pain I feel, and recommends I get an MRI when I’m back home. We are back home. I see my GP, get an MRI, go back to her. MRI says something about large lesion in sacrum. I have no idea what that means. All I know is that my back still hurts. My GP hugs me. Shit, I think. She doesn’t hug me unless it’s cancer related. I ask a little more. Will have to do a biopsy to find out. But it likely is. I walk out numb. Why me? I manage to snag an appointment for a biopsy the day before I travel back to Europe for a week in Athens with my mom. Biopsy confirms my cancer has spread to my bones, and I’m now metastatic. Dr. Google says it’s somewhere around a 25% chance that I’ll live 5 years. WHY ME? I have so much more living to do. Why me? That’s the question so many of us ask throughout this journey. Why me? I’ve lived a healthy life. I eat healthier than 90% of people I know. Why me? I have slight weight issues, but nothing bad. Why me? I love working out. Show me a mountain and I’ll hike up or bike up or ski down. Why me? The short answer is that we don’t know. My dad’s side of the family seems to have a lot of breast cancer, but we are a pretty small family. No genes that point to breast cancer - yet. “Why me?” is a question a lot of us ask, but very few of us have answers. Since I can’t answer it, I’ve settled on “It is what it is, and I’ll live the best life in the time I have left.” I suggest you do, too. Silke is a laser engineer, lover of the outdoors, foodie, and recent American. She was first diagnosed with early breast cancer in 2013. After a year of never ending, but not unusual sciatic nerve pain she found out that it was a metastasis in her sacrum that was pressing on the nerve, and not the slipped disk that had caused her a lifetime of back pain. She tries to keep on smiling, helped by antidepressants and being outdoors as much as possible, all to enjoy the time she has left.
- Back To School and Breast Cancer: How To Navigate
I used to think that August was one of the hottest, most humid months of the summer. But this weekend proved me wrong. Boston was overcast, high 70's, no humidity, and actually a bit chilly. A sign of things to come. Can summer really be over? Are we already in the mindset of the next school year? For some of us, that means our kids are getting ready to return to college. The move-in process is starting several weeks earlier than usual enabling students to return home by Thanksgiving and not having to risk traveling in November/December during a health pandemic. For others of us, we continue to attend PTA meetings and town halls trying to figure out what our school district will decide. In a given academic year, we try to coordinate school pick up and drop off while we attend chemo and plan for surgery. But this year is overly complicated. Does it have to be? Are we over thinking this because it's new? We can remember many other obstacles and challenges that we overcame and yet somehow this fall, we are facing the tallest and steepest mountain yet. Let me reassure you, you will scale this mountain! It will not be easy, but you have the ropes, carabiners, helmet and an entire team of supporters on the ground belaying so you won't fall. How to Scale Mt. September Map the course. Write out your list of essentials and tasks that must get done leaving aside all of the "nice to haves" for another time. We just need to focus on the path of least resistance. Pack your hiking bag accordingly. Hand sanitizer is a given, along with mask. Then add your fruits and veggies because you know you'll need fuel. Healthy proteins like beans that you know will not go bad. Choose your belay team accordingly. These are the people that will have your back as you begin to ascend Mt. September. Who is in your inner Covid circle? Who are the friends and family you can trust to come to your rescue at a moment's notice. Put your list together and let them know they are your team! They'll feel honored and even take extra health precautions knowing they could be called upon at any moment. Synchronize your watch and activate your GPS. With all of the health apps out there, we know technology is playing a larger rule in our day to day. Speak with your doctors and learn what appointments you can attend virtually via telehealth. This will certainly save you time on the commute and needing to secure child care and even save you a few buck on parking! Start your hike. One foot in front of the other. Do not try and tackle the entire fall season at once. Take it one day at a time. Be willing to adapt. Be kind to yourself and know that it doesn't have to be perfect. You need to take care of you. If you get off the trail and into the "puckerbrush", no problem, readjust that compass and carry on! Most importantly, you are not in this alone. If you are looking for community to talk about everything you are going through, now is the time to reach out. Join one of our Thursday Night Thriver Calls and we will all get behind you and hoist you up Mt. September
- Kyla’s Story
This is a story about my mom. A story of love. A story changed by breast cancer, but not defined by it. My mom was my best friend. She was the only person who could encourage me to tape together the homework I had just ripped up. The only person who always asked me how my day was… multiple times a day. She was the person who sang ‘You Are My Sunshine’ each and every morning. And, she was the person who spent exactly three minutes with me before going to bed, unless she fell asleep in bed with me, which was my favorite, and she never ever left the room without saying ‘I love you.’ Like everything she did, my mom dealt with breast cancer the way she handled the rest of her life - with grace, style, and elegance. She didn’t let cancer define her, so I don’t let it define my story of her. My mom, Maureen, was diagnosed with breast cancer while pregnant with my little sister, Katelyn. It was late 2003. Katelyn was born in April of 2004, when I was only two years old. Whether in active treatment or in remission, the cancer lurked within my mom. Everything felt normal… up until August of 2014. Across the span of those ten years, between 2004 and 2014, there were a few times where I was very confused, wondering if she would be okay. I was especially confused when she went home after a doctor's appointment instead of going back to work. I was curious when she put on extra mascara because she was losing her eyebrows. It was always strange when we would visit her at the hospital after a surgery. However, even with all those confusing moments along the way, there was always a ‘good morning sunshine,’ my three minutes, and ending the day with an ‘I love you.’ Those moments were the normal moments, and the things I truly remember. I remember her picking me up early from school to go to the library, taking us to the farmers’ market on Saturday mornings, playing two squares with my little sister in our driveway, making cinnamon rolls for us on Sunday morning before church, and so much more. 6 years. 7 months. 29 days. That was the last time I heard my mom say ‘I love you, Kyla.’ I didn’t know that this would be the last time I would hear those words. It was just another Monday. I still remember looking through the passenger window, jumping out of our Honda Odyssey, and waving to my mom. Seconds before, we were making plans for my mom and dad to pick me up after school to go get dinner before I had to be back for my volleyball game. It was normal. Like every afternoon, I would blow up my parents’ phones asking where they were and when they were going to pick me up. But instead of a text, I got a call from my dad. He said that he and my mom were right around the corner at the hospital. I didn’t think anything of it. I didn’t realize that was going to be the last time she drove me to school. That it was going to be the last time I saw her smile. That it was going to be the last time I heard her laugh. The last time she would watch me play volleyball via FaceTime in her hospital room. October 20th, 2014 was a day of lasts. October 21st, 2014 was the day my mom’s life stopped, and mine continued. October 21st, 2014 was a day of firsts, new firsts, and lonely firsts. One by one, the firsts unfolded - my first Halloween without her, my first Thanksgiving without her, and my first Christmas without her. I was numb to everything; even my family. Lying alone in a ball in the middle of my bed wrapped up in the blanket my mom had sewn for me. I just wanted to talk to someone who would understand, but more than that, I wanted to talk to my mom. She is my WHY. She is my sunshine. She is my love story, and I won’t let her love story end. She is why I wanted to create #pinkkids. I wanted to create something larger than my story. A way to remember her. Not my mom with breast cancer, but my mom who lived a purposeful life while dealing with breast cancer. To connect stories. To have a place of true understanding. A way to get out from under my blanket. I didn’t want to talk to counselors. I didn’t want to talk to therapists. I didn’t want to talk to teachers. I didn’t want to talk to my dad. I didn’t think they would understand. I wanted to talk to someone my own age, but I didn’t know anyone who was going through what I was going through. So I kept everything in. And if that is you, then this is the space for you. A space for you to say something as simple as ‘I am scared’ or as complex as ‘My mom just passed away. What should I do?’ Kids supporting kids. Loving each other. Being there for each other. This is our space.
- Katelyn's Story
My life was so unconventional, and I didn’t even realize it. While brushing my teeth in the morning, I would watch as my dad drained fluid from my mom’s lungs. After dinner as I lay next to my mom, I would occasionally have to move her breathing tube back under her nose. I would help situate my mom’s wig on her bald head before she left for work. I was only 10 years old. Not a year later, on October 21, 2014, my life became even more unconventional, and I still didn’t realize it. As I started to walk over from the fourth grade wing to the Middle School standing next to my chaplain, the only thing going through my head was that I was cool because I knew that none of my friends had ever stepped foot in Middle School. Little did I realize, I soon would never want to step foot in the Middle School again. My excitement was heightened as I stood outside the Middle School conference room waiting for my sister...we were going to go see mom! But. But. This feeling of excitement didn’t last long. Everything shifted in a second. My sister walked through the door, and she started to cry. I was more confused than ever. Little to my knowledge, my dad had been sitting in the conference room the whole time. The next words my dad would say, would change our lives forever. He said, “Your mom is gone.” I didn’t understand. I thought he was joking. I thought - silly him, people don’t die, but soon it became a reality. As I tried to speak to her as she lay still on the hospital bed, not responding to anything I said, I realized...this was no longer a joke, my mom was gone. This was almost seven years ago. I am now seventeen years old, and the pain of losing my mom at such a young age and never having lived a day where my mom didn’t have breast cancer is hard. There were so many things that felt normal when I was young but were not. The fact that her hair fell out. The fact that she could only drive with one hand because she had a wound under one arm. The fact that she had a port on her chest. The fact that I would have to sit in a waiting room in the hospital waiting for her treatments to be over. At the time though, I knew nothing else. This was my family’s life, our normal. But, I remember my mom's life not about cancer; it is about life, family, and community. My three favorite moments that I look back on with my mom are: watching movies with her on the couch, bedtime, and our final trip together. First, I loved doing the simple things with my mom; in particular, watching Flea Market Flip next to her on the couch. One night, she let us watch it during dinner on the couch, which I didn’t see as a special thing. I was blind to the fact that the reason we were doing this was because she was unable to sit and eat dinner at the dining table. Second, she was always the best at bedtime routines. Every night she would lay with me for exactly three minutes, this was my favorite time with her because I got her all to myself. After three minutes she would tell me “God loves you, mommy and daddy love you, and Katelyn in special.” Lastly, a month before my mom’s passing we went to Chicago. This was a special place. This is where my parents met. My favorite thing to do was to push my mom around the city in her wheelchair. My sister and I would actually fight over this job. And, when we returned to the hotel I loved to push myself in the wheelchair around the hotel room. This is obviously not normal. I didn't realize until later that the reason we were pushing her in a wheelchair was because she was on an oxygen tank, and walking made her out of breath at a faster rate. I don’t think I will ever learn how to cope with losing my mom at eleven years old. It was and is and will always be the hardest thing to go through. I miss her more and more every day.
- The Port and Losing My Hair
So many updates to share! Everything about cancer is new to me. There is so much about my body that I know nothing about. Nor do I understand how this is all going to work. I am going through treatment, trying to understand it all, and process all at the same time! It can certainly be overwhelming! Today, I am focusing on two topics. The decision to get my port placed, and an update on my hair situation! I was in shock when I found out that I was going to have my port placed in the morning and a few hours later receive my first chemo treatment. While this sounded rushed to me, it was pretty standard practice. However, the moment I was on the stretcher in the hospital, being wheeled into the operating room, the tears came streaming. I’ve never had to have surgery before and when I came into the operating room, it was just like what you would expect from seeing ER or House on T.V: Lots of people in scrubs, face masks, sterile table, big bright lights, even a two-way mirror where others are monitoring computer screens. If this isn’t your normal, it is definitely scary! From there, I was brought up to the infusion center to receive my first round of chemo. Again, being my first time, everything is so overwhelming! The Adriamycin and Cytoxan came in a bag that had the yellow skull symbol on it reminding me that the contents inside the bag were dangerous and toxic. Nurses had gray gloves and were handling the IV and chemicals with such care and I was just sitting there waiting for these new drugs to start coursing through my body. A very overwhelming day! But I survived and I am here to tell you all about it!
- It's Just The Beginning: When A Cancer Patient Finishes Treatment
Guest Blogger: Lucy Wright Before I faced cancer I always naively believed that a survivor was someone who defeated something and that was that! I have now come to realize there is so much more that comes with being a survivor, whether it be mentally or physically. I want to share something with you that made me want to write this piece today. I was in hospital waiting to see my plastic surgeon and a lady came and sat next to me. We got talking and people who know me know I am very open about my journey. This lady told me about her sister who passed away from lung cancer and like many others, she said I was lucky to still be here and survive the disease. When this was first said to me not long after my treatment, I didn't think much of it but now I am 20 months on from my last chemo and I find this hard to digest!! Surviving something like cancer is not lucky. I am of the belief that it's the outcome of treatment and how positive you are. But there is nothing lucky about having to endure chemo, face life changing surgery and radiotherapy. Yes, I am clear of cancer but I had to face the toughest time in my life to get to this point and that was not due to luck. I have never been lucky, as I also lost my mum and dad within 9 days of each other when I was of only 17/18 (both sides of my 18th birthday). When cancer patients finish treatment, it is not the end, this is just the beginning for a survivor! Not only do you have to get over the physical effects of treatment, whether it be chemo, radiotherapy or surgery but you also have the turmoil of dealing with the effects cancer has on your mental state. There is always the " What if's' '. My mental state is pretty positive, maybe not sane but I manage to keep my thoughts on track. When I have a moment of "what if my cancer comes back, what if I die, how will Nevaeh (my daughter) cope if I am not here, will I ever think how I used to?" My Macmillan nurse told me it is normal to have these thoughts and taught me a great way of dealing with this: If the thoughts enter my head, I need to take a minute and visit my demons. I have to let myself have the minute but then put them in a box and forget about them until next time they creep up. This technique really works for me, I might look like a crazy lady for a few minutes but what's new! I find I constantly worry when I get a cough or an ache! Could this be my cancer returning or a new cancer? It never stops, the checking of my breasts (I can now say breasts) and I am mentally exhausted but I just plod along. Survivors will always be over vigilant when it comes to their health. Before my diagnosis, if I got a cough I would think it's a cold, now I contemplate whether this could be a symptom of a cancer! We just have to channel this in a healthy way and not drive our state of minds into darkness. When you have faced death, your whole world shifts and your outlook on life changes for the better. This could be the people you associate with, how you deal with certain situations and just living your best life. You will cut people out, you will want to face your fears and just appreciate every minute you breath this air on earth. Being a survivor also means annual check ups, which in turn you have to deal with Scanxiety . Although everything might be fine, the worry of something showing up weighs heavy on your mind and also your body physically. I get no sleep for many nights leading up to my scans, which I am graced with 50 shades of dark circles under my eyes. The future for a cancer survivor can be masked by negative thoughts but on the flip side we want to make the most of the second chance we have struggled to fight for. It's an ongoing battle that we have to live with for the rest of our lives but I will always fight, as will many others! So to be a survivor, it's not luck, it's proof that something was sent our way to kill us but determination, strength, grit and positivity prevailed. Much love Lucy You can follow Lucy on IG @lifeorjustlucyisms Or through her website: Www.lifeorjustlucyisms.co.uk
- Don't Sweat the Small Stuff
By Caitlin Edmunds, Contributing Editor Cancer sucks and there's no denying it. It took a lot from me... it took my energy, my attention and focus on most days if not all days, my naivety, my time and a whole lot of my hair (which in all honesty was one of the hardest parts). But it also gave me a new found appreciation for each and every day. To stop and enjoy all the little things and realize that life is too short to be mad at the crappy driver in front of you or stress over the one email that you didn't get to but meant to before leaving the office. It taught me that the human body is an incredible thing, and the amount of trauma and hardship it can endure and bounce back from is incredible. It taught me that I am way stronger than I ever gave myself credit for. But most importantly it showed me that my tribe is the best tribe. It was 234 days from diagnoses to my last day of active treatment... 130 cold cap changes, 120+ self injections, about 50 doctors appointments, 30 rounds of radiation, 25 blood draws, 20 doctors, 18 ultrasounds, 8 rounds of chemotherapy, 4 lymph nodes removed, 3 MRIs, 2 port surgeries, 1 full body PET scan, 1 CT scan, 1 egg retrieval surgery and 1 lumpectomy surgery. My life will never be the same and forever more will be split into BC and AC (thats after cancer, not Adriamycin for my cancer folks). Since I found my lump through an at home self-exam and have made it my ongoing mission to bring awareness and education to other young women out there. I am so lucky to have found so much love, support and inspiration throughout the entire cancer community, but especially the triple negative gals! Here is a link to my Caring Bridge site that I used to update family and friends: https://www.caringbridge.org/visit/caitlinedmunds/

























