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- In Love with Cancer
By Marylou DiPietro Monologue excerpted from solo play, In Love with Cancer MARYLOU’S INNER VOICE The number eight hangs on a hook in my brain. Why eight? Why not seven? Seven's been my lucky number since the third grade, when I won the most beautiful picture of a blonde-haired, blue eyed, prepubescent Virgin Mary. Yup, you heard me right: a blonde-haired, blue-eyed prepubescent Virgin Mary. Made perfect sense at the time. (Looking up “prepubescent” on my phone.) Prepubescent: Young girls who are prepubescent are experiencing their purest sense of self before adulthood. Their purest sense of self... That’s why I wanted to become a nun! If I married Christ I could remain a virgin. What could be better than that? I’d have God’s eternal love, and secure my place in heaven. But wait a minute; weren’t nuns born with the indelible stain of original sin on their souls like the rest of us? Maybe hiding their bodies in reams of black wool, and shielding their breasts with a hard plastic bib was a kind of preordained penance for the sin they inherited from Eve. Besides, how could I be a nun when all I wanted to do was stand in front of the mirror --naked-- looking for a sign that my prepubescent body was becoming pubescent? Would I be punished for praying that my breasts would grow as big as the most popular girl’s in class? Why did I want a woman’s body, if it was a sin to have one in the first place? Oh my God that’s it! That’s the direct line from God shaming Adam and Eve, to my parents yelling at my sisters and me to “go put something on”, whenever we went downstairs in a slip or even a nightgown, as if we had come down stark naked. No wonder my mother, and all her Catholic friends, didn’t breastfeed. The shame was so overwhelming they lost their instinct to feed their own children. No wonder my mother seemed almost relieved to have one of her breasts cut off when, in her seventies, she learned she had breast cancer. Is losing a breast to cancer my punishment for having one to begin with? Just who is the real traitor? God or my own body? It wasn’t winning the prize of purity that shaped my life; it was trading the prize in for that badge of shame. It’s not that I didn’t want people to know I had breast cancer; I didn’t want them to know I had breasts. The breasts I dreamed of having. The breasts I made believe I did have, when I stuffed my training bra with cotton. Breasts so small they made me invisible to boys. Breasts, like my eyes, that gave too much away. The breasts that, even though they were far from perfect, were all mine. Breasts I proudly fed my children with. Breasts I took for granted. Breasts -- one breast -- that became a feeding ground for cancer; and needed to be cut off from its life source, which was me. The breasts that taught me Shame is the real cancer that needs to be lopped off and thrown in the trash. I’m in love with everything cancer has given me... Like the memory of eating my first pomegranate. Or the time I laid on the beach for hours watching a parade of animal clouds drift by. Or how I convinced my baby sister -- and myself -- that I knew how to fly! And that she was to meet me every morning at 5:15 for flying lessons. Or how I dreamed of painting and drawing and writing poems as good as my older sister’s. And when I did, she wasn’t jealous. Or the moment my two-month-old daughter popped her head out of the Snuggly and noticed the world for the first time. Or the time my five-year-old son announced he didn’t believe God was in the sky, but that he was the good in each person. Cancer taught me that surviving cancer is like surviving childbirth. Except with cancer it is your own life you end up with. Cancer gave me the strength to come to terms with what it took away. You want to know why I really fell in love with cancer? Because it got me here today. Connect with Marylou: www.maryloudipietro.com Read More: BEAUTY AND THE BREASTS To My Bosom Buddy MY BREAST CANCER: DISCOVERY Time to Heal On the Podcast: Breast Cancer Conversations Voices of Resilience: A Night of Poetry and Healing Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetups Free Events
- Tips for Pain Management with Cancer
By Taylor McKnight Receiving a breast cancer diagnosis and undergoing treatment can be a very painful experience, both physically and emotionally. A good support system and help from loved ones can address the emotional challenges, but not so much the physical ones. These may include: Nerve pain and damage (neuropathy) Lymphedema Infection risk Pain and sensitivity in the skin and nails Reduced mobility while recovering from surgeries For those experiencing pain during their breast cancer treatment, doctors may prescribe opiates like morphine or oxycodone. However, some people may prefer to avoid opiates, or may be physically unable to take them. This could be because of pre-existing conditions, such as respiratory or kidney issues, or they may be in conflict with other prescription drugs being taken. Thankfully, there are a few alternatives that can help those with cancer alleviate the pain of chemotherapy, surgery, or other treatments. Continue reading to learn about a variety of pain management techniques and specific considerations for those with cancer. CBD Products Cannabidiol (CBD) is one of the key ingredients in cannabis sativa, more commonly known as marijuana. CBD products are not psychoactive, as they do not contain tetrahydrocannabinol (THC) which causes the feeling of being “high,” generally associated with marijuana. For individuals experiencing pain, CBD may provide benefits without mental fogginess or other psychoactive effects. According to a report published by the National Institutes for Health, studies have shown that creams, oils, edibles, and other products containing CBD can help with pain management for cancer patients while also protecting against damage to the organs or nerves. Always discuss CBD with your cancer care team to ensure that it is safe for your specific situation and any current treatments. Nerve Block Procedures With a nerve block procedure, a numbing agent is injected either directly into or close to a nerve. This has the effect of temporarily blocking pain signals sent by the brain from being received by other parts of the body. The length of pain relief provided by the block will vary from person to person and depends on a variety of factors. There are many different types of blocks and injection sites used in these procedures. In severe cases, the attending physician may choose to permanently damage the nerve to make sure the pain doesn’t come back. Integrative Therapies “Integrative therapy” refers to a treatment plan that combines two or more therapy programs to more fully respond to a patient’s needs. In this case, it refers to combining therapy programs with the standard treatments and medicines provided by your oncologist or other doctors. Integrative therapies can include acupuncture, physical therapy, massages, meditation, relaxation exercises, or even hypnosis, among many others. These can target either the physical pain itself and/or the emotional pain caused by cancer. Emotional stress can often manifest itself physically, and therapy aimed at reducing stress can often be very beneficial. Check out SurvivingBreastCancer.org’s upcoming programs for mindfulness and movement including yoga, Pilates, meditation, qi gong, and more! Medications For those who would rather avoid opiates, there are many other medications that can be used instead. Your doctor may prescribe muscle relaxants, anti-seizure medications, pills that treat anxiety, anti-inflammatories, or another targeted treatment designed to reduce pain. They can also be used when pre-existing pain becomes worse as a result of your cancer. Steroid injections may be useful in some cases, but because they suppress the immune system, they may do more harm overall than good in some patients, particularly those undergoing radiation treatment or chemotherapy. Check with your doctor and see if a pain-reducing steroid injection can reduce your pain without harmful side effects. Spinal Cord Stimulation If your pain hasn’t responded to other treatments, your doctor may choose spinal cord stimulation as an alternative. A battery-operated device, similar to a pacemaker, is implanted near the spine. The device is then used to prevent pain signals from the nervous system in the affected area from reaching the brain. Before the device is implanted, your doctor will likely want to run a trial version, where the device is placed on a belt and connected through a wire to the spine for a few days. If your pain levels are reduced by 50% or more through this temporary procedure, they will likely schedule the surgery to fully integrate the device into your system. Pain Management is Individual and Unique These are just a few of the many ways you might consider treating the pain associated with cancer. The best pain management plan for you will depend on your existing cancer treatment plan, your own wants and needs, and your physical condition. Remember to check with your cancer care team before beginning any new therapy or treatment. Note: This article is designed to provide general information and not replace professional medical advice. Always discuss your options with your healthcare provider. Written by Taylor McKnight, Author for CBDistillery Learn More: The Link Between Breast Cancer and Back Pain The Importance of Physical Therapy During and After Cancer Treatment The Psychological Impact of Breast Cancer: Strategies for Coping Navigating Cancer Treatment: Top Tips from an Oncology Pharmacist SurvivingBreastCancer.org Resources & Support: Join us for yoga, Pilates, and other mindfulness and movement programs! Weekly Support Groups On the Podcast: Breast Cancer Conversations What to Know About Medical Marijuana for Breast Cancer
- Breast Cancer and Pregnancy: Managing Health for Mother and Baby
Although receiving a breast cancer diagnosis during pregnancy is relatively rare, occurring in approximately 1 in 3,000 pregnancies, it’s crucial to take action promptly. Managing the mother’s health and ensuring the safety of the unborn baby requires a delicate balance and specialized care. Pregnancy hormones such as estrogen can potentially fuel the growth of certain types of breast cancer, underscoring the importance of early detection and intervention. Research investigating the impact of hormones related to pregnancy indicates that heightened levels of estrogen, progesterone, and insulin-like growth factor 1 (IGF-1) can contribute to the promotion of breast cancer cell proliferation. Continue reading to learn more about breast cancer and expectant mothers, including diagnosis details and treatment options for breast cancer during pregnancy. Diagnosis Challenges Natural changes in breast tissue during pregnancy make it challenging to diagnose breast cancer during pregnancy. Breasts typically become denser and larger, making lumps more difficult to detect. Healthcare providers often rely on breast ultrasound as the initial diagnostic tool to minimize radiation exposure. Mammograms can also be performed with abdominal shielding to protect the fetus. Diagnostic Procedures During Pregnancy Diagnosing breast cancer during pregnancy presents unique challenges due to the need to minimize potential risks to the developing fetus. However, several diagnostic techniques are considered safe for expectant mothers: Clinical breast exam: A healthcare professional physically examines the breasts Breast ultrasound: This imaging technique using high-frequency sound waves creates pictures of the breast, posing no radiation risk to the fetus Mammography: According to The American College of Radiology, while mammograms involve low doses of radiation, they may be recommended after weighing the risks and benefits Risk Factors and Symptoms In addition to the risk factors all women face for developing breast cancer, risk factors during pregnancy can increase due to: Family history of breast cancer Family history of late menopause First menstruation (menarche) before age 12 First pregnancy after age 30 Previous pregnancies not followed by breastfeeding Hormonal changes during pregnancy cause the breasts to undergo transformations. They may become larger, lumpy, and tender, making it more challenging for you or your doctor to detect a cancerous lump until it becomes significantly large. So, it’s crucial to stay vigilant and aware of these symptoms. A lump or thickening in the breast or underarm Changes in the size or shape of the breast Discharge from the nipple (other than breast milk) or blood from the nipple Dimpling, puckering, or swelling Scaly or red skin Nipple turned inward Treatment Options for Breast Cancer During Pregnancy Treatment of breast cancer during pregnancy depends on the stage of cancer, the trimester of pregnancy, and the health of the mother and baby. The main goal is to treat the cancer as effectively as possible while minimizing risks to the fetus. Surgery Surgery is often considered the safest cancer treatment during pregnancy. It can include either a lumpectomy (removal of the tumor and some surrounding tissue) or a mastectomy (removal of the entire breast). These procedures are generally safe during all trimesters. Chemotherapy Chemotherapy may be an option during the second and third trimesters when the risk to the developing fetus is lower. Drugs commonly used include doxorubicin and cyclophosphamide, which are relatively safe after the first trimester. Radiation Doctors typically avoid radiation therapy during pregnancy due to the risks it poses to the developing fetus, including potential congenital disabilities and growth restrictions. It is usually postponed until after delivery. Targeted therapy Oncologists may recommend some targeted therapies or molecular targeted therapies during pregnancy. These therapies utilize drugs to focus on specific molecules found in cancer cells to halt their growth and spread. These therapies can destroy cancer cells or significantly slow their progression while minimizing harm to normal cells. Additionally, targeted therapies are beneficial for individuals with BRCA gene mutations who develop breast cancer. However, doctors use them only if necessary because their safety profile is less well-established. Monitoring Fetal Health The health of the fetus is monitored closely throughout cancer treatment. The monitoring process typically includes regular ultrasounds to check fetal growth and development and non-stress tests to monitor fetal heart rate. Multidisciplinary Support for Expectant Mothers Managing breast cancer during pregnancy requires a collaborative approach involving medical professionals from various disciplines, including: Oncologists Obstetricians Neonatologists Genetic counselors Psychologists and support groups A multidisciplinary team works together to develop a personalized treatment plan that prioritizes the well-being of the mother and the baby while providing emotional support throughout the experience. Count On Us for Information, Resources, and Support Breast cancer during pregnancy poses unique challenges. With the appropriate care, most women can go on to deliver healthy babies and effectively manage their cancer treatment. Early detection and a tailored treatment plan are crucial for the best outcomes for both mother and child. Whether you’re newly diagnosed with breast cancer, are navigating survivorship, or are the loved one of someone experiencing breast cancer, you can count on SurvivingBreastCancer.org to keep you informed. We provide educational information to help you better understand symptoms, testing, treatment options, surgery, etc., and podcasts that feature professionals, advocates, and caregivers who share valuable information. Your donations enable SurvivingBreastCancer.org, a community dedicated to empowering those affected by breast cancer with knowledge, understanding, and a network of care, to offer resources and support every day, every month, and every year. Note: This article is designed to provide general information and is not meant to replace professional medical advice. Always discuss your options with your healthcare provider. Learn More: Managing Breast Cancer During Pregnancy and Breastfeeding Breast Cancer in Young Women: Common Questions Answered The Role of Hormones in Breast Cancer They Were My Blessing: Facing Breast Cancer With Young Kids On the Podcast: Breast Cancer Conversations Hope: with Julia Maués and Christine Hodgdon SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetups Free Events
- SBC Announces Partnership with Lilly
Boston, MA – July 2024 – SurvivingBreastCancer.org is proud to announce a new partnership with pharmaceutical company Lilly for 2024. This collaboration aims to enhance support, education, and resources for individuals affected by breast cancer. “We are thrilled to partner with Lilly,” said Laura Carfang, Executive Director of SurvivingBreastCancer.org . “Their commitment to innovation and patient care aligns perfectly with our mission to empower and support the breast cancer community.” Together, SurvivingBreastCancer.org and Lilly will work on initiatives to provide essential resources, raise awareness, and foster a stronger support network for those impacted by breast cancer. For more information on our English and Spanish services, visit SurvivingBreastCancer.org . About SurvivingBreastCancer.org : SurvivingBreastCancer.org (SBC) is a 501(c)(3) nonprofit organization supporting those who have been touched by breast cancer. SBC provides free online resources and emotional support services to guide individuals when they are first diagnosed, through treatment, and beyond. Media Contact: Ana Quintero Marketing and PR SpecialistSurvivingBreastCancer.org ana@survivingbreastcancer.org
- Después De Un Diagnóstico Podcast Celebrates its 75th Episode
Boston, MA – June 2024 – SurvivingBreastCancer.org is excited to announce the release of the 75th episode of its Después De Un Diagnóstico podcast. This milestone underscores the organization’s commitment to supporting the Spanish-speaking breast cancer community with valuable information, personal stories, and expert insights. “Reaching 75 episodes is a testament to our dedicated team,” said Laura Carfang, Executive Director of SurvivingBreastCancer.org . “We are grateful to our listeners for their support and trust. This achievement strengthens our resolve to continue providing essential resources.” Congratulations to the Después De Un Diagnóstico team for their hard work and passion. Each episode is crafted to educate, inspire, and support our Spanish-speaking breast cancer community. Celebrate with us by tuning in at DespuésDeUnDiagnostico.org/podcast . For more information on our English and Spanish services, visit SurvivingBreastCancer.org . About SurvivingBreastCancer.org : SurvivingBreastCancer.org (SBC) is a 501(c)(3) nonprofit organization supporting those who have been touched by breast cancer. SBC provides free online resources and emotional support services to guide individuals when they are first diagnosed, through treatment, and beyond. Media Contact: Ana Quintero Marketing and PR SpecialistSurvivingBreastCancer.org ana@survivingbreastcancer.org
- Thursday Night Thrivers Support Group: Summer Schedule
SurvivingBreastCancer.org is adjusting our Thursday Night Thrivers support group schedule for summer 2024. For the months of June, July, and August, we will meet twice per month (instead of weekly). We will convene on the second and fourth Thursday of the month at 7:00 p.m. EDT. Thursday Night Thrivers summer dates: June 13 June 27 July 11 July 25 August 8 August 22 The Zoom link will remain the same. If you do not have the link, please RSVP via our Thursday Night Thrivers events page . Wishing everyone a wonderful summer! We hope you make time for self-care, self-love, and relaxation.
- #TakeAHike
SurvivingBreastCancer.org is thrilled to announce the return of our biggest fundraiser of the year: Tell Cancer to Go #TakeAHike ! The big event will take place on Saturday, October 19. Hike (or walk, stroll, or just get outside) wherever you are in the world, have fun, and raise funds to support our 501 (c)(3) nonprofit organization! Register now – join a team in your area, or start your own. How to Participate Start a team: Click the “Fundraise” button on our fundraising page, and you’ll be prompted to set up your fundraising profile. It’s free to set up ! Invite friends and family to join your fundraising team or start a fundraising team themselves. Join a team: Find a team you want to join, click “Join a Team” and you will be prompted to select a team and set up your profile. If you can’t participate in the event, you can still donate and support a participant by clicking on “Donate” or by purchasing a t-shirt. Sponsorship Opportunities: Want to participate in our mission to support the breast cancer community and have your brand’s logo featured on our #TakeAHike t-shirts? Take a look at our sponsorship opportunities – we have packages for all company sizes and budgets! ➡️ Click here to register ⬅️
- Now introducing: The Caregiver Huddle
Since the creation of our 501(c)(3) nonprofit organization in 2017, , SurvivingBreastCancer.org (SBC) has fostered human connection through shared circumstances. Whether our members connect based on the same type or stage of breast cancer or the same treatment regimen, SBC is a place where everyone is seen. We know that serving as a caregiver to someone who has been diagnosed with cancer can be overwhelming. Our services are expanding to include dedicated support for these all-important caregivers for individuals diagnosed with cancer. We are thrilled to introduce a new support group: The Caregiver Huddle . This professionally-moderated group provides a safe space for caregivers to discuss the realities of caring for a loved one with cancer while simultaneously receiving vital emotional and practical support for themselves. ✨This group is open to all caregivers for all types of cancer✨ We will meet every third Tuesday of the month at 7:00 p.m. Eastern Time. Learn more about our caregiving resources here.
- My Answer to Cancer
By Heather Salazar Content warning: death and dying My life was saved, and forever changed, by a very unlikely person. Alexis was a 23-year-old single mother who was raised in the foster care system in 17 different homes. When I met Alexis, she was nearing the end of her life. She had stage IV breast cancer and was looking for someone to raise her 9-month-old baby girl. The previous week at our church, there were five couples on the big screen struggling with infertility. I called each of them to tell them about this precious, healthy baby girl. They had a problem with the color of her skin. I had a problem with them! I couldn’t stop thinking about this young mom and her baby with zero support. That was unimaginable from someone who has a family like mine… Alexis rode home from chemo on the public bus. That is not okay. I couldn’t sleep. After three nights, my husband Steve was like, “What is wrong with you?” I tell him. I beg him to meet Alexis. He says, “Heather… seriously? We already have three kids and our youngest isn’t even 2 yet!” I beg, and beg and BEG. Finally he agrees to meet Alexis. You know, just to help with groceries… So there we are, in the back of a grocery store parking lot. One with a bus stop in it so that Alexis could take the bus to come meet us. I remember it like it was yesterday. This tiny woman, maybe 100 pounds sopping wet, gets off the bus wearing a black mini skirt and a neon pink wig. She walked with such authority. She walked right past me and straight up to Steve and said, “I need help. I want my baby to have a better life than I did.” Steve’s heart melted into a puddle, and within the week we began the process of adopting Lexi. We became a family of six and our two girls, only 11 months apart, even slept in the same crib. We took Alexis to treatment and let her spend as much time with baby Lexi as she had the energy to do. Alexis passed away shortly after turning 24. It is still the toughest thing I have ever witnessed. To see someone so young who was so scared to die was absolutely gut wrenching. About 18 months after we adopted Lexi, she was adjusted enough that she could stay with my parents, and Steve and I went away for our anniversary. I was 31. On that trip, I did my first ever self breast exam and I found a lump. I wasn’t worried. I still thought I was invincible. I thought that lump was nothing; Steve wasn’t so sure. Four days later, I was diagnosed with the EXACT same type of aggressive breast cancer (ER/PR- HER2+) that took Lexi’s first mom. I was angry. Very angry. My kids had just witnessed Alexis die from this awful disease. How could this be happening? Was Lexi going to lose TWO moms to breast cancer before she even entered kindergarten? Not only did Alexis give us the incredible gift of Lexi, but she also saved my life. As she was dying, Alexis told me to make sure young women did self breast exams. If it wasn’t for Alexis, I would never have done that self breast exam. I wouldn’t have found that lump. I would have been dead long before my first mammogram at 40. After a double mastectomy, Adriamycin/Cytoxan chemotherapy, and a year of Herceptin targeted therapy, I was declared cancer-free. While I was thrilled to be alive, I was haunted by the idea of those that have to face this battle alone. I had zero experience and nothing more than a pipe dream about helping people after they were diagnosed, but I wrote a grant because I felt like I needed to do something. One afternoon I got back in my car and my phone was blowing up. It was announced on The Ellen Show, we were awarded the grant! The grantor was a billionaire out of Houston — not your typical foundation. And lucky for me, he believed in pipe dreams. My 501 (c)(3) nonprofit, Pink Ribbon Good (PRG), started providing healthy meals, rides to treatment, house cleaning essentials, and peer support services to four women battling stage IV breast cancer in Ohio. I’d deliver meals after dropping my kids off at school or between their sports practices. We delivered 10,250 meals that first year and we were so proud. I’m happy to report that in June 2023 we delivered our one millionth meal! What started as a crazy little pipe dream is now making sure brave fighters battling breast and gynecological cancers from San Francisco, CA to Buffalo, NY don’t have to travel this road alone. While this job isn’t always easy, it is such a privilege to get out of bed every day and know with every fiber of your being that you have found a way to put a purpose to your pain. To not be resentful of that pain, but instead see how it fueled what was to come next. Heather Salazar Pink Ribbon Good President & CEO Read More: Breast Cancer in Young Women: Common Questions Answered My HER2-Positive Breast Cancer Diagnosis The Cost of Breast Cancer Supporting Loved Ones with Breast Cancer: How to Offer Meaningful Help Metastatic Breast Cancer: Understanding the Significance of Stage IV On the Podcast: Breast Cancer Conversations Young and Diagnosed: A Journey to Motherhood & Parenting with Triple Positive Breast Cancer Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetups Free Events
- BEAUTY AND THE BREASTS
By Neil Vincent Scott she is not as pretty as she used to be just a few short months ago yet now she is so much more beautiful sparkling and shining with the illuminating colors of courage and unrelenting grit having run the gauntlet through the canyons of chemo drinking from the chalice of changes celebrating the various wigs the cute little hats the steadfast optimism tenacious and tireless in the face of changes and challenges she’ll be pretty again pretty soon her hair will come back her skin will come alive her appetite will return her energy will be restored life reclaimed with new breasts a lasting testament to a battle fought and won surrounded by family and friends overflowing with encouragement and love mostly love her soul deep beauty will magnify day by day with that smile that she never left behind despite being caught in the crossfire between courage and cancer from diagnosis to discharge her weapons were always loaded with Taxol Herceptin Zoloft and daily doses of letrozole like her I have bled the blood of faith and hope counting blessings not problems refusing to accept defeat having been in this war before with scars that cover my heart knowing the only way out is all in up, over and through navigating the labyrinth of blood draws doctor appointments disappointments sleepless nights temperatures that rose and fell we balanced the weight against the wait standing steadfast side by side celebrating courage and consequence knowing that storms precede the sunshine ever comes the sun through the darkness of the night through the questions that remain unanswered the memories that continually haunt and the dreams yet to be fulfilled ever comes the sun for beauty and the breasts Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetups Free Events
- The Link Between Breast Cancer and Back Pain: Insights from Dr. Tammaro
Understanding connections between breast cancer and seemingly unrelated symptoms like back pain is crucial for early detection and effective intervention for those diagnosed with breast cancer. Dr. Yolanda Tammaro, a board-certified general surgeon with distinguished fellowship training in breast surgery, offers insight into the potential link between breast cancer symptoms and back pain. Continue reading to learn about the possible links between breast cancer and back pain, how back pain is diagnosed and treated, and tips for managing back pain with breast cancer. Exploring the Connection Between Breast Cancer and Back Pain While back pain is not typically an early sign of breast cancer, it can be a concerning symptom in the later stages of the disease due to bone metastasis, tumor location, or treatment-related side effects. As breast cancer progresses to an advanced or metastatic stage (stage 4), it can spread to other parts of the body, including the bones. When breast cancer spreads to the bones, it can weaken the bones and cause pain or even fractures in the ribs, spine, and hips. According to Dr. Tammaro, this bone metastasis of breast cancer can ultimately lead to back pain. In some cases, a breast cancer tumor can directly press on the spinal cord or surrounding tissues in the back, causing direct back pain. Additionally, certain medications and therapies used to treat breast cancer, such as hormonal therapies like Faslodex and Femara, and chemotherapy drugs like Novantrone, can potentially cause back pain as a side effect. Those with a breast cancer diagnosis experiencing any new or worsening pain should be evaluated by a doctor promptly. If you notice any of the following symptoms that persist for more than a few days, you should seek medical attention: Persistent or severe back pain Back pain accompanied by other breast cancer symptoms like a breast lump, nipple discharge, or changes in breast appearance Back pain along with fatigue, nausea, constipation, irritability, thirst, or confusion Headaches, dizziness, or seizures Shortness of breath Jaundice or abdominal swelling Diagnosing and Treating Back Pain with Breast Cancer If someone is experiencing back pain, especially in conjunction with other concerning symptoms or a prior breast cancer diagnosis, Dr. Tammaro recommends that they undergo several diagnostic tests. A physical examination can help identify the nature and location of the back pain. Imaging tests like X-rays, CT scans, MRI, or bone scans can reveal if there are any abnormalities, fractures, or lesions in the spine or other bones that could indicate metastatic spread from breast cancer. Blood tests can also provide clues, as elevated levels of certain biomarkers like alkaline phosphatase or calcium may signal bone metastasis. If the imaging tests show a suspicious area, a biopsy of the spine or other affected bone may be performed to definitively differentiate between a benign cause and cancerous lesions from metastatic disease. In cases where an individual has a known breast cancer diagnosis, their clinical history is also a key factor. Dr. Tammaro shares that physicians will consider the breast cancer type, stage, previous treatments, and any new or changing symptoms holistically. Sudden onset of severe back pain in someone with metastatic breast cancer would raise high suspicion for disease progression, compared to someone with no cancer history presenting with typical musculoskeletal back pain. “Breast cancer patients experiencing back pain from metastatic disease face a complex array of physical and emotional challenges,” says Dr. Tammaro. “In my practice, I firmly believe that a multidisciplinary treatment approach provides the most comprehensive and effective way to alleviate their suffering.” By integrating conventional therapies like targeted chemotherapy, radiation, and bone-modifying agents with complementary modalities such as massage, acupuncture, and mindfulness practices, Dr. Tammaro shares, you can holistically address not just the cancer itself, but also the debilitating pain symptoms. Tips For Managing Back Pain with Breast Cancer Dr. Tammaro recommends taking a multidisciplinary approach to managing back pain. Combining medical interventions with self-care strategies and alternative therapies can help manage breast cancer-related back pain. Some tips for managing back pain associated with breast cancer include: Stay active with gentle exercise and stretching, as tolerated, to reduce stiffness and improve mobility. Apply hot or cold packs to the painful areas to provide temporary relief. Maintain a healthy diet with adequate calcium and vitamin D to support bone health. Consider complementary therapies like massage, acupuncture, or yoga to help relax the muscles and promote healing. Practice relaxation techniques such as deep breathing, meditation, or guided imagery. Follow instructions carefully when using medications for pain relief, whether over-the-counter or prescription, to avoid interactions with cancer treatments. Consult a physical therapist for specific exercises and postural advice to ease back strain. Use supportive devices like braces or orthotics if recommended to stabilize the spine. Seek emotional support from counselors, therapists, or cancer support groups to cope with chronic pain. Communicate openly with your cancer care team about the severity and nature of your back pain to adjust treatment plans as needed. Note: This article is designed to provide general information and not replace professional medical advice. Always discuss your options with your healthcare provider. Learn more about Dr. Tammaro: https://www.premiersurgicalnetwork.com/dr-yolanda-tammaro/ Learn More: Tips for Pain Management with Cancer Breast Cancer Symptoms Newly Diagnosed Metastatic Breast Cancer: Understanding the Significance of Stage IV Exercise and Breast Cancer The Importance of Physical Therapy During and After Cancer Treatment SurvivingBreastCancer.org Resources & Support: Join us for yoga, Pilates, and other mindfulness and movement programs! Weekly Support Groups On the Podcast: Breast Cancer Conversations The Benefits of Pilates for Breast Cancer Recovery
- To My Bosom Buddy
By June Gregorzek As a teenager all I wanted was breasts, But instead I got bumps, Where was the rest? I failed the pencil test my girlfriends could do, My pencil fell to the floor and hit my shoe. You stayed flat through my teens And into my marriage But grew when it was time for a baby carriage. My milk came in and you grew in size but I could hardly believe my eyes! Then you shrank again and stayed that way Until that very fateful day Menopause! I now have boobs Along with hot flashes and lots of moods! We made it through that But the time has come To say goodbye, I will only have one. You served me well But as we say ta ta, No ta tas for me But I’ll still have a TA! Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetups Free Events
- In the Middle
By Evelina Johnson Buendia WEDNESDAY, APRIL 11 Good moooorning. Just finished listening to Joyce Meyer this morning and her message for today was, “Don’t give up in the middle.” And that really hit home because, after the lumpectomy, I did my best to stay strong-minded. ’Cause, like Pastor O’Donnell just said, when you allow your soul to remain broken, that gives the enemy the perfect opportunity to take control. So praise God for the strength He gives me day by day to smile in the midst of my trials. Thank God for the strength to go on, thank God that I’m not sitting around feeling sorry for myself, thank God for reminding me that joy cometh in the morning and thank God that “I know” that I’m only being used for His glory. Yes! Father. Thank you for not allowing me to give up in the middle. ’Cause I could’ve easily turned on you when the report came back with a positive margin, or when the chemo would drain me, or even right now after losing a breast. Loooord, thank you for keeping me afloat and for not letting me give up in the middle. Amen. Connect with Evelina on Instagram Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetups Free Events
- I got you!
By Triona Lonergan There’s so much information, on what to do and say. “You’re strong,” “You got this,” “You’ll be fine.” I hear it every day. I try to be compliant. I appreciate the care. Things happen for a reason, right? I know that you are there. But I feel that I’m indebted, that the care comes with a price. And if I don’t accept your words, I’m just not being nice. See, it wasn’t meant the way I thought. I take things the wrong way. and I shouldn’t be offended, by the exact words that you say. I’ve learned to read between the lines. And interpret what you mean. So that I can truly get your point, While I remain unseen. But now I’d like to take the mic, I know you’ve done your best. Blue ribbons will be handed out, You won, you passed the test! See, I don’t want words of wisdom, or the positive cliché. Please just pause, and stop to listen To what I have to say. My body has betrayed me. I hate who I’ve become. My systems do not function. They no longer sync as one. I don’t have pain or symptoms. It manifests in thoughts so clear. My emotions just take over. You see anger, I feel fear I just want to say the things I feel. And let emotion flow. I don’t need for you to comfort me. I just want to let it go. And if I cry or contradict, don’t take that as a slight. I know you are supportive, it just doesn’t mean it’s right. Invisible and silent! How does that become your fate? And though others have gone through it Our journeys don’t relate. I’ll still make it easy for you. Explain and hold your hand. So that I meet you where it works for you… As you can’t meet me where I am. I will be fine, just like you said. Because I am so strong! And you can say, “I told you!” You knew it all along!! Now I thank you, and I’m sorry. God, I wish that you could see. In every fiber of my being It’s only happening to me. Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetups Free Events
- Uninvited Guest
By Lillibit Ray A routine appointment on a regular day. The sun blaring hot outside, Asphalt fuming, plants gone limp and gray. I remember thinking hell’s flaring up again. Why today? Inside the exam room doctor enters the room after a wait, and I’m told solemnly they’ve found a nodule in my breast. Not knowing what that is I say, “okay.” How bad could it be? “Cancer,” the doctor says, “is how bad it can be.” I imagine black cells, green cells collecting in a mosh pit of packed growth trampling and crushing the innocent cells keeping me alive. How do I engage this unwelcome visitor? What need I do to survive? Persistent, malignant masses hardened by hubris, sized as peas or walnuts offering little comfort when talking of tumors. Just cut it out. Remove the killer waste multiplying at death’s speed, accelerating in unnecessary haste. Rip out a lymph network supplying safe passage to unwanted posers. Threatening one’s safety. Feeling so healthy, I feel conflicted by the news. Bad juju indeed devastates my mellow moxie. Immortality suddenly a pipe dream. I can’t be dying inside. Ask the doctor, “are you sure this is right?” and she answers, “the tests don’t lie.” Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetups Free Events
- Cancer, I’m Talking to You!
By Jill Rackham Cancer I so wish you did not feature in so many aspects of life. But somehow you do and we know an early diagnosis causes much less strife. So now we must encourage others to always attend screening. And to see a doctor with any change anyone is feeling. We will fundraise to help pay for more cancer research. We want less hearts to have a feeling of being left in the lurch. We all know someone who has been through turmoil due to you. In the future we hope this changes and you don’t even affect a few. As once you are here you definitely seem to take hold. Hearing that word forever makes us feel cold. So we will do all that we can to ensure you stop affecting our lives. And through advances in medical research we hope one day you reach your demise. But in the meantime those of us with a diagnosis will do the best we can. Having a positive mental attitude can be tough but is always a good plan. Connect with Jill: www.jsrackham.com/poems Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetups Free Events
- Understanding Contrast-Enhanced Mammography
Contrast-enhanced mammography (CEM), also known as contrast-enhanced spectral mammography (CESM) or contrast-enhanced digital mammography (CEDM), is an advanced breast imaging technique that combines traditional mammography with intravenous contrast agents. The innovative approach offers a more detailed view than traditional mammography to improve the detection and characterization of breast abnormalities, particularly in people with dense breast tissue. It’s also particularly beneficial in identifying and evaluating areas of increased blood supply often associated with tumors. The CEM procedure is similar to a standard mammogram but with the addition of a contrast agent. It is a non-invasive procedure and usually takes about 30 minutes to complete. Continue reading to learn how contrast-enhanced mammography works, who should consider CEM, the benefits of CEM, and its potential risks and considerations. How Does Contrast-Enhanced Mammography Work? CEM involves administering an iodine-based contrast agent during the mammogram. The contrast agent increases the visibility of blood vessels and enhances the contrast between normal and abnormal tissues. The procedure includes taking two sets of mammographic images—one before and one after the contrast injection—allowing radiologists to compare and detect changes more effectively. Who Should Consider Contrast-Enhanced Mammography? CEM is particularly useful for: People with dense breast tissue People with inconclusive results from conventional mammography or ultrasound Individuals at high risk for breast cancer Benefits of Contrast-Enhanced Mammography Improved Cancer Detection One of CEM’s strengths is its enhanced diagnostic capability to detect cancers that may remain undetected in standard mammograms. With traditional mammography, tumors and dense tissue have a similar white appearance, leading to potential misinterpretations or overlooked cancerous lesions. The contrast agent injected for CEM highlights the cancerous areas more, making it easier to differentiate between benign and malignant lesions. This reduces the need for unnecessary biopsies and provides a more accurate diagnosis and treatment planning. Accurate and Earlier Diagnosis CEM provides clearer images, allowing radiologists to detect abnormalities with greater accuracy. It’s particularly important in the early detection of breast cancer, where identifying small tumors can be challenging with standard imaging techniques. Early detection is crucial, as it significantly increases the chances of successful treatment and survival. CEM is also pivotal in staging breast cancer, which determines the extent of the disease. Detailed images help identify the size of the tumor, its location, and whether it has spread to adjacent tissues or organs. This information is vital for clinicians to develop an effective treatment plan, tailor therapies to the patient’s specific condition, and predict the likely course of the disease. Evaluation of Treatment Response CEM helps healthcare providers obtain a clearer picture of how the tumor is responding to chemotherapy — whether it’s shrinking, remaining stable, or growing. This information is vital for planning the next steps in the treatment process. For example, if the tumor responds well and shrinks significantly, a patient might be eligible for less extensive surgery, potentially preserving more of the breast tissue. Conversely, if the tumor does not respond adequately, adjustments to the chemotherapy regimen or a reevaluation of treatment options might be necessary. Reduced Radiation Exposure CEM distinguishes itself from other advanced methods, such as breast X-rays, by employing lower doses of radiation. It’s particularly significant because it makes the technique a more viable option for routine breast screening. While advanced imaging methods like breast X-rays provide detailed insights, they often require higher levels of radiation or the use of other forms of energy, which can be a concern for patients undergoing regular screenings. Reduced radiation exposure decreases the potential risk of radiation-induced complications, aligning with the principle of minimizing radiation dose as much as possible while still achieving high-quality imaging results. Comparing CEM With Other Breast Imaging Techniques While traditional mammography remains a gold standard for breast cancer screening, CEM offers additional benefits, especially in complex cases. According to the National Institutes of Health, CEM is quicker and more cost-effective than MRI, though each modality has unique advantages depending on the clinical scenario. Risks and Considerations While CEM offers improved sensitivity and specificity in detecting breast lesions compared to conventional mammography, it also carries certain risks. Intravenous contrast agents introduce the possibility of allergic reactions, ranging from mild to severe, though such reactions are rare. Additionally, there is a risk of nephrotoxicity, where the kidneys could be adversely affected by the contrast medium, especially in patients with pre-existing kidney conditions. As with any form of mammography, there is also exposure to a low level of ionizing radiation, which carries a small risk of inducing cancer. It’s essential to balance these risks against the potential benefits of CEM, especially in complex diagnostic situations or for individuals at high risk for breast cancer. Patients should discuss their medical history and any allergies with their healthcare provider. Count On Us for Information, Resources, and Support Contrast-enhanced mammography represents a significant advancement in breast imaging, offering enhanced detection and characterization of breast lesions. By providing more detailed information, CEM plays a crucial role in the early diagnosis and treatment planning for breast cancer. Whether you’re newly diagnosed with breast cancer, are navigating survivorship, or are the loved one of someone experiencing breast cancer, you can count on SurvivingBreastCancer.org to keep you informed. We provide educational information to help you better understand symptoms, testing, treatment options, surgery, etc., and podcasts that feature professionals, advocates, and caregivers who share valuable information. Your donations enable SurvivingBreastCancer.org, a community dedicated to empowering those affected by breast cancer with knowledge, understanding, and a network of care, to offer resources and support every day, every month, and every year. Note: This article is designed to provide general information and is not meant to replace professional medical advice. Always discuss your options with your healthcare provider. Learn More: Breast Cancer in Young Women: Common Questions Answered Understanding Your Pathology Report: A Comprehensive Step-By-Step Guide Racial Disparities in Screening Mammography On the Podcast: Breast Cancer Conversations Inflammatory and Lobular Breast Cancer: Patient Advocates Share SABCS Insights SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetups Free Events
- Still...
By Ioulitta Savvidou Fall from the sky and above, Like a mourning black swan, My breath, my breast took it away, It was a rainy day. No one knows my pain, I missed my ride on a happy train. Still, I’m fighting every day, Still I’m figuring a way up to my old sky, A swan wrapped up in a new form, It reminds me of a bird thorn Still I’m fighting every day, Still I try to explain, is it me? Is it my fault? How is this gonna work? Can I eat a lollipop? Still I’m learning how to fly, From deep ocean to blue sky… Connect with Ioulitta on Instagram Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetups Free Events
- My HER2-Positive Breast Cancer Diagnosis
By Jessie Putre On March 13, 2024, I went to a private clinic to check a small lump in my breast that everyone was telling me was probably nothing. At that appointment, I was told that I likely had breast cancer. I had a mammogram, ultrasound, and biopsy at that appointment, and my results came in several days later. I was diagnosed with stage 2, grade 3 invasive ductal carcinoma – breast cancer. Not only that, but my cancer is also HER2 positive. Only 15-20% of women with breast cancer are diagnosed as HER2 positive. It is an aggressive form of breast cancer that carries a risk of recurrence. My world was instantly shattered. Sadness, disbelief, anger, and fear took over. One week later, on March 20, 2024, I underwent a total mastectomy of my right breast. It was all so surreal, and I kept asking myself, “Why is this happening to me? Am I going to die?” The mental journey was more challenging than the physical… I am still trying to process everything. Now what lies in front of me is chemotherapy, then radiation, all in combination with an antibody treatment for those with HER2-positive breast cancer, which I will have to do for a year. There are no guarantees of success with what lies ahead, but I’m trying to be optimistic and the doctors feel I stand a strong chance of making a recovery if I take all of these steps. I started chemotherapy on May 8, 2024, in addition to Perjeta and Herceptin. I have done two rounds so far. My second round was yesterday! I am hanging in there OK. I will be doing six rounds in total. I’m trying to remain positive and keep faith that once I get through all of this, the best is yet to come for me! I have such a new appreciation for life and for the people in my life, that’s for sure! Read More: HER2+ Breast Cancer Different Types of Breast Cancer The Psychological Impact of Breast Cancer: Strategies for Coping Cancer Is Not Going to Beat Me Next Thing Next, Following Your Heart On the Podcast: Breast Cancer Conversations Triple Positive Breast Cancer Under 30 Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetups Free Events
- Here We Go...
By Maria Montanile Here we go, time to test Do I have cancer of the breast? Every year, April/May Make the appointments and start to pray. If it comes back, I’ll be a pro Educated now and in the know. I’ll handle it, God will help He has given me so much wealth. I’m stronger now, know what to expect The pain had come but it had left. Here we go, it is my turn Wonder what I will learn. Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetups Free Events
- Nurse Navigators: Your Guide Through Treatment
By Amanda Kuller BSN, RN Nurse navigation is a fast-growing area of practice, and clinics are scrambling to bring navigators into their practices. This is because nurse navigators are experts within their specialty and work to help patients through chronic illnesses and high-risk treatment regimens. Essentially, they navigate patients and their support team through the maze of health care. Typically, nurse navigators are used the most in the medical oncology setting, as that is the team you will be with the longest, versus surgery and radiation treatments which are short-term relationships. When interviewing oncology teams for your treatment, it is important that you, the patient, ask about navigation services. Breast cancer treatment is complicated with many potential immediate and long-term risks, and the oncology nurse navigator is there to be your advocate. A nurse navigator’s responsibilities depend on the facility, but basic services should include education, side effect management, survivorship, and interdisciplinary support. Continue reading to learn more about how nurse navigators accomplish these responsibilities on your behalf. Education The internet is like the healthcare system: large, complex, and difficult to navigate. Your oncology nurse navigator is a reliable, evidence-based source of information on cancer processes and treatments. Many navigators will meet with you and your support team to have an in-depth conversation before you start treatment. Sometimes called chemo counseling, this session should cover a range of topics like how chemotherapy and immunotherapy work, side effects, and the dos and don’ts of treatment. The more support team members that can be a part of this conversation, the better. This will help to unite the clinical (nurse navigator) and non-clinical (family, friends, etc.) in their common goal of supporting you. The material covered isn’t meant to scare, but rather to empower you. Side Effect Management Often called “triage” by clinical staff, side effect management is one of the most important services nurse navigators perform. Most facilities will have a dedicated triage line for you to call to report symptoms and receive guidance. Keeping side effects minimal and manageable helps keep treatment on track. If side effects cannot be managed with at-home treatment tools, the nurse navigator will implement supportive measures as necessary. This could involve coming into the clinic for IV hydration, or simply sending in a new prescription to your pharmacy. The best-case scenario for you and the nurse is that you work together to prevent ER visits and hospital admissions. But this only works if you report symptoms. Remember, most side effects are possibilities, not certainties. Pro Tip: Make sure that a communication consent is signed that allows your support team members to speak with clinical staff about your care. Support team members should call in symptoms they are seeing if you are unable to, or if you are hesitant to self-report. Survivorship Navigation care does not end when chemotherapy ends. Side effects might persist or initially occur during treatment recovery. Plus, many patients transition to oral medication treatment, like aromatase inhibitors, and the nurse navigator should be available to you during this time. They will, however, create a treatment summary of the infusion treatment regimen you received. This is because many chemotherapy agents have a lifetime dose limit. For example, cyclophosphamide (Cytoxan) is one of the most commonly-used chemotherapies in breast cancer treatment, and it has a lifetime dose limit. The nurse navigator will create a care plan summary detailing which chemotherapy agents and amounts you received. You should receive a copy of this plan, and it will be kept on file with your oncology team. If you transfer care facilities, be sure to ask your care team for this information and keep it filed where you can access it easily. Interdisciplinary Support Most oncology navigation programs have recognized that the nurse navigator needs to be supported by a larger treatment team. This allows them to treat you not just as a cancer patient, but rather as a whole individual, because you are more than just your diagnosis. You may have other needs, like finding support groups, or assistance in finding wigs and other medical devices. Maybe you are facing financial hardship because of your treatment, or do not have reliable transportation. Perhaps you want to change your diet to support your body through treatment, but don’t know what’s a fad versus evidenced-based nutrition information. Many facilities hire social workers, patient navigators, and specially certified oncology dieticians to meet your unique needs. Oncology programs that are part of a hospital system can usually easily meet your needs because they have all these services in-house. That’s not to say that unattached programs do not have a way to meet these needs. Knowing whether or not there is a team dedicated to helping you through treatment is an important first step in choosing an oncology program. When choosing your care team, be sure to ask the oncologist who is supporting them to support you. Because you shouldn’t just survive treatment – you deserve to thrive. Note: This article is designed to provide general information and not replace professional medical advice. Always discuss your options with your healthcare provider. Author bio: Amanda Kuller has been a nurse for nine years and currently works as an oncology nurse navigator in the Scottsdale, AZ area. When not working or doing homework for her Masters in Nursing Education, she can be found with her nose in a book and a cat in her lap. Learn More: Newly Diagnosed Treatment Tips & Questions to Ask Your Medical Oncology Team Navigating Cancer Treatment: Top Tips from an Oncology Pharmacist Why a Second Opinion Matters for Breast Cancer Supporting Loved Ones with Breast Cancer: How to Offer Meaningful Help On the Podcast: Breast Cancer Conversations Building a Strong Relationship Between Patients and Their Medical Team SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetups Free Events
- After It’s Gone
By Vivi Delsole There’s something sad about a thumb-ringed checkout girl with a baby bump at CVS. There’s something odd about two actors making love on TV. There’s something good about devouring a plate of mashed potatoes at the Cracker Barrel. There’s something solid about a man sleeping on the stepdown ICU floor. There’s something tough about a woman emptying drains over the bathroom sink reciting a mantra of swears. There’s something beautiful about a yogini slow motioning her PT moves in the attic room. There’s something distant about a sister mothering her children in Minnesota. There’s something fresh about one hundred silk flower stems and a set of chewed-up pruners. There’s something loopy about arrangements made on the back porch at 1 AM. There’s something brutal about a new stitched up softball for a breast and a red gash across the belly. There’s something determined about two-hour bike rides with nosebleeds that once took 45 minutes without. There’s something ugly about a hairless reflection of a chemotherapy clone with a mooned-out face. There’s something seductive about silky scarves and big earrings. There’s something horrifying about a man in the mood. There’s something mystifying about hot flashes and night sweats. There’s something right about a candle flame dancing alone in the dark in the dead of winter. Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetups Free Events
- MY BREAST CANCER: DISCOVERY
By Susan Angoy I booked a private mammogram for 12:30 p.m. on October 20, 2021. This was just to be on the cautious side, you understand. It had been three years since my previous scan, and there was a backlog in the NHS screening program due to Covid. One of my sisters had been diagnosed with stage 2 breast cancer earlier in the year, so I thought I should have a scan. I had been experiencing some pain in my right tit and underarm, but of course, everyone knows that you don’t feel pain from breast cancer. Or so I (mis)understood. A regular routine scan is what I thought I was going for. After all, it couldn’t happen to Susan. No sirree! Susan and her tits were invincible. Weren’t they? I sat in the waiting room of the clinic, waiting for the radiologist to review my mammogram before getting the all clear that would allow me to skip off to do a spot of shopping. I had not been to Selfridges since pre-Covid days so I sat making a mental list of what I might treat myself to. I planned to indulge in some retail therapy. So certain was I that the technician would come to let me know I could leave with a report of immaculate and healthy tits, I was looking forward to my shopping trip – not an activity I normally enjoy. I was thus unprepared for the nurse who came to tell me that the consultant radiologist wanted to do an ultrasound and physical examination of my perfectly formed elevations. Even those words failed to alert me to what was to follow. “Have you lost weight recently?” the kind nurse asked me. You’d think that by now I might be a tad anxious, but no. After all, Susan was invincible. As it happened, I had lost a little weight, but that was because I’d been experiencing a lot of nausea, headaches, and weird dizziness, so I had been eating very little for three weeks or so. I put those symptoms down to some bug I must have picked up. A nuisance, but nothing to be concerned about. I was so unconcerned that I failed to mention any of this to the nurse. What followed was the start of the nightmare I continue to live through. Not a nocturnal nightmare confined to sleeping hours, but one that envelops my every waking moment. I don’t sleep much. In fact, I’d say I hardly sleep at all. “I think you may have a carcinoma in your right breast, based on the mammogram, ultrasound and my physical examination. There is a palpable mass that looks very suspicious and not one for which I can immediately find an alternative explanation. I’m very sorry to tell you this. You understand, I have to tell you.” Those were the consultant’s words. He went on to explain that I would need to have a biopsy to confirm his suspicions, and to indicate the grade and stage of the tumor and to identify its receptors. I stared at the doctor. I heard the words, but failed to fully take them in. For a change, Susan was speechless. You hear stories of people being in shock when receiving bad news. Now I really understand the meaning of those words. He realized I was in shock and gently explained my options and next steps. I could remain within the private sector; alternatively, they would immediately refer me back into the NHS. Given that my local hospital was University College London Hospital, I would be assured of excellent and swift treatment. He went on to say that if I were his relative, his advice would be that I should be treated within the NHS on the urgent Cancer Pathway 2-week referral. He advised me that his report would be with my GP within half an hour and that I should contact the GP that afternoon. I agreed that this would be the best option and left the clinic. I left. But I was still the deer caught in the headlights. All thoughts of retail therapy had vanished from my brain. I wanted to cry but couldn’t. My only action was to order an Uber to get me home as quickly as possible. Although it was only 2:00 p.m. I wondered if I should mix a stiff gin and tonic to steady myself. But even that was impossible. The damn nausea I was having made it impossible for me to drink anything more than a glass of water when I got home. From the moment I got back, things moved very quickly. By 3:00 p.m. my GP, Dr. Jessica Baron, rang me, having received the report. She told me that she had already sent the referral to UCLH on the Cancer Pathway, but asked if I wanted to come in to talk to her and to be examined. All props to my GP practice, the James Wigg Group Practice and especially Dr. Baron. I saw no point in any further examinations and didn’t want to waste her time going over what I’d already been told. She explained the process in a caring and gentle manner. She told me that it looked like it had been caught early and that I shouldn’t worry too much. There were excellent advances and treatments available. Only part of my brain took in what I was being told. If I had experienced nausea in the weeks before that date, they were nothing in comparison to what I felt listening to her words. The reality was gradually penetrating my consciousness. The unthinkable had happened. My precious tits had been attacked and a major assault would be forthcoming. The following day I received a phone call from UCH Macmillan Cancer Centre to book an urgent appointment in their breast clinic. Immediately after taking that call, I went online and bought a series of expensive and very sexy bras. I had no impending “hot date” or specific reason for buying them that day. But somewhere hovering in my brain was the thought that perhaps time was running out for me to wear my favorite items of lingerie. Funny how such trivial things can come into your mind at the most serious moments. A very senior medical friend and my oncologist cousin talked to me about the excellent survival rates for early-stage breast cancer, how treatments have advanced – including their side effects. They spoke of how surgical intervention could be minimal if caught at a sufficiently early stage, etc. They may be eminent physicians, but they are both men. How could they understand? I heard the words, but my brain looped back to my thoughts of decades earlier. I am not a young woman at the start of her emotional and sexual life, but I am a woman. I am a woman who has been a widow for two and a half years and have just started getting my life back together again, making plans for my future. I am a woman who has recently begun to take tentative steps towards breaking a long period of celibacy, hopeful of forming new attachments and having adventures. These are difficult spaces to navigate at the best of times. I feel out of step. I’ve forgotten the rules and the mystical ways of attracting and engaging with others in a romantic and erotic context. Now this. Why? How could I ever be the same again? I might stay alive, but what would that life be like? Would I still feel feminine? Would I still be desirable – to myself, let alone to anyone else? What will my body look like when the surgeon, radiation, and drugs have finished with me? Will I still feel anything? Anyway, how does anyone know it was caught “early enough?” At times, I rage. Other times, I weep. At times, I feel vain and petty worrying about these issues when the medical teams are focused on my survival and trying to reassure me about the curability of early-stage breast cancer. Other times, I think of women whose cancer has not been detected early. But none of that changes my reality. A few days after that phone call, I sat in the UCH Macmillan Cancer Centre in Huntley Street, London. I sat on the same seat where I’d spent nearly three years, from 2015 to 2018, waiting with my late husband for his appointments. He had been diagnosed with stage 4 prostate cancer and died in the Hampstead Marie Curie Hospice in early 2019. I looked at the cheerful bright mosaic floor in the waiting area and those years came flooding back as if they were yesterday. Not only was I living my own reality, but I was catapulted back into all those weeks, months and years of anguish and grief. This time, I sat alone. Waiting. Connect with Susan: Blog Read More: Newly Diagnosed Why a Second Opinion Matters for Breast Cancer 9 Early Warning Signs of Breast Cancer You Shouldn’t Ignore Understanding Your Pathology Report: A Comprehensive Step-By-Step Guide Navigating Cancer Treatment: Top Tips from an Oncology Pharmacist On the Podcast: Breast Cancer Conversations Finding Your Voice With Brenda Denzler & Elaine Schattner Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetups Free Events
- To The Amazons
By Cindy Farmer I will not write of grief today but of battles fought under pink banners flying tattered and worn breast plates cover tattooed nipples like mighty armor war paint marks demarcation lines for knife and beam a pound of flesh sacrificed on a sterile altar multi-colored skull caps cover slick bald heads shaved for combat and secret doors enter veins where magic potions fuel war can you hear the savage cries loud and long there will be no peace talks, treaties or white flags of surrender Mighty Warriors Fight with ever grateful breath through forced smiles and weary eyes gaze into an unknown future Manifesting the day when the Victory Bell will sound Share your poetry: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetups Free Events
- Cancer in a Pandemic
By Wendi Gwaltney What do you do when one of your best friends calls you to tell you she has stage 2 breast cancer? I will call her Mary for the sake of privacy. She was 52 years old at the time. We had been friends since we were 12. I wanted more time. The emotions flowing through your body are immeasurable. What do you say? What do you do? How can I help you? As a nurse, I knew her prognosis was good, but I was still scared. The desire to run to her house and hold on tight ran through me. In 2020, to hold someone tight was out of the question. Amid a pandemic, cancer strikes! Covid-19 was breaking records globally. Vaccines were not yet available. People were dying! How can I help without making it worse? I am a nurse. Although my time at the bedside was limited, I was still at risk of contracting this contagious disease. Mary is a humble soul. She appreciates offers of assistance. She asks for nothing. We talked and texted frequently during this time. She said she would listen to music on her phone during her treatments but did not have earbuds. As a fan of Amazon Kindle, I ordered her a Fire tablet and a set of Bluetooth earbuds. I shared with her different books that I was reading or listening to. I told her about Amazon Prime’s benefits, including books, music, and videos. It gave us something to talk about other than her cancer and treatments. Mary would discuss her cancer. She talked about how the cancer treatments made her feel. She told me about recommendations from her care team to help her manage the side effects of chemotherapy and radiation. I think it was during her second round of chemotherapy that she became ill with a respiratory infection. No, it was not Covid. Pneumonia was bad enough in her weakened state. She was hospitalized in September 2020 for a week. This was just a couple of weeks before her birthday. Due to Covid quarantines, a social gathering for her birthday could not happen. My husband and I put together a celebration. We delivered dinner, a cake, flowers, and balloons. The items were placed at her door, and we quickly moved away. Pictures were taken. She was thinner and wearing a scarf. She was beautiful! At one point, her care team decided to stop chemotherapy. After a few weeks of recovery, she had radiation and a lumpectomy. She continues to take Tamoxifen. Today, her beautiful hair has grown back. She even has to get it trimmed to keep it tidy. She maintains her weight. She enjoys spending time with her husband and son. I asked her recently if I had tried to do too much with the Amazon gifts. I admitted that I did not know what to do to help. In her usual modest self, she expressed her appreciation that I was there for her. Mary, I will always be grateful for your steadiness in my life. You are a survivor and a leader! Thank you for being my friend! Read More: Supporting Loved Ones with Breast Cancer: How to Offer Meaningful Help Cancer Etiquette: How to Talk With Loved Ones About Their Breast Cancer Navigating Relationships After a Breast Cancer Diagnosis Navigating Cancer Treatment: Top Tips from an Oncology Pharmacist On the Podcast: Breast Cancer Conversations Granting Wishes Brings Joy with Elesha Snyder & Jan Hillman Share your story, poetry, or art: https://www.survivingbreastcancer.org/submit-breast-cancer-story SurvivingBreastCancer.org Resources & Support: Podcast Weekly Meetups Free Events